Has anyone got a maw trip without a life threatening problem?

[eeyorelori]

Also check your son's IEP to see what's been written. If part of his education plan is to use or try new equipment to further his physical progress, then it HAS to be provided by law. There are lots of protections and services for disabled children. I agree with Sue- contact the head of Special Ed. in your school district. I was an O.T. in the school system and your child shouldn't suffer due to a failed contract.---Kathy

There isnt anything in his iep about equipment ..We always got our stuff from easter seals ..I guess i will call the school on monday and tell them what i have been told and say you dropped the contract now you find equipment for him to borrow... I have a appointment on monday with easter seals to see if he can walk with them but i dont think they will let me borrow them ..But i am worried itll take 10 months again like it did the wheel chair and walker ...thanks for all the help and ideas ..More phone calls ...

Lori

 

[eeyorelori]

We saw the pt monday and ds got to borrow a pair of crutches. He was all over with them but i started an incentive calendar and he gets a gold star and in a 2 week span we are giving him a dollar .. It worked well with getting him in underware and has been potty trained since june ..So if it works i will do anything to get him to walk ..Any hoo I set him up with extra pt with easter seals so they dont take them back right away but omg he made me cry ..We did it this morning and he did so good ..His balance is what the cp effects and he can stand like 3 seconds before he goes down ..Today he stood for 50 seconds.and walked about 8 feet turned around and walked back i just put my hands on his shoulders for very little support.He did great with them ...I cant wait its finally coming around ..Maybe he will walk ......

 

[dclfun]

Lori- wow...your post brought tears to my eyes. I'm so glad you got the crutches and that your son is making such wonderful progress already. I'm so sorry you had to go through so much to get something so desperately needed.---Kathy

 

[eeyorelori]

Lori- wow...your post brought tears to my eyes. I'm so glad you got the crutches and that your son is making such wonderful progress already. I'm so sorry you had to go through so much to get something so desperately needed.---Kathy

Thanks Kathy we have been waiting sooo long for these days ..he is 7and a half and just got potty trained and now on to the walking ....My brother told me hed walk and since he took his own life last year its been a very rough year for my whole family and when i saw him walking it just brought tears like my brother is there walking him ...Sorry its been hard and his anniversary just was sooo its been a tearful year..But the last week has been GOOD TEARS...[Love ya Bro ] he has the crutches one week and goes back today [wensday] so im curous to see what the pt says......thanks ..

 

[SueM in MN]

sounds like a successful trail.
Good luck.

 

[eeyorelori]

we saw the pt yestarday.she said he lookied good walked well and stood along time for her also He wants to darn near run with them ..He looks great and always such a big smile for doing it ...She said to keep practiceing and wed go from there ..The lady that was doing the maw trip said the doc will be there on sept 18 so keep your fingers crossed for us that the doc will sign them and we will go from there ..Thanks for all the help .