Going to Disney with type 1 diabetes

Swirly girls

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Sep 4, 2012
Messages
165
My daughter ( she is 15) was just diagnosed with type 1 diabetes. Prior to her diagnosis we were planning on a trip to Disney world late next fall. We will be staying on Disney property.
I'm looking for any advice, or suggestions.
I have heard disney gives passes for these kinds of disabilities. Is this true, and if so, what are they exactly and how do they work?
Any help with appreciated. Thank you
 
and have never considered it a disability. Yes, it's a chronic disease, but with proper monitoring, he can do whatever he wishes, with a few exceptions. So, no, we've never asked for any "pass" or anything. He can wait in a line just like everyone else.;)

He was diagnosed at age 5 and we go to WDW several times a year. We store insulin in the fridge sometimes at First Aid and request to be near the food court in our resort. Sometimes a CM will bring us some bread or crackers if he's dropping and our food hasn't arrived. But otherwise, we get along just fine.

I hope all goes well with your trip. Consider downloading a carb counter to make things a little easier.
 
Yes, type 1 diabetes is a disability as defined by ADA. Can the guest assistance card do anything to help.....prob. not. I'm sure you'll do just fine with proper planning and frequent BG checking. The only time I can see a problem is with severe lows while waiting in line or during your Fastpass return window. If you need to leave a line because of a crash, I would ask a CM if you could get a Fastpass to return without waiting again. Normal lows can usually be handled with snack you've got on hand.
Have fun!
 
The 'pass' you are asking about is a Guest Assistance Card, which is a communication tool to help CMs know what sorts of assistance guests need related to their disabilities.
It is not a pass and is not meant to shorten waits.

You can find out more abut GACs in post 6 of the disABILITIES FAQs thread - near the top of this Nord orvfollow the link in my signature.
 

What others are saying is "What special needs does your child have because of the Diabetes?"

And we are saying if they are relatively healthy, they don't really have any.
They can walk and stand in line like most people.
They are allowed to bring snacks with them if they have low blood sugar.
They are allowed to bring a Frio Wallet or the like to keep their insulin cold.
They are allowed to bring their BG Monitor to keep track of their blood glucose.

Now if your child had neuropathy due to diabetes complications or did not have enough stamina to walk, then they would recommend a wheelchair for that.
or if high heat affected your child's blood sugar levels, then perhaps a GAC would be needed to let them wait in a shaded area.

The GAC is intended to provide the same access to WDW for those who need it, but what does your child NEED to be able to have access to WDW?
If it is "poor child, they have a health issue, they deserve to walk to the front of the line" then so do all the other people with asthma and Diabetes and etc. etc etc. If it is "poor child, they have life-threatening health issue, they deserve to walk to the front of the line" then you go to Make-a-Wish because they do deserve it.


Also, another thing you could think about as a parent...Do you want your child to think of Diabetes as a "I have diabetes, i can't do things like a "normal" person" or "I have diabetes...I have a health issue I have to monitor but I can do just about anything I want."

-bopper, wife of a Type 1 Diabetic for 25 yrs
 
What others are saying is "What special needs does your child have because of the Diabetes?"

And we are saying if they are relatively healthy, they don't really have any.
They can walk and stand in line like most people.
They are allowed to bring snacks with them if they have low blood sugar.
They are allowed to bring a Frio Wallet or the like to keep their insulin cold.
They are allowed to bring their BG Monitor to keep track of their blood glucose.

Now if your child had neuropathy due to diabetes complications or did not have enough stamina to walk, then they would recommend a wheelchair for that.
or if high heat affected your child's blood sugar levels, then perhaps a GAC would be needed to let them wait in a shaded area.

The GAC is intended to provide the same access to WDW for those who need it, but what does your child NEED to be able to have access to WDW?
If it is "poor child, they have a health issue, they deserve to walk to the front of the line" then so do all the other people with asthma and Diabetes and etc. etc etc. If it is "poor child, they have life-threatening health issue, they deserve to walk to the front of the line" then you go to Make-a-Wish because they do deserve it.


Also, another thing you could think about as a parent...Do you want your child to think of Diabetes as a "I have diabetes, i can't do things like a "normal" person" or "I have diabetes...I have a health issue I have to monitor but I can do just about anything I want."

-bopper, wife of a Type 1 Diabetic for 25 yrs


As a parent of a newly diagnosed type 1 daughter, I'm probably more sensitive right now about this then I will be down the road, but I must tell you, that you came off very rude and insensitive.

Of course we are not going to let this limit what she can do, or we can as a family. However, because of this it does change the way we do things -- it has to somewhat for her safety and well being.

You know nothing about her health condition, or what she goes thru every day, both physically and emotionally.

Until you, as a mother, see your child poked several times a day, and watch your child give herself a insulin injection, I don't think you should tell me, how it's no big deal.

We will not be limiting her lifestyle-- there isn't anything she can't do, except make insulin!

I had read somewhere about it, but had no idea what, or how it worked, or even what it was really for.

I just asked for FRIENDLY advice about it because I didn't know.
And ya know something else? If I can do something a little extra, to make my child forget about the daily burden and worrying that diabetes type 1 has, even if its for just a few moments. you bet I will. She, and every other child that has some sort of health issue deserves to feel a little special for what they go thru every day.
And, if you can't understand that , or judge me for that, then I feel very sorry for you.
 
As a parent of a newly diagnosed type 1 daughter, I'm probably more sensitive right now about this then I will be down the road, but I must tell you, that you came off very rude and insensitive.

Of course we are not going to let this limit what she can do, or we can as a family. However, because of this it does change the way we do things -- it has to somewhat for her safety and well being.

You know nothing about her health condition, or what she goes thru every day, both physically and emotionally.

Until you, as a mother, see your child poked several times a day, and watch your child give herself a insulin injection, I don't think you should tell me, how it's no big deal.

We will not be limiting her lifestyle-- there isn't anything she can't do, except make insulin!

I had read somewhere about it, but had no idea what, or how it worked, or even what it was really for.

I just asked for FRIENDLY advice about it because I didn't know.
And ya know something else? If I can do something a little extra, to make my child forget about the daily burden and worrying that diabetes type 1 has, even if its for just a few moments. you bet I will. She, and every other child that has some sort of health issue deserves to feel a little special for what they go thru every day.
And, if you can't understand that , or judge me for that, then I feel very sorry for you.

"Friendly" advice:

A GAC is not to intended to make a child "feel a little special" it is intended to provide equal access to those with disabilities/needs.
 
and have never considered it a disability. Yes, it's a chronic disease, but with proper monitoring, he can do whatever he wishes, with a few exceptions. So, no, we've never asked for any "pass" or anything. He can wait in a line just like everyone else.;)

He was diagnosed at age 5 and we go to WDW several times a year. We store insulin in the fridge sometimes at First Aid and request to be near the food court in our resort. Sometimes a CM will bring us some bread or crackers if he's dropping and our food hasn't arrived. But otherwise, we get along just fine.

I hope all goes well with your trip. Consider downloading a carb counter to make things a little easier.


Thank you, that is good to know. We've been to Disney before. In fact, we just went in October -- before she started having problems and diagnosed.
We aren't going until late next fall. Right now, it's all very new to her and us as a family. We're still adjusting, and getting into the groove of all this :) I'm sure by the time we go, we will have a better handle on things.
Thank you !!
 
Type 1 here, just a bit younger that your daughter when I was diagnosed. Others are correct that there's not really much the GAC can do to help - and that's a good thing! There are other Type 1's and parents among the regulars here and their advice will probably help you more than mine will, since I'm an adult and a longtime pumper (sounds like she's on MDI, right?). But here are my best bits.

Test, test, test. I test twice as much on vacation as I do at home, especially a walking-intense vacation like WDW. Basically, I test whenever I have a minute to sit down and take the meter out. And if you have a better meter than mine, you don't even need to sit. The technology has come so far since I was your daughter's age! I remember blotting and waiting 60 seconds and all that folderol. Bring more strips than you think you'll need.

It's REALLY easy to ignore symptoms (both high and low) with all the distractions at WDW. Any funny feeling may be a symptom, even if it's not one you normally get.

Don't get dehydrated! I bring a refillable water bottle and make myself drink even when I'm not thirsty.

Unfortunately, Be Our Guest is the only WDW restaurant that provides carbohydrate information, so if you're not experienced with estimating carbohydrates, bring along a good guide (others use phone apps, but I haven;t caught up with that tech yet). Prepackaged food like Mickey ice cream bars have the usual nutrition labels.

Frio insulin wallets are great. As a pumper, I don't usually need to carry vials with me all the time, but I use them for the trip down with great success.
 
"Friendly" advice:

A GAC is not to intended to make a child "feel a little special" it is intended to provide equal access to those with disabilities/needs.
I never said the GAC card did -- go back and read first before you post incorrect quotes.
Some body on another forum said that it helped to make things a little easier, or at least piece of kind that if needed, it was there to assist them.
I never intended to sound like the gas would make a child feel special ...
i said as a parent will look for, and do whatever I can do for my daughter whether it to be big, or small to help my kid feel special, to forget about the daily struggles that she goes through. She deserves that. So does any other kid dealing with health issues. At Disney world, or anywhere else.
 
Type 1 here, just a bit younger that your daughter when I was diagnosed. Others are correct that there's not really much the GAC can do to help - and that's a good thing! There are other Type 1's and parents among the regulars here and their advice will probably help you more than mine will, since I'm an adult and a longtime pumper (sounds like she's on MDI, right?). But here are my best bits.

Test, test, test. I test twice as much on vacation as I do at home, especially a walking-intense vacation like WDW. Basically, I test whenever I have a minute to sit down and take the meter out. And if you have a better meter than mine, you don't even need to sit. The technology has come so far since I was your daughter's age! I remember blotting and waiting 60 seconds and all that folderol. Bring more strips than you think you'll need.

It's REALLY easy to ignore symptoms (both high and low) with all the distractions at WDW. Any funny feeling may be a symptom, even if it's not one you normally get.

Don't get dehydrated! I bring a refillable water bottle and make myself drink even when I'm not thirsty.

Unfortunately, Be Our Guest is the only WDW restaurant that provides carbohydrate information, so if you're not experienced with estimating carbohydrates, bring along a good guide (others use phone apps, but I haven;t caught up with that tech yet). Prepackaged food like Mickey ice cream bars have the usual nutrition labels.

Frio insulin wallets are great. As a pumper, I don't usually need to carry vials with me all the time, but I use them for the trip down with great success.

Oh, great advice! Thanks so much. She may have a pump by that time. We do have a very guides with all kinds of foods with the carbs/ grams.
All five of also have some apps on our iPhones too.
Thank you!
 
As a parent of a newly diagnosed type 1 daughter, I'm probably more sensitive right now about this then I will be down the road, but I must tell you, that you came off very rude and insensitive.

Of course we are not going to let this limit what she can do, or we can as a family. However, because of this it does change the way we do things -- it has to somewhat for her safety and well being.

You know nothing about her health condition, or what she goes thru every day, both physically and emotionally.

Until you, as a mother, see your child poked several times a day, and watch your child give herself a insulin injection, I don't think you should tell me, how it's no big deal.

We will not be limiting her lifestyle-- there isn't anything she can't do, except make insulin!

I had read somewhere about it, but had no idea what, or how it worked, or even what it was really for.

I just asked for FRIENDLY advice about it because I didn't know.
And ya know something else? If I can do something a little extra, to make my child forget about the daily burden and worrying that diabetes type 1 has, even if its for just a few moments. you bet I will. She, and every other child that has some sort of health issue deserves to feel a little special for what they go thru every day.
And, if you can't understand that , or judge me for that, then I feel very sorry for you.
As a type 1 diabetic of 30 years the poster just gave it to you straight. A GAC really can't do anything for your child. It won't shorten wait times.
Carry snacks, carry your meter and test frequently and carry your insulin. First aid will refrigerate for you if you need it. Depending on the temperatures I do that. Frio cases are great. I actually can keep all I need except the snacks in a glasses case that fits in a pocket of my camera jacket.

The biggest problem I have is with ADRs as they are not true reservations and it may take some time to be seated. If you eat a snack then you have to forego some of the food adjusting your carbs to fit the snack and the meal.

At your daughters ago she should quickly learn to care for herself without your help. Just be there to support her.
 
My husband has been a Type 1 diabetic for almost 35 years. He was diagnosed at 12. I'm also a special education teacher in my non-Disney life and have had students your daughter's age with Type 1 diabetes (the reason they were in special ed. had nothing to do with diabetes). I also had gestational diabetes during both of my pregnancies that required me to give myself insulin shots multiple times a day.

I also have a child who was born with a severe congenital heart defect and tracheal defect that required open heart surgery and tracheal reconstructive surgery at 4 months old. A year ago she was recovering from her surgery after spending a month at a hospital in Chicago (we live in Rochester, NY). It's hard to watch your child experience those things so I see where you are coming from.

That being said, I agree with the sentiment of other posters. Diabetes is going to be part of your daughter's life for a long time. The most important thing is for her to own her body and her condition, to be educated about how to treat it and to monitor it. The more you treat it as part of every day life, the easier it will be to deal with, especially when going somewhere like Disney. She will already have an idea of what normal should feel like given that it's almost a year until your vacation. My husband said that the pediatrician who diagnosed him gave him the best advice "You are your own best doctor."

My husband carries a tube of glucose tablets in his pockets (they actually taste pretty good). He said that when he was her age, he carried Lifesavers (less conspicuous). I'm sure her doctors will tell her and you that when you have a real low - stick with short-acting simple sugars (regular soda, juice, hard candy, etc.). Chocolate takes a lot longer to be assimilated. My husband also said that she may have to adjust her insulin dose at Disney because her activity level may be different. As others have said, test a lot!
 
hi Swirly, welcome to type 1 diabetes.

We've done disney with diabetes more times than I can remember now. It's not all that horrible. :) You'll do great. I know it seems so overwhelming now, but in a year you'll be such an old pro at it you will wonder why you worried. :)

We've never found any reason for a GAC - one year we asked for one to wait out of the sun, since we were there in July, and that was pretty useless. We tend to have a good touring plan which eliminates any waits for rides, even at the busiest times of year. We try to test before rides, though, we test right in the ride. Sometimes we will purposely pick a longer ride so that we can have some down time to bring up a marginal blood sugar. I am trying to remember but I think we've only had to pass on one ride and when we got to the front we told the CM that our son was having a low and we couldn't get on at the moment and they just gave us a FP for a return. so in hundreds of rides, I think I remember once it being an issue.

Pack two or three times as much stuff as you think you'll need. Test strips, batteries, insulin, glucose tabs

Be prepared to test twice as much as you do at home.

Get a frio case for your insulin (unless your daughter is pumping by then, then we don't bring vials into the park).

Carry glucose tabs with you at all times

Carry glucagon with you at all times.

Have her wear a medic alert bracelet

Carry something like a granola bar or pb crackers / cheese crackers with you as well.

Unless you're using NPH, meal times shouldn't be a problem. Just don't expect to get seated exactly when you think you're getting seated - don't take insulin before you're in teh restaurant with your food in front of you.

Blood sugars will be crazy while you're on vacation. Restaurant foods do a number - they're high in fat and that gives you a delayed fat spike. the good thing is that all the walking you'll be doing will bring her blood sugars down and the fat spike at night will help with that.

Mickey bars are the ultimate bed time snack. Regular ice cream works well too. Same reason as above, lots of fat to counteract all the exercise induced lows.

Watch for adrenaline highs from the excitement. Treat those cautiously. They usually crash later.

Just plan ahead. Carry what you'll need. Don't assume you'll be able to get it there.

Oh and watch out for overly cold room fridges. They've been known to freeze insulin.
 
As the mom of an old-ly diagnosed child (almost 9 years now) I don't know that you will be less sensitive about this down the road - LOL!

I don't know what people get their undies bundled in a knot over getting a GAC for a person with type 1 diabetes. Honestly - that is between her and the cast member at Guest Services.

One of the most prominent organizations for those with type 1 diabetes holds its annual conference in Orlando in the summer - and on Disney property every other year. They have CM's (Disney employees) come to the conference and they sit right at conference registration to assist families who want to get a GAC. The conference organizers recommend getting a GAC for those with type 1 - especially in certain circumstances.

The level of misinformation on this thread is not very helpful to anyone. I have a child with type 1 - and he has gotten a GAC - and it HAS helped. I think it should be remembered that a GAC is given to meet a need - not for a medical diagnosis. I think you have to cut the OP some slack in not phrasing it beautifully or knowing exactly what her needs are at the moment. She probably won't know EXACTLY until she gets there.

Seriously people!

As for advice - your best bet is a good touring plan so you can avoid the crowds. (I like Tour Guide Mike even though his site is dated it is still helpful - and easyWDW.com) With kids in school it can be hard to go at times that are off-peak or not boiling hot - but it helps if you can. Going in late Fall should help. By the time you go - there is all this talk of the fast pass plus program. This would be great to be able to get some reservations for those headliner attractions. At Universal if you stay on-site you can get an unlimited express pass for most attractions - FYI

Two links:
Here is the Disney with Type 1 link: http://allears.net/pl/diabetes.htm as an update to what they say in their website - they go to the CWD conference every year now!

Here is some info from the CWD site and GAC's: http://www.childrenwithdiabetes.com/dteam/2006-03/d_0d_dqa.htm
http://www.childrenwithdiabetes.com/dteam/2004-03/d_0d_bu3.htm

You can always email or PM me.:thumbsup2
 
As the mom of an old-ly diagnosed child (almost 9 years now) I don't know that you will be less sensitive about this down the road - LOL!

I don't know what people get their undies bundled in a knot over getting a GAC for a person with type 1 diabetes. Honestly - that is between her and the cast member at Guest Services.

One of the most prominent organizations for those with type 1 diabetes holds its annual conference in Orlando in the summer - and on Disney property every other year. They have CM's (Disney employees) come to the conference and they sit right at conference registration to assist families who want to get a GAC. The conference organizers recommend getting a GAC for those with type 1 - especially in certain circumstances.

The level of misinformation on this thread is not very helpful to anyone. I have a child with type 1 - and he has gotten a GAC - and it HAS helped. I think it should be remembered that a GAC is given to meet a need - not for a medical diagnosis. I think you have to cut the OP some slack in not phrasing it beautifully or knowing exactly what her needs are at the moment. She probably won't know EXACTLY until she gets there.

Seriously people!

As for advice - your best bet is a good touring plan so you can avoid the crowds. (I like Tour Guide Mike even though his site is dated it is still helpful - and easyWDW.com) With kids in school it can be hard to go at times that are off-peak or not boiling hot - but it helps if you can. Going in late Fall should help. By the time you go - there is all this talk of the fast pass plus program. This would be great to be able to get some reservations for those headliner attractions. At Universal if you stay on-site you can get an unlimited express pass for most attractions - FYI

Two links:
Here is the Disney with Type 1 link: http://allears.net/pl/diabetes.htm as an update to what they say in their website - they go to the CWD conference every year now!

Here is some info from the CWD site and GAC's: http://www.childrenwithdiabetes.com/dteam/2006-03/d_0d_dqa.htm
http://www.childrenwithdiabetes.com/dteam/2004-03/d_0d_bu3.htm

You can always email or PM me.:thumbsup2

I just read your links, and they don't contradict what has been said in this thread about the GAC.
 
hi Swirly, welcome to type 1 diabetes.

We've done disney with diabetes more times than I can remember now. It's not all that horrible. :) You'll do great. I know it seems so overwhelming now, but in a year you'll be such an old pro at it you will wonder why you worried. :)

We've never found any reason for a GAC - one year we asked for one to wait out of the sun, since we were there in July, and that was pretty useless. We tend to have a good touring plan which eliminates any waits for rides, even at the busiest times of year. We try to test before rides, though, we test right in the ride. Sometimes we will purposely pick a longer ride so that we can have some down time to bring up a marginal blood sugar. I am trying to remember but I think we've only had to pass on one ride and when we got to the front we told the CM that our son was having a low and we couldn't get on at the moment and they just gave us a FP for a return. so in hundreds of rides, I think I remember once it being an issue.

Pack two or three times as much stuff as you think you'll need. Test strips, batteries, insulin, glucose tabs

Be prepared to test twice as much as you do at home.

Get a frio case for your insulin (unless your daughter is pumping by then, then we don't bring vials into the park).

Carry glucose tabs with you at all times

Carry glucagon with you at all times.

Have her wear a medic alert bracelet

Carry something like a granola bar or pb crackers / cheese crackers with you as well.

Unless you're using NPH, meal times shouldn't be a problem. Just don't expect to get seated exactly when you think you're getting seated - don't take insulin before you're in teh restaurant with your food in front of you.

Blood sugars will be crazy while you're on vacation. Restaurant foods do a number - they're high in fat and that gives you a delayed fat spike. the good thing is that all the walking you'll be doing will bring her blood sugars down and the fat spike at night will help with that.

Mickey bars are the ultimate bed time snack. Regular ice cream works well too. Same reason as above, lots of fat to counteract all the exercise induced lows.

Watch for adrenaline highs from the excitement. Treat those cautiously. They usually crash later.

Just plan ahead. Carry what you'll need. Don't assume you'll be able to get it there.

Oh and watch out for overly cold room fridges. They've been known to freeze insulin.


Thank you so much for all the great advice and tips! THAT kind of post is EXACTLY what I was Hoping to get on here -- not personal opinions and judgement. So, THANK YOU!!
 
As the mom of an old-ly diagnosed child (almost 9 years now) I don't know that you will be less sensitive about this down the road - LOL!

I don't know what people get their undies bundled in a knot over getting a GAC for a person with type 1 diabetes. Honestly - that is between her and the cast member at Guest Services.

One of the most prominent organizations for those with type 1 diabetes holds its annual conference in Orlando in the summer - and on Disney property every other year. They have CM's (Disney employees) come to the conference and they sit right at conference registration to assist families who want to get a GAC. The conference organizers recommend getting a GAC for those with type 1 - especially in certain circumstances.

The level of misinformation on this thread is not very helpful to anyone. I have a child with type 1 - and he has gotten a GAC - and it HAS helped. I think it should be remembered that a GAC is given to meet a need - not for a medical diagnosis. I think you have to cut the OP some slack in not phrasing it beautifully or knowing exactly what her needs are at the moment. She probably won't know EXACTLY until she gets there.

Seriously people!

As for advice - your best bet is a good touring plan so you can avoid the crowds. (I like Tour Guide Mike even though his site is dated it is still helpful - and easyWDW.com) With kids in school it can be hard to go at times that are off-peak or not boiling hot - but it helps if you can. Going in late Fall should help. By the time you go - there is all this talk of the fast pass plus program. This would be great to be able to get some reservations for those headliner attractions. At Universal if you stay on-site you can get an unlimited express pass for most attractions - FYI

Two links:
Here is the Disney with Type 1 link: http://allears.net/pl/diabetes.htm as an update to what they say in their website - they go to the CWD conference every year now!

Here is some info from the CWD site and GAC's: http://www.childrenwithdiabetes.com/dteam/2006-03/d_0d_dqa.htm
http://www.childrenwithdiabetes.com/dteam/2004-03/d_0d_bu3.htm

You can always email or PM me.:thumbsup2

Thank you, Thank you Thank you for your support on this matter. Your post was the kind of information that I was hoping to get when I originally posted.
That being said, I also knew there would be posts with impolite & discourteous opinions and judgments because some people just can't help themselves!
Your information was great. Thank you!
 
Thank you, Thank you Thank you for your support on this matter. Your post was the kind of information that I was hoping to get when I originally posted.
That being said, I also knew there would be posts with impolite & discourteous opinions and judgments because some people just can't help themselves!
Your information was great. Thank you!

I know the whole dx is raw and new and you're being shoved into this place where no one ever expected to be. It won't always feel like that. Really, and truly, you'll have to trust me here. Diabetes will just become part of your life - sort of like the old ugly sofa your mother in law gave you that you can toss away. It is going to have to sit there and be ugly. And the best you can do is to make peace with it. You never have to like it. You do have to deal with it. And eventually you just say "oh, that's our ugly sofa. would you like some tea?" It just becomes part of who your child is. It's not WHO they are. Just a part of them.

But if you're going to approach the GAC issue, then you need to sit and think about what sort of needs you think your daughter will have and how you would like those needs to be accommodated. That's the first step really. Someone once mentioned to mentally take a walk through the park. Think of things that would be a hindrance to your child. And then think of how Disney might be able to help that. Then you approach guest services with that info: This is my need. These are the things that could help. And what you think you'll need today might be vastly different than what you'll need in a year. Again, you're going to have to trust me on this. :)

As we say in diabetes land YDMV (your diabetes may vary) and your needs will vary. Each child with diabetes is a little different. Diabetes is a very individual condition and all kids react differently to different situations. Over the next year you'll be finding out how your daughter reacts to different environments and different situations and by the time you go to disney you're going to really have a good handle on things. :)
 


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