LVMom23
Mom on a Mission!
- Joined
- Feb 27, 2011
- Messages
- 182
We have our meeting with the Make A Wish team this Friday. Our youngest, Hannah, was approved for a wish, and we would like to take her and our other kids to Disney World.
She has significant neuro and physical involvement due to her disease, and this puts her at about a 1yo level developmentally.
I was told that Hannah has to be able to "express" her wish, but that is almost impossible outside of her smiling and getting happy when she is seeing or doing something she likes.
She loves Mickey and Minnie Mouse, and I know that she would love the parades with the lights and music because that is what gets her excited. I think it would also be a great experience to be able to share with her brother and sister, and those are the memories that I want them to have about their little sister (her disease is progressive, and she has already outlived her prognosis).
For those of you who have had a wish granted, can you give me some insight into the meeting and how this is all going to work? Has anyone else had children who really cannot express a true wish?
Thanks!
She has significant neuro and physical involvement due to her disease, and this puts her at about a 1yo level developmentally.
I was told that Hannah has to be able to "express" her wish, but that is almost impossible outside of her smiling and getting happy when she is seeing or doing something she likes.
She loves Mickey and Minnie Mouse, and I know that she would love the parades with the lights and music because that is what gets her excited. I think it would also be a great experience to be able to share with her brother and sister, and those are the memories that I want them to have about their little sister (her disease is progressive, and she has already outlived her prognosis).
For those of you who have had a wish granted, can you give me some insight into the meeting and how this is all going to work? Has anyone else had children who really cannot express a true wish?
Thanks!
Just wanting to wish you good luck and send hugs your way.
