Getting ready for our Wish meeting

[LVMom23]

We have our meeting with the Make A Wish team this Friday. Our youngest, Hannah, was approved for a wish, and we would like to take her and our other kids to Disney World.

She has significant neuro and physical involvement due to her disease, and this puts her at about a 1yo level developmentally.

I was told that Hannah has to be able to "express" her wish, but that is almost impossible outside of her smiling and getting happy when she is seeing or doing something she likes.

She loves Mickey and Minnie Mouse, and I know that she would love the parades with the lights and music because that is what gets her excited. I think it would also be a great experience to be able to share with her brother and sister, and those are the memories that I want them to have about their little sister (her disease is progressive, and she has already outlived her prognosis).

For those of you who have had a wish granted, can you give me some insight into the meeting and how this is all going to work? Has anyone else had children who really cannot express a true wish?

Thanks!

 

[brat]

Just wanting to wish you good luck and send hugs your way.

 

[Piper]

Ask on this thread: http://www.disboards.com/showthread.php?t=2626769 These are the experts!

 

[LVMom23]

Thanks Piper, I will!

 

[jimmysmom74]

Good Luck with your meeting. I have no personal experience, but I am a NICU nurse and one of our graduate's family told us that their non verbal son was given his wish by showing excitement when they showed him a picture of Disney world and Mickey Mouse. Maybe it will work for you as well.

 

[jimmysmom74]

Just wondering how the meeting went?

 

[LVMom23]

Just wondering how the meeting went?

We haven't had it yet. Tomorrow (Friday) at 5:30 pm! I will definitely update on how it went

 

[jimmysmom74]

Hope your meeting went well, and little Hannah's wish was granted.

 

[LVMom23]

Hope your meeting went well, and little Hannah's wish was granted.

Thanks so much! We are keeping our fingers crossed. We are waiting to hear back from them. I guess they need to get her doctor's approval for travel next!

I posted a picture of the volunteers with Hannah and my kids on my PTR at http://www.disboards.com/showthread.php?t=2669155. They were so wonderful!