finally have a date . . . updated 19/2 pg4

[buzz for boys]

Well after another nightmare day ending with a 2 and half hour wait at hospital with Cam we finally have a date for his op.
All your lovely cards and gifts will be given to him on 15th March - wish I knew how to feel about it though.

1/2 of me thinks finally a chance to make everything normal and god knows after 7 years he deserves normal but the other 1/2 of me thinks that the bad stomach wrenching feeling I have concerning this operation should be listened to and I should refuse to let him have it.
The play specialist asked if I wanted our other kids to be re prepped for this op and i politely refused - trust me love they have not forgot what you said to them !!

Wish I had a crystal ball that could tell me if Cam was going to be in the 70% that made it out of theatre or not

 

[joolz1910]

At least you're not in limbo with the date any more. None of my children has needed major surgery, (thank god) so I have no idea how you must feel. I can only imagine your anxiety.

 

[Jets fan]

Am really glad that you finally have a date. You're bound to be nervous as that's what mothers do, they worry - it's their job - or so my mum tells my sisters and I. We're in our 40s and she still worries about us!

Cam's a real fighter and I'm sure he'll be thinking about the wonderful holiday that you've planned and not the op coming up.

Good luck and lots of hugs to you all.

Tina xx

 

[Chilly]

Sending you lots of hugs.

 

[mark&sue]

so sorry you have to endure over a month waiting, but glad you got the date you so badly wanted.

all of us here are thinking of you and your family


susan

 

[T16GEM]

I was only thinking about Cam today, I'm glad that you have finally got a date for the op, Cam is a fighter and I am sure that he will do well. You know that we are all here for you if you need anything

 

[Dimplenose]

1/2 of me thinks finally a chance to make everything normal and god knows after 7 years he deserves normal but the other 1/2 of me thinks that the bad stomach wrenching feeling I have concerning this operation should be listened to and I should refuse to let him have it.

Any time something bad happens someone always says "I felt that something bad was going to happen, I wish I'd listened to my feelings." But they totally forget that they had the same feelings when nothing bad ends up happening. (I think I've phrased that very badly but I hope you know what I mean.)

Sending a big hug for you and lots of pixie dust for Cam

 

[hildasmuriel]

Thinking of all of you.

 

[Tinks1984]

Lots of for you all to get through the next couple of months! Cameron will fight Louise, you know that. Strong little boy!

 

[Ware Bears]

Any time something bad happens someone always says "I felt that something bad was going to happen, I wish I'd listened to my feelings." But they totally forget that they had the same feelings when nothing bad ends up happening. (I think I've phrased that very badly but I hope you know what I mean.)

Libby, I know exactly what you mean and you are so right.

Louise, sending hugs for you all and lots of

 

[Muscateer]

I can't begin to know what you have gone through but maybe a wee bit. My DD had major heart surgery when she was 5. We were told she would need this op when she had her three year assessment but they said they needed to wait until her heart was a bit bigger. For the next 2 years I went through all the emotions of should she get it, maybe if I buried my head in the sand it would all go away. The first date we had had to be put off as she had a really bad cold but the op day finally came and the 5 hours op seemed like 5 years. I went for a walk as couldn't stand being in the hospital any longer. I ended up outside the Disney shop funnily enough and bought half the shop. On the way back I kept thinking will my DD see all this goodies I had just bought her. She did and is now nearly 19.

Keep that vision of you, Cam and the rest of the family all having fun in Disney later on in the year. Sending you all the luck in the world

 

[mandymouse]

Thinking of you all

 

[natalielongstaff]

thinking of you

 

[Pegasus928]

All your Dis friends are always here for you Louise -so come and keep us all up to date with the progress - good or bad - and we will do all we can to help Cam, you and the rest of your family through it all.
I'm sure Cam will love opening all his cards when the time comes and hopefully all the good wishes and pixie dust that everyone has sent will work their magic.

 

[Snowy-girls]

So glad you got the date through.You're feelings are natural-you know that .I wish you all well+will be thinking of you .x.

 

[jns]

Sending you lots of hugs.

 

[fav_is_tink]

Sending you and Cam bestest wishes

 

[The Fetherstons]

Sending you alland

Best wishes Louise and take care

 

[buzz for boys]

Any time something bad happens someone always says "I felt that something bad was going to happen, I wish I'd listened to my feelings." But they totally forget that they had the same feelings when nothing bad ends up happening. (I think I've phrased that very badly but I hope you know what I mean.)

Sending a big hug for you and lots of pixie dust for Cam

Hi I know what you mean and in my heart of hearts I know that this operation is his only chance - its not a case of being able to say no anyway so what ever I feel is totally irrevalent anyway.

I can't begin to know what you have gone through but maybe a wee bit. My DD had major heart surgery when she was 5. We were told she would need this op when she had her three year assessment but they said they needed to wait until her heart was a bit bigger. For the next 2 years I went through all the emotions of should she get it, maybe if I buried my head in the sand it would all go away. The first date we had had to be put off as she had a really bad cold but the op day finally came and the 5 hours op seemed like 5 years. I went for a walk as couldn't stand being in the hospital any longer. I ended up outside the Disney shop funnily enough and bought half the shop. On the way back I kept thinking will my DD see all this goodies I had just bought her. She did and is now nearly 19.

Keep that vision of you, Cam and the rest of the family all having fun in Disney later on in the year. Sending you all the luck in the world

Thanks for Sharing that I know what you mean when Cam had his first ever operation we walked back to the hospital with so much stuff for him it was like christmas !!
As the years have gone by he has took to calling it bravery presents and we have took to calling it guilt money - the bigger the guilt the bigger the pressie he gets !!!

he is at home with us today because we cant get his eye to stay in and he didnt want to go to school so today he has sat on the internet and has mde a list of all the things he would like for his bravery present and we like all good parents do ordered the lot !!! In my defence it is his birthday the week before his operation too so some of it will be for that.

Today we have to make the decision about school and wether its a case of putting in him school with no eye in or let him stay with us - my head says he should be in school my heart says stay with me so i can wrap him in cotton wool

You guys are amazing so thank you x

 

[jamjar84]

I don't really know much about your story, but I can't imagine how you must feel.

Thinking of you and sending lots of positive vibes.