Tinker'n'Fun
Apple peaches pumpkin pie, not ready holler "I"
- Joined
- Mar 27, 2005
- Messages
- 8,752
LoveMyGirls praying the wheelchair finds you some comfort.
Erika you are missed very much. Thinking of you and hoping to see more posts...
Now, now Bonnie: positive vibes for a calm, even, nothing out of the ordinary week for you. You truly deserve it.
My DH is getting his BP checked also, it must be the age. So far he has alluded the drugs, but he did lose 10lbs. since we started dieting.
I am sure you will get it done Bonnie, you have the willpower of 4 superhumans!!
I will be getting a pork roast tomorrow after the drs. appt for sure, that recipe looks great. I also love the chicken salsa. Try adding a few cans of drained/rinsed black beans for added fiber. And if you want comfort, cube some velveeta near the end and let it melt into the juice.
Since we are on recipes, today I made peanut butter brownie fudge.
1 - family size brownie mix
1 - 15 oz can of Pumpkin
2 - tbsp peanut butter (melt in microwave)
Put dry mix in bowl, hand mix in pumpkin. Spray an 8x8 or 9x9 pan. Smooth even and drizzle peanut butter on top. Bake at 350 for 35 minutes. Cool on counter, then cover with tin foil, place in refrigerator for 2 hours. Cut into 25 pieces. YUMMO. Very rich, gets rid of cravings, has fiber and good stuff in it from the pumpkin.
I'll post after my dr's appt to update everyone.

for what you are going through. I have been blessed to be holding on even if its by a thread some days.
Both my son and oldest daughter are going through the normal tween moods, deaftness , procrastination to the extream and flat out disobediece at times and they save this all for me
: It really is like going through the terrble twos all over agin without the playpen or gate to put them behind and let them scream. (if anyone has a tween playpen let me know I"ll pay top dollar for it
) It is much easier when they are cute and that word MOM! is new
My ds decided yesterday would be a great day to take his turn because they seem to wait till their siblings are quiet then they pounce
It took him over six hours to clean a room that should have taken 30 min -hour tops to clean
So on a day where I should have slept late DD6 woke me up early because she just wanted time with me ok few energy dollars lost but worth it
then DS has his tantrum and my 15 dollar day turned into a three dollar day. DD6 and I didnt even get the thanksgiving decorations up which would have been so fun for us, I just didnt have any energy left and now every musle in my body is twitching
As a mom my first priority has to be to teach them responsibility, team work and that mom is not their maid. On the other had it would have been much easier to just do it myself. Now I have the added sadness of taking away his Boy Scout thanksgiving badge cermony...i tried everthing else to get through to him he finally moved when that was taken away
Add to that the $3000 I saved at Disney and anoher $3000 I saved on our 75% off leather sectional and Jcpenny (just this week I got my DD6 christmas dress for $15 down from 50!) and it has been about $10,000 saved this year 
My DD11 rolled her eyes when I was talking about it so I did some figuring and at the grocery store alone I would have to work nearly 4 months to make that much money. case managers with a BA and experience are still making $8-12
so when you factor in taxes, travel, clothes and eating out a bit more I save with smart shopping what it would take 6 months full time and nearly a year part time to earn. DH said i keep telling you that your "working"
I just really hate how much it impacts my fibro and how the fibro makes it nearly impossible to wether these teen storms without me paying a big price.
Just needed to get this out of my system someplace where I know people will understand that I'm not being ungrateful just tired and anxious to have a normal life!I woke up this morning and literally couldn't move. DH said I had been moaning in my sleep the whole morning, even crying at times. There wasn't a place that didn't hurt. I hate this disease, but I hate that I sabotage myself even more.
THIS IS MY PERSONAL FEELINGS AND MAY NOT BE THE CASE IN YOUR LIFE, PLEASE DON'T TAKE OFFENSE. I JUST NEED TO TRY TO REASON WHY MY LIFE HAS REVOLVED AROUND COMFORT ONLY COMING IN THE FORM OF FOOD!!
Let's talk comfort food. I have been trying to lose weight to help my body carry itself better. The extra 30+ pounds make me feel worse than I have to. I have created the problem, and I can fix it. Yes my thyroid is removed, that is NOT an excuse, Yes I am perimenapausal, that is NOT an excuse, Yes I can't exercise a lot, that is NOT an excuse.
I hurt today, because I put crap into my body yesterday. And the crap felt good for what 5 minutes. Not a trade off I a ready to do until the weight comes off again.
I am going to my GodMother's wedding tonight at one of the best food places in our area. I will be eating before I leave. 75% of my meal will be done before I even step in the building. I am there to see my GodMother show her love her new husband. She is extremely happy. I will make good decisions during the meal. I will eat the salad and soup. As for the rest, I will find out what the meal is and most likely just ask they not put a plate out for me. I will eat a bite of my mothers dessert. I put extra money in the card to make up for this.
I hate that society thinks that celebrating marriage, special occasions, and life accomplishments are all surrounded by eating and making ME feel bad.
Today, I take back my life, I decide how I will celebrate. I will show my love to my Godmother, I will embrace the love she has found in her life. I will enjoy the dress that hasn't fit in over a year. I will be happy to be there, not happy to eat.
Anyone else have triggers that they want to take control of in their disease and life?? Please share.
and busy busy kids
Hi All!
Welcome Newbies!
Tink, I hope your DS gets better soon. Glad you got an appointment at the Dr. for him. Keep us posted. I get those terrible chest/rib pains where you can't take a breath and they are muscle spasms. Went to the ER one morning as the pain was so sharp I couldn't breath in and it wouldn't go away. Best way to get over the fear is to relax but it's hard to relax when you can't catch your breath. I use icey hot when I get those now and it helps. If you don't have icey hot try the vicks, that works for me too.
Bright - YAY YOU GOT THE JOB!!!!!!! Congrats, I am so happy for you!
So I had this brilliant idea that I should do some volunteer work since I no longer have kids stuff to do since they are 22 and 17. I started training this week to become a certified Tax Aide person and do taxes for the elderly at the senior center. Little did I know that training starts at 9AM 2x per week and after week one I am exhausted. 9AM is a huge stretch for me and I "forgot" what it is like to have to jump out of bed and be somewhere. UGH! But I will do this. Pehaps I will be able to sleep earlier.....
Sending pain free vibes for everyone!![]()

I promised to update, but first I want to tell "you" a story.
My kids don't do anything chore wise. Around 1/2 way into my adventure it was to the point that I was making myself more ill getting upset with my children. I would yell, they would ignore, then my mild-mannered DH would raise his voice and the only one being affected was me. I was totally losing it. I was ready to walk away from my family. It just wasn't working. So DH and I talked first, then we sat down the kids. They were given life assignments: keep up your grades, do your homework without being told, make sure any paperwork made it immediately to Mom or Dad, be respectful to everyone, ask any requests with plenty of time, learn to read the calendar, and make a group of friends who could help with school work if needed, had parents who would at least do 1/2 of the car pool. Their father and I would take over all the house work including cleaning their rooms. BUT and this is a big but, it would be at my pace. If they needed a special item to wear, they had to tell me ahead of time. I did not feel guilty if something was not done. If the favorite pair of jeans were behind the bed and I wasn't up to cleaning rooms, only the clothes in my immediate eyesight were done.
The fighting upsetting days were over. I no longer had to scream at them. They embraced the new system and while their rooms are not the cleanest, neither is my house. They have cleaned the bathroom, done wash, did yardwork etc, just because they knew they should be helping, not because they were told.
I know that many parents are very strict with chores, making sure kids are accountable, etc. That didn't work for us, this did. Lastly, I did make sure they were able to complete any task they would need in life after Mom, but we did it at their pace.
Okay, off to post my drs. appt, and copy some recipes!!!![]()

that I could not deal with. When I talked to DD she replied that was now " MY Job " and she didnt have to do it
I did what I could but being so sick and DD3 needing my full attention it was difficult to take back what I said and clean up. Needless to say by the time DH came home to pull rank on DD everyroom in the house was trashed. My house hadnt been clean in months but now it was up to the ancles reality show "Horders" kind of trashed
To top it off when DH reurned home we had an attempted break in while DH and I were out. The state police insisted on doing a sweep of our house for saftey and had to go through the house like that with guns drawn. It was a wonder they didnt shoot themselves
. If there is a way for her to turn something to her advantage she will. She has in the past tried to use my fibro against me ie saying i forgot something when i didnt or trying to sneek somthing by me. It means being on top of her attidude had been Job #1 since she was about 7. DS while not so A-type takes her lead and is a super procrastnator. Luckily now that DD has a cell phone my life is much better. No help.. no cel. She often does things without being asked now. Cant imagine what a set of car keys will do for me
That doesnt stop the fights with her brother however.
I dont have to worry about them out in the world right now but at home is a challege with these two strong willed children. (wonder were they get that from
oh yeah me and their Dad
)

She actually asks me how I am from time to time thoughout the day which is a relatively new and unexpected develpment.
So any information on Savella is hereby needed. Please!!!!!![]()

Okay, first my visit went well at the drs. There is some TMI information in this post, you are forewarned:
My blood pressure was low. So my dose of BP pill is reduced back to the original amount and my water pill was decreased. There are no physical signs of infection aka nose, eyes, lungs, throat, chest, but I am still running phantom fevers. He touched upon the possibility that the bones/muscles etc may be holding onto the infection.
I told him that I just can't do the pain anymore. Either hook me up to some high power drugs or we needed to start a new plan. I admitted my faults with not telling the truth, etc. HE wants me to double pain meds as needed and start on Savella. I have to educate myself on the drug, but he provided all the pills. He said if it works he will make sure that I get them for free all the time. He can not do that with Lyrica, so if this does not work, we are out of "new Fibro" drug options. He will not push me if I don't feel comfortable taking anything and will try different pain med options if this does not work.
So any information on Savella is hereby needed. Please!!!!!
I told him about the blood that appears with my bowel movements. He does agree that it is most likely the hardness of the movement and pushing causing outside blood. It is red and it is NOT in my stools. He also felt there may be fissures. So at my pace as soon as I feel better, he will schedule my first colonoscopy, but he is NOT at all concerned. I can take my time on this.
He is re-doing all my blood work. 10 tubes full and a urinalysis.
He now knows that my balance is also being affected and we will be discussing the MRI's and stuff next visit. He will contact the Neurologist and get him back on board since I haven't seen him in quite a while.
So, here's the condensed version, okay I am feeling a little silly today:
I have Fibro.
I have progressed in a decreasing manner for the worse. What was a 4 is now an 8 or 9.
I am controlling my weight and blood pressure better.
I am off my stomach meds and he is very pleased with me.
We are re-checking tests to update my file.
This is not going away, it may not go back to 4, but he doesn't want it to go up either. He is willing to do what I want to do.
I am coming to terms with it more, I cried today for the first time in a long time, and I know that I have a healthy heart, healthy lungs, and am not clinically depressed. (so sick of drs. thinking everyone with Fibro has to be depressed). I am just normal 40ish year old woman depressed.
Okay, enough babbling, any questions let me know. Gotta call to find a store with Turkey wings or the butcher to make that gravy!!
Wishing you pain free fancy vibes today!Diane
. Sounds like you have a good Doc who is willing to work with you. That is great news too. 


.thanksgiving is a big@ deal for our family since I can trace my family tree to the mayflower. My kids get mad becauase thanksgivng seems to get lost between halloween and christmas. We have a rule no christmas, movies or music until thanksgiving so we can focus on the beauty of fall and being thankful that it wasour relatives not us on the mayflower!
We spend this weekend watching movies getting our tree and seeing the christmas .
In one way I'm greatful, I'm not having days I'm completely bedridding on the other its stinks to be up and about but unable to get things done. I have to rest too much to complete the am routine and the hour or two I am commited in the evening. Since I'm driving I have to be ok otherwise it's just too dangerous to be on the road in a full fibro attack. So nothing is getting done
) got my book done. It ended up being a very expensive blessing in disguse because they have a new system and several new covers and many many more pages, stickers etc. I went back to try again when I noticed the $20 off the books and the new setup allowed me to get the book done in only a few hours! DH was home for a few days, several activities had been canceled and the kids had been good last week so sat night I got it done

It was really wonderful being creative again and it is so different from the last one. 
. What they turn inot after four 
I can live without any more than three of those
