Fibromyalgia Thread

[ireland_nicole]

Hey ireland nicole just noticed your DS and DD are close in age to mine too. How long have we both been posting on this thread an I just noticed that?..Real case of DUHHHH!

ummm, that's ok, I hadn't noticed yours either, I'm in too much of a fog by the time I mosey on over here LOL.

I am taking Social Services. It's a two year program, so I am in my last year. But I did an extra year before that to increase my chances of being accepted into the program.

It is not hard, cause I love the material, but it is A LOT of work. But I don't want to be a counsellor or therapist, or social worker but want to work in the school system.

I was always wanting to be working with children in some aspect. Last year I had the chance to work in a classroom with kids who had mostly behavioural issues. They were pretty high functioning kids.

I was scared away from it a few years ago because a lady who is an Educational Assistant told me she spends most of her days holding down children who are having behavioural issues. She works with a lot of children who are autistic. Then someone else told me that is not what should be happening, and that she must not be doing a good job with her kids. So that scared me off working with autistic children. I did not want to be judgmental I just didn't know anything about it.

I have since met a few children with autism and they are just kids, nothing to be scared of. I just want to learn more about it, because I know that every child on the spectrum is different.

Sorry to go on so long, I just am so excited to be done school and hopefully get a job!!! I could also work as a child/youth worker in a school.

Just wanted to say, as the mom of two kiddos with special needs, one w/ ASD, I'm glad you took the time to learn more and I appreciate your positive attitude, and also I wanted to reiterate that you're absolutely right. If you've met one kid with autism, you've met one kid with autism. There are so many differences, so many variables, there's no specific course or prognosis; each kiddo really is unique, and one intervention, etc. will definitely not fit all. The great thing is that you also have the opportunity to learn so much, to be challenged to think creatively, and to connect with some really cool kids.


On a side note, after a reasonably pain reduced summer (very hot and dry; just the way I like it) we are in a sudden very sodden cold snap. If I can somehow figure out how to drag my butt up the stairs (why, oh why was I seduced by the coolness of our house= next time I really am only looking at one stories) I'm envisioning getting up close and personal with my heating pad... well, at least we know what we'll all be doing tonight LOL.

 

[Indiana Rose Lee]

I worked with kids for a long time, and esp. like the SBD group! Working with kids is beyond rewarding.

I take melatonin, but have never lost an ounce.

 

[tiggspring]

Indiana rose lee,
So sorry melitonin didnt help you. I'm hoping that last spring wasn't a fluke. I let you know when I go back on it and we'll see if it works this time.

Bright eyes glad thigns are so exciting DH and I just loved our days working at the Childrens Psych hospital. I got to work with every age and problem imaginable. Some days were really heart breaking. But I LOVED EVERY MINUTE OF IT!!! If I hadnt gotten hurt I never would have left. Your absolutely right Indiana RL every child is different no matter what there diagnosis. It is sometimes hard for professioals to remember that!!!

 

[Tinker'n'Fun]

 

[TLSnell1981]

Can I join your group??

Diane.

You came to the right place. It's nice to have folks that understand what you're going through.

 

[toocherie]

Can I join your group??

Diane.

Hi Diane and welcome! I haven't been around as much as I should be because I've been going to Disneyland too much--two weekends in a row (a friend was visiting from Texas--we stayed at the GCH!), she stayed at my house during the week, and then after she left on last Monday (the 21st) I went to the grand opening of the new Villas at Grand Californian on Wed. the 23rd (which was beautiful--so excited--we stayed in a studio). I came home with a cold and ear infection and backache from the beds! LOL

So I am just now returning to the "land of the living"--other than the back issues haven't been having too much trouble lately but we are supposed to have drizzle and rain by Monday so time will tell.

Hope everyone's having a great week!

Cheryl

 

[tiggspring]

Now class lets all say the word of the week "TIRED"!

Between Girl Scout Weekend and everthing else I'm tired, tired, tired! Did make it to my first Girl scout sleepover in three years! Found out two days before either I drove or I couldn't go there was't enough room. After a full day in bed and an evening working it out so that I would have an adult in my van I drove and got to go. Other moms car only held 5 and she smoked..which would have killed me. She rode in my car (no smoking) and agreed to drive home if I couldnt make it..problem solved. Miss the days when I would have just drove wtih abandon!

Toocheri, what a great reason to be off the boards! I have never been to California or Disneyland hope to get there some day.

Tinker'n'Fun Sorry you are having such a hard time. I put a stop to all the medical intervetions after two years. They never helped and always seemed to cause complications. I cant imagine having fibro , the spine stuff and lung complications. My MIL had COPD so I know how hard those lung things are to manage. You are one tough cookie! I have found that everyone here has a good idea of where you are comming from and the things that we dont understand we are willing to listen and learn! We're all pulling for you!

Have you ever tried Garlic suppliments for the stomach problems? I had severe acid reflux when I first got sick. They had me on 3x the recommended dose of Zantac with no luck. I heard about garlic and figured ..at least it can hurt me. After about 6 months my reflux was gone. Never had it again. That's when I went more suppliments less meds. Just a thought.

Well my son's 8th birthday is this W/E and I have a 3d Star Wars helmet cake to create. Its always a little nerve racking until its done! Wish me luck!
Sending pain free vibes and pixie dust to all

 

[Indiana Rose Lee]

do you use a non smelly garlic supplement?

 

[tiggspring]

do you use a non smelly garlic supplement?

I use garlic gel caps with parsley. Parsley is supposed to eliminate smell. I prefer the gels becuase I'm concerned that powder will be less effective. I beleive when I first tried this back 13 yrs ago I could only find powder caps. The theory behind the garlic is that it is an antibacterial agent so if you have issues with bad bacteria it will kill them. Doesnt hurt that its good for your heart too!
My DD and DH have stomach problems too and find that yo-plus helps quite a bit. Activia and others have not. Yo-plus has fiber too dont know if thats the difference for them.

Here's to happy tummy's

 

[tiggspring]

Hey that was my first Quote post!! It only took me 3+ years to figure out how to do that. Gotta love the keenly observant fibro brain

 

[Indiana Rose Lee]

LOL, thank you for the info, and congrats on your first quote.

 

[brighteyes]

Well I have missed you all, and made it through this week of school!! I just had another research paper that kicked my butt. It was so frustrating, hope I get a good mark. It shoulda been an easy one but for some reason I made it difficult on myself.

Well after rushing out the door to school on morning and having a flat, and my paper and the rain I am again sore, sore, sore, and have a 7 hour day of cpr training tomorrow. I am dreading it, cause once I am down on the floor, I won't be able to stand back up again. Seriously it is difficult cause of the weight and pain.

AND I STILL DO NOT HAVE MY ELLIPTICAL PUT TOGETHER My friend came last weekend to help me and a part doesn't fit, so I have spent the week playing phone tag with the part dept. (they are closed when I get home) and today booked an appt for them to come NEXT FRI

So I will catch up on everyone's reading and just thought I would say my new Xlarge heating pad is my new boyfriend. I will never spend another night without it.

But someone here said they own a heated mattress pad?? Does it get really warm? How is it?? I think I want one of those.

Hope everyone is having a good day and has a good weekend and pain free vibes (or as close as possible) I will check in tomorrow to catch up and read.

This is me in my MIND.

 

[EDuke98080]

But someone here said they own a heated mattress pad?? Does it get really warm? How is it?? I think I want one of those.

The heated matress pads are wonderful. Worth the investment. Having a really hard time forcing myself to do stuff these days. So achy.... Just want to sit and be a lump but really need to get more exercise.

 

[brighteyes]

Thanks for the response. I think I will be putting one on my christmas list. I still have not had time to catch the thread up, so perhaps this long weekend. I still have one more paper due on Wed.

But definately a heated mattress pad, would make my life wonderful. Although I am not sure I would want to leave my bed this winter. It is only fall and I am so achy and sore I just want to be a lump too. Ha Ha well I already am a lump, a rather round one, if I might say so. he he But hopefully the treadmill will be put together this friday I have a service guy coming to replace one of the parts, the screw does not fit the holes.

Hope everyone has the best day they can.

 

[Indiana Rose Lee]

LOL, your heating pads sound so nice, but I am also fighting perimenopause and hot flashes from the savella!

 

[Tinker'n'Fun]

 

[Indiana Rose Lee]

tiggspring, how did your cake turn out?

 

[ireland_nicole]

Hi Y'all; just wanted to check in w/ ya. Pain is tolerable; thankfully it doesn't get cold here except for a few weeks, but pretty achy due to a lot of rain (although we're in a major draught, so I'm ok w/ the achiness LOL).

I'm under a fair bit of stress at the minute which isn't helping; DH has thankfully kept his job so far, but evryone had to take a 25% pay cut over a year ago; couple that with 3 extended hospitalizations (2 for 1 kid, 1 for DH) and the fact that most of the kids therapies aren't covered... well, suffice it to say, we went from being ok financially to being 25k in debt. I've been seriously looking for work for 3 months, but so far haven't found anything. It looks like I'm going to have to go full time just to find something. At least I interviewed yesterday for a job that might work; it's a computer job at a nurses salary working 10-7 and I can work from home after 6 months. At this point I'm hoping I get it as we could be debt free (except for mortgage) again after about 6 months. DH says that if I want to quit after that it's ok. I'm just so frustrated; there are a lot of jobs I know I can't physically do, heck even the one I used to love (I was a Hospice nurse, but can't lift that much anymore or manage being on call through the night)... I guess I'm just having a pity party moment, so I appreciate you indulging me and I promise I'll get up now, put on my big girl pants, and get back to appreciating the fact that I'm still here.

 

[TinkerBean]

Vent away - that's what we are here for. I hope you find something soon.

Rhonda

 

[EDuke98080]

Thanks for the insight on the garlic, I will check it out. The weather is changing here, so aches and pains are here for a while. My internal clock is backwards right now and I am up all night, sleep til noon. I am starting to work on that tonight. Off the computer in a little bit. Hopefully asleep by 1 or 2, and I am getting up at 7 to take DH to work. This will give me the car to go out tomorrow and hopefully put me to sleep even earlier tomorrow night... Yikes that's a confusing post, sorry....

Hope everyone is having a good week. Gonna google the garlic now!

I am on the same mixed up sleeping schedule! My DH complains about it as he is tired early and we never get to spend time together. I can't tell you how much better I felt afer reading you post. I am not alone and it's not just me! THANK YOU!!!!!! I hope you have success with turining things around, I have trouble with that. I seem to get my best sleep from 7 Am to 11:30 AM