feeling defeated

[RogueX]

So happy that you got to go on this trip. I know it's been something you've been trying for a long time. The smile in the pics say it all.

 

[flyingdumbo127]

That's because she IS a Disney Princess, dear Weswife. Tell your daughter I said so She may not be in any Disney movie or book, yet anyway, but her real life courage, along with that of your own and your husband, beyond surpasses that of any fictitious cartoon character. I praise and thank God so deeply and extra having read your joy filled post and seeing such happy pictures. I am so thankful all-around that you got to experience such fantastic family fun and I pray healing as well

Disturbia, I also pray your daughter is feeling better. Remember please to take care of yourself, too.

Mommasita, please take care of yourself. Get well prayers to you and your family, too.

Wishing everyone sweet dreams and a good night.

 

[weswife]

Thank you for all the wonderful heart warming replies. It was amazing to watch her enjoy herself and forget about all her worries. Tomorrow I have a follow up call with the oncologist. She had her 6 month check up CT scan to review the tumour she has growing in her abdomen. They are not sure what it is or why its there. Its in an area that is almost impossible to investigate, to use the oncologist's words the tumour is in a black box area. So we decided to wait and see what it does, that was his recommendation . It is weighing heavy on my mind and heart ... waiting for tomorrow at 11 am. It seems she moves one foot forward and 2 back but again... we never give up <3

 

[butterscotchcollins]

Thank you for all the wonderful heart warming replies. It was amazing to watch her enjoy herself and forget about all her worries. Tomorrow I have a follow up call with the oncologist. She had her 6 month check up CT scan to review the tumour she has growing in her abdomen. They are not sure what it is or why its there. Its in an area that is almost impossible to investigate, to use the oncologist's words the tumour is in a black box area. So we decided to wait and see what it does, that was his recommendation . It is weighing heavy on my mind and heart ... waiting for tomorrow at 11 am. It seems she moves one foot forward and 2 back but again... we never give up <3

Prayers for you - I know you’ve dealt with so much worry and fear but you are in good hands with the doctors. One day at a time.

 

[flyingdumbo127]

Weswife along with additional prayer. ITA with Butterscotchcollins, one day at a time indeed. Cherish today as I know you do. I'm truly so happy and thankful to God that you had such a fantastic trip!

Butterscotchcollins, I also hope your son had a wonderful birthday!

 

[weswife]

Hello,

So I had to wait to post. Unfortunately the CT scan results are not favourable. I had to take time to process my thoughts and dig my way out of a dark hole I was allowing my brain to go. So.. having said that.. The tumour is located at the top of the small bowel and in another spot on the bowel. It has increased in size and the oncologist said its time to investigate what it is and what we are dealing with. Its in an extremely difficult spot as a simple biopsy is not something that can be done. He is having a meeting next week to talk about her and what their opinions are. We are so sad... she just can't catch a break. We are PRAYING its not cancer.. gees I cried typing that word. My hear took another chip .. why must life be sooo difficult .. I am slowly pulling my brain out of that dark place... Thanks for the concern and kindness <3

 

[mommasita]

@weswife I will keep you, your daughter, and entire Family in my prayers.
I won’t say not to worry, because that is impossible. I wish I had the answer on why life is so hard, I wish I did my friend.

 

[butterscotchcollins]

Hello,

So I had to wait to post. Unfortunately the CT scan results are not favourable. I had to take time to process my thoughts and dig my way out of a dark hole I was allowing my brain to go. So.. having said that.. The tumour is located at the top of the small bowel and in another spot on the bowel. It has increased in size and the oncologist said its time to investigate what it is and what we are dealing with. Its in an extremely difficult spot as a simple biopsy is not something that can be done. He is having a meeting next week to talk about her and what their opinions are. We are so sad... she just can't catch a break. We are PRAYING its not cancer.. gees I cried typing that word. My hear took another chip .. why must life be sooo difficult .. I am slowly pulling my brain out of that dark place... Thanks for the concern and kindness <3

Sending you love and prayers. You have your daughter right now, right in this moment, give her a hug and let her smile light you up!

 

[RogueX]

Hello,

So I had to wait to post. Unfortunately the CT scan results are not favourable. I had to take time to process my thoughts and dig my way out of a dark hole I was allowing my brain to go. So.. having said that.. The tumour is located at the top of the small bowel and in another spot on the bowel. It has increased in size and the oncologist said its time to investigate what it is and what we are dealing with. Its in an extremely difficult spot as a simple biopsy is not something that can be done. He is having a meeting next week to talk about her and what their opinions are. We are so sad... she just can't catch a break. We are PRAYING its not cancer.. gees I cried typing that word. My hear took another chip .. why must life be sooo difficult .. I am slowly pulling my brain out of that dark place... Thanks for the concern and kindness <3

Oh I'm so sorry to hear this news. I'll keep thinking positive thoughts for you and your family. Big hugs.

 

[flyingdumbo127]

Weswife, hugewith much loving prayers! We care and are here for you, my friend. No matter what, may know God is with you always too.

 

[weswife]

Thank you for all the support.. I am slowly pulling myself out of this dark place .. I keep thinking and trying to figure it all out. I need to stop and I know this. I look at her sweet smiling face and listen to her sweet voice .. she is happy. I need to wait until I hear from the oncologist after he speaks with the team

 

[flyingdumbo127]

Truly God Bless your loving heart Weswife and that of your family. He is with you forever, my friend. All of us care, too

 

[weswife]

Hello Friends,

I have been keeping a low profile, my heart needed time to mend. My brain needed to turn off the thoughts. I have met with the oncology team and got a few answers to my questions. They have scheduled her for a MRI to zone in on one of the areas. Also another CT scan to zone in on an area and started tumour marking blood work for Monday. Her wound took a bit of a slide as well, we can feel a tiny section of bone exposed. So that has become a worry. Its a battle to decide where to focus, 2 steps ahead and 3 back! However, she remains her happy upbeat self <3 We moved her brother home from university last night, its about a 2 hour drive away. We got her ready and took her for the drive, lots of extra foam cushioning plus a gel cushion to sit on. We enjoyed take out in the truck! She enjoyed the drive, especially driving by the airport!!!! Again, we reminisced about her disney trip! I checked her dressing this morning and the wound tolerated the road trip! It looks good, so thats a relief! I was worried it could get angry after sitting that long. Like I have said before .. that wound RULES our lives! I am forcing myself to limit my thinking until we get more answers. Easier said then done ....
Enjoy your weekend <3

 

[butterscotchcollins]

Hello Friends,

I have been keeping a low profile, my heart needed time to mend. My brain needed to turn off the thoughts. I have met with the oncology team and got a few answers to my questions. They have scheduled her for a MRI to zone in on one of the areas. Also another CT scan to zone in on an area and started tumour marking blood work for Monday. Her wound took a bit of a slide as well, we can feel a tiny section of bone exposed. So that has become a worry. Its a battle to decide where to focus, 2 steps ahead and 3 back! However, she remains her happy upbeat self <3 We moved her brother home from university last night, its about a 2 hour drive away. We got her ready and took her for the drive, lots of extra foam cushioning plus a gel cushion to sit on. We enjoyed take out in the truck! She enjoyed the drive, especially driving by the airport!!!! Again, we reminisced about her disney trip! I checked her dressing this morning and the wound tolerated the road trip! It looks good, so thats a relief! I was worried it could get angry after sitting that long. Like I have said before .. that wound RULES our lives! I am forcing myself to limit my thinking until we get more answers. Easier said then done ....
Enjoy your weekend <3

Sending you love and healing prayers - you’re both super tough ladies, you’ve got this! I love that you have recent happy memories from your trip to focus on and reminisce about. That’s a happy, safe place for your thoughts to live in

 

[mommasita]

I can understand that @weswife
You are all in my thoughts and prayers daily
One second at a time, one minute at a time, one day at a time. Sending love, because I know it’s needed. As always, if you need an ear, please don’t be shy to send a message

 

[weswife]

Hello Friends,

Today is an upbeat day! My sweet DD was scheduled for blood work but we didn’t have the special tubes to draw it. The oncologist has started to do tumour marking blood work. I am nervous as to what it means but have decided to wait it out until we get more information. The draw will be Wednesday. Yesterday we took her to the city as we are moving our son home from university. She had 2 city trips over the weekend. I am impressed how well she did! We made sure to reposition her many times and added foam to her hip. As noted she sits on a gel cushion. In the past sitting has caused the wound to get worse so this is a win! Hopefully this will soon be closed next we attack the tumours! They called to book her for a mri, waiting for a date. I am really trying to remain positive and not let my thoughts wander. Thanks for all the support

 

[lisaviolet]

Hello Friends,

Today is an upbeat day! My sweet DD was scheduled for blood work but we didn’t have the special tubes to draw it. The oncologist has started to do tumour marking blood work. I am nervous as to what it means but have decided to wait it out until we get more information. The draw will be Wednesday. Yesterday we took her to the city as we are moving our son home from university. She had 2 city trips over the weekend. I am impressed how well she did! We made sure to reposition her many times and added foam to her hip. As noted she sits on a gel cushion. In the past sitting has caused the wound to get worse so this is a win! Hopefully this will soon be closed next we attack the tumours! They called to book her for a mri, waiting for a date. I am really trying to remain positive and not let my thoughts wander. Thanks for all the support

Thinking about you weswife. Thinking about you all.

 

[lisaviolet]

A few clips of the excitement!

Yes the definite excitement. So thrilled to see. And these two are the best (Passport off I go! pictures)

I do not know what I did with my brain.

I was sitting here tonight thinking about you, and then I went WAIT! WHAT! I did not check back in to see the extravaganza. I have never done an email alert or thread alert or whatever it is in all my years here, maybe aging has somehow made that necessary.
I ran to your thread.

So very sorry to hear about the update.

But very happy to see everything from the trip.
For a distraction can you tell us about the best days or nights - accommodation (Did you nab some great rooms? Her favourite)- did you keep the cruise information from her until that day? Sorry if I missed any part, I have some brain fog. So I am off at times with my memory and taking everything in.

----------

Will be thinking about you.

 

[flyingdumbo127]

Good Morning hug to all of you!

 

[weswife]

Good day friends!
I have been in a bit of a slump.. it was great to come back to some beautiful messages <3
Still waiting for a few appointments. Off to the city on Tuesday for more follow up with the plastic surgeon and his team.
Oh my gosh.. our trip!!!!! Its a daily thing we still talk about .. it was amazing!!!
We stayed at GF and BLT! DD has a bucket list to stay at every resort on property! This was our 1st stay at GF and we enjoyed it! The location is amazing!!! Our view was nothing to rave about but we loved our visit there! Our stay at BLT equally as lovely! DD could see the fireworks every night and we enjoyed that time together in our room <3 We decided to stay at the back of the ship and had the most beautiful veranda , it was massive. DD had to sleep every afternoon and my DH sat out there with me, we ordered room service and relaxed. It was perfect, DD snoozed away. We love visiting the memories, especially during daily wound care. While she is having her dressing changed we chat about the trip, look at pics and yup you guessed it .... when to go again <3 Disney sure helps take our thoughts somewhere else ..
I hope you all have a wonderful weekend! Thanks for being our support system