Extreme Heat Sensitivity

PrincessSarah314

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Joined
Jan 7, 2008
Messages
382
I suffered extreme dehydration and a heat stroke a few years ago. This has caused me to become extremely sensitive to the heat and sun.

Usually our trips are just myself and my DBF, DS, and mom but this trip is an adult only trip with DBF and another couple. My concern is that I won't be able to keep up (we are in our late 20s-early 30s so there will be an expectation of energy and health).

Besides keeping hydrated and afternoon breaks what else can I do to keep cool and energetic without it being obvious that I am struggling?

I don't want to use an ECV or anything else that will be noticeable or make me stand out from the others in our group, especially because DBF worries about my health already and I just want him to enjoy our trip.
 
I suffered extreme dehydration and a heat stroke a few years ago. This has caused me to become extremely sensitive to the heat and sun.

Usually our trips are just myself and my DBF, DS, and mom but this trip is an adult only trip with DBF and another couple. My concern is that I won't be able to keep up (we are in our late 20s-early 30s so there will be an expectation of energy and health).

Besides keeping hydrated and afternoon breaks what else can I do to keep cool and energetic without it being obvious that I am struggling?

I don't want to use an ECV or anything else that will be noticeable or make me stand out from the others in our group, especially because DBF worries about my health already and I just want him to enjoy our trip.

A friend has a hard time with the Florida heat. She brings a parasol with her to give herself some shade. Also, I bought her a little fan that clips to her belt loop so it is easy to get to when she needs it.
 
When it gets really hot here, we start spending more time in the gift shops. Besides restaurants, it is about the only place with air conditioning. Their are gift shops near almost every ride.
 
I assume that the people that you are going with know ( at least to a small degree) that you have some heath issues) as for other people that are in the park then i hope that Cheshire Figment will post him list of question to ask yourself while in the parks and in need of a wheelchair. I would must rather a person in my group rent an ECV or wheelchair and be safe and comfortable than to risk their health or comfort. i would not be able to enjoy my trip if i knew that my friend was suffering.
The otehr I option that I would recommend is a cooling vest. There are many brand, sizes, colors but this site will at least get you going http://coolvest.com/default.aspx?AspxAutoDetectCookieSupport=1. We have used one for a while and love it.
 

jmartinez1895 said:
I assume that the people that you are going with know ( at least to a small degree) that you have some heath issues) as for other people that are in the park then i hope that Cheshire Figment will post him list of question to ask yourself while in the parks and in need of a wheelchair. I would must rather a person in my group rent an ECV or wheelchair and be safe and comfortable than to risk their health or comfort. i would not be able to enjoy my trip if i knew that my friend was suffering.
The otehr I option that I would recommend is a cooling vest. There are many brand, sizes, colors but this site will at least get you going http://coolvest.com/default.aspx?AspxAutoDetectCookieSupport=1. We have used one for a while and love it.

Its it worn under your clothes? Is it heavy? How long does it keep you cool for? Sorry for all the questions!

Sent from my Samsung Galaxy S3 using DISBoards
 
I usually wear mine over a tee shirt because I do not want the cold directly next to my skin. You can wear it under a bigger shirt but you would still want something between your bare skin and the vest. I have a slightly different one than the one in the link, but mine is good for about two hours in high heat and up to 4 if more moderate temp day.

A cooling scarf, one that turns cool by putting into water may work well for you. I just ask for a cup of ice water and then dunk the scarf into the cup and get it cold again. The scarf is good for an hour or two.

The best advice I can give is drink water, drink water, drink water. My MS has left me heat intolerant but I did better at Disney in July than others in my family because I drank water almost continuously. (I also know where every lady's bathroom is but at least I am out of the hot sun while in there.)
 
Under Armour & Nike make some nice shirts that keep the heat and moister away from your body .. so look into them as well, along with the cooling scarf (Jog Toggs makes a nice inexpensive one). I would highly recommend not coming in the dead of summer .... that is hard for even those that can tolerate the sun and heat.
 
I still suggest having a wheelchair or scooter - it will help to be able to sit when needed. I have a totally different reason, but I cannot control my body temp either...

My addition to the suggestions: BIG, FLOPPY HAT. You must keep your head, neck and face cool. These here (found through a google search) even have an SPF rating: http://www.coolibar.com/section/Sun-Hats/2222.uts?s_kwcid=adwordskt&gclid=CJGy5KKty7UCFQhxQgodez4ATQ

Also, there is a First Aid in every park which is air conditioned and will let you sit or lay down if you need it.
 
Hi! I have a neuro issue which causes extreme sensitivity to hot and cold. I find the vest sometimes can be a bit heavy with all the packs in.

I have ordered several products from Polar Products, Inc. The link (I hope) is:

http://www.polarproducts.com/polarshop/pc/home.asp

I sometimes use the evaporative kind, if I know I can't get somewhere or exchange a pack. I have the Kool Max Secrets "vest" which is actually a belt type, that I wear like a fanny pack on my shorts and cover it with my shirt. That provides me lots of relief. I also have the Kool Max seat cushion (but I use that to sleep on all night as I overheat due to restricted CSF Flow). Even the wrist and arm bands area great relief.

I hope this helps and if you are going to plan, try to stay in MK on the forcasted hottest days so you can utilize Carousel of Progress, Mickey Philharmagic, the Tiki Room, Country Bears in MK. :thumbsup2
 
Under Armour & Nike make some nice shirts that keep the heat and moister away from your body .. so look into them as well, along with the cooling scarf (Jog Toggs makes a nice inexpensive one). I would highly recommend not coming in the dead of summer .... that is hard for even those that can tolerate the sun and heat.

I will definitely check out the cooling scarf, I think someone had mentioned that once before somewhere on the boards :)

Unfortunately, our trip is in the 3rd week of June, so we are coming in the heat of summer.
 
i know you do not want to use ECV but with june heat, i would reconsider as how would you feel if you go down and EMS has to get you to First Aid. other than train at MK no way to leave park than walk to front gate and then to transporation. i would look at offsite ECV rental with the sunshade. also ECV will allow you to move at groups speed not having group move at your speed and will allow so sit and relax as you wait in line as i noticed the heat more in lines
 
Betty Rohrer said:
i know you do not want to use ECV but with june heat, i would reconsider as how would you feel if you go down and EMS has to get you to First Aid. other than train at MK no way to leave park than walk to front gate and then to transporation. i would look at offsite ECV rental with the sunshade. also ECV will allow you to move at groups speed not having group move at your speed and will allow so sit and relax as you wait in line as i noticed the heat more in lines

Can I just point out that this is false? If you "go down" in the park & EMS is called, Disney first aid will move you to a first aid center or a backstage location if it is safe to do so. EMS comes to your location & transports the patient as needed.
 
i said EMS as the park i work in calls their First aid EMS. it was Disney First Aid but i assumed they were EMS but i know they were Disney employees. as OP said did not want to stand out from the group i sure did that day. all because i thought did not need to ride in park, just had to walk
 
i said EMS as the park i work in calls their First aid EMS. it was Disney First Aid but i assumed they were EMS but i know they were Disney employees. as OP said did not want to stand out from the group i sure did that day. all because i thought did not need to ride in park, just had to walk

Disney has First Aid which is staffed by nurses, there is also Reedy Creek EMS/EMT which can be called. They can treat on site or transport. They do use other exits besides the main gates. (Reed Creek fire is located just behind Epcot-with a gate to the back stage area.)
 
I will definitely check out the cooling scarf, I think someone had mentioned that once before somewhere on the boards :)

Unfortunately, our trip is in the 3rd week of June, so we are coming in the heat of summer.

oh goodness, we've been there during June and it's been skin melting 90 with oppressive humidity. Don't even think it won't be as hot as it could get. It could be.
 
oh goodness, we've been there during June and it's been skin melting 90 with oppressive humidity. Don't even think it won't be as hot as it could get. It could be.

It really is oppressive. Something's are an attempt to try and be cool, but in the summer being over come by heat if your sensitive is going to happen. The red face, panting come from just the hike up to security. It is better when the sun goes down. Those are some of the longest hours of daylight in June.

I have one kiddo who as soon as we got to Universal during a late Sept heat wave had heat exhaustion. They sat in the first aid, had Gatoraid , ice pack, wet clothes, spray bottles, with the help of the air conditioner the temp came down.
We bought a had a hat, spray bottle and were given Gatorade. It is a really bad time for asthmatics too.

Could you consider a Christmas time holiday trip so you really can enjoy the parks?
 
disneymarie said:
It really is oppressive. Something's are an attempt to try and be cool, but in the summer being over come by heat if your sensitive is going to happen. The red face, panting come from just the hike up to security. It is better when the sun goes down. Those are some of the longest hours of daylight in June.

I have one kiddo who as soon as we got to Universal during a late Sept heat wave had heat exhaustion. They sat in the first aid, had Gatoraid , ice pack, wet clothes, spray bottles, with the help of the air conditioner the temp came down.
We bought a had a hat, spray bottle and were given Gatorade. It is a really bad time for asthmatics too.

Could you consider a Christmas time holiday trip so you really can enjoy the parks?

I've been to the parks before so it doesn't bother me to not see everything. And unfortunately these days are set in stone for us so I just have to figure out a way to make it work.

Sent from my Samsung Galaxy S3 using DISBoards
 
If you are not comfortable confiding your health issues with your friends, at least get you BFF on board. Maybe work our some type of signal where you can let him know you need to get out of the heat. You can just tell the other couple to go ahead and you will catch up to them later. All the cooling ideas are great in addition to alternating rides with indoor shows. Even shows you may not really care about will get you a little break from the heat. Maybe plan sit downs for lunch rather than dinner so you will have another break? If you are at Epcot or MK, a nice long ride on the monorail is a cool way to get a break?
Have you gone in June before?
 
MSSANDRA said:
If you are not comfortable confiding your health issues with your friends, at least get you BFF on board. Maybe work our some type of signal where you can let him know you need to get out of the heat. You can just tell the other couple to go ahead and you will catch up to them later. All the cooling ideas are great in addition to alternating rides with indoor shows. Even shows you may not really care about will get you a little break from the heat. Maybe plan sit downs for lunch rather than dinner so you will have another break? If you are at Epcot or MK, a nice long ride on the monorail is a cool way to get a break?
Have you gone in June before?

We went last June before and after our cruise on the Fantasy, but it was overcast and raining every day that we went to the parks so it was not hot at all.

Sent from my Samsung Galaxy S3 using DISBoards
 
we were there in June of 11 and it was hot and humid all 6 days with storms each day. would not count on overcast and rainy.
 


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