Calling all Zebras!
There seems to be a lot of us with EDS here on the DISboards, and just as there are threads for people with fibromyalgia or thyroid problems, I figured we could do with our own general thread. It is nice to meet others with the same condition, ask questions, and just get to talk even vent to others who understand what we are going through.
I am Katy, I live in Anaheim, CA (for now) and I have EDS: Hypermobility Type (HEDS, or under the old system, EDS Type 3/EDS3)
I also have a host of secondary conditions, including POTS/**, GI problems, and neuro damage and problems due to laxity in my spine. I probably have a tethered cord. I also have a neck fusion from C2-Occipital (skull). So I literally have my head screwed on straight. Before that, it was so loose my doctor was shocked I was not dead or a quadriplegic. There is some residual damage there too. I use a wheelchair full time when I leave the house.
I live down the street from Disneyland, so I go often. I am learning ASL. I have one small, very dumb but very sweet, kitty.
So that is me!
So if any other people with EDS, any type, around want to chime in, introduce yourself, just say hi, ask a question, anything, please join in! Welcome to the EDS thread!
There seems to be a lot of us with EDS here on the DISboards, and just as there are threads for people with fibromyalgia or thyroid problems, I figured we could do with our own general thread. It is nice to meet others with the same condition, ask questions, and just get to talk even vent to others who understand what we are going through.
I am Katy, I live in Anaheim, CA (for now) and I have EDS: Hypermobility Type (HEDS, or under the old system, EDS Type 3/EDS3)
I also have a host of secondary conditions, including POTS/**, GI problems, and neuro damage and problems due to laxity in my spine. I probably have a tethered cord. I also have a neck fusion from C2-Occipital (skull). So I literally have my head screwed on straight. Before that, it was so loose my doctor was shocked I was not dead or a quadriplegic. There is some residual damage there too. I use a wheelchair full time when I leave the house.
I live down the street from Disneyland, so I go often. I am learning ASL. I have one small, very dumb but very sweet, kitty.
So that is me!
So if any other people with EDS, any type, around want to chime in, introduce yourself, just say hi, ask a question, anything, please join in! Welcome to the EDS thread!