Driving 6000 Miles for the Magic: A Miracle Trip

I just found your TR today, and I'm already all caught up (of course that means I have neglected all of my house hold duties :) )
I can't wait to hear about your days at the parks. You guys are a wonderful family, truly an inspiration!!
 
Well, you got it girl! You tell a heck of a story, and reallyreallyreally give us all something to think about. Like someone else here said, I will never again whine about toting around the kids and all their paraphernalia.

So many people in your position would not bother to try for such a trip, as it's so much work. You're all an inspiration!

I am buckled up and ready for the rest of the ride! Rock it, sister!
 
We stopped briefly to see the dolphins. I must say that they were positively adorable! They would pop up and do cute head bobs. And a couple would poise on a rock.

100_0044.jpg

100_0046.jpg


I'd like to do this on one of our trips!!

Great pictures :thumbsup2
 
Hi! I just discovered your tr tonight - and I read the whole thing:goodvibes You and your family are incredible. I especially like your redwood tree analogy. It really does describe your family. I love your writing and will be waiting for your next installment:)
 

DebIreland:
I too liked the topless guys bodies..... er, I mean dancing skills.
:rotfl: Both aspects were entertaining. Eye candy. Patience is a virtue, Grandma always says. ;)

nyyankeegirl: Thanks for joining. Glad I could give you some play time cause all work and no play... ;)

kpk89: :cool1: Thanks for stopping by. The harder you have to work for something, the more you appreciate it.

blue river: Mom took 90% of the pics. I love dolphins!

slyjly: Thanks for joining and your kind words. Our family sticks together :)

Thank you to everyone posting-you are all so kind!

Coming right up: Epcot- the best and worst of times
 
Warning: This post includes some complaining.

Epcot (July 18-Tuesday)

Our first Disney day would be Epcot. It was a little hard to get up and going. I think we got to the park about 11:30/12:00. The RV parking at Epcot is very good. Easy to get to and close to the entrance (something we would really appreciate later in vacation).

Outside the entrance with Dad feigning excitement:
100_00641.jpg


One thing I really like about Epcot is that you can hear the music quite a distance from the gates. Hearing the Disney music fuels the excitement and gets you in the Disney spirit. The strains filled the air and pumped me full of excitement as we entered Epcot.

As always our first stop was…

The bathroom.

No matter what park we go to, the first ‘attraction’ to visit is the bathroom.

Epcot has really nice, easy to find companion bathrooms which I appreciate. I try to use the companion restrooms because 1) They are big enough for my wheelchair and many stalls aren’t and 2) My Dad has to help me so it is more comfortable for all involved.

We used the companion bathroom by gateway gifts and the smoking area-good one. It takes our family 30 minutes to an hour to cycle through the bathroom. After our mandatory rest stop we were off to guest services to get a GAC.

I had never gotten a GAC before because I didn’t need it. But since our last visit, I have acquired a trach, vent, breathing treatment regimen, pain issues, fatigue issues, feeding tube, and GI issues so I felt I really needed a GAC. My primary physician had written a letter I know it’s not necessary but I felt better having it. The cast member scanned it and then gave me a GAC, yay! I breathed a sigh of relief. Even with the GAC, our average number of attractions per day was 4 and the most we ever did was 6. So I felt justified getting it.

Grandma posing around Epcot:
100_0065.jpg

100_00751.jpg


We then decided to go to a family favorite- Ellen’s Energy Adventure. It is the only ride that we can get on together (3 wheelchairs). Dad especially enjoys it. So, totally pumped and ready for fun, we jaunt over to Ellen’s Energy Adventure.

After waiting in line, the Cast Member tells us rather abruptly and forcefully that “those wheelchairs aren’t allowed.” What?

“The disability guide says no ECVs-not no electric wheelchairs.” I say.

“Sorry, not allowed-you could transfer to a park chair.” Ya, that will work. I don’t need the molded seat, side props, food pump, or ventilator. (thought this) :mad:

I said, “We have ridden this on several other trips.”

“Those wheelchairs are not allowed.” (sounding irritated).

Dad says, “If it’s the electronics you’re worried about them and driving on, I can take them out of gear and push them. That would make it essentially like a manual chair.”

“Sorry, those chairs are not allowed.” Said abruptly and rudely.

Feeling disappointed, dejected, and plain mad (me) we give up and leave. :guilty: We also start to wonder if we won’t be allowed on all the rides marked “no ECV.” This would cut our limited rides in about half…Feeling very frustrated, we head off to The Living Seas. Shake it off-your at Disney!! I later found out the policy was changed because one person had an accident. :sad2:

Off to the Living Seas.
100_0070.jpg


I was really excited to see Turtle Talk. :cheer2:

Gadzooks that line is huge! :scared:

I wonder how many wheelchair seats there are. :confused:

A helpful CM sees our bewildered look and directs us to the wheelchair area (to the left and up quite a bit from the line). Each show has four wheelchair spots. We are signed in and given return tickets to the show with available wheelchair seats…in twelve minutes.

Cool. :banana:

Danielle and I go over to Bruce’s Shark World until Turtle Talk.
100_00671.jpg

100_00681.jpg


Mom heads to the bathroom—hurry! Bruce’s shark world was pretty neat. Informative and fun. Mom barely makes it back and we head into the show.

I thought the show was really cute and technologically amazed. My computer scientist parents were awed and mystified by the real time movements and interaction. I loved the expressions, Dory and the whale, and the interaction.

“Hey dudes and dudettes, say like dude as many times as you can today. Your parents will like totally love you for it, dude.”

Dad followed the advice for a while. :)
100_0066A1.jpg


Feeling refreshed and in the Disney Spirit, we went to the Land. Down the ramps and to the too small way too busy elevator. Danielle, Dad, and I went first. We wait for Mom and Grandma.

And wait.

And wait.

Hmm I hope they are okay.

A few seconds later Mom and Grandma come out of the elevator visibly upset. Grandma was getting into the elevator and her ECV got caught in the door. Being inexperienced, she grips with her hands which propels the ECV forward and twists the seat. Now she is majorly stuck and the elevator keeps trying to close. Some kind, brawny men came to the rescue and hefted the ECV into the elevator. Mom is really upset and wondering if this was all a big mistake.

Several relatives gave her a pretty bad time about us going, “too dangerous” “irresponsible” “selfish” and other nonsense like that. :mad: Mom was really distraught. All the stress of getting here, still tired, and now the dream vacation starting out rough was just too much.

Time for a break…lunch anyone?

We pulled out my preprinted menus, orders were made, and eating commenced. Eating is my least favorite time. I can’t eat (tube fed) so I just watch them and worry about the time.

But I fought down my old commando spirit. See, I have a confession. I am a commando. My family called me a Disney Nazi. I had promised that this trip I would be patient and go with the flow. I am a reformed commando. :thumbsup2

I took a treatment and then went to the bathroom. I knew there was a nice companion bathroom by Soarin’.

Rats it’s busy.

After ten minutes a mother with two little girls (about 5 & 7) came out. This annoyed me. In my opinion, there is no reason for a woman with two girls to use the bathroom meant for people with special needs. I believe that many times people do things out of simply not knowing so a little education. :goodvibes Companion Bathrooms are for people with special needs. That’s why they aren’t marked on the map and are only found in the disability guide and first aid. Anyway, this was a particularly good companion bathroom.

I came out and Danielle was waiting to go. Before she could get to the bathroom, a mother holding a drowsy toddler went in. I was a bit perturbed but figured she shouldn’t be long.

We waited.

And waited.

And waited.

Finally after twenty minutes, the woman tiptoes out, the daughter asleep, and the bathroom light off.

You have got to be kidding me.

She used the companion bathroom to put her toddler to sleep. :sad2: :headache: :mad:

This really effected our day. Danielle has kidney reflux and if she waits too long to go to the bathroom she will have to go every 20-45 minutes. And this happened.

After our ridiculously long bathroom break, we went by The Land ride to double check wheelchair access (due to our earlier experience at Ellen’s Energy Adventure). At first the CM was a bit confused. He expressed concern over the wheelchair turning radius and said they only let on the Hovaround brand??? Mom demonstrated the chairs ability and he agreed to let us ride. Hooray! We got a return time an hour away and were going to go to Journey Into Your Imagination. But first Danielle had to go to the bathroom.

Then we went to Journey Into Your Imagination aka Figment.
100_00721.jpg

I really enjoy this ride. It takes us fifteen minutes to ride this because there is only one wheelchair car so we have to cycle through in turns. We still had thirty minutes before our return time. We played around in the activity area for about twenty minutes.

Dad conducting:
100_00731.jpg


Dad being my hands as I morph into a flower and various animals:
100_00741.jpg

Okay time to go back to the Land.

Danielle had to go to the bathroom. Missed the return time. Headed over to Honey I Shrunk the Audience. There weren’t any wheelchair seats for two hours. We got return tickets and contemplated what to do. We were too slow to trek over to the world showcase. Let’s check the Living with the Land. A ninety minute wait. Danielle had to pee.

After she went to the bathroom, we decided to use the GAC. It would take us about 30 minutes to ride (two trips-Mom and Grandma transferred). We went through the FP line. I got on just fine. The ride was better than I remembered and I liked it. We sped walked to Honey I Shrunk the Audience. Danielle had to pee…hurry!

We got in with about 5 minutes to spare. The pre-show was different then the one in 2002. This one was about memories-funny and cute. I love all the 3D shows. They have thrill moments which I especially enjoy. Some kids by us were really scared. One girl really thought she was shrunk. After Honey I Shrunk the Audience we left.

The day had some rough spots but turned out pretty good. We got home about 9:00. I think I got in bed about 11:00.

I went to sleep hoping we would be infused Disney magic the next day at Magic Kingdom.

Up Next on Wednesday, May 23: Magic Kingdom- The Magic Arrives! and my first pin

Magic Kingdom-Oh, its magic, ya know w/lotsa pics- Page 12, Post #173 & #174
 
Even with the GAC, our average number of attractions per day was 4 and the most we ever did was 6. So I felt justified getting it.
You should never feel guilty for getting a GAC!

After waiting in line, the Cast Member tells us rather abruptly and forcefully that “those wheelchairs aren’t allowed.” What?
What that is ridiculous and to be so rude too :sad2:

“Hey dudes and dudettes, say like dude as many times as you can today. Your parents will like totally love you for it, dude.”
My DD's still laugh at bubble issues :rotfl2:

Several relatives gave her a pretty bad time about us going, “too dangerous” “irresponsible” “selfish” and other nonsense like that. :mad:
Well you've proved them wrong :thumbsup2

We pulled out my preprinted menus, orders were made,
Ahhh a true DISser :thumbsup2 :rotfl2:

She used the companion bathroom to put her toddler to sleep. :sad2: :headache: :mad:
No way :mad:

Loving your writing Christamae :goodvibes
 
Hey my sister. Loving the TR. It's fun to relive the memories...well, except the bad memories. The Ellen incident was really a bad start to our first Disney day.
I have one question...about the plan for upcoming chapters...do I get to have a role besides the one who peed a lot? :confused: Just sayin'...plus I think you overcounted the bathroom breaks for this day...or else I'm in denial.
Don't worry. I still luv ya.:hug: And I still love the report.

Some other things about this day: the guy who checked out bags was very cool. It's a little awkward having people rummage through your stuff, but he was easygoing and made you feel relaxed. He actually asked permission before looking in my backpack and stuff. Not like I'm gonna say no, but it makes you feel less under scrutiny. Plus, afterwards he told me, "You're a princess".:goodvibes Yep, I'm at Disney World.
So, those words echoing in my head, and the happy familiar background music filling my ears, pretty soon after entering the park I cried. Just a little. No sobbing or awkard sniffling. My joy simply spilled over in the form of a couple of tears.

I was pleasantly surprised by Living w/ the Land as well. It's a fun ride, with some cool effects. I especially like the simulated storm...very cool. And I got a kick out of the wandering chickens in the farm scene, especially the one on the mailbox. Thier jerky head movements were pretty realistic, and I dunno, it just made me laugh. :laughing: Hey, I'm at Disney, I'm gonna laugh easier than usual. :upsidedow
 
Great Installment!! When did they change the EVC rules? I normally use one when I am there because of back problems. I can transfer if necessary, but I prefer not to do so. I was thinking that I used mine when we went last year on Ellen's ride, but maybe not. I hate to sound stupid, but what is a GAC?

Danielle! Thanks for putting in your input. Nice to know that you did not pee everywhere. LOL Don't feel bad, my family does not have near the needs that yours does and we pee everywhere!

About the companion bathrooms..not sure what they can do about that unless they put signs up explaining their purpose. I would have knocked on the door after about 10 minutes had passed. Thats crazy using it for a nap room for a small child. When we go with my grandchildren they either nap in their strollers or we head back to the room in time for their naps.

Can't wait for the next installment!!

Cat
 
Hey, Christamae! Sorry the first day at Epcot was so difficult--I can't believe that CM and their rudeness!:mad: And the lady in the bathroom putting her kid to sleep! Puh-leeze! I am glad you explained about the companion bathrooms--we have only been to WDW once and I didn't know anything about them. Now if we stumble on one, I will know to keep trucking down the road a bit to find another pitstop and leave that one free. I would have felt really bad tying one up and not knowing, so thanks for the heads up!:thumbsup2

And, Danielle--glad to see you here, too! I had to laugh at you taking your sister to task for reporting on all the bathroom breaks. I'm sure she will report on other activities in upcoming installments!:rotfl:

Your family are some dedicated Disney lovers!:)
 
It was a little hard to get up and going. I think we got to the park about 11:30/12:00.

Wow! That was very good considering all the preparations you guys have to make.

Hearing the Disney music fuels the excitement and gets you in the Disney spirit.

How true!! :wizard:

After waiting in line, the Cast Member tells us rather abruptly and forcefully that “those wheelchairs aren’t allowed.”......
“Those wheelchairs are not allowed.” (sounding irritated).

:mad:

Feeling disappointed, dejected, and plain mad (me) we give up and leave. :guilty:

:hug:

I was really excited to see Turtle Talk. :cheer2:

We loved that show too! :thumbsup2

A few seconds later Mom and Grandma come out of the elevator visibly upset.

Oh no. That must have been very stressful for her. :(

After ten minutes a mother with two little girls (about 5 & 7) came out.

Before she could get to the bathroom, a mother holding a drowsy toddler went in. I was a bit perturbed but figured she shouldn’t be long..........

Finally after twenty minutes, the woman tiptoes out, the daughter asleep, and the bathroom light off.

WHAT??? How inconsiderate. :sad2:

The day had some rough spots but turned out pretty good.

Wow! Once more Christamae I am so impressed by your attitude and (although I'm repeating myself) most of all your patience astounds me.

Looking forward to the next chapter already! :thumbsup2


Oh and hi Danielle! :wave:

ellindea said:
...do I get to have a role besides the one who peed a lot? :confused:

:lmao: :rotfl2:
 
Sorry to hear about Ellen's Energy - that really stinks!!

The mother with the toddler in the companion bathroom really makes me mad! It's so incredibly rude and even moreso in my mind because EVERY Disney park has a special baby care section (I've used them at all 4 parks, so I know she could have gone their to put her child to sleep!).

I love reading your trip report and look forward to the next installment!!!
 
Glad to be all cuaght up! You are the most patient person. I need to learn from you!! I look forward to more chapters.
 
Sorry about your day at epcot...but things will be looking up...I can tell!

I am loving the pics...who is the photographer in your group?
 
I just started reading your TR. You are an amazing person. And the rest of your family. That's so crazy about EEA. I love that ride also. I can't wait to read more. Your writing style is so descriptive. When you were going through the mountains I could actually see them in my head.:goodvibes Can't wait for more.
 
Forgive me if I am asking a silly question, but what is a GAC?

A Guest Assistance Card -- for folks with medical issues or disablities. It gives them a little extra help such as using the FastPass entrance if needed (like when the standby is 90 minutes and Danielle will have to pee every 20!) As I understand it, they are especially helpful for people with "invisible" disabilities too.

Christamae and Danielle -- loved this chapter. You are so cute to be forewarning of complaining. You truly had something to complain about!!! I cannot believe how rude that CM at EEA was to you. :mad: And honestly I did not realize that companion restrooms were intended only for wheelchair guests. I thought they were for families with little kids, too (such as if a dad needs to take a little girl to potty and shouldn't really bring her into the men's room :scared: ) But gosh bringing a toddler in to get them to sleep seems a bit much, espcially if there is clearly somebody else waiting to use the room! Argh.

I hope that the next day brings a bit more sunshine and a lot less rudeness your way!
 
Great Installment!! When did they change the EVC rules? I normally use one when I am there because of back problems. I can transfer if necessary, but I prefer not to do so. I was thinking that I used mine when we went last year on Ellen's ride, but maybe not. I hate to sound stupid, but what is a GAC?
ECVs were never allowed on Ellen's Energy Adventure, so people using ECVs always had to transfer to a manual wheelchair. The back row of the theater cars has a door that opens to the back so that a wheelchair can be driven in.

Power wheelchairs were allowed on Ellen's Energy Adventure until about a year ago. I don't remember the exact specifics, but the general outline was that someone who was using a power wheelchair either tipped over or ran off the ramp. Instead of looking at the specifics of the situation (like was the person experienced, could anything be altered on the attraction to make it safer), WDW just said no more power wheelchairs.

And, regarding the GAC (Guest Assistance Card), there is a whole section of FAQs about GACs in the disABILITIES FAQs thread on the disABILITIES Board.

We've had the same types of problems in the Companion Rest Rooms. The one in The Land is especially a problem. The only time I have ever blown up at anyone was there. People outside don't realize that the people inside the room can hear what is being said outside. DD and I had just gone inside when I heard the door being tried, then I heard a mom telling a child to knock on the door. The child knocked and said he needed to use the bathroom. I went to the door and said "We just got in here and it's going to take a while. The person I am with is disabled." About 3 minutes later, the same mom says to the child "knock again and tell them to hurry." I went to the door and said again "I have someone with a wheelchair, we will be a while." The child said something including wheelchair to the mom that I couldn't hear all of. A few minutes later, I hear the same mom telling the child to knock again because we are taking too long. The child didn't want to and said something like "Can't I go in the bathroom with dad?" Mom said no and the child knocked. I said "I'm sorry, but the person I am with is disabled and we can't hurry." The child said to the mom "they are hurrying" and I could hear the mom say to keep knocking until we come out. At that point we were finished (actually we gave up because the knocking was disturbing DD). I think our total time in the bathroom was 20-25 minutes - which is not bad for transferring DD out of her wheelchair, doing all the 'bathroom' things and getting her back into the wheelchair. We came out as the mom was telling the child to knock again.
The mom tried to avoid eye contact as they went in. I said we had hurried as much as possible, but that it made things much harder for us to have someone knocking on the door every few minutes and that the only toilets we could use in the whole park were the Companion Restrooms. The mom said her son had kept knocking and that they thought the person in the bathroom was "a child who had locked the door." I said people inside the bathroom could hear a lot more of the outside noise than people thought. Her face got really red and DD and I left.
 














Save Up to 30% on Rooms at Walt Disney World!

Save up to 30% on rooms at select Disney Resorts Collection hotels when you stay 5 consecutive nights or longer in late summer and early fall. Plus, enjoy other savings for shorter stays.This offer is valid for stays most nights from August 1 to October 11, 2025.
CLICK HERE













DIS Facebook DIS youtube DIS Instagram DIS Pinterest

Back
Top