Disney with Seizures

[SueM in MN]

One thing that isn't listed in Sue's post is American Idol Experience. There is a lot of strobing during the performance. My daughter pulls a hat over her eyes when they perform their song and then takes it off during the judging.

Thanks - forgot that one.

 

[buffettgirl]

totally not Disney related, but you do have a medical/health plan for your son at school. when DS was younger ours was very detailed, with info on how his seizures presented and who was to do what if one occurred. our school nurse was very helpful, even getting his bus stop moved closer to our home !

Ditto this. Mass is very good about making sure children are identified as possibly needing Section 504 accommodations. He may not need anything at this point, but you might want to look into it. Even something like not being penalized for missing school (or a test) for seizures might be something you ask for.

 

[boilercane]

Hi all. Hoping to get some advice on this from those who have experienced it. Last week, my son (6), after a couple of very scary seizures, was diagnosed with epilepsy. Since he's been on his new meds, he's been OK. However, my wife and I are obviously still nervous wrecks. Anyways, it has us rethinking next summer's trip. The seizures he has aren't brought on by lights or anything, so that's not an issue. However, our biggest worry is what happens if we're on Splash Mountain, he has a seizure, and the ride breaks down and we're stuck on it? We'll have his emergency meds on us at all times, but still, this thought is very scary to us. This could happen on any number of rides. He's only 6, but he's a daredevil. He loves Space Mountain. I'll be a nervous wreck sitting behind him on the ride for 2.5 minutes.

I am sorry for your sons seizures. i had my first when I was 12. I am currently on Depekote and Lamictal for my seizures. Unfortuneately, there are numerous things that can cause seizures (ie: lack of sleep, improper nutrition, strobe lights, and when you get older alcohol). There are also different types of seizures, grand mal and peti mal.

I can honestly say that I never had a seizure as a result of going on a ride. As I previously stated in an earlier thread, my fear is the lights that the Glow in the Show cause strobe affects which can trigger a seizure.

Cast members are at every ride and constantly walking the parks. If your son should suffer a seizure just find a cast member and they will have their EMS at the scene asap. Disney is great in that aspect.

If you are nervous I would consult your son's neurologist and express your fears. My parents did and my neurologist encouraged them to take me to Disney.

 

[purduesean]

Checking with your neurologist is a great idea.