Hi Everyone! Welcome to the new folks!!!
I am sorry I have been so MIA lately....
We have had some things going on and I think I am ready to share -- at least a bit with my DIS friends...
I am getting iron infusions to deal with severe anemia. This is more a pain than anything but I am feeling better. I have a minor procedure next week that will hopefully prevent the anemia from re-occurring. My issues are small.
The problem that has consumed me the past couple of weeks is with my DD, Sabrina. We found out on the 28th that she has scoliosis. Scoliosis in of itself is not anything really that bad. It is actually very common and many many folks live with scoliosis without knowing they have it. Unfortunately, it is a bit different with Sabrina. She is only 9 and has many many years to grow. The spine specialist said she has only scratched the surface on her growing and will be very tall. He also told us she already has a 30 degree curve. Because of these 2 things, he couldn't help us......that was not a nice message to hear.
It turns out that juvenile scoliosis is not common. Left untreated it can result in a very twisted spine that would ultimately force her to have spinal fusion surgery later in life. We have to treat it now and hope that it doesn't progress any further as she grows. We were directed to the pediatric spine specialist here in Austin. I have since done a ton of research and got very very worried. My beautiful daughter could very well end up in a back brace for the next 5-7 years. We are exploring other options (there are some very exciting ones out there) but they do involve surgery which scares me silly. I have since made appointments with 2 specialists here in Austin and a surgeon in Houston. I have even submitted Sabrina to the Shriners hospital in Houston -- I hope they accept her.
At this point, we don't know what is going to happen. We should know soon and have an idea of what the next 6 months will look like (bracing/surgery/etc). Until then, if you can imagine, my stress level has been high and I have been very distracted.
I am sharing with all of you because in some ways, it is easy. Most of you don't know her at all so I have no fear of judgement. Also because my past DIS friends have turned out to be some of the warmest friends I have. I am assuming that will be the same with this group.
I will keep you all posted on her progress but until we get it sorted out, will most likely not be posting (although I do read all the posts)!
Ultimately, I hold on to the fact that this is not life threatening, it isn't something she will even (hopefully) have to deal with all of her life. We are lucky our kids are as healthy as they are and I can't imagine the stress that some of you have dealt with from cancer, diabetes or anything like that.
Ok, so back to work -- thanks for listening....