I apologize for being so far behind! I really am not sure where July has gone!!!
I am so sorry about the family rushing in ahead of you to see Donald, but really sorry for the little girl. What a sad memory for her.
Anakins handwriting is beautiful!
Yay for seizure free
Love the pics of AoA!!! Even though your experience in getting food sounds like it was a bit rough... I bet it will get better there.
I know! July has flown. How's Zoe?
He is really taking his time with the writing. Yesterday he worked on cursive h and l.
Still seizure free and less myoclonic twitching in his sleep!
We've eaten there twice. The 2nd time went much better!
Hi Tink!
hope all is going great! miss seeing you around
Hello Lisa! He is still seizure free!! Looking forward to the 2 month mark on Aug 10th, same date as our wedding anniversary!
We went to a restaurant the other day. There were 8 steps, with those horizontal lines from "grippers" on them. He was able to navigate all the steps, he was slow going down, but he did it holding the railing and dh's hand. If you remember the last time we went there, for some reason he kept leaning forward going down those steps and we had to support him completely going down. So that's an improvement! Going up, those same steps into the restaurant he didn't need anything except the railing!
He is still having panic attacks, but not near as often or as intense. He was losing whole days before, now it's been a few hours.
Sensory issues are a little better too. He was able to watch Brave and Ice Age without earphones. But he still runs from flushing toilets and loud noises. He is not liking out daily thunderstorms! But on the plus side, he is running to one of us rather than duck and cover under a table and rocking.