Disney done differently, (BOG dining updates pages 202 and 203)

[lovethattink]

Photoshoot with Mickey and Minnie! As I said before I sure hope the photopass guy got a better shot.

Empties out into a gift shop

 

[smileycrissy]

Nice photos Tink!! And my little buddy Anakin looks so adorable with Minnie & Mickey. Was he able to chat with them for a few mins?

The new meet & greet looks really cute, I can't wait to check it out.

 

[sl_underwood]

The meet n greet looks fun. Cant wait to check it out

 

[lovethattink]

Nice photos Tink!! And my little buddy Anakin looks so adorable with Minnie & Mickey. Was he able to chat with them for a few mins?

The new meet & greet looks really cute, I can't wait to check it out.

Thanks! He was able to talk with them for a while. I was busy taking pics of everything in the room. My husband and the photopass guy were amused by me. Hopefully they got good pics! They haven't downloaded yet on Disney's photopass site yet.

 

[lovethattink]

The meet n greet looks fun. Cant wait to check it out

Thanks, it was fun. I'm sure Luke will love it!

 

[lovethattink]

Hurray, my pictures are showing again!

On Thursday night into Friday morning, Anakin had 2 seizures. He woke up Friday morning and felt good and wanted to go to Animal Kingdom to meet up with friends. I told him I needed to see how he was today, but we could meet up with our friends for supper at their resort. He was disappointed not to go to AK, but was happy about going to AKL. Our friends were staying at Kidani Village.

He had a great day, so when Goofy got home from work, we headed to AKL.

We ate supper at The Mara while our friends enjoyed a nice dinner at Boma. They actually finished eating before we did. After supper we walked around the resort and took in the ambiance of the animals and resort. It was so nice to visit with twirlergirl and her dh! Anakin loved them, and I think they became substitute grandparents!

It's kind of funny because we had been meeting them yearly at either DIS meets, Tagrel Christmas party, or MouseFest meets. Every time they had seen Anakin in the past, he had always been sleeping. This time they got to see him in full action, lol.

 

[sl_underwood]

So sorry to hear about the seizures. Luke has only had two grand mal seizures since we got him but they sure are scary! He typically haas the petit mal seizures but those are better now that he is on meds that work for him. I cannot imagine dealing with it regularly. AKL looks beautiful. I have always wanted to stay there but it just hasnt worked out for us yet.

 

[MyPeanut&Bug]

All right, I think I'm all caught up!

I love Anakin's picture in the TT line. He looks like a little man with a big personality.

The new meet and greet looks so nice! Exciting to see all the pics!

 

[lovethattink]

So sorry to hear about the seizures. Luke has only had two grand mal seizures since we got him but they sure are scary! He typically haas the petit mal seizures but those are better now that he is on meds that work for him. I cannot imagine dealing with it regularly. AKL looks beautiful. I have always wanted to stay there but it just hasnt worked out for us yet.

He's only had one grand mal, thankfully! He typically has focal seizures during his sleep. He had been really doing well on his medication, but he's recently grown. He probably needs his dosage adjusted. He goes back to the neurologist in a couple weeks. With just one night of it, they won't do anything, but if he would continue to have breakthrough seizures then they would. Unless, of course, his blood levels of the medication are too low, then they will increase it. He hasn't had any since!

AKL is a very cool resort. I love to visit it for dinner and to walk around, but I don't think I'd like to stay there. My husband really wants to stay there some day, so we will probably try it out.

 

[lovethattink]

All right, I think I'm all caught up!

I love Anakin's picture in the TT line. He looks like a little man with a big personality.

The new meet and greet looks so nice! Exciting to see all the pics!

He is a little man with big personality. He doesn't go anywhere that people don't know him by the time he leaves. He's never in a room of strangers.

If there is music, he will break out in song and dance, and isn't one bit embarrassed, but if Grumpy is with us, he (meaning Grumpy) will be embarrassed.

 

[KatMark]

Okay, I think I am basically caught up.

Love the pictures of Anakin with the cars and Mickey and Minnie. How nice that you can take day or evening trips over to DW to meet up with friends, etc.

 

[blessedmom4]

Oh Tink, I can't see the photos; however, I think I am all caught up. Praying that Anakin is having a great seizure free day and that YOU are feeling much better since the choking episode, that must have been quite frightening. I hope other than the one other time your wrote about, that it hasn't happened again and that it will NOT happen anymore. God Bless you and your sweet family. Thank you for sharing with us!!

 

[lovethattink]

Okay, I think I am basically caught up.

Love the pictures of Anakin with the cars and Mickey and Minnie. How nice that you can take day or evening trips over to DW to meet up with friends, etc.

Thanks! Welcome back from your trip! Loved your pics, if I ever get over to Marco Island, I'm going to have to check out that restaurant you ate at. The food pics looked amazing.

Years ago when Grumpy's pediatrician said we needed to move to a more temperate climate like Puerto Rico, dh and I both said Florida. We already had annual passes when we lived in PA, so we knew we wanted to be somewhere near Disney.

Oh Tink, I can't see the photos; however, I think I am all caught up. Praying that Anakin is having a great seizure free day and that YOU are feeling much better since the choking episode, that must have been quite frightening. I hope other than the one other time your wrote about, that it hasn't happened again and that it will NOT happen anymore. God Bless you and your sweet family. Thank you for sharing with us!!

Bummer you can't see the pics. I wonder why? I am feeling much better. However, Anakin had a very intense seizure this morning. It scared dh and I. He hasn't had one this intense since that grand mal that I mentioned above, which was on Father's Day. Thankfully, this one didn't last long.

By the time I ran and got the phone to call 911, he had stopped. We checked his 02 sat and heart rate and it was already in normal limits. I called his neuro and he said to bump up his night time dose and take him for blood levels tomorrow.

 

[davebon23]

Tink,

Sorry to hear Anakin is having some more seizures. I hope they are able to regulate his meds and that it stops soon. I know the kids seem fine after they are over sometimes, but it really is such a strain on Mom and Dad to see it. Hopefully he feels better soon so you can take him to Animal Kingdom, like he wanted the other day. God Bless.

 

[smileycrissy]

Tink - I'm so sorry to hear that Anakin had another seizure. I'm hoping and praying that his blood levels go well tomorrow. Tell him I said 'Hi'.

 

[blessedmom4]

Bummer you can't see the pics. I wonder why? I am feeling much better. However, Anakin had a very intense seizure this morning. It scared dh and I. He hasn't had one this intense since that grand mal that I mentioned above, which was on Father's Day. Thankfully, this one didn't last long.

By the time I ran and got the phone to call 911, he had stopped. We checked his 02 sat and heart rate and it was already in normal limits. I called his neuro and he said to bump up his night time dose and take him for blood levels tomorrow.

I think photobucket was down when I looked? Trying to catch up now, loving ALL of the photos; however, SO concerned for Anakin ...and for you!! How are you feeling? Praying for you both and hoping for an update on the two of you when you have a moment!!!

 

[lovethattink]

Tink,

Sorry to hear Anakin is having some more seizures. I hope they are able to regulate his meds and that it stops soon. I know the kids seem fine after they are over sometimes, but it really is such a strain on Mom and Dad to see it. Hopefully he feels better soon so you can take him to Animal Kingdom, like he wanted the other day. God Bless.

Thanks for the kind words and understanding. It's really difficult to see someone have a seizure and worse that there isn't much we can do during a seizure. Unfortunately, he woke up during the seizure on Wednesday morning. That is the first seizure where he has been conscious.

Strong seizures like the one on Wednesday, thankfully, are not a common occurence for him. But we've been told that the small ones he has at night that last only seconds are part of his "normal".

He loves animals and learning facts about animals! We'll get back there eventually!

 

[lovethattink]

Tink - I'm so sorry to hear that Anakin had another seizure. I'm hoping and praying that his blood levels go well tomorrow. Tell him I said 'Hi'.

I told him you said hi, and he asked again when we will see you again? He is having a difficult time dealing with our snow bird friends heading back north.

His medicine was increased, and the blood levels came back good. He has an appointment in early May to see the neurologist. In the mean time, I've talked with his neurologist a couple times on the phone, and he even called us over the weekend to see how things were going!

 

[lovethattink]

I think photobucket was down when I looked? Trying to catch up now, loving ALL of the photos; however, SO concerned for Anakin ...and for you!! How are you feeling? Praying for you both and hoping for an update on the two of you when you have a moment!!!

Glad you are able to see them again! Thanks so much for your prayers and concern! He is doing much better with the increased night time dose. He's been having some small seizures as he falls asleep, they last only seconds and are weak. He has mostly focal seizures. It usually takes about 2 weeks once a dose changes to get them under control.

For those who don't know what focal seizures are, here is a link.
http://www.nlm.nih.gov/medlineplus/ency/article/000697.htm He has mostly the automatisms described in the link, as he is falling asleep. Before we knew he had Epilepsy, we thought he must have been dreaming about eating.

As for me, I am doing much better. Thanks for asking. I think the stress of everything between the storm damage, his seizures, my sister-in-laws health problems and all the other busyness of life got to me. I'm having some dental issues, and I am not a good dental patient, so my dentist is taking things little by little. I go back in a couple weeks. Other than that, I am hanging in there and learning more and more what trusting God means for me.

 

[davebon23]

Tink,

Glad to see that his blood levels are better. Hopefully this can keep his seizures under control. So sorry that he was awake during this last one.
Does he remember any of it? I hope it isn't too frightening for him.

Hope he gets to see the Animals soon.