Disability advice

CalvaryMike

DIS Veteran
Joined
Aug 4, 2005
Messages
771
I am on peritoneal dialysis. I do my dialysis treatments every night. My mind set was until I get a kidney transplant my traveling days were pretty much over. My doctor and nurses have been encouraging me to get out there and enjoy life. If you were to look at me, you wouldn't think there was anything wrong with me. I was recently issued a disability license plate, because I cannot walk far without getting easily fatigued. I have yet to park in a handicap spot, but it's good to know I can if I need to.

With that being said, my DW suggested we visit Disney World. We already have non-expiry tickets (bought years ago). I'm scared that we'll spend all this money and I won't be able to handle the lines. I won't do a scooter or wheelchair as I'm not in need of one. If I pace myself and take breaks, I can do it on my own. A friend suggested I get a DAS card. I don't want to take advantage and I don't know if I even qualify.

I would really appreciate your thoughts on this. TIA
 
If your primary problem is fatigue you likely wont be given a DAS; disneys answer to fatigue and stamina problems is to rent a wheelchair. But you can schedule 3 fastpasses per day ahead of time, so that will help. Plan reservations for sit down meals to give yourself a break. Disney has removed most benches and seating, andcits very difficult to find a seat at the quick service locations. Dont go in expecting to see and do everything, and you wont be disappointed. Set realistic expectations for what you can do in one day, and you will still be able to have a good time
 
What are your concerns for the line is the first thing to ask your self. If it is that you will be tired to stand in the line or the slow walk the lines take then a mobility device is what you need the DAS does not give you a place to sit while waiting and they can be hard to come by the DAS does not make the walk less for a good number of rides So think about what your needs are then find the tool for your needs you would not say you will not wear glasses if you need them or a calculator to do math think of this as a tool to help you enjoy your trip. As @mamabunny said in another post people will not notice you in a chair or really anything at Disney for that matter so go out and enjoy your self with why ever tool you need
 
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As others have mentioned, seating is at a premium in the parks now. Also, keep in mind that the waiting in lines is the least amount of walking. Some of the longest walks are to and from transportation. I think we averaged 8 miles a day on our last trip. The DAS can also make you walk MORE due to going to get the return time and then going back to actually get on.

You can definitely ask as Guest Services but have a back up plan if you are either denied or if (as I suspect) it doesn't help as much as you think it might.
 

I know you say that you think you can do this with just taking breaks. Please know that Disney has eliminated many of the benches - eliminating sitting, to open walkways to help with crowds. I would recommend you look into a scooter or eheelchair.

as far as a DAS, you can ask, but you will be still waiting in lines (if you are granted one), with no place to sit or rest. Also, if you are stuck in a line, exiting isn't always easy.
 
Thanks for the advice. Exactly what I needed and thought. I'll hold off for now on visiting WDW.
 
How long is the wait for a kidney, and do you really want to put your life on hold that long, especially when your medical professionals advise differently? Do you expect to get less easily fatigued as time and dialysis continue?

As @gap2368 synopsis (and @mamabunny will be along eventually to expand on), a mobility device is a tool. Would you not wear glasses if they would help you see clearly? Would you not use a hearing aid?
 
I am on peritoneal dialysis. I do my dialysis treatments every night. My mind set was until I get a kidney transplant my traveling days were pretty much over. My doctor and nurses have been encouraging me to get out there and enjoy life. If you were to look at me, you wouldn't think there was anything wrong with me. I was recently issued a disability license plate, because I cannot walk far without getting easily fatigued. I have yet to park in a handicap spot, but it's good to know I can if I need to.

With that being said, my DW suggested we visit Disney World. We already have non-expiry tickets (bought years ago). I'm scared that we'll spend all this money and I won't be able to handle the lines. I won't do a scooter or wheelchair as I'm not in need of one. If I pace myself and take breaks, I can do it on my own. A friend suggested I get a DAS card. I don't want to take advantage and I don't know if I even qualify.

I would really appreciate your thoughts on this. TIA

Yep. My buddy, @kaytieeldr already said it up there, but here I am anyway! 🙂

You need to use a mobility device of *some* kind, and you can do this. But, let's back up for just a moment.

Sounds like you haven't been doing much, even at home. When was the last time you got out and about - went to a fair or festival, or visited a museum? When was the last time you went shopping at a mall where you were there for more than, let's say, 20 minutes? When was the last time you attended a sporting event, or a play, or just a family member's t-ball game?

Sounds like it may have been a while.

Why is that?

You said that you can't walk far without getting easily fatigued. Join the club, my friend. That's where I was the first time I had to use a mobility device. And it was at WDW.

There's a lot of folks who don't want to use that device. Whether it's a "scooter" (Disney calls them "ECVs") a wheelchair or a Rollator, they will tell you that they don't *look* disabled. That they can do just fine - they just need to stop and sit every "now and again" (and if you ask their family members, it's usually "They have to stop and sit A LOT"). They don't realize that by not using the tools at their disposal, they are not only ruining the fun for everyone with them, but they are putting a strain on their family. Their family worries about them - and can clearly see that they need to use the device. Typically, when the person finally breaks down and uses one, the family is actually happy and relieved - they can move at a "normal" pace again, and their loved one is no longer as tired, or in as much pain, etc.

I know all of this, because that person in the paragraph above was me.

When I finally broke down, and rented a scooter, I was in the middle of the Parks. (We were just talking about this over on another thread LOL). I *ugly cried* about it. I didn't want to use one of those damned devices, but I knew I couldn't go on like I was. I was terrified that people would point and stare, that they would judge me. I was worried that when I got home I would never again be able to function without one.

But what happened was this: My family could now move at a pace that was comfortable for them - and suddenly, I was the one who was always ready to go, go, go when they were all looking around for a shady spot to sit. No one stared at me, or stood pointing a finger of condemnation at me for being a "fake" or a "phony". In fact, me, on a scooter at WDW was a total non-event. And when I got home? No one there knew I had used a scooter at WDW, and my life went right back to "normal".

(In the spirit of transparency, my condition continues to deteriorate and I now am a full time mobility device user, but at the time, I had not even used the electric cart at the grocery store)

What did I learn? I learned that when I use the proper tool, my life was made easier. As @kaytieeldr alluded to above, we all use tools every day, often without even thinking about it. When you need to do math - balance the checkbook - do you reach for a calculator, or do you take your socks and shoes off, and count on your fingers & toes? If you wanted to build a fence, would try to pound the nails with a drinking glass? No; you would use a hammer - you would use the proper tool for the job. Have you ever worn glasses? Those are a tool we use to see better. Know anyone with hearing aids? Those are a tool to assist their auditory abilities. Nothing more, nothing less. For crying out loud, the airplane I fly in to get to WDW is tool (albeit a large one!) that allows me to travel quickly and safely across vast distances.

You can sit ant home, and wait, and let life pass you by... and maybe never make it to Disney World. Or, you can say to yourself that you are going to use the tools at your disposal to go, and have the best possible time you can. No one there will judge you - shoot, no one will give you a second glance. I promise, you with a mobility device at WDW is truly a non-event. There are many, many people there who never use a mobility device anywhere *but* Disney World.

You aren't "giving up" by using a scooter - you are gaining a level of (temporary) freedom in a situation where (as others here can tell you) the *average* Guest walks between 3 & 10 miles per day. And by using the scooter, it lets you and your DW go to Disney World and escape reality for just a bit. It lets you relax, and take your time, and not have to worry about fatigue, not have to worry about how long you can stand, or how far you can walk.

Use the tools, my friend.

I hope you decide to go. I hope you and your DW have an amazing trip, and some much needed respite. And I hope you use every tool at your disposal to make it the best possible trip. 🙂
 
Yep. My buddy, @kaytieeldr already said it up there, but here I am anyway! 🙂

You need to use a mobility device of *some* kind, and you can do this. But, let's back up for just a moment.

Sounds like you haven't been doing much, even at home. When was the last time you got out and about - went to a fair or festival, or visited a museum? When was the last time you went shopping at a mall where you were there for more than, let's say, 20 minutes? When was the last time you attended a sporting event, or a play, or just a family member's t-ball game?

Sounds like it may have been a while.

Why is that?

You said that you can't walk far without getting easily fatigued. Join the club, my friend. That's where I was the first time I had to use a mobility device. And it was at WDW.

There's a lot of folks who don't want to use that device. Whether it's a "scooter" (Disney calls them "ECVs") a wheelchair or a Rollator, they will tell you that they don't *look* disabled. That they can do just fine - they just need to stop and sit every "now and again" (and if you ask their family members, it's usually "They have to stop and sit A LOT"). They don't realize that by not using the tools at their disposal, they are not only ruining the fun for everyone with them, but they are putting a strain on their family. Their family worries about them - and can clearly see that they need to use the device. Typically, when the person finally breaks down and uses one, the family is actually happy and relieved - they can move at a "normal" pace again, and their loved one is no longer as tired, or in as much pain, etc.

I know all of this, because that person in the paragraph above was me.

When I finally broke down, and rented a scooter, I was in the middle of the Parks. (We were just talking about this over on another thread LOL). I *ugly cried* about it. I didn't want to use one of those damned devices, but I knew I couldn't go on like I was. I was terrified that people would point and stare, that they would judge me. I was worried that when I got home I would never again be able to function without one.

But what happened was this: My family could now move at a pace that was comfortable for them - and suddenly, I was the one who was always ready to go, go, go when they were all looking around for a shady spot to sit. No one stared at me, or stood pointing a finger of condemnation at me for being a "fake" or a "phony". In fact, me, on a scooter at WDW was a total non-event. And when I got home? No one there knew I had used a scooter at WDW, and my life went right back to "normal".

(In the spirit of transparency, my condition continues to deteriorate and I now am a full time mobility device user, but at the time, I had not even used the electric cart at the grocery store)

What did I learn? I learned that when I use the proper tool, my life was made easier. As @kaytieeldr alluded to above, we all use tools every day, often without even thinking about it. When you need to do math - balance the checkbook - do you reach for a calculator, or do you take your socks and shoes off, and count on your fingers & toes? If you wanted to build a fence, would try to pound the nails with a drinking glass? No; you would use a hammer - you would use the proper tool for the job. Have you ever worn glasses? Those are a tool we use to see better. Know anyone with hearing aids? Those are a tool to assist their auditory abilities. Nothing more, nothing less. For crying out loud, the airplane I fly in to get to WDW is tool (albeit a large one!) that allows me to travel quickly and safely across vast distances.

You can sit ant home, and wait, and let life pass you by... and maybe never make it to Disney World. Or, you can say to yourself that you are going to use the tools at your disposal to go, and have the best possible time you can. No one there will judge you - shoot, no one will give you a second glance. I promise, you with a mobility device at WDW is truly a non-event. There are many, many people there who never use a mobility device anywhere *but* Disney World.

You aren't "giving up" by using a scooter - you are gaining a level of (temporary) freedom in a situation where (as others here can tell you) the *average* Guest walks between 3 & 10 miles per day. And by using the scooter, it lets you and your DW go to Disney World and escape reality for just a bit. It lets you relax, and take your time, and not have to worry about fatigue, not have to worry about how long you can stand, or how far you can walk.

Use the tools, my friend.

I hope you decide to go. I hope you and your DW have an amazing trip, and some much needed respite. And I hope you use every tool at your disposal to make it the best possible trip. 🙂

Can I "like" this more than once? Using a mobility device doesn't make you weak - it makes you a smart person. My older brother fought a wheelchair for SO LONG - now he wonders why he spent so much time suffering needlessly.
 
OP, you state you got a HP tag because you can't walk that far - how are you going to do the miles of walking at WDW? Please be kind to yourself and get an ECV, or a wheelchair if you want, and don't torture yourself about it. It doesn't make you any less of a human being to use one, especially for long distances like at WDW. You don't have to stay in one, you don't have to use one at home, etc.
 
Yep. My buddy, @kaytieeldr already said it up there, but here I am anyway! 🙂

You need to use a mobility device of *some* kind, and you can do this. But, let's back up for just a moment.

Sounds like you haven't been doing much, even at home. When was the last time you got out and about - went to a fair or festival, or visited a museum? When was the last time you went shopping at a mall where you were there for more than, let's say, 20 minutes? When was the last time you attended a sporting event, or a play, or just a family member's t-ball game?

Sounds like it may have been a while.

Why is that?

You said that you can't walk far without getting easily fatigued. Join the club, my friend. That's where I was the first time I had to use a mobility device. And it was at WDW.

There's a lot of folks who don't want to use that device. Whether it's a "scooter" (Disney calls them "ECVs") a wheelchair or a Rollator, they will tell you that they don't *look* disabled. That they can do just fine - they just need to stop and sit every "now and again" (and if you ask their family members, it's usually "They have to stop and sit A LOT"). They don't realize that by not using the tools at their disposal, they are not only ruining the fun for everyone with them, but they are putting a strain on their family. Their family worries about them - and can clearly see that they need to use the device. Typically, when the person finally breaks down and uses one, the family is actually happy and relieved - they can move at a "normal" pace again, and their loved one is no longer as tired, or in as much pain, etc.

I know all of this, because that person in the paragraph above was me.

When I finally broke down, and rented a scooter, I was in the middle of the Parks. (We were just talking about this over on another thread LOL). I *ugly cried* about it. I didn't want to use one of those damned devices, but I knew I couldn't go on like I was. I was terrified that people would point and stare, that they would judge me. I was worried that when I got home I would never again be able to function without one.

But what happened was this: My family could now move at a pace that was comfortable for them - and suddenly, I was the one who was always ready to go, go, go when they were all looking around for a shady spot to sit. No one stared at me, or stood pointing a finger of condemnation at me for being a "fake" or a "phony". In fact, me, on a scooter at WDW was a total non-event. And when I got home? No one there knew I had used a scooter at WDW, and my life went right back to "normal".

(In the spirit of transparency, my condition continues to deteriorate and I now am a full time mobility device user, but at the time, I had not even used the electric cart at the grocery store)

What did I learn? I learned that when I use the proper tool, my life was made easier. As @kaytieeldr alluded to above, we all use tools every day, often without even thinking about it. When you need to do math - balance the checkbook - do you reach for a calculator, or do you take your socks and shoes off, and count on your fingers & toes? If you wanted to build a fence, would try to pound the nails with a drinking glass? No; you would use a hammer - you would use the proper tool for the job. Have you ever worn glasses? Those are a tool we use to see better. Know anyone with hearing aids? Those are a tool to assist their auditory abilities. Nothing more, nothing less. For crying out loud, the airplane I fly in to get to WDW is tool (albeit a large one!) that allows me to travel quickly and safely across vast distances.

You can sit ant home, and wait, and let life pass you by... and maybe never make it to Disney World. Or, you can say to yourself that you are going to use the tools at your disposal to go, and have the best possible time you can. No one there will judge you - shoot, no one will give you a second glance. I promise, you with a mobility device at WDW is truly a non-event. There are many, many people there who never use a mobility device anywhere *but* Disney World.

You aren't "giving up" by using a scooter - you are gaining a level of (temporary) freedom in a situation where (as others here can tell you) the *average* Guest walks between 3 & 10 miles per day. And by using the scooter, it lets you and your DW go to Disney World and escape reality for just a bit. It lets you relax, and take your time, and not have to worry about fatigue, not have to worry about how long you can stand, or how far you can walk.

Use the tools, my friend.

I hope you decide to go. I hope you and your DW have an amazing trip, and some much needed respite. And I hope you use every tool at your disposal to make it the best possible trip. 🙂

What a wonderful post by mamabunny. She has said everything I wish that I could put into words.

Can I "like" this more than once? Using a mobility device doesn't make you weak - it makes you a smart person. My older brother fought a wheelchair for SO LONG - now he wonders why he spent so much time suffering needlessly.

Exactly. It is your freedom chair. You will be shocked at what you can experience and where you can go with a freedom chair.

I say go to WDW.
 
I want to echo what others have said. I broke my ankle badly 11 years ago. I’ve been to Disney 8 times since then. The first 6 I refused a mobility device. I don’t have any real trouble in my day to day life. But every Disney trip, I was having to elevate and ice my ankle for at least 2 hours after leaving the park. My ankle would be twice the size it was supposed to be, and I would be physically and emotionally exhausted from pushing through the pain all day to make sure my kids had a good time. Enter my fiancé. On our second trip together, and we were without the kids, I was having an unrelated health issue flare up and I was so exhausted after the first day in the park, that two hours into the second day, I was having to rest about every 15 minutes. And he had enough and went and rented a wheelchair. And it changed my life! I was able to do so much more each day because I wasn’t having to rest so much. I was happier because I wasn’t in pain or trying to hide how wiped out I was. Waiting in line became so much easier because walking doesn’t bother me as much as just standing for long periods of time. And no one else cared. The CM’s were great. And everyone else there is so focused on their own vacations, they weren’t paying attention to me. I had to accept that 99% of the time, I did not need a wheel chair. But Disney is the exception to the rule. I used to wear a fitness tracker, and even doing half days at the park with frequent breaks, I was still doing over 20k steps a day, which was equivalent to 3-4 days worth of walking at home. It’s like climbing Mt Everest(the real one). In everyday life, most people can go on a hike without any special equipment or gear besides a good pair of shoes. Mountain climbing is extreme hiking and requires a lot of equipment. Disney is extreme walking. But that’s also why they don’t normally give DAS for stamina and mobility issues. If they did, more people than not would qualify because even completely normal, healthy, in shape people get fatigued at Disney.
 
Just one more thing to add you
Do not have to use the tool ( mobility device) all the time you can park it and walk around the area some walk in a store do a short line ( I would make sure the line is short before doing it ) take it in line with you and let the person with you sit in it while you walk ( they must be over 18) but just because you have a mobility device does not mean you have too use it all the time
 
Thanks for the advice. Exactly what I needed and thought. I'll hold off for now on visiting WDW.
I think you're taking the advice the wrong way though. You shouldn't put your life on hold indefinitely especially only because you don't want to use a mobility device. I think most people here are trying to say the opposite of what you took from it. Go, have fun, but rent an ECV just in case, there's nothing wrong with admitting you may need a little help, plenty of people do it, you won't feel out of place.
 
Just one more thing to add you
Do not have to use the tool ( mobility device) all the time you can park it and walk around the area some walk in a store do a short line ( I would make sure the line is short before doing it ) take it in line with you and let the person with you sit in it while you walk ( they must be over 18) but just because you have a mobility device does not mean you have too use it all the time

I agree with this part too. Just because you have a mobility device does not mean you need to use it 100% of the time. For my Mom, we rent a wheelchair at Disneyland and an ECV at WDW. She was resistant at first too.

It started with me insisting she have it at Epcot (due to the sheer size) and Animal Kingdom (due to uneven pavement). We found the trip was so much better and we rotated park days so that she would have a walking day and then an ECV day which helped. We did that I think twice before I insisted we were renting from an offsite place and would have it the whole time. I told her it could stay in the room some days if she wanted, but we were getting it and it would save money. And guess what, it went to the parks with us every day and she realized I was right about it making the trips so much better. And that we could see and do much more without her being in terrible pain. And now as soon as I book she starts asking if I have reserved her ECV for the next trip.

For Disneyland, it took longer to convince her something was needed. The park is compact and we live locally so have APs and go a lot, so often much shorter days. We were there and having a bad morning. I swear we were sitting every 5 minutes and 50 feet, and it could not have been 10 AM yet. We were heading from DCA to Dl and I told her we would be stopping to get a wheelchair when we crossed the Esplanande. She said no, but I told her she could push it if she wanted and sit when needed, but the current pace was not working. We got one and our whole day turned around. She was in less pain and had the spot to sit and we made it until 3-4 PM and it was longer than we had done in months! So after that, she has become willing to always get one as she realizes it just works. Plus, she can walk and it gives her a little space around herself as a bubble so people cannot push into her!
 
Thanks for the advice. Exactly what I needed and thought. I'll hold off for now on visiting WDW.
Mike: My husband has kidney disease too, and felt the same way about an ECV at disney. I finally convinced him 2 trips ago, and he was so glad he did! He could actually enjoy being at Disney and not getting too tired out. We still took our mid day rests but the ECV really helped his stamina and his attitude. He was very stubborn and felt he didnt' need to be taking one from someone else who needed it! Now he doesn't hesitate to use help.
Also, I have a handicapped sticker for parking. I have an "invisible" disease and look healthy. I hesitated about using it for a while, but tried it one day. It was eye opening! I found I was able to have more energy, less pain, and able to enjoy myself for a longer period of time. I still get looks, but I don't care. If others don't understand, that is their problem.
So, I do understand your hesitation, but please just try it once, maybe on a shorter trip to another place closer to where you live? if you don't want to try Disney. We had struggles, too, with the whole thing at Disney. But now we go, do what we have to do, and have fun!! Please reconsider from someone who has been there!
 












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