Dis Breast Cancer Survivors Part III - GAGWTA!

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Arrived at beach club yesterday. Mixup with rooom...gave me a room being rehabbed. After we shuffled back to the lobby. I asked for a manager in my very best under control southern belle drawl, and got a$100 credit but we had to wait another hour for room number 2. Dd15 and her friend have been troupers, so very appreciative and cooperative. Not an iota of demanding things from. Sounds weird but I did mind the drive. My DH stops every hour when he drives- I mostly stopped to get gas. It helped staying over night past the midway point. Gosh I love being able to walk yo rocky. I went to rocky by myself because stormalong bay beckoned dd15 and her friend. We are at universal today and hit harry potter world. Pretty wild.

My poor mom is getting the desperate emails from my gambling addict brother. We will be having fun next week especially if he comes back to the states for residential treatment. Gosh, I despise gambling. Sorry to miss you Cheryl. These weather is some of the best I have seen, no humidity, love breezes. So many nice topiaries in epcot. I'm in heaven.


GAGWTA!!!!!!!!!

Have a fantastic time! So sorry about your brother. I hope he's willing to get the help he needs. Hugs to you. Enjoy your trip!

Good afternoon ladies

Barbara - sorry you are dealing with the never ending snow. Spring cant come soon enough I am sure.

Smiley and Lisa - how are you both?

Marci - sorry you are having to deal with all these side effects

Linda - enjoyed your report so far. Love the picture of you dd. Too funny. Hope everyone is recovered at your house.

Cheryl - hope your chemo goes well today and have a great trip. Enjoy the great weather.

Laurie - so glad you made it safely and are having a good time. Sorry about your BC room. Now I am worried and I hope we dont get one of those rooms in May. What was wrong with it? (The original room). Was this the Beach Club or Beach Club Villas? I hope things work out for your brother and that he gets the help he needs. Its good that you all care about him so much.

Well the dr. sent me the script for the blood work so that is something positive. I just got back from my school meeting. It is just a miracle ofGod that we are still open. A friend just told me she has uterine cancer and will have surgery in the next few weeks. I saw the tears in her eyes and felt so bad for her as she has lots of family problems on her plate too.

GTAGWTA

Glad you were able to get the script. I'm so sorry about your friend. I'll keep her in my thoughts and prayers.

GAGWTA everyone!
 
Marci...I did taxol but I don't recall any of the specific things you are mentioning, except for not being able to sleep. I took ambien for that, and it worked ok. I had bone pain pretty much all over, but not really more concentrated in any one spot. I know I wouldn't of been able to handle going to work, I just had absolutely no engery to do anything. Some days it seemed like taking a shower was an accomplishment. Sounds like you are really busy, maybe you could cut back your work hours some? :hug:

Laurie, how was Harry Potter? We've never gone to universal, just never seem to have the time. Where did you end up making ADRs at? Sounds like the girls are great traveling companions!

LMP, did you ever get the reclast? Sorry about your friend, cancer sucks.

Chemo was uneventful yesterday, just very, very long - 9:30 to 3:00. We are heading out tomorrow, stopping for one night in Nashville and one night in Valdosta, so the trip down wont be too bad. I need to finish packing.

GAGWTA!!!!:goodvibes
 
Finally starting to feel semi-human for the first time since Friday's chemo. I guess the cumulative effect of four chemos is starting to kick in. I started feeling bad Saturday morning, which usually doesn't start until Sunday night/Monday morning. I had to have DS drive me for my Nuelasta shot.

marcij - I'm not having the problems with my port that you are experiencing with the Taxol. Are they doing enough flushes before and after your infusions? As I mentioned before, it has been painful to have my ports accessed lately which is why I'm now using EMLA cream before my ports are accessed.

Laurie - I wish I was with you at BC! I am definitely needing a WDW fix, but I realize I'm months away from that. I'm sending DH and DS up the weekend of March 18th for some R&R. I think they need a break from the cancer drama.
 
Hi again ladies! I'm feeling a lot better physically! My hair started coming out in handfuls on Sunday & fortunately I had an appointment with the radiotherapy people in the city on Monday so went to a shop and got amvery nice wig with hubby and dear daughters help. I've been promised by all the family it looks completely real & I was lucky the color matched nearly perfectly, so it looks like I just have a new hairdo. Still prefer my bare head or a hat at home though. I was supposed to go for my second chemo Wednesday but my white cell count was still a bit too low so I got bumped to next week. She said they would adjust the neupogen injections this time. Don't know if more injections or bigger dose. Hubby learned how to give them so we don't have to go up the hospital every day for 7 days which is good. I had very little bone pain which was a nice relief! Finally getting physio for my lymphadema too, & will get fitted for a sleeve after about 6 weeks of treatment.
Dear grand daughter is doing a bit better after the extra attention from all of us. Dear DIL has lost 25 lbs. She's seeing a therapist & is on tranquilizers, she's having a very hard time. Our dear youngest daughter is still staying out with her 3-4 nights a week and taking care of the girls. Sadly enough even though her parents live here, they are not helping at all. In fact they have not even been to see them in 2 weeks!! I can't even imagine having a family like that. DIL says hubby & I are her parents now.
Cheryl I'm glad your chemo is uneventful even if long & boring!
Marci, I'm sorry you are having port trouble. There is no way I could work through the chemo so u have my extreme admiration!
Laurie....color me green with envy!! I would love to see Harry Potter world! Universal here on the west coast is cool, but so small compared!
Lisa, I sympathize with u in ur chemo yuck!
I'll have to finish this tomorrow, it's getting too late & my iPhone spell check is making me crazy!!
GAGWTA
 

Hey guys! All of you have been in my thoughts and prayers. I've been trying to continue working full time (though some from home) so it's keeping me more busy than I'd like. Made myself go in to work last Friday after chemo on Thursday and that didn't go over too well.

I have some questions for those of you who have had Taxol. My port and area surrounding it seemed to be more sore after chemo last week. It's not red or anything. Did any of you experience this?

I've had more sleepless nights because of the increase in steroids. After staying asleep even after ambien the first night, the nurse told me what to take with it and that helped, but I'm curious as to how long this lasts for most people. I didn't take anything Saturday night and was up most of the night again. Since I'm not having to take as much nausea medicine I guess that is another reason I'm having problems.

My arthritis did flare for a couple of days and seems better now, except for my lower back, left side. Has anyone developed back pain on this?

Thanks for the info and advice.
Hi Marci. I didn't have a port (refused, but am a hospital RN) but I'd watch it if it's beginning to get sore - it could be the beginning of an infection (or other problem) even if it's not red yet. Taxol did not irritate my veins any more than the other chemo.

Yes, the steroids kept me awake for a long time. It was mid winter and I'd be opening and closing the window all night long due to hot flashes (pseudo menopause from the chemo). That was the worst time for the scary thoughts, too. I didn't take anything other than the ativan, which supposedly helps with nausea as well (it didn't help either for me, really), but I did learn to meditate and relax my mind so that is what helped me most. It was a very rough time, though. And the "bone pain" that I had from the taxol made it worse, along with the cumulative effects of all the chemo. It was a great feeling to be done with it!
 
Laurie, hope you're having a great time at the World! :wizard:

lmp, glad you liked my TR. I had to go back to work this week but I'm hoping to keep going with my pics this w/e. :surfweb:

smiley, it sounds like your family is circling the wagons around your son's family. Thank God they have you. Keeping you all in my prayers. :grouphug:

Lisa, glad you're feeling better. :flower3: Hang in.

Cheryl, you too. How are things coming with the kitchen? :cloud9:

I've got someone coming to measure for carpet this morning. The special runs to the end of the month so if we do it, we've got some fast painting to do! :hyper:

And baseball starts at the end of the month! :yay: We've got some fundraising we're finishing up for this month, then let the games begin! DS has grown physically A LOT this winter :eek: he is busting out of all of his clothes (as is DD, but that's a whole other story! :scared1: ). He is becoming quite muscular like his Dad, uncles and grandfathers. It is amazing how much he looks like his uncle (that we lost) from the back, and sometimes when he smiles. I also see my father (also gone), my brother and various other family members in him a lot lately, which is touching, and nice. He's been workiing hard all winter and it's showing, he's hitting well and still quite agile on the field. Hopefully he'll be umpiring this season, that will blow my mind seeing him up there (didn't he just start TBall???). Looking forward to a fun baseball season! :woohoo:
 
Marci...I did taxol but I don't recall any of the specific things you are mentioning, except for not being able to sleep. I took ambien for that, and it worked ok. I had bone pain pretty much all over, but not really more concentrated in any one spot. I know I wouldn't of been able to handle going to work, I just had absolutely no engery to do anything. Some days it seemed like taking a shower was an accomplishment. Sounds like you are really busy, maybe you could cut back your work hours some? :hug:

Laurie, how was Harry Potter? We've never gone to universal, just never seem to have the time. Where did you end up making ADRs at? Sounds like the girls are great traveling companions!

LMP, did you ever get the reclast? Sorry about your friend, cancer sucks.

Chemo was uneventful yesterday, just very, very long - 9:30 to 3:00. We are heading out tomorrow, stopping for one night in Nashville and one night in Valdosta, so the trip down wont be too bad. I need to finish packing.

GAGWTA!!!!:goodvibes

Thank you so much for the info! That is a long day! I hope your trip is going well.

Finally starting to feel semi-human for the first time since Friday's chemo. I guess the cumulative effect of four chemos is starting to kick in. I started feeling bad Saturday morning, which usually doesn't start until Sunday night/Monday morning. I had to have DS drive me for my Nuelasta shot.

marcij - I'm not having the problems with my port that you are experiencing with the Taxol. Are they doing enough flushes before and after your infusions? As I mentioned before, it has been painful to have my ports accessed lately which is why I'm now using EMLA cream before my ports are accessed.

Laurie - I wish I was with you at BC! I am definitely needing a WDW fix, but I realize I'm months away from that. I'm sending DH and DS up the weekend of March 18th for some R&R. I think they need a break from the cancer drama.

Thanks for the info. I talked to my chemo nurse yesterday about it as it wasn't my day to see the doc before my infusion. She said it might have been the way the doc's nurse accessed the port. It's not red anymore and the soreness went away after a few days. It's not sore after yesterday's infusion so it may have just been a fluke. It just worried me at first since I hadn't had THAT problem before.

Hi again ladies! I'm feeling a lot better physically! My hair started coming out in handfuls on Sunday & fortunately I had an appointment with the radiotherapy people in the city on Monday so went to a shop and got amvery nice wig with hubby and dear daughters help. I've been promised by all the family it looks completely real & I was lucky the color matched nearly perfectly, so it looks like I just have a new hairdo. Still prefer my bare head or a hat at home though. I was supposed to go for my second chemo Wednesday but my white cell count was still a bit too low so I got bumped to next week. She said they would adjust the neupogen injections this time. Don't know if more injections or bigger dose. Hubby learned how to give them so we don't have to go up the hospital every day for 7 days which is good. I had very little bone pain which was a nice relief! Finally getting physio for my lymphadema too, & will get fitted for a sleeve after about 6 weeks of treatment.
Dear grand daughter is doing a bit better after the extra attention from all of us. Dear DIL has lost 25 lbs. She's seeing a therapist & is on tranquilizers, she's having a very hard time. Our dear youngest daughter is still staying out with her 3-4 nights a week and taking care of the girls. Sadly enough even though her parents live here, they are not helping at all. In fact they have not even been to see them in 2 weeks!! I can't even imagine having a family like that. DIL says hubby & I are her parents now.
Cheryl I'm glad your chemo is uneventful even if long & boring!
Marci, I'm sorry you are having port trouble. There is no way I could work through the chemo so u have my extreme admiration!
Laurie....color me green with envy!! I would love to see Harry Potter world! Universal here on the west coast is cool, but so small compared!
Lisa, I sympathize with u in ur chemo yuck!
I'll have to finish this tomorrow, it's getting too late & my iPhone spell check is making me crazy!!
GAGWTA

Hi there. I'm glad that things seem a tidge better now. I hope you get relief from the lymphedema work. It did help me. I wear my sleeve most every day still, especially as they said chemo will make the swelling increase. Thankfully, my hand is usually only slightly swollen the night after infusions, since the sleeve helps keep the swelling down in my arm.

Hi Marci. I didn't have a port (refused, but am a hospital RN) but I'd watch it if it's beginning to get sore - it could be the beginning of an infection (or other problem) even if it's not red yet. Taxol did not irritate my veins any more than the other chemo.

Yes, the steroids kept me awake for a long time. It was mid winter and I'd be opening and closing the window all night long due to hot flashes (pseudo menopause from the chemo). That was the worst time for the scary thoughts, too. I didn't take anything other than the ativan, which supposedly helps with nausea as well (it didn't help either for me, really), but I did learn to meditate and relax my mind so that is what helped me most. It was a very rough time, though. And the "bone pain" that I had from the taxol made it worse, along with the cumulative effects of all the chemo. It was a great feeling to be done with it!

Thanks for the input. I did have trouble sleeping again last night, even having taken the 5 mg ambien and the anti-nausea med. Got up, took a benadryl, watched a little tv and did get back to sleep thankfully.

Laurie, hope you're having a great time at the World! :wizard:

lmp, glad you liked my TR. I had to go back to work this week but I'm hoping to keep going with my pics this w/e. :surfweb:

smiley, it sounds like your family is circling the wagons around your son's family. Thank God they have you. Keeping you all in my prayers. :grouphug:

Lisa, glad you're feeling better. :flower3: Hang in.

Cheryl, you too. How are things coming with the kitchen? :cloud9:

I've got someone coming to measure for carpet this morning. The special runs to the end of the month so if we do it, we've got some fast painting to do! :hyper:

And baseball starts at the end of the month! :yay: We've got some fundraising we're finishing up for this month, then let the games begin! DS has grown physically A LOT this winter :eek: he is busting out of all of his clothes (as is DD, but that's a whole other story! :scared1: ). He is becoming quite muscular like his Dad, uncles and grandfathers. It is amazing how much he looks like his uncle (that we lost) from the back, and sometimes when he smiles. I also see my father (also gone), my brother and various other family members in him a lot lately, which is touching, and nice. He's been workiing hard all winter and it's showing, he's hitting well and still quite agile on the field. Hopefully he'll be umpiring this season, that will blow my mind seeing him up there (didn't he just start TBall???). Looking forward to a fun baseball season! :woohoo:

So exciting about the carpet and baseball starting. Remind me how old your DS is? My DS 15 had his first baseball game yesterday. I had my cousin drive me in for chemo yesterday as it made me so sleepy the last time, and she drove me back home, I got a few hours rest, then decided to have my Dad drive me in to the baseball game since it was the season opener. I did feel tired and tummy was a little off but I'm glad I went. I have to say that I probably won't bother with games on days after chemo unless I can be driven in since it's an hour drive. I know DS will understand -- just didn't want to miss the first one of the season.

We're off to Lake Tahoe for a long weekend. I've been working from home this morning as last Friday I made myself go in and did not feel well. We had a serious talk with the boys last night that Mom didn't feel well enough to get all their clothes together and pack them, as DS12 was having an attitude about how tired he was so he was just throwing clothes around. I was so proud of DH. He explained that I had spoiled all of them by doing it for them and that now it was time to help me out. I teared up when he said, "We all know Mom would rather be doing this than feeling miserable in that bed." In fact, both DS's and DH teared up with me. DS handled it perfectly without getting mad at DS, which is an improvement. I won't be skiing but Doc said it would be nice for me to get away from work, sickness etc. and get fresh air.

Thanks again for giving me input on yálls experiences. It makes such a huge difference to have a sounding board and people who are willing to share their thoughts and experiences.

GAGWTA
 
Marci, my DS is right between your two @ 13 1/2 (actually, both of mine are, they are twins). I'm glad you were able to make it to the season opener, your DS must have appreciated it! (What is the weather like there? Our fields are cold, wet and muddy until, and sometimes through, May, and even June. :crazy2: I buy Shout and Tide with Bleach by the case! lol)

I also welled up with that, Wow. It does help keep things in perspective, doesn't it? We had a similar talk with the kids yesterday. Thankfully, for me right now, it was just the flu. But sometimes they forget how much it is that we do for them and how we enjoy doing it, but that sometimes we need help, too. Not a bad lesson for them to learn - whatsoever. (Mine were around 6yo when I was going through treatment so I think sometimes they forget exactly how difficult that year and the few years after it were for me.)

Have a wonderful time in Lake Tahoe. Hope you can get some R&R. Be sure to bring some trashy reading! :thumbsup2
 
So glad to read about the fun some of us are having! I would dearly love to get away for even a weekend, but I know that's just not possible right now, so I need to get back to planning something. Just the week before our son was killed, we had decided on a big family trip to Disneyland again, to celebrate life, and my finishing chemo etc. it was/is booked for November. (I had even started the November trip thread in the Disneyland forum, which I have not been good about keeping up now, and need to go there next....) I was re reading the texts between our son and myself just those few days before, and he was so excited. In all our family, he was second to me in the love/obsession for Disneyland. The bookings are all still there, but I just don't know if DIL will be up to going then, it seems so close, even though it is 8 months away. I will just leave it and see then I guess. We have a no penalty cancellation so I can just cancel if we have to. It will be soooo very hard going there on this trip though without him. anyway, hope everyone has a good weekend, and my prayers are going out to all the poor people in Japan right now, and anyone affected by the earthquake, including the poor people in Crescent City and Santa Cruz California who have suffered because of it. That is a stunning stretch of coastline, our favorite drive in the world, (well second to the road to Hana on Maui) and I can't imagine how scarey it must have been when the tsunami waves were coming ashore there!
GTAGWTA
 
Good afternoon ladies

Lisa - hope you are doing ok. It was good your ds drove you. When my ds drive me to the drs. I sit in the back seat and pray! While being bombarded with that rap music etc.

Linda - hope your sons team does well this season.

Cheryl and Laurie - cant wait to hear about your trips

Marci - have a great trip too. A change of scenery is good. Your story touched my heart. I think my dh gave the ds a little talk too. They had to step up to the plate more etc. Since mine were older they figured it out when they had to do their own laundry, lunches, cleaning, get the food for dinner people were bringing over etc I guess they realized there was not a magical maid living in our house:) Love how you posted ya'll. Oh I miss Tx so much.

smiley - I am sure it is hard to decide about the trip. You do have time and it is something to look forward to, although in a bittersweet way. I know our poster Sha got a brick to honor her friend Jenn who passed away when she went to DL. Maybe you could pick something special to honor your ds memory. When my sis died my mom and I had a play done at church in her memory. It was really sweet. Other donations went to an orphanage. I had my lst cancer surgery in Jan. and kept planning a trip for December. I am glad we made it because operation 7 was in oct. but dh pushed me in the wheelchair alot, we sure cried alot there too. I am wishing you all the best. Prayers for you and your family during this time and hope your treatments are going well as can be.

Dh is not feeling well. He has symptoms of dizziness and refuses to go to the dr. He has had this in the past. The one med they gave him made him more dizzy. I told him to go to the univ. dr. I am a bear and not feeling well either. Seems I have a fuid filled cyst/infection etc. on my neck. Its where all the lymph nodes are gone so its pulling my skin etc. I am miserable. Taking tylenol and dh wants to get me a hot compress to put on my neck. If this thing does not get better I might call the ent surgeon.

Also 2 years ago dh was in the town that took the direct tsunami hit, Sendei. He was just talking to his boss 2 weeks ago about wanting to do work there. I know his boss would have jumped on it since he is from Japan. But I am glad God spared him from all of that now, so its back to China for dh instead.

GTAGWTA.
 
This announcement warrants a seperate post in itself...drumroll please...

:cool1::thumbsup2:dance3::cheer2::rockband::):)

Ds19 has been accepted to the State University here for the fall. Praise God.

I have been praying alot about it. Looks like God was listening and the 3rd time was a charm. He has not gotten the official letter yet, but its on his e mail account as being accepted. Now ds21 is talking about car pooling with him.

I know this is so much better for him with all the educational majors, opportunitys there.

Our prayers have been answered. He sure learned that if at first you dont suceed, try, try again.
 
Celebrating your son's acceptance right there with you, Maryann.

Learning that lesson about continuing to try again is a good one, especially at such a young age.

We got home about 4 pm. Breaking the trip up into two days made all the difference in the world. And don't tell DH but since we only stopped 3 times coming home today (two of the times for gas), traveling was much easier. He seems to need to stop so much more, drinking more water and such. I was careful and DD15 and her friend are very easy travelers. I am blessed.

I need to catch up on everyone's posts, and then I will post more about our trip. There is no telling how many pictures I took, I need to go through them.

Suffice it to say, it was a grand trip, we had a wonderful time. I even spent several glorious hours with Sha yesterday at EPCOT. One of the biggest highlights of my trip. Now back to reality with my brother.

I just could not wait to post my gratulations to LMP's son.

GAGWTA!
 
Wow, I just realized that I HAD read all of your posts since we left, except those for today and yesterday.

Marci, I hope you are not having any more problems with your port. I too am amazed how you can work through chemo, whether from home or not. You must be much, much younger and stronger than me.

Cheryl, I hope you arrive safely. It would have been wonderful to meet up with you. I hope you enjoy your stay and feel well throughout. You are choosing a wonderful time to visit. EPCOT is really amazing right now, with the flower and garden festival going on. I did not attend any of the special events, traveling with DD15 and her friend, I tried to make sure they had a good time. Actually though, just walking around EPCOT is so wonderful right now. The azalias are just getting into the full state, the large pink flowering trees (not sure what variety they are) are just dropping their flowers now. With the weather so lovely it was a pleasure to just walk, forget about rides mostly. I played alot with DH's new camera, not sure how successfully.

Although I found it too cool to swim, DD15 and her friend loved Stomalong Bay. I did get in one day when it seemed warmer. Getting that sand between my toes was almost a religious experience, if you know what I mean.:rolleyes: The girls met many other teens and their families in the pool and hot tubs. One day I think they stayed about 4 hours between the pool and the hot tubs.

Don't fret too much about the beach Club, MaryAnn. The first room that we were assigned was being renovated, it should have been marked out of service. The manager I spoke too had another room ready for us very quickly, in the same general area, and when I asked if a "better" room was available (I had just booked garden view), he checked but said the resort was still full fromt he weekend, but offered me that $100 credit. The boat dock at the beach club was out of service during our stay but should be ready in about a week, they told me. I will say our room had a sideways view of the boardwalk as well as the garden, but they were painting the outside of that section of the units and there were some cranes out that sort of spoiled the view.

We were on the side by EPCOT, which I loved, as the bell man showed me how to get through the side door which was a great shortcut to EPCOT. I would ask for that side again, especially if the painting was finished. It was such a wonderfully short walk and with the flower and garden festival, EPCOT was where I wanted to be. We did not even go to MK or AK this trip.

A nice CM let me in to see the EPCOT fireworks one night along a wall on the peninsula that justs out into the water. I was amazed at how much I had been missing. Truly a magical moment.

At Universal we strictly did the park where the Harry Potter area is, the Islands of Adventure. We got there around 9 am on Tuesday, and the place was jammed in my opinion. All three of us rode the Forbidden Journey ride via what was supposed to be the single rider line, which is THE ride. It was amazing technology, although it made me a bit dizzy and I had a case of sea legs when I got off the ride, although no lasting ill effect. Getting into the ride was like a maze, making your way through the crowd to put all your stuff in a locker, then getting in the line. Coming out was just as much of a struggle, as there is no line for the lockers, it seemed very disorganized to me.

They rode another ride while I sat, went to the candy shop, saw that the line for the wand show and shop was outrageous, bought some butterbeer, and then we walked around the other areas where they rode another ride, then a water ride where they became ridculously wet, so we called it a day.

We went back Friday but not until the afternoon, as I read on the Universal board on the DIS the previous nights that you can see more from 4 to 6 pm at the Harry Potter land than from 9am to 3 pm.

It turned out to be true, on our second day at Universal the girls did the full ride which includes a tour of the castle, rode the ride (I held their stuff so the did not have to deal with the locker frenzy), then we all went to the wand shop line, saw the show, DD bought Dumbledore's wand, we hit that crazy candy shop again ( can't go home without a chocolate frog and some pumpking juice, can we?).

We ended up back at Stormalong Bay so they could visit with other teens. They had fun, I relazed, and soaked up the EPCOT resort vibe.

I booked Friday night through a website I read about on the DIS other hotels and attraction thread called lastminutetravel.com, because the annual passholder rate at the beach club was $290 for the weekend nights.

I knew before I booked that I was getting the Hilton bonnet creek for $97 which is connected physically with the Waldorf via a huge convention center. I got a an email from the Hilton when I called then with my Hilton honors number which had a link to do an eupgrade like I did when we stayed at the Waldorf in new Orleans in December. There were a number of choices of the upgrades, but clearly the best bank for th buck was the upgrade to a luxury suite.

I only selected the upgrade to a luxury suite at the Waldorf for an extra $120 for that one night, never thinking I would get it as they have only 12 luxury suites at the Waldorf. Guess who got the 1,400 plus square foot suite???? It was even ready at about noon when I went to check in. The girls were besides themselves. They were tired as we were at Harry Potter that day, went back to Stormalong bay one last time, and then drove over to the Waldorf (5 minutes away from the Beach Club) and just soaked up the luxury, robes, slippers, chocolates, and beautiful live orchid in the room and everything.

The linens on that bed-heaven. I even ordered room service breakfast to give them the full effect.

It was nice to treat them and me.

The front desk guy seemed surprised I got the upgrade too-he said I don't know what you paid for this room but it usually goes for $2700 a night.

Overall staying at the Beach Club was better for the girls since they had such fun at Stormalong Bay. But the Waldorf was a nice way to end our Orlando stay. Not sure how it would have felt moving from the Waldorf to the Beach Club. And you don't want to hear about the hotel we stayed in on the way home, it was clean, safe, smelled good, had a good free breakfast, and was full by the way, but it was no Waldorf, lol.

I will try and post some pictures when I can, probably will be a while. Our meals were catch as catch can, the girls were happy with anything. Mama Melrose's at the Studios worked, as did Mythos at Universal, the rest was quick pickups, fruit, fries, ice cream.

GAGWTA!
 
The front desk guy seemed surprised I got the upgrade too-he said I don't know what you paid for this room but it usually goes for $2700 a night.
:scared1: Whoa, girl! What an amazing deal!! Great trip report!! I agree, I enjoyed Epcot so much this trip, too! How long a drive did you have from home to WDW?

Congrats to your DS, lmp. :goodvibes

smiley, I think lmp has a great idea there about the brick! :thumbsup2

I gotta tell you guys about kind of a funny "coincidence". When I had radiation, only one of my RT's was a man. He was kinda quiet (and I was kinda :blush: ) so we didn't get to know eachother too, too well. Well little did I know that several years down the road, who would be coming to my house for dinner? :lmao: Turns out one of the Dads on one of DS's baseball teams and I felt we knew eachother but weren't sure where from. Figured it out one day on the field last summer... Yup, radiation. :scared1: We're hosting a pre season dinner next week and he mentioned he's coming, lol. I was just thinking about it today, how strange... (these things seem to happen to me a lot!) popcorn:: I knew you guys would appreciate it. :rotfl2:
 
Linda, cool story, It really is a small world, huh?

Are you completely recovered now? What about your DH and your DD and DS?

I went back and checked my mapquest print out. Per mapquest anyway, it was 706 miles door to door. That is probably about right since my trip counter on my car was 1,497.5 which included 2 trips over to the dark side at Universal, one trip to Hess to gas up and get beer, driving over to the Waldorf, and I think two trips to Downtown Disney. Downtown disney, the Hess station and the Waldorf are all very close to the Epcot resort area so those short jaunts did not add much mileage.

The new GPS DH got me for Christmas did help me on this trip. I also think driving my own car rather than helping DH when he drives his made things easier. His car is usually filled with 5-6 people and way too much stuff. I just drive a 4 door Accord, but it handles well, has a huge trunk and we were quite comfortable.

We pared down on what we brought. Also, no grocery store trips made things easier. I like not cooking. We brought tons of water, bottled Lipton tea, crackers, cereral, cheese, bread, fruit, the coffee I drink, etc from home. I bought milk from the resort store and we were in good shape.

I was pretty much a vegetarian too this trip, except for one night that I went solo to the new Mexican restaurant at EPCOT and got a small appetizer and a really good margarita, and today I had a small piece of ham with breakfast.

I think I feel better without the meat, and I lost weight too, between the different diet, so much walking, and just being busy driving. I wish I could find better hotels between here and Orlando, though. I am convince that taking two days improves the trip experience ten fold, both coming and going. I may try to stay on the gulf coast once, just to try that. I wish the route we take on I10 was closer to the beach.

I will be flying several times though in the near term with the credits I have with Southwest.

And that sweet husband of mine has planted a bunch of things in the garden for me, mostly bulbs. That was a big surprise. We still have loads and loads of mulching to do. Seeing the gardens in EPCOT has really inspired me.

Linda, had they set a lot up already for the flower festival when you were there? I am going again in May but I think they are closing it down before I arrive. Going to try for another Waldorf suite but I doubt it will work in May. We will see.
 
Honestly I didn't even know when the F&G festival was, and only learned it was close after we got home. DH says he saw topiaries and some some other plants being set up. (Can you tell who the gardener is in our family? lol)

I didn't realize you lived so far from WDW. Our drive is about 1200+ miles. We always think about driving, and then think better of it. Especially in winter, coming from up north. You never know what you'll hit. I'm glad it worked out for you.

Funny, too, we gassed up at the DD Hess as well, just after picking up the kids at Typhoon Lagoon (who went with our friends while we had a quiet Boma breakfast and packed up). I have been drinking flavored mango water that reminds me of that delicious Jungle Juice they have there! It's such a bummer that we got so sick, for so long after our trip - which now feels like worlds away.

Believe it or not, we are still sick. :guilty: I can barely swallow at times and have a rattle in my chest with cough that keeps me awake at night. DH has a nagging cough and head pain when he coughs. We're both exhausted. We had a really nice day here Sat weatherwise, and we both had to rest in the middle of the day. :headache: Then today he got a fish hook in his thumb right next to his nail when he was reaching for something in his workshop, and it was difficult getting it out, requiring numbing his thumb and several strategies until one finally worked. He also needed a tetanus shot and now antibiotics. I am probably going to be seen tomorrow to see what if anything can be done with this sore throat and darned rattle. What a PIA. Kids are ok but DS hurt his arm at gym and had some soreness during ball practice (coaches were a little horrified two weeks before the season starts!) but he's doing better now.
 
Wow, I am sorry you and your husband are still recovering. I agree, gettin sick right after ending a trip takes some of the "afterglow" away. I hope that as the weather gets warmer for you at home you and your DH will bounce back.

And I sure hope that arm gets better soon. No pressure, right?

MaryAnn, I hope you DH can get to the bottom of his dizzyness issue.

Smilie and Marci, I having been thinking of alot this week, praying that your treatment eases a bit.

This trip and the very measured way I approached most days helped open my eyes. If I don't start pacing myself in everything in my little world, I am going to crash. I know it is up to me.

Y'all would be proud of me, I have already packed a gym bag for today so I can work out. Now I have to make my DH see the light too about taking things easier. I think he missed going to WDW this time after all. He told me so much was happening at work, even if he had come with us, he would have had to return home early.

Maybe he was just worried about me driving by my self, not sure.He even drove down to New Orleans to check out the damage on both our older kid's cars from the recent problems.


Why oh why did daylight savings have to start today?
 
Laurie - what an amazing trip and an amazing upgrade! I bet you felt like Queen for A Day!

Linda - I hope your dr visit goes well today and hopefully you can get some meds to kick this thing out of you and you can start to feel like yourself

I have a feeling its going to be a long day or long night or it will go into tomm. I called the ent surgeon and had to leave a phone message for the nurse. His next appt. is in 2 weeks:scared1:. So of course I left my sweet/frantic message. I told them this thing on my neck is 5cm by 1 1/2 cm deep dh says. Supposedly they return the call within the day. But if I cant get into tomm. with maybe another dr. I am considering going to the er. :sick:
 
MaryAnn - Congrats to your DS - that's great news!

Laurie - Sounds like you had a great trip. That suite upgrade must have been amazing. It reminded me of the time DS booked a trip for the two of us at BC. This was when the Magic Kingdom Club was still around. He thought the room was too expensive (at $220 per night) and complained to me constantly until we went to the room. It was the Nantucket Suite! He stopped grumbling and it turned out to be one of our best trips to WDW ever!

Pea-n-Me - Sorry to hear you're still sick. It's awful when something lingers for a long time.

Well, my house is quiet again. DD went back to school yesterday. The week she was home just flew by. I didn't feel well most of the time she was home and felt badly that we weren't able to do anything but talk and watch movies. She said she didn't care and she had fun anyway. DS and DH are getting ready for their WDW trip this weekend. DS performed at Solo & Ensemble for the first time and received an Excellent. He was so excited and figures it's a good warm-up for American Idol Experience this weekend. He sang "You Take My Breath Away" by Rex Smith and "Somewhere" from West Side Story. He's not sure which one he's going to do for AIE on Saturday. I really hope he makes it this time. I told DH to make sure he brings the video camera!

I am really starting to feel the side effects of the IP chemo now. My oncologist kept telling me that it was more toxic than IV chemo, but didn't really give me too many particular details as to what that meant. I'm having trouble with the whole eating/digestion thing now. I'm never hungry, but I eat small amounts because I know I need to. I just know my insides don't feel right. I think I'm beginning to understand why all of the information Ive seen states that most people don't make it through all 6 rounds of IP chemo.
 
I am really starting to feel the side effects of the IP chemo now. My oncologist kept telling me that it was more toxic than IV chemo, but didn't really give me too many particular details as to what that meant. I'm having trouble with the whole eating/digestion thing now. I'm never hungry, but I eat small amounts because I know I need to. I just know my insides don't feel right. I think I'm beginning to understand why all of the information Ive seen states that most people don't make it through all 6 rounds of IP chemo.
:hug: Are you doing the heated version of IP chemo? How is it instilled? (If you don't mind me asking. I have a friend I just talked to a few days ago who may be looking at this as well.)
 
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