snappy
Survivor
- Joined
- Apr 15, 2002
- Messages
- 10,392
I agree with Linda, thanks so much for posting these details, Lisa. Your info may just save lives here.
I would have done the same as if I had the info. If I knew I carried the gene, I would definitely do bilateral prophalactic mastectomies and have the ovaries removed.
I really like the preventative side of medicine. With Tamoxiffen, all vestiges of estrogen was removed anyway.
It becomes more problematic for a younger person who has yet to marry and have a family. These are difficult choices.
The GYN doc who sees my mother, my sister and me has told my sister she should test. She outright rejected it initially. She has been reconsidering it though. What she maintains is that she would NOT have the preventative surgery, only have more monitoring.
She has had numerous surgeries over the last 10-15 years. The negative reactions to meds and anesthesia drugs she has endured plays into this. Everyone is different.
As I said this is a difficult area.
I would have done the same as if I had the info. If I knew I carried the gene, I would definitely do bilateral prophalactic mastectomies and have the ovaries removed.
I really like the preventative side of medicine. With Tamoxiffen, all vestiges of estrogen was removed anyway.
It becomes more problematic for a younger person who has yet to marry and have a family. These are difficult choices.
The GYN doc who sees my mother, my sister and me has told my sister she should test. She outright rejected it initially. She has been reconsidering it though. What she maintains is that she would NOT have the preventative surgery, only have more monitoring.
She has had numerous surgeries over the last 10-15 years. The negative reactions to meds and anesthesia drugs she has endured plays into this. Everyone is different.
As I said this is a difficult area.