Hey, glad you came out of lurkdom, bhmrowe.
You are certainly welcome here.
Being diagnosed at 28 is a hard path to follow. If you feel comfortable sharing, how were you diagnosed?
Yes got home last night, and I missed talking to y'all.
I actually had almost finished a long post last night about our trip when I had trouble sleeping, but it went poof!! Guess I was too tired to operate a computer!
Our trip was very nice. DH worked Saturday and Sunday late before our Monday am departure which had me stressed out. He started receiving calls on his cell when we arrived in Orlando. After we picked up some stuff at the new Target close to Animal Kingdom (about 4 miles away) and got settled, he started working on his laptop. The Animal Kingdom villa was dark but he proceeded to rearrange everything so he could actually see the computer screen.
Between the work he needed to do for several days, the darkness, and the constantly overcast sky with a few cold late drizzles, I don't think we gave the AKV a chance. We did like the hot tubs but the pool was too cold to swim in. Boma breakfast was great, we both want to return to eat there at lest for breakfast. We also ventured over to Kidani for Sanaa for a late lunch and snagged a table window. I swear we could see animals unbelievable close. Food was great too which I worried about, DH was good with it too.
Thursday we switched to the Waldorf Astoria. It was divine. (Reminds me we saw the Devine character at Ak this trip cavort by the trees, lots of pictures, she was really all into it).
I am posting this now to add on later, I do not want to recreate a second time.
I somehow managed to book our stay at WA on the day of the grand opening. We thought something looked odd with people in uniforms out directing traffic with flashlights ala Disney. One of the valets told us later they were expecting more than 300 vehicles, they had about half that. When we drove up to check in there were at least 20 uniformed valets.
The big wheel investors, the governor and the like came in for the big night (someone told us Michele Obama was supposed to be there Sunday). We were kind of oblivious as the room blew us away and we had reservations at Cali Grill for 9:35 anyways the first night.
They shot off fireworks opening night somewhere out past the water way (probable scared the wildlife to death) but we missed it. We did see the
MVMCP fireworks from the Contemporary observation deck before eating at Cali Grill that evening which was inspiring. Great meal there too, our server was Beckey and a survivor as well ( I think 27 years for Ovarian).
Back to the WA, the place was elegant. Orchids must be their signature flower, they were literally everywhere in the lobby and the lounge, even on the landings of each floor, as well as in our room. I am such a goose I see no coffee pot so I ask for one, right? The nice patient bell man tells us that coffee is served in the peacock lounge every morning. So we go to check it out, at the bar it is coffee urn, orchid, coffee urn, orchid, etc. etc. Also orchids at every table and on every side table.
We had a suite which was very roomy. We found out it even had a doorbell when our bags were sent up. There was a nice bar area with a subzero fridge that I think is designed mostly for drinks, etc, but we were able to move a shelf and put in our orange juice and fruit and cheese and the like. There was a nice table and 4 chairs in that area with high quality marble floors. Marble too all over the bathroom. We had a large living room area with a huge flat screen tv, not sure the size. Another large tv of the same type in the bedroom. Very upscale mahogony furniture throughout and granite countertops in the bar area and the bath room. We also had a nice balcony with very nice furniture. The bed and beddings were the best I have ever enjoyed. There seemed to be two comforters, one for show that they turned down at night, and a light once between two sheets. It was very comfortable. The draperies were top notch, very elegant with the crown moldings, and the huge towels so fluffy. there were very comfy robes and slippers for each of us too that were arranged at turndown with a chocolate on the pillow.
I think the best feature overall was the tremendous service, both the valet people and the bellmen and the wonderfull pool area. Even at the pool, the towels and lounge covers were delivered to you, along with water, and you could order food and specialty drinks as well.
It warmed up by Friday so I tried out the lazy river at the Hilton which is attached to the WA by this huge almost unbelievable convention room/ballroom complex. I am having trouble with my right shoulder so I could not handle the lazy river tube too well. I had more success doing laps in the pool (at least with backstroke and sidestroke), and boy that water was warm. I even came home with a sunburn which turned darker today. Love it.
We were able to get late checkout yesterday so I took advantage and stayed in the pool and swam many laps. The pool had one very long side, perfect for slow laps. I had it practically to myself. I have never been so relaxed on the day we left Disney for home.
I cannot wait to go back. I just hope they continue to offer deals like we got. I cannot see how they can do that long term. Those two hotels and the conference center area had to cost a fortune. Lots of art, nice furniture, the best draperies, marble, very plush and upscale carpeting, it had everything. Not to mention the first rate golf course.
There was a Mears bus for transportation to the parks, and we did take it one day but the next day we realized it was much easier to do just get our car from the valet, especially to Hollywood studios and EPCOT since the WA is 5 minutes from each of them (right next to the Caribeach beach resort as you go towards downtown Disney). The bus was very comfortable with plush seats (think ME busses) so I liked them better than the regular disney resort busses, but they did multiple stops and driving was far faster.
We got to ride Space Mountain about 5 minutes after it was first opened to guests for a test run temporarily. I have not ridden it in years but I did ride it once Saturday just to say I did! The entrance is totally redone with interactive games in the queue line. It looks like they made more room inside for the line. Also the loading area is different. The cars are new and more cushioned and maybe a little wider. The ride itself seemed the same to DH (he rides it a lot with our kids) and there were no lights on the side of the cars as before.
I will try and get DH to load the pictures up to the computer and post a few.
According to a magazine about Orlando in the room over 1,000 people have been employed by the new WA/Hilton hotel directly or through the landscaping company or the company that is contracted to do the valet. They better fill those rooms. I would love to know how much $$ was poured into that place.
Off to do laundry. Boy did I ever receive a greeting my my doggie Snappy. She practically leapt into my arms. I don't think we should take another trip anytime soon.
Oh, loved the Osborne lights. We had not seen them since 2002. We made a special effort to see them Sunday evening. I actually started crying I was so touched. It was cool, the snow machine was cranking and the music was wonderful. It is especially cool when the lights dance.
DH and I really got some quality time in together, almost 8 full days together alone. He is a keeper. He was really relaxed, especially once the work phone calls stopped. He did not even plug in the computer at the WA! Love him! He was so patient and accommodating with me.
Well I am not too mad. They callled when I was in the shower and said the dr. was sick I called back and they had me rescheduled for...Dec 15, I said to them, um that will not work for me ( didint mention I would be in Disney World
). So she says, I can do tomm. but I dont know if the dr. will be well enough then. I said, um no, thats o.k. (Thinking there is no way I want what he has so close to Thanksgiving and if he is the Dr. and callls out sick, you know it must be BAD!!). So I hold, she gives me next tues. Yippee!! So of course I was all psyched up etc. Dh took me to McDs for breakfast to calm me down, sweet of him. 
I hope you stick around and feel free to post - the more the merrier, of course nobody wants to be here, but you know what I mean.
It's so nice to hear about somebody getting good news!
Geesh. I was diagnosed at age 44, invasive and very aggressive grade 3. Yeah....don't think waiting until age 50 would have worked out so great.
~~~***GAGWTA sistas***~~~
) so it was a hard day yesterday. However, they bought me one with this big honking screen, it is like a TV. I can see the numbers!!! Hooray!! I found myself sitting back in my chair much more comfortably. It definitely made a difference in my posture, it might help my back/shoulder issues, I can hope, n'est pas?
I know you made the decision that is best for you and it sounds like a good one. That accupuncture thing sounds very interesting. I am so glad it worked for you. I hope the bleeding gets under control. One day at a time. You are a fighter and I know you will get through this too,. Remember, we are fearfully and wonderfully made, I think the drs. think I am more of the fearfully made one lately. Rest and heal my dear sista. Prayers and blessings for you always. Its good hanging with God, put on some Hillsong etc!!
