Dis Breast Cancer Survivors Part III - GAGWTA!

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It's not a federal regulation, but pain management is mandated by JACHO, the organization that accredits hospitals. http://www.jointcommission.org/PatientSafety/SpeakUp/Speak_up_pain_managment.htm

I'm not certain whether it applies mainly to hospitalized patients, or whether one could infer that a post operative patient of that hospital who's gone home should have their pain properly managed as well. My guess would be the latter.

And unfortuately, even when it is mandated - and there is training of personnel to go along with it - every practitioner might be a little different in their beliefs, actions and interpretations, so it migh vary practioner to practitioner. (See how complex these issues often get?)

If it were me lmp and I needed more pills for adequate pain control, I would call the doctor that's covering for the surgeon (again, if necessary). It's part of their job to deal with this type of thing.

I had occasion to witness the whole pain management issue firsthand these past couple of weeks with both my DD and my mother. If you think it's bad for women, Maureen, you should see it with children. :guilty: My DD was screaming in pain for a very long time before she received adequate pain control - probably around 12 hrs. My mother, OTOH, who was not screaming but wincing in pain, got it right away, without my even saying a word, and for the first couple of days, as needed. Eye opening, for sure. (I still might have some conversations with some of the people that cared for DD early in her hospitalization.)

Writing it out here makes it look simple, but it's not, really. You are balancing many, many factors in your head each and every time you medicate someone because even though pain management is mandated, you are responsible for administering it correctly and evaluating the outcome for each patient. (And if something goes wrong, guess who gets the blame and has to worry about being sued, loss of license to practice, etc?) The waters get more murky when it's the patient themselves taking the medication at home and you have no control over whether it's being done right or not, I imagine. I bet if we searched, we'd find cases of doctors sued for ordering too much medication that caused harm to a patient. You also have to wonder, if someone's requiring more pain medication than expected, if there's something else going on, ie problems with the surgical site, infection, etc. So yup, it's definitely not a cut and dry issue.

With that said, lmp I hope you can work it out with your covering surgeon. Maybe the one who's on today will be different from the one your DH spoke to the other day. :hug:
 
BTW, I was thinking about some of the people we haven't seen here in a while.

Laura
Merry
TruBlu
MoniqueU

There were a couple of others, too.

Would you guys check in and let us know how you're doing? :worried:
 
Ooh, I saw that there was a Hilton/Waldorf Astoria opening on site and visited the website. I think it's going to give some of the Disney resorts a run for their money. :thumbsup2

Everyone is doing better, thanks. DD is back to herself. Mom is still recovering. I took her home before culture results were back but they felt that that's what she had, for sure. Symptoms were exactly the same, bloody diarrhea (which doesn't happen too, too often), timeline the same, etc.

I was so exhausted I couldn't think straight, after spending so much time with sick family members and running back and forth to the hospitals, etc. I'm also used to having my mother here with me so there were times the kids had to stay by themselves (which is fine now at their ages, really) and I was hesitant to go into Boston on DD's first day back at school in case I had to come get her at school.

The best part was, I tried to hire cleaners to come in to clean Mom's apt since she'd been so sick before she left. It was in need of a deep cleaning anyway, and my plan was to do the bathroom myself before they came in. I was honest with people about what she had, and guess what, nobody would come. So DH and I had to don gloves and clean the place completely ourselves. Lots of people told me I was nuts to have said anything, but to me, it was only right. I would think if people are cleaning other people's bathrooms, they need to protect themselves anyway, because there's lots of stuff out there that nobody even knows about. But that left me a little disheartened because I was just so tired myself. Friends and family have been great, but I didn't want to expose anyone else to anything so I haven't let anyone come in our house, and I don't want any of us going in other houses just in case. So although there have been plenty of offers, we're all in our own little world here and much of the burden has fallen on me and DH.
 
I think the dr. who precribed it (the new 18) might be the one who told me to get out of bed in the hosp, was never in the operating room with me etc. Oh gheesh!! Thank heaven dh got another resident instead of that jerk again.
I re-read your post because I hadn't seen a constipation issue. (I think Senna tabs are miracle pills.) But I just wanted to comment on this.

I know it probably seemed uncaring for him to tell you to get out of bed, but you are at high risk for venous thromboembolism (blood clots) given your numerous recent surgeries and cancer (those are the two I know of but are both big ones) so it's important for you to be moving around again. It's hard to explain this to patients because you don't want to scare them, but you want them to understand how serious it can be. Surgeons are particularly in tune to it because surgery raises your risk tremendously.

Moving around also gets bowel function going again, helps avoid skin breakdown, enhances a sense of well being, and has a whole host of other benefits. :cutie:

So he might not have delivered it the right way, but he was probably thinking about your well being. :duck:
 

I am not sure why but constipation issues never escape my notice. :rotfl2:

Linda, how awful you could not PAY someone to help clean. I do think it was good to be honest about why the cleaning was necessitated, in case one of the cleaning people has a compromised immune system. Although i cannot imagine why someone like that would be in the cleaning business, but maybe a family member has a problem in that department.

I just read the link about the 10 year old. I am utterly aghast!

I did not see anything about environmental, Linda. Where was that?

The Waldorf Astoria is right next to the Wyndham Bonnet Creek timeshare we stayed at for 5 nights in May.

It is supposed to be more upscale ala a 5 star resort, and the offer we had was for a 945 square foot unit. the next size up was for a 1450 square foot unit but I told DH this was a budget trip!!! LOL

It will be new as it opened October 1. Sounds like it has better transportation than the Wyndham, which did not matter anyway since we had a car and could park right outside our building.

I hope we don't come off like the Beverly hillbillies or more accurately the evacuees/escapees from the banana republic otherwise known as Louisiana.

I did renew our AP's, they are now giving you 15 months rather than 12 months on renewal. And I used our discover card for the renewal as the 3rd quarter rewards offer was 5% on theme parks.

So it is almost free, right? Question, should we charge DH's boss for the renewals since our cancelled due to work trip was at the tail end of the year for our previous AP's? We would not have had to renew them for awhile. I am sure DH won't let me include that as an additional expense.
 
Laurie, our annual passes run out 11/9 so our trip this weekend coming up will be our last for those passes. We usually get annual passes every other year...but with the three month free offer its going to be hard to resist!:worship:

Linda, you sure have been through a stressful time. I admire you for telling the cleaning people the truth. I would have done the same. I am a bit surprised none would do it, if anything they should have just charged a bit extra for the deep cleaning. I hope your mom is getting better every day!:hug:

We are headed to WDW on Thursday for three nights. Can't wait. We are going to be at park opening and will spend three to four hours, then back to the hotel for a rest, then food and wine in the evening. Can't wait! Its been a while.
 
Enjoy food and wine! We are missing it this year! How is the weather?

It stinks here, rain rain and more rain.

Did I mention rain? It is a little cooler, not 90's but still too warm.

I hope you ahve a few of those beautiful cool front days that blows in some dry air.
 
BTW, I was thinking about some of the people we haven't seen here in a while.

Laura
Merry
TruBlu
MoniqueU

There were a couple of others, too.

Would you guys check in and let us know how you're doing? :worried:
I'm back... :)

I've been sick for a couple of weeks with the H1N1 flu. Both my boys had it, too. DS7 is fine, but DS10 is still having a really hard time. He has asthma and it seems to have settled in his lungs. Poor little guy can't stop coughing. I keep taking him back to the doc, but so far nothing has worked. We've tried antibiotics, steroids, nebulizer treatments, some kind of pill to stop the cough.... I feel so bad for him. :guilty:

My mom is recovering slowly. She has had much more pain than we expected. AND - she made it worse by trying to drive too soon (to pick up my sick child from school...). She was fitted for the harness (or brace or whatever you call it) for her radiation. They plan to start next week. She also got a couple of bras with an insert. She kept telling us that she didn't need one. That she really didn't care.... But after she got it, she told me that she couldn't believe how much better it made her feel. :)

Thanks for missing me. :flower3:
 
Sorry your family has been so sick. What horrible timing with your mom's surgery.

It is disheartening to hear how much pain she has endured. I am glad the bras with the prothesis has helped. Is she still using the lightweight foam kind?
How is her range of motion on the arm on the affected side? I can see how doing too much too soon could set her back.

I sure hope your DS10 is able to shake it off soon.

Thanks for posting.
 
Laurie & Maureen, the upcoming trips sound sooooo good! There are none planned for my future, so I'll be here living vicariously through you guys!:thumbsup2

LMP, how did the rest of your weekend go? I hope it got better, that's awful that you are having such a hard time keeping your pain under control.

Linda, glad to hear that DD and your mom are doing better. You've really had quite a time lately!

Tru, sorry you & your family are dealing with the flu. I hope you are all feeling better soon, your mom too!

Candy, so sorry to hear about your insurance problems. I also had crappy insurance at the time of my treatment, but the hospital & oncology center were really great about working with me on a payment plan. Took forever, but everything is finally all paid now. Maybe your treatment centers are willing to do some type of payment plan?

It's been COLD here.....below freezing last night and tonight. Yuck, yuck, yuck. I just have no tolerance for cold weather anymore. Didn't use to bother me, but the last few years I've really just started hating it.

DH & I spent the weekend putting up a fence in part of the yard right off the house. OK, DH did most of the work, I just kept his coffee cup full! ;) It will be nice for Charlie to have a good place to run and play without the leash. The fenced area is about 70 x 40 feet, not real big, but he is pretty small. Our yard is just over an acre, but very heavily wooded, and I was always worried about him getting lost out there.....he'd be hard to find!

:goodvibes GAGWTA!!!! :goodvibes
 
Hi Ladies,
I'm having a mini-panic here. I had my annual mammogram Thursday. Today they called and asked me to come back in tomorrow for more pictures. I know that it is most likely nothing, but after the last few months with my mom I can't help but freak out just a little. :guilty:
 
Hang in there TruBlu.....like you said, most likely it is nothing. Still a pain to have to go back, and deal with the mini panic. :hug:
 
:grouphug:~~~***GAGWTA sistas***~~~:grouphug:

TruBlu- I know you can't help but freak out. Hopefully they are just being extra cautious...:hug:

Maryann- I'm sorry to hear you continue to have so much pain sista...:hug:

Linda- This article caught my eye... http://www.cnn.com/2009/HEALTH/10/13/lkl.meat.infection/index.html
I never did read where/what your dd and mom ate. I hope both are feeling much better now. I can imagine it takes some time to fully recover from this.:hug:

As usual I can't possibly keep up here. Lots going on, personally, medically...
I still have colitis and all the fun that goes with it. It's unusual, but it can happen. There is a condition called Diversion Colitis, basically because I'm not going to the bathroom through the regular route, the good bacteria is not passing through, so I'm sick. The "cure" is to press on with the J Pouch surgeries. The second step is surgery on Nov. 4 to form the pouch. If all goes well I will have the 3rd surgery 6 weeks later. Then it will be a period of adjustment to the new plumbing.

We did have a wonderful trip to the beach and Disney for hubby's birthday! It's my happy place I'll be mentally visiting a lot until I can get back...

I hope everyone is well. :grouphug:
 
Trublu, if they know your mom's history, they are being extra cautious. I understand your nervousness though.
When are you going in for the extra views?

Let us know how this goes.
 
Today was my first day back to work and it is madness. Between the new company asking for info and the normal day to day it is crazy. I am so tired today and my stomach can't tell whether it wants to throw up or throw down. TruBlu nothing gets you more upset than the unknown. Its probably a precaution like others have said. I am sorry you have all that going on at once. My kids pediatrician wants my 2 to get vaccinated. I am leery about it. Any insight? LMP I truly hope they can get that pain under control. PNM so glad to hear of your Mom's and daughter's recovery. LauraBelle it is nice to have you back posting. I know when you miss a day or two you have to catch up! I know I will be reliving my Disney trip over and over again through my pictures and videos and trip report. CherylDan, thanks for the suggestions. I am going to look into that as well. The insurance change if from the hospital's insurance to the outsourcing company's crappy insurance. I have been looking into the Cancer Society here that has some programs that are based on income and others that are not. It's hard to look into it when you are not feeling the greatest and I am trying to catch up here at work. Hi Snappy. Sorry you are having crappy weather. Honugirl, it's nice to hear from you. You had me worried!!! GAGTWA and Hi to all I may have missed.
 
Good evening ladies

Not a long post, I dont feel so great

Tracey - I am sure you ae worried about the call back. Glad they are being careful.

Candy - hope your chemo side effects subside

Laura - sending you a hug:hug:

laurie - your trip sounds good. How was that girl with the cowgirl wig at the meeting??

Dh has been so busy at work. He never even callled me the last 2 days, he usuually does. He just ran home, picked up some money and is staying in the city overnight for some religous volunteer work. He is taking the day off for that, but has not taken time off to be with me since the surgery reallly. I guess he expects the ds to help me and the oldest 2 have been not too cooperate and middle ds is obnoxious and makes me cry etc. I am managing the pain. 6 pills a day. 2 percocet at like 2 pm and then 2 with the tylenol at 11 pm and 2 more at 6 pm, those are from my personal stash at home. This is more for my back than stomach Somehow they always mess up my back when I have these surgeries etc.

GTAGWTA, Thinking of you all.
 
LMP I hope that you get better control of that pain and also the constipation. Even if you think you are drinking enough water, you need more... also can try fresh fruits, prunes, prune juice (warm it up), plum smart juice (if you are like me and cant stand prune juice), yogart like activia (make yourself eat it if you dont like it)... but really, it comes down to water intake. Plus walking, but need pain control to move. Saying prayers for you.

Sorry I havent felt like posting. I have been down, but actually was down before mom's diagnosis. The MDs are talking (surgeons) and it appears they are trying to figure out how to do one surgery together vs 2. At least that is the impression I got from mom. She is doing well. Still hasnt spoken much about what she is thinking. I have been working late a lot this week trying to catch up on paperwork. I am basically alone for the skill side of work, though I have a PRN nurse again tomorrow for visits. I am hoping that the boss stays home again today, as he was sick with a bit of fever... he needs to stay out another day to make sure he is done or even 2.

I have been reading, trying to keep everyone in prayers... thank you ladies for your courage and insight.... compassion and understanding to all sides of this. :grouphug::grouphug:
 
Hang in there, LMP. It takes a long time to heal. Sha is right, the prune word can be your friend. did you see my PM? A suppository did the trick for me after reconstruction. I hope you get some good face time with your DH today.

Sha, I can understand being down with your mother's recurrence. You are always there for her. You do need to think of yourself too, especially with the extra paper work that is falling on you.

Maybe a massage is in your future/

I have been needing one for awhile myself.

My audit got pushed back to next week (I forgot to call them and tell them I was done with the grant reporting). I did not finish until Friday night so I guess it did not lend for good planning for the accounting firm anyway.

It is a good thing as I have bingo stuff to do.

LMP, there actually wer two cowgirl wigs as there were two planners for the team meeting last week. We were in the big conference room in a very professional legal office. When the two put them on, some of the lawyer types walked by and stared in. Basically they bought some cheap paper goods etc and called it October fest and Disibilities week (our non profit assists people with disabilities). I never could get the wigs, I guess they thought the cowgirl wigs (cheapo things) looked like German frauline wigs?:confused3

It was painful.

They got a few cases of root beer for us (we had 12 people there) and they encouraged us to take a swig whenever anyone said bingo or time tracking (the forms the staff fills out to get paid).

I was glad when it was over (luckily I got to leave early to go to my first come Lord Jesus meeting).

I wanted to praise the Lord that I got away but I restrained myself.

Have a good day everyone.
 
Im past due for a massage... but I go to WDW next week. I go Monday night for dinner with a friend in from England... and then I go back on Thursday through Monday morning (when I have to head back up to work that morning). Thursday is dinner at Le Cellier and Friday after dinner (forgot where) is 2 hour party... which I will tell you where next week. Am going with my disney friends. That should help.
 
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