Dis Breast Cancer Survivors Part II -GAGWTA!

[Sha]

Either way, it will be cool to meet up. And the race will be sort of a graduation. Last year I was too weak to do it.

Another of many, many women I want to walk for... I will say again and again, all of you young ladies, are inspiring, courageous, and women that I look up to. A blessing to have in my life (even if only on a computer for most).

God Bless!

 

[BeadyLady]

GAGWTA!

I am still lurking around.

and may I say, Chemo S&cks! I'm now a 3yr Survivor with residue reactions to surgery and chemo. So, I don't post on this thread, as I'm still grumpy.

for those that can and do Walk or Run - THANK YOU!

 

[snappy]

GAGWTA!

I am still lurking around.

and may I say, Chemo S&cks! I'm now a 3yr Survivor with residue reactions to surgery and chemo. So, I don't post on this thread, as I'm still grumpy.

for those that can and do Walk or Run - THANK YOU!

Glad you see you posting, beadylady. You can be grumpy on this thread, we don't mind.

So you are still experiencing the pain? How are you coping?

 

[lookingforward]

GAGWTA!

I am still lurking around.

and may I say, Chemo S&cks! I'm now a 3yr Survivor with residue reactions to surgery and chemo. So, I don't post on this thread, as I'm still grumpy.

for those that can and do Walk or Run - THANK YOU!

I totally second the grumpy feelings! I still have nuropothy in my toes, my toenails are slowly falling off (from the taxotere), etc. I get so mad sometimes. So I guess I want to second snappy and say that you can be as grumpy as you want because not only do we care about you but we understand.
Sending you many hugs!

 

[BeadyLady]

Gee Thanks! I felt bad about posting even that remark, don't want to scare anyone off.
Found out why I've had runny eyes since chemo - 2 1/2 yrs of tears - dry eyes; what?! somehow the eyes got scratches or something similar and the eye gland have issues with how much water is really needed and goes overboard. This is chronic.
Pain - well - that is now managed by not using the right arm. Back in Oct I went to B&W in Boston, got the Director of the Pain Clinic as my Dr; he uses and trains students and blam! the resident Dr. was able to tell my I suffer from nerve damage from the surgery. So we've done 2 pain blocks, increased the pain meds and if I remember not to use my arm - pretty much pain free. Thanks for asking.
Need to new glasses.
I lost only only toe nail - but again, no Dr here knew why my toenail was red and ugly. It grew back with ridges.

Thanks for the nice words!

 

[snappy]

This thread is a good place to vent, Beadylady. You have had more than your fair share of complications for sure, you are entitled to vent.

Sending you a pm

 

[jackskellingtonsgirl]

GAGWTA, Ladies!

Just popping in to let you know I am thinking of you all!

 

[lookingforward]

Gee Thanks! I felt bad about posting even that remark, don't want to scare anyone off.
Found out why I've had runny eyes since chemo - 2 1/2 yrs of tears - dry eyes; what?! somehow the eyes got scratches or something similar and the eye gland have issues with how much water is really needed and goes overboard. This is chronic.
Pain - well - that is now managed by not using the right arm. Back in Oct I went to B&W in Boston, got the Director of the Pain Clinic as my Dr; he uses and trains students and blam! the resident Dr. was able to tell my I suffer from nerve damage from the surgery. So we've done 2 pain blocks, increased the pain meds and if I remember not to use my arm - pretty much pain free. Thanks for asking.
Need to new glasses.
I lost only only toe nail - but again, no Dr here knew why my toenail was red and ugly. It grew back with ridges.

Thanks for the nice words!

Thanks for sharing. Glad you found a good pain doctor...thats not an easy thing to do.

 

[luvmarypoppins]

Good Afternoon Ladies!!

Hope everyone had a good week end. We had a beautiful sunday here, now cold and rainy as usual for april.

Well my dh has got the cold bug from me via ds3. I am heating him up some soup. He even took 1/2 day off today, unheard of for him!!

Brief Prom Synopsis from ds3 - Heah mom, yes son (talking about his date) S.'s dad has the same kind of cancer as you and now he has to eat through a tube, Oh thank you for telling me that son!! (What the heck is wrong with my ds, gheesh, he lives in his own little world for sure). Nothing like good news on the cancer coaster journey Yes, way to go son you certainly made my day for sure!! Anyway, the girl arrives crying saying her makeup is terrible, her mother is a psycho etc. This was only at the picture place of some rich girl, yes ds tells me her plasma mount wall tv is bigger than our living room wall, o.k. The prom date proceeds to tell ds that her mom takes medication for her mental health issues. O.k. I think this is definetely too much information being shared. Ds did say the mom said - wow he is really handsome!! So at the projm they take a free picture that is part of the ticket price. The photographers are a husband and wife whom I know. Their professional jobs are family and marriage counselors etc,. Well the girl see the man when they line up for the pictures and tells ds, I cant get the picture taken, he is my life coach!!?? O.K. I dont know what a life coach exactly does, but I am thinking this whole family must go to this couple for counseling. I just hope ds just remains friends with this girl and that is it, with my own stuff going on I dont think ds or our family needs to be getting into this pandoras box for sure. But he had a good time and thats what counts. Oh, except for his memory card was missing out of the camera. WTH? Later the next morning he says a girl, (who happened to be his date last year) found it on the floor somewhere at another girls house they were all at after the prom). Hmm, we still dont know how a memory card could just fall out of a camera.

And miracle of miracles - DH and I actually went to a movie. Dh said, wow I feel like we are on a date!! Hmm, he spilt the whole giant soda on the floor before we got into the theater. We got another one, also note to self, dont eat alot of popcorn after a bowel resection a few weeks ago.

The diet starts on wed. oh joy, hmm better get my fill of cookies, donuts, cheese, ice cream, milk etc. I have to go for another blood test tomm. or wed. I will see depending on the weather. Tomm. night we are getting our taxes done. I hope its good news because we need alot of stuff around the house.

Blessings to you all!!

 

[Sha]

I wanted to update... I heard from the Chapter here in FL for the RFTC and information will be up in early June. I will still do my planning, and try to access it while in England.

 

[Pea-n-Me]

Thank you for the comments on my photos. I'm glad you liked them.

I am still a newbie at it. There is so much talent on the photo board, which includes posters here such as Sha, Amy and Tuffcookie, too! You should see some of their photos! I believe all of us have won the weekly photo contests (Sha, multiple times), take a peek if you want to see some great Disney shots. (You can also go back to 2006, 2007, 2008 where some of our winning photos are tucked away.)

http://www.disboards.com/showthread.php?t=1679394

Boy, I was sunburned (believe it or not since it's still quite chilly here) and exhausted after our two doubleheaders this weekend. Each day we were more than an hour from home, Sunday in another state altogether! We had to leave the house really early and when we got back we were wiped! This is the first AAU experience for most of us on the team and everyone was a little overwhelmed and nervous. We kind of got our butts kicked but it wasn't unexpected. As our coach said, some of these 11 and 12 year old players are huge and have mustaches they're unbelievable, LOL. We have two out of state weekend tournaments coming up, and my son wasn't going to do town league but his summer coach from last year called him last night so he's going to play after all. I imagine I won't be around much with all the running around, but I promise I'll try to keep up as much as I can with reading, if not posting as much.

Every day I keep in mind how fortunate I am to have these experiences with my family. We're busy, but love it and wouldn't have it any other way. I was sitting on the field the other day thinking that it must be hard when our kids "grow up" and these days are behind us. (Probably in one way, right? ) Well right now I'm just living for the moment and appreciating every second I have with these great kids and people I'm around this year. It's a good group.

GAGWTA

 

[laurabelle]

~~~***GAGWTA sistas***~~~

I saw the dermatologist yesterday (Dr. Treeman!) He was very good, I liked both him and his fellow. They said they are pretty sure I'm having an allergic reaction to the methotrexate. He gave me 3 rx to get it under control. I could try the shots again in a week or two, but it makes all of us nervous. They said things like, if you start to have tingling in your mouth, go to the ER!I know I could have a very bad reaction. I don't think I'm going to try it. I haven't talked to my GI doc yet. Things are still ok otherwise. Kids are home on spring break. We spent the weekend at our friend's lake house, even though it was too cold and windy to do much, it was still nice to get away.
Thinking of you all...

 

[Pea-n-Me]

Laura

 

[Pea-n-Me]

My best friend sent me this today. She always has uncanny timing. Of course I knew I just had to share it with all of you. Enjoy!

Lucky Dog...

Anyone who has pets will really like this. You'll like it even if you
don't and you may even decide you need one!

Mary and her husband Jim had a dog named 'Lucky.'

Lucky was a real character. Whenever Mary and Jim had company come for a
weekend visit they would warn their friends to not leave their luggage
open because Lucky would help himself to whatever struck his fancy.
Inevitably, someone would forget and something would come up missing.
Mary or Jim would go to Lucky's toy box in the basement and there the
treasure would be, amid all of Lucky's other favorite toys Lucky always
stashed his finds in his toy box and he was very particular that his
toys stay in the box.

It happened that Mary found out she had breast cancer. Something told
her she was going to die of this disease....in fact; she was just sure
it was fatal.

She scheduled the double mastectomy, fear riding her shoulders. The
night before she was to go to the hospital she cuddled with Lucky. A
thought struck her...what would happen to Lucky? Although the
three-year-old dog liked Jim, he was Mary's dog through and through. If
I die, Lucky will be abandoned, Mary thought. He won't understand that I
didn't want to leave him! The thought made her sadder than thinking of
her own death.

The double mastectomy was harder on Mary than her doctors had
anticipated and Mary was hospitalized for over two weeks. Jim took Lucky
for his evening walk faithfully, but the little dog just drooped,
whining and miserable.

Finally the day came for Mary to leave the hospital. When she arrived
home, Mary was so exhausted she couldn't even make it up the steps to
her bedroom.
Jim made his wife comfortable on the couch and left her to nap.

Lucky stood watching Mary but he didn't come to her when she called. It
made Mary sad but sleep soon overcame her and she dozed.
When Mary woke for a second she couldn't understand what was wrong. She
couldn't move her head and her body f felt heavy and hot. But panic soon
gave way to laughter when Mary realized the problem. She was covered,
literally blanketed, with every treasure Lucky owned! While she had
slept, the sorrowing dog had made trip after trip to the basement
bringing his beloved mistress all his favorite things in life.
He had covered her with his love.

Mary forgot about dying. Instead she and Lucky began living again,
walking further and further together every day. It's been 12 years now
and Mary is still cancer-free. Lucky He still steals treasures and
stashes them in his toy box but Mary remains his greatest treasure.

Remember....live every day to the fullest. Each minute is a blessing
from God. And never forget....the people who make a difference in our
lives are not the ones with the most Credentials, the most money, or the
most awards.
They are the ones that care for us.

If you see someone without a smile today give them one of yours! Live
simply. Love seriously. Care deeply. Speak kindly. Leave the rest to God

Dear God, I pray for the cure of cancer.
Amen

Love you, Lucky!

 

[luvmarypoppins]

Good morning sistas!!

Well its official, my wonderful dh has called me a winer and complainer when he was changing the dressing today. I told him he just doesnt understand what it is like to have your guts ripped open, stapeled back together etc. He said you never complained when they were doing it in the hosp. etc. Gheesh, I think he forgot I had the morphine pump then, lol!!

At least I had a nice on my face when we got our taxes done last night. Lets just say we wont have to worry too much about how to afford the stuff we are desperately needing for the house.

The diet starts today and of course I have no food in the house that I am allowed to have, save the distilled water. So shopping I will go later, added to a l pm blood test by dr. pcp, who likes to have my lab test results on his desk for a month and never call back. I am not going to worry about the results and I will send a copy to the endo, so I bet I will hear from her sooner if something is wrong. He is only checking the vit. d and B12 levels I think which were non existent when I was in the hosp. in Sept.

Laura - Hope the new meds work

Linda- thanks for the story about lucky dog. My ds called other ds and said he is safe in Boston,.

Alice - Hope things are going well with you

Maureen - Maybe I will join you in the B12 route, depending on my lab results. Wow, glad my dr. gives me the shots in the arm. I dont think I would want him looking at my, um, butt!!

Anyone hear from Melissa? Wondering how she is and any update on Katie?

Laurie - Thinking of you and watching Regis and Kelly from N.O.

Sha - I hope you have a great time in England. My cousin is there now. She always goes at least once a year.

Have a great day everyone, blessings to all.

 

[Aliceacc]

Hi all!

My surgery was Monday and it went well. We got there at 10 and were home by 2:15. I'm now sporting a much more natural looking implant, as opposed to the steel-like expander that was there before. I feel terrific, not a twinge of pain.

But we got some awful news shortly after we got home. My niece's almost-3-year old daughter died in her sleep Sunday night. Cassidy was born 2 months premature, and had a host of birth defects, in addition to Cystic Fibrosis. They're not sure exactly what happened yet.

The wake is today, the funeral tomorrow.

So my surgery is an afterthought in the grand scheme of things.

My 9 year old daughter is terrified of my next surgery. A week after my last surgery my father in law died, and now Cassidy. I'm having trouble convincing her that it's just a horrible coincidence.

 

[luvmarypoppins]

Alice - dear sista I am so, so sorry for your loss. You have my prayers,and deepest sympathy.

I pray God will give you peace and comfort during this most difficult time for you and your family and your dear niece and her family.

Glad to hear you surgery went well. Hope you heal quickly. Again

 

[laurabelle]

Hi all!

My surgery was Monday and it went well. We got there at 10 and were home by 2:15. I'm now sporting a much more natural looking implant, as opposed to the steel-like expander that was there before. I feel terrific, not a twinge of pain.

But we got some awful news shortly after we got home. My niece's almost-3-year old daughter died in her sleep Sunday night. Cassidy was born 2 months premature, and had a host of birth defects, in addition to Cystic Fibrosis. They're not sure exactly what happened yet.

The wake is today, the funeral tomorrow.

So my surgery is an afterthought in the grand scheme of things.

My 9 year old daughter is terrified of my next surgery. A week after my last surgery my father in law died, and now Cassidy. I'm having trouble convincing her that it's just a horrible coincidence.

I'm so glad you are happy with your surgery results and that you are not having pain!
I'm so sorry about your niece's dd. That's such a tragedy and yes, a horrible coincidence. Praying for your family...

 

[BeadyLady]

Aliceacc,

so sorry about your family's loss; never easy to live through. I hope they find the strength, courage and support they and you need to get through.

 

[laurabelle]

~~~***GAGWTA sistas***~~~
Happy Easter sistas!!!