Dis Breast Cancer Survivors Part II -GAGWTA!

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I hear you! I'm hoping that's all it is (same age). As I mentioned above, my mother has horrible arthritis. But two women in the group I go out with who are on the same timeline as me have had bone mets to the hip diagnosed in the last year so that doesn't help with my state of mind. I've had to take motrin just about every day. I mentioned it last time but then it was in both hips so we agreed to watch it. Now it's more in just one. Oh, this is such fun, isn't it?

Regardless, we're here with you. I know how scary it must feel. Let's hope it's not anything horrible or that can't be managed easily. You're in my prayers. :hug:

jsg, remember the Serenity Prayer and just think pleasant thoughts about your trip :cloud9: that you'll be on soon. ;)

Snappy is correct, this is the power of this thread...we are all facing similar fears and concerns. I am 47 and have quite a few aches and pains. I went to my surgeon on Friday (and I don't like her really because she is gloom and doom). Anyway, she wrote NED on my chart. I said "No evidence of disease...thats good!" to which she said "Not at this time". Yup. She could pop the balloon of a lottery winner. HA! But seriously, I have been feeling queezy lately and read that this is a sign of brain mets. My oncologist said if I am still feeling queezy in three weeks we will talk. Same thing with the headaches. But its scary. And noone seems to understand but fellow survivors. My family does not want to hear it...they just say "You'll be fine...and think positive" As if worrying about recurrence will actually make it happen. It makes me nuts.:scared1:

Linda and CheryDan...hang in and much good thoughts...I hate to say "think positive" because I am personally sick of people saying that to me...but you are in my thoughts and I can relate!
 
FYI...I was just on the John Hopkins Ask and Expert:Breast Cancer and the question submission is back up. If any of you have questions to ask their experts you can submit them! Its hardly every accepting questions...so I submitted a few. :goodvibes
 
Had this is my inbox this am and thought I would share.

Courage is the price that life exacts
for granting peace.
Amelia Earhart
US aviator (1897-1937)

When I received my cancer diagnosis, what I wanted more than anything in the world was to meet, talk to and hopefully get a hug from long-term cancer survivors.

One of my happiest moments during that awful time was the evening I met a woman who was a 7-year cancer survivor. She hugged me and told me I would be fine, and I believed her. Now, of course I knew in my head that all cancers are different and that, in all likelihood, she had had totally different treatments for her cancer than I had for mine, but the facts didn't matter to me right then.

What mattered was that another human being who had been through pretty much the same thing I was going through - and, more importantly, someone who knew the raw terror I was experiencing - was still standing, proof that I could come out on the other side of this. She was hugging me and infusing me with her strength and her courage and her humanity. She made me believe what all of my doctors' reassurances and the nurses' encouraging words had not been able to because she spoke to my heart.

But there was something she didn't tell me, something that every cancer survivor learns at some point, something I'm going to share with you now, and that is this: cancer changes our lives in many ways, and it changes our lives forever.

Most of the ways are good. Nearly every cancer survivor we've ever met agrees that the "cancer experience" has given them a richer, deeper appreciation for life and pushed them to live their lives with greater joy than they ever knew
before cancer.

On the flip side, we cancer survivors will forever be getting those "extra special" checkups on a regular basis. We will be nervous, often scared, occasionally terrified. Some of us have to go through these examinations every few months for years, some more often and some less frequently.

Many long-term survivors find that, the longer they are "out" from diagnosis, the more they run into a particular problem. The problem is this: the people who weren't around them "back then" and who have only known them with hair and rosy cheeks and bright eyes just don't get it. We have even heard from some long-term survivors that people have said to them, "You look so healthy. You must not have had a very bad kind of cancer" (Excuse me? There are good kinds?). In other cases, new and/or casual acquaintances have actually implied that a long-term survivor never really
had cancer at all!

We've heard from several long- term survivors who've encountered problems with employers and co- workers who think the survivor is using his medical history as an excuse to take a few days off when he is due for check-ups and follow-up tests.

When a work-related situation arises, it is absolutely necessary to take action in order to avoid discriminatory treatment. Ask your oncologist to speak with your employer if it seems to be a simple misunderstanding. In more serious cases, it may be necessary to contact someone who can act as an advocate on your behalf. Many oncology practices and hospitals have such patient advocates on staff; if they don't, they can put you in touch with advocates in your community. In the most serious cases where real workplace discrimination is taking place, it becomes necessary to contact an attorney.

For the most part, however, the simple answer to these concerns is that it is up to us to educate the public. It is up to us as survivors to teach people who might otherwise never know it that there are more than 10 million cancer survivors in this country and we walk among them every day. Our hair has grown back and our cheeks glow and our eyes sparkle. We go to work and we go to school and we get married and we have babies and we live our lives just like everyone else. The differences between us and everyone else are generally unseen (medications, medical appliances, etc.), and every now and then we have to call upon every ounce of courage we can muster and go have some scary tests to make sure everything is okay.

If you find yourself in a situation where someone is implying that you couldn't have been very sick, if in fact you were ever sick at all, and that you might be a bit of a hypochondriac, remind yourself that you don't owe that person or anyone else any explanations. You don't owe anyone anything. You've paid your dues and then some. You're a survivor, a champion, a warrior, the very definition of courage and determination. And that is something no one can ever take away from you.

Bless the person who suggests anything different, and move on.

Dear God, Please help me move forward with my life, ever mindful that I am changed now, for the better and forever. Be with me as I lie on the examining table, undergo frightening and sometimes painful tests, and as I endure the seemingly endless wait for results. When others are less than kind about the differences between them and me, help me to remember that this is only between You and me. Give me the strength to bless them, turn away and face only You.
Amen


Roger and Kathy Cawthon
The Cancer Crusade
email: cawthons@thecancercrusade.com
web: http://www.thecancercrusade.com
 

Wow, Laurie. What a great and timely article, something that will help a lot of us here today. (Even a God Wink, maybe?) Funny it had an Amelia Earhart connection, too - for two reasons. I knew her sister when I was growing up, she was elderly then but we spoke often as she walked with her dog, Flopsy. I'd pat the dog and ask her questions about Ameila and an old dog of theirs I'd read about, even naming one of my dogs after him. And yesterday, around the time I was posting here, my DS was watching a military aircraft show on TV and Ameila's picture popped onto the screen. I was like "That's Ameila Earhart!!" and my kids were like, "We know, Mom"... LOL. Thanks for posting.

This bears repeating, and I may even clip it, laminate it, and keep it in my wallet for "those times".

Dear God, Please help me move forward with my life, ever mindful that I am changed now, for the better and forever. Be with me as I lie on the examining table, undergo frightening and sometimes painful tests, and as I endure the seemingly endless wait for results. When others are less than kind about the differences between them and me, help me to remember that this is only between You and me. Give me the strength to bless them, turn away and face only You.
Amen
 
Laurie thanks for sharing that!

Sha, I forgot to respond to your post about your mom having a pet scan next week.

Please tell her she is in my prayers today.

Let us know when she is scheduled.

Hoping this is just a case of the docs being ultra diligant.

Cheryl, how are you doing today?

We have the big birthday party today at our hosue so I will be busy.

Love ya, mean it everyone.
 
Sha, I forgot to respond to your post about your mom having a pet scan next week.

Please tell her she is in my prayers today.

Let us know when she is scheduled.

Hoping this is just a case of the docs being ultra diligant.

Cheryl, how are you doing today?

We have the big birthday party today at our hosue so I will be busy.

Love ya, mean it everyone.

She asked the MD (oncologist) to do it now, as he was going to do it next visit. I know its tomorrow and I think its at 1230. (yes it is, as I went and asked her). And then its a matter of just waiting for the results to be read and told to us. Will keep you all posted. She is in her 6th year of being Breast Ca free I believe.
 
She asked the MD (oncologist) to do it now, as he was going to do it next visit. I know its tomorrow and I think its at 1230. (yes it is, as I went and asked her). And then its a matter of just waiting for the results to be read and told to us. Will keep you all posted. She is in her 6th year of being Breast Ca free I believe.

Good thoughts for your mom! :wizard: I hope they get the results to her quickly, and that everything is fine! :hug:
 
Wow, Laurie. What a great and timely article, something that will help a lot of us here today. (Even a God Wink, maybe?) Funny it had an Amelia Earhart connection, too - for two reasons. I knew her sister when I was growing up, she was elderly then but we spoke often as she walked with her dog, Flopsy. I'd pat the dog and ask her questions about Ameila and an old dog of theirs I'd read about, even naming one of my dogs after him. And yesterday, around the time I was posting here, my DS was watching a military aircraft show on TV and Ameila's picture popped onto the screen. I was like "That's Ameila Earhart!!" and my kids were like, "We know, Mom"... LOL. Thanks for posting.

This bears repeating, and I may even clip it, laminate it, and keep it in my wallet for "those times".

Dear God, Please help me move forward with my life, ever mindful that I am changed now, for the better and forever. Be with me as I lie on the examining table, undergo frightening and sometimes painful tests, and as I endure the seemingly endless wait for results. When others are less than kind about the differences between them and me, help me to remember that this is only between You and me. Give me the strength to bless them, turn away and face only You.
Amen

I love the prayer. Perfect.:hug:

Lots of love to all those in treatment or undergoing tests this week!
 
Wow, Laurie. What a great and timely article, something that will help a lot of us here today. (Even a God Wink, maybe?) Funny it had an Amelia Earhart connection, too - for two reasons. I knew her sister when I was growing up, she was elderly then but we spoke often as she walked with her dog, Flopsy. I'd pat the dog and ask her questions about Ameila and an old dog of theirs I'd read about, even naming one of my dogs after him. And yesterday, around the time I was posting here, my DS was watching a military aircraft show on TV and Ameila's picture popped onto the screen. I was like "That's Ameila Earhart!!" and my kids were like, "We know, Mom"... LOL. Thanks for posting.

This bears repeating, and I may even clip it, laminate it, and keep it in my wallet for "those times".

Dear God, Please help me move forward with my life, ever mindful that I am changed now, for the better and forever. Be with me as I lie on the examining table, undergo frightening and sometimes painful tests, and as I endure the seemingly endless wait for results. When others are less than kind about the differences between them and me, help me to remember that this is only between You and me. Give me the strength to bless them, turn away and face only You.
Amen

I need to print that prayer for some of my clients. Thanks for sharing that! Love the story of Amelia's sister. Would have loved to hear her stories. (and for mom too :) )
 
FYI...I was just on the John Hopkins Ask and Expert:Breast Cancer and the question submission is back up. If any of you have questions to ask their experts you can submit them! Its hardly every accepting questions...so I submitted a few. :goodvibes

I noticed this too and asked a couple of questions myself. Can you figure out which ones are mine? LOL.

GAGWTA Ladies!:grouphug:

Love your pics, Maureen. 47 sure looks good on you. I had a similar cut and style and now, like you, I am gray. I take that back, my hair is PURE WHITE. Oddly enough (and you all may think I'm nuts), my hair is GROWING BACK ALREADY and I am not finished with chemo. I had/have been washing what was left of my hair with Peppermint Soap, specifically Dr. Bronner's soap. Has anyone ever seen Dr. Bronner's bottles? The labels have tons of writing on them, ramblings, they are very bizarre. In any case, I have been using this soap for years--used to clean my bathroom tiles with the lavender soap (it is a multi-purpose soap, safe to use on skin AND to clean). My cousin belongs to a buying club and so she picked up the peppermint and the almond soaps for me.

I guess the peppermint is stimulating my hair follicles, because there is very noticeable growth. I have not lost any hair in the shower since I started using it. Forget Rogaine, maybe peppermint soap is the answer!

Cheryl--I know this is diffiucult for you, and my, how the mind can wander! I have made a conscious decision to stop reading things online and have stopped surfing certain message boards because all I was reading was negative stuff, which did not help me! You won't know until you know, try to take it one day at a time. My positive thoughts are with you!:hug:

Sha--positive thoughts go out to your mom.

jackskellingtongirl--how is Mom feeling after chemo?

Hope everyone else is well. I am doing ok today, I can't emphasize how much I enjoy going to the bathroom, LOL!!!!! Don't take it for granted!!!

Dawn
 
I noticed this too and asked a couple of questions myself. Can you figure out which ones are mine? LOL.

GAGWTA Ladies!:grouphug:

Love your pics, Maureen. 47 sure looks good on you. I had a similar cut and style and now, like you, I am gray. I take that back, my hair is PURE WHITE. Oddly enough (and you all may think I'm nuts), my hair is GROWING BACK ALREADY and I am not finished with chemo. I had/have been washing what was left of my hair with Peppermint Soap, specifically Dr. Bronner's soap. Has anyone ever seen Dr. Bronner's bottles? The labels have tons of writing on them, ramblings, they are very bizarre. In any case, I have been using this soap for years--used to clean my bathroom tiles with the lavender soap (it is a multi-purpose soap, safe to use on skin AND to clean). My cousin belongs to a buying club and so she picked up the peppermint and the almond soaps for me.

I guess the peppermint is stimulating my hair follicles, because there is very noticeable growth. I have not lost any hair in the shower since I started using it. Forget Rogaine, maybe peppermint soap is the answer!

Cheryl--I know this is diffiucult for you, and my, how the mind can wander! I have made a conscious decision to stop reading things online and have stopped surfing certain message boards because all I was reading was negative stuff, which did not help me! You won't know until you know, try to take it one day at a time. My positive thoughts are with you!:hug:

Sha--positive thoughts go out to your mom.

jackskellingtongirl--how is Mom feeling after chemo?

Hope everyone else is well. I am doing ok today, I can't emphasize how much I enjoy going to the bathroom, LOL!!!!! Don't take it for granted!!!

Dawn

I'm ready to go get that peppermint shampoo. Any help I can get would be welcome. Right now my hair is coming in brown with a bit of white...so that I look like a skunk. And 47 looked a whole LOT better before chemo than it does now. I sure have aged but you won't find me posting those pictures ;)

I am making turkey dinner for my dad today. I have a Sunday dinner rule....and so far he is coming over each weekend for some good food. I am trying to take care of him a little...he won't allow me to do much. He is very independent, which is a good thing.

Trying not to cry.....:sad2:
 
I'm ready to go get that peppermint shampoo. Any help I can get would be welcome. Right now my hair is coming in brown with a bit of white...so that I look like a skunk. And 47 looked a whole LOT better before chemo than it does now. I sure have aged but you won't find me posting those pictures ;)

I am making turkey dinner for my dad today. I have a Sunday dinner rule....and so far he is coming over each weekend for some good food. I am trying to take care of him a little...he won't allow me to do much. He is very independent, which is a good thing.

Trying not to cry.....:sad2:

Check out www.drbronner.com

Sunday dinner is a nice tradition. Enjoy your time with your dad.:love:
 
Glad y'all got something from the Cancer crusade clip. I don't always read them, I was glad I did today. I was afraid maybe it would be too sappy, ya'll made me feel good about posting it.

Linda, I was touched by your Godwink comment. REALLY touched. I mean spine and scalp tingling touching, not to mention the wet stuff. So interesting that you knew Amelia E's sister. What was the dog name by the way?

I was thinking the same thing about Maureen's pictures. She looks much younger than I did at that age. I also hesitate to post pictures of myself. I am self-conscious. It is not the hair or the body per se, I guess it is just the drastic change since I was twenty something.

But. . . it happens to all of us.


I am sure I posted this, but the day DD18 graduated from 8th grade school in 2004, I was looking for DH across the church (they hold the ceremony at a mass in church). He had recently gained a lot of weight (just be diagnosed with severe sleep apnea). I almost did not recognize him. He had not bought a new suit in a few years (he is able to dress casual at work) so he squeezed himself into an old one.

I swear I really did not recognize him. It was really scary.

Sha, I'll have your mom and the scan on my mind tomorrow. Please let us know the results when available.

Maureen, I love hearing about you taking such good care of your dad. You are right it is good that he is independent, but I bet he looks forward to it all week long.

Dawn, I can relate to your comment about enjoying going to the bathroom. Even without chemo, I have chronic issues in that department.

Sha, how lucky your clients are to have you!!!!

I am loving this thread today.

By the way the birthday party today was a big hit. I found some very tender filet mignon steaks at Sam's of all places a few weeks ago and bought more for today's celebration. DS20's girlfriend, DD18's BF, Mom, my sister Joan and her DH were all here. We had a wonderful everyone getting along and happy day.

It was one of those days that you just live for.

I feel blessed, like I really don't deserve this.

Love you guys.
 
Linda, I was touched by your Godwink comment. REALLY touched. I mean spine and scalp tingling touching, not to mention the wet stuff.
That's how I felt when I read your post this morning.

So interesting that you knew Amelia E's sister. What was the dog name by the way?
I'd read it was James Ferocious, so one day I asked her if it was true and she said it was.

Funny how today you can quickly find anything on the internet. But back then, it was just in a schoolbook I'd read about Amelia. Here's a reference to their dog: http://books.google.com/books?id=IN...&hl=en&sa=X&oi=book_result&resnum=6&ct=result
 
GAGWTA!!

Wow, this thread is smokin today! I only have a minute because we are on our way out the door, but I just wanted to say thank you so much to everybody for the hugs, thoughts and prayers. :goodvibes I'm in a much better place today! I came to the realization that I wont have any news one way or the other for another week, and I'm not going to waste my week on worrying about it! I'll have plenty of time for that, IF need be, later. :thumbsup2

I've read thru everything, just don't have time to comment to everybody individually right now - will be back later to do that. Thanks again for all the support. Thoughts, hugs & good wishes to everybody!!! :grouphug:
 
Laurie - That was a very nice post! Thanks for sharing it! :goodvibes

Linda - How cool to know Amelia's sister!

Dawn - Mom says she is feeling pretty good! She called earlier. She said a lady from Reach for Recovery stopped by to visit her, gave her some info, etc. They told her the first chemo will probably be the easiest in terms of side effects. How are you feeling? It seems like your second A/C was pretty rough, and the third not too terrible? Mom is really hoping she will feel well enough to work and keep her regular routines.

CherylDan - Glad you are in a happier frame of mind! :hug:

We are trying to get some packing done for our WDW trip. We had a temporary derailment when the dryer stopped working :scared1: but after it cooled down it started working again. Never a dull moment. :rolleyes:
 
GAGWTA!!

Wow, this thread is smokin today! I only have a minute because we are on our way out the door, but I just wanted to say thank you so much to everybody for the hugs, thoughts and prayers. :goodvibes I'm in a much better place today! I came to the realization that I wont have any news one way or the other for another week, and I'm not going to waste my week on worrying about it! I'll have plenty of time for that, IF need be, later. :thumbsup2

I've read thru everything, just don't have time to comment to everybody individually right now - will be back later to do that. Thanks again for all the support. Thoughts, hugs & good wishes to everybody!!! :grouphug:

This is the best post of the day!! I am so very happy to read about your mood today!! Keep it up, Cheryl!!!
 
Laurie....that article was awesome! Couldn't have come at a better time. :worship: And your party sounds like it was delicious!!! It's so cool when an event comes off like that - good company, good food, good times. And don't think for a minute you don't deserve it!

Linda...I can sure understand why your state of mind is what it is. Knowing two people in your group with mets to the hip has got to be frightening. :hug:

Sha....here's some more good wishes for your mom tomorrow! pixiedust:


JSG....glad to hear your mom is doing ok today. It's pretty easy to see why your sister is driving you nuts! Yikes. But I like Linda's advice - just think Disney! And I'll bet you sure are glad your dryer is now behaving again! :laundy:

Maureen...how was your turkey dinner with your dad? It's nice that you are able to get together every week. I'll bet he really appreciates it, even if he is very independent. About the gray hair....I can totally relate to that, except there isn't much else mixed in with mine, unless you count the white! At first I couldn't wait to be able to color it, but then I just decided to leave it be. I went from thick, brown and wavy to thin, limp and gray, but at least it's hair! :rolleyes1 But like I tell DH, if I ever get the senior discount anywhere (I'm now 46) I just may rethink this whole "natural" thing. ;)

Dawn...your bathroom comment cracked me up! :lmao: Just so ya know, I'll think of you each and every time. :laughing: Ah....the things we are grateful for. ::yes::

DH and I had a very nice afternoon/evening/night (LOL, we were gone a long time!). :love: We went out for a very late lunch/early dinner, and did a bunch of shopping for his new office that he will be getting when he starts his new job next month. It's a total job change, he is going to start teaching at the local junior college in the automotive department. Currently he is the shop manager at a repair shop. We are both really excited about it. Anyway, we had about an hour's drive to get home, so we had to stop for ice cream on the way! :rotfl:

GAGWTA! :wave2:
 
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