Dis Breast Cancer Survivors Part II -GAGWTA!

[honugirl]

GAGWTA everyone! I'm still pretty wiped out. Just going to the grocery store is doing me in these days. I did get my handicap placards, I just haven't had the guts to use them because what if people think I"m faking? Got myself kind of a cute folding cane at Walmart the other day, so we'll work with that.

Thanks for the support on my hockey stuff. When I get more energy, I'll explain a bit more what was going on. Basically I'd had the best year of my life. I went to Nationals for the first time and worked a final game (which is tough for a rookie!), then I went to camp at the Olympic Training Center in Lake Placid which would have been the first step in getting into the system for my international license. When I was there, I started to notice little things that looking back now, were evidence of the disease process. The next year was all down hill from there. Hockey is a thing of the past right now. But I miss it more than anything else in this world.

 

[BeadyLady]

Honugirl,
It is fabulous you have a passion! This will never leave you and you will find a way to make it work for you. Important thing is to get better quickly! Smile, get hugs and watch funny shows.

Snappy, NHAnn, Love, etc - GAGWTA!

I put pink stripes in my grey hair; very fetching! And I did my first Survivor Walk at the Relat, Friday night.

 

[snappy]

You are right, beady lady. And it is a magnificient passion!

Also, yay to you for your first race!!

Thought I would post a few pictures from our wet May trip to the world. NOw don't expect anything like Sha's or Linda's or Elizabeth's son and DH's pictures.

Time to adjust your expectations.

I just learned during this trip how to change some of the settings. I have a lot of "blue" pictures. I never could figure out how I might hav selected "blue" pictures. Oh, well.

Here is a couple pictures at Hollywood studios in the rain when just about everyone had evacuated.

View of pool and lake from our balcony at Bonnet Creek:

Master bath at Bonnet Creek:

Kitchen at Bonnet Creek:

dining area at Bonnet Creek:

EPCOT pictures, Flower and garden festival time of year:

A few from our balcony on the top floor of Boardwalk Villas (I have hundreds of these!):

Yacht club from our balcony:

Epcot Fireworks from our balcony:

 

[Pea-n-Me]

Very nice, Laurie! Bonnet Creek looks awesome!

The blue is that your White Balance is set incorrectly. Put it back on Auto. (It usually has pics of a light bulb, or cloud, sun, etc.)

You asked about our renovation. Not quite in full swing yet, LOL. Got the drawings of our screen porch back last week. Not "screeny" enough for me, back to the drawing board. So much for having it for summer.

I am actually home sick today. Third day of this, can hardly swallow. Am going to miss Father's Day with DH @ his parent's house. But that's ok. Happy Father's Day to the men of this thread, and to your husbands, fathers, brothers, sons, etc.

GAGWTA

 

[jackskellingtonsgirl]

GAGWTA, Ladies!!

Laurie, if my pics were blue I wouldn't know how to fix it, either.

Linda, I hope you feel better soon! Sorry you are missing the Father's Day gathering.

DH is working. Hopefully he will be home fairly early so he can relax a bit!

I found this quote and wanted to share it with you girls:

"So many of our dreams at first seem impossible, then they seem improbable, and...soon they become inevitable." Christopher Reeve

 

[snappy]

Thanks for the blue tip, Linda.

I sent our camera with DD13 to camp. Secretly I am hoping something happens to it so I can justify a new camera. We have had it three years, but the changes in camera technology make it worth trading up.

I'll have to make sure any new camera comes with lessons.

We bought the old one at a good camera shop rather than a big box store so I could have had lessons, it is just that DH bought it like a few days before my reconstruction and I had other fish to fry.

Feel better soon. Being sick in the summer stinks.

Thanks for making me feel better, Elizabeth. I tend to get excited when I take a picture and blow off making any camera adjustments. I guess I am too much living in the moment when I take pictures.

I regret it later, but I always always always do the same thing. Must be instinctual. Hey the dogs get a buy on that, why can't I?

I did not post pictures of the boardwalk villas inside. I here they are going through a major refreshing, appliances, paint, refinished furniture, new carpet, bedspreads and drapes.

I can't wait to see them next year. I think my property value is going up. Wish I could buy more points. I tell you, splitting with Bonnet Creek was genius, if I do say so myself. We all prefer Boardwalk for the ease of getting around, but the lazy river by the main building at Bonnet Creek ( I think they have added a second lazy river too by building 5) and the activites available at the main building came in pretty handy during the monsoon.

Next year everyone is talking beach beach beach. They mean the beaches of the gulf, say like Destin/ San Destin. I wish I could talk them into BEACH CLUB. So a few days at Boardwalk then back to the gulf beaches possibly next year.

Elizabeth, your trip is coming soon. Where besides AKV is your family staying at this time 'round?

 

[jackskellingtonsgirl]

Laurie, JUST AKV this year. 4 nights in a savannah view, 10 nights concierge. I tried to get the savannah nights switched to Kidani - no luck. I tried to switch them to a 1 bedroom at Kidani - no luck. So 4 nights savannah at Jambo, 10 nights concierge at Jambo. We were going to Universal for a night but we decided to put that off until next year.

We spent SOOOO much time last year dragging from resort to resort it was insane. No more of that. Combined with the extraordinary amount of rain and 7 days of DxDDP it seemed like all we did was eat, change resorts, and wait for the rain to stop. I am HOPING our move from the savannah studio to the concierge one won't be a huge amount of drama. I am planning to give our stuff to Bell Services EARLY that AM, go to the parks, come back and check in for concierge, and hopefully we'll have a room. If not then I hope we AT LEAST have a room before we need to shower & change for dinner.

We just did a 50 pt. add-on for AKV. Easy as pie.

 

[luvmarypoppins]

Good morning ladies. Hope you all had a good week end.

Laurie - Your pictures are neat. Bonnet Creek looks nice. My dh never wants to stay off site. The only thing he requests is no driving for him. I love the Boardwalk area and the Flower and Garden Festival. The topiary arrangements always amaze me. Have your heard from you dd at camp?

Linda - How are you feeling?

Honugirl - Hope you are feeling like yourself have recovered from the testing.

I am . Got middle ds cold. I feel horrid. I am glad the week end is over. I ran into my neighbor who passed away best friend. I apologized for my voice saying I had cancer etc. and she said she just got done battling breast cancer. She said "I am not a religious person but I dont know where I would be without God through all of this." I said I know He is always there for me too . etc. Yest. my poor dh and the ds had to put up with my emotional drama from "Angie" at church. Why, oh why does this lady upset me. She really doesnt mean to but I am tired of hearing she is helping the girl I help etc. etc. Just makes me feel terrible. Oh well, I am trying to think forward to next year. I think I would like to help someone else, not the girl who I used to help as this will just remind me of all this stuff. It would be good to get to know someone else better too. Hmm for fathers day, dh wanted Taco Bell for dinner?? and then I had to endure "Ice Road Truckers". OK. It was after midnight and I couldnt sleep, anything is better than that, so I went to bed. But I did his laundry and typed work stuff for him, so I tried to make him feel a little special yest, considering the scope of what I can do.

Today ds learns if he got the job and tomm is..you guessed it, the lovely surgeon visit. I have just about had it with him, the draining wound, which will be 4 months next week etc. Time to get off the fence and do something dear Dr. I am sure I will have alot to tell you tomm.Hopefully he will order the ct scan too.

Thinking of you all. GTAGWTA.

 

[Candy30]

Hi My Ladies!

Honugirl- Take it one day at a time. DO NOT GIVE UP! Maybe you will have some adjustments but Girl don't give up. Enjoy your camping trip and enjoy that cane and your Handicap pass. Use it girl. Who cares what other people think....it's how YOU feel that matters. We got your back!!

Jacks-I love that quote! Send pictures of your trip!!! Did you get all of your ADR's? I got all but one so I can't complain! I tried the online ADR and it was simple but because I got mine through an agent I could only do one day. Disney is working on it.

Snappy- I have to see your pictures at home. I have yet to post pictures. Maybe after my trip in Sept.

PNM- I hope you feel better.

Beadlady- I would love to see pictures of your hair!!!!

Ann- I was thinking in my head. I wonder what dress she chose to wear. How was the wedding.

MP- I think it is great that you kids relate to music like that. My son is constantly trying to write music. He uses his computer and the guitar. I listen to some of it and it sounds good.

Well we are still planning our trip out. I want to get Tshirts made for one day and I have an idea.... 2 in our group are breast cancer survivors, 1 mother survived renal and then myself fighting Lympoma. I wanted to do something unique with the ribbon but not really sure what to do. Any ideas? My ribbon color is lime green! Pink for breast of course and the Renal I think is blue? We all like different characters too. Any ideas? I know about the Disigner thread and kinda want to have some sort of idea before I post there.
GAGTWA!

 

[jackskellingtonsgirl]

GAGWTA, Ladies!

Maryann, feel better soon!!

Candy, you will have more pics from our trip that you could possibly care to look at. There is a link to my pre-trip in my signature, but there are no pics in it. Once we go "live" there will be pics added every day. From 4-6 cameras, depending on how much crap DH can manage to drag along. I take food pics - that's it. DS takes pics of whatever, and he LOVES when I post his pics in the trip report. DH takes pics of everything. EVERYTHING. So really, more pics than you can shake a stick at.

 

[Pea-n-Me]

Candy, you will have more pics from our trip that you could possibly care to look at. There is a link to my pre-trip in my signature, but there are no pics in it. Once we go "live" there will be pics added every day. From 4-6 cameras, depending on how much crap DH can manage to drag along. I take food pics - that's it. DS takes pics of whatever, and he LOVES when I post his pics in the trip report. DH takes pics of everything. EVERYTHING. So really, more pics than you can shake a stick at.

That's my photo buddy! I'm the same way.

I am not feeing any better yet. And we have nasty weather to go right along with it. It's been cold and rainy for over a week here. Kids should be home any minute from their last day of elementary. They'll be off to a party, I think I'm going to stay home and try to get better. I still can barely swallow, and now it's moving down to my chest as my colds always do. Yuck.

lmp, sounds like a good group. I hope you feel better soon, too.

Kids are home waving report cards at me...

GAGWTA

 

[snappy]

Remember LMP and Linda. . . no Zicam.

What about Mucinex?

Airborne?

Feel better soon.

Good luck with surgeon's visit tomorrow, LMP.

Elizabeth, your pictures are alway great.

 

[MerryPoppins]

Laurie, do you have access to a program like Photoshop? I've had pretty good luck with color correcting as I deal with old family photos that have yellowed. Bet you could do good things getting the blue out as well. If you don't have a good photo software, I'd be glad to play around with them for you one of these days. It's kind of fun. Maybe this fall after school starts?

We had a pretty good weekend. Celebrated DS's birthday with extended family. It's not until Friday, but we have to get together on weekends to make it work and he'll be going to Tulsa with his girlfriend this weekend. She's flying to Spain for 6 weeks of study abroad. They're both feeling rather dramatic about the separation.

Father's Day was okay. We took DH out to eat after church. Then, he played Wii all afternoon. My gift was for the family to do something together.... like a movie or a museum or a ball game. Instead he wouldn't commit and just played video games. Finally we grabbed hamburgers later in the evening and went to see UP, but we'd seen it once before. I just sort of felt like a Father's Day gift failure.

Hope everyone is feeling better today. Wish we could have some of the cool dreary weather..especially if it came with a bit of rain. It's hot and humid here. We're in a true Oklahoma summer weather pattern. Yuck.

 

[honugirl]

GAGWTA!

I'll be outta here for the next few days. I'm just going to try and hold it together. Nothing is going in my favor. Everything is going wrong. Because of one spike in the results on my test I'm going to get denied the GH that I really need. It really sucks. I was low the whole time, then spiked up, then went right back down and I'm going to get denied the medication I need.

Screw the world. I'm done. I'm tried of fighting to try to feel better, only to have it all blow up in my face. I'm tired of being sick and I'm tired of being tired. I just want it to all be over. I don't care how it ends, I just want it to be over.

 

[Pea-n-Me]

Honugirl, I know it gets frustrating sometimes. The person I mentioned before with the appendix cancer had a whole type of treatment denied, but the docs and his family and friends fought for him and he eventually got it. But it was a PIA to go through. There are appeals processes, retesting, waiting, and fighting. It's amazing how much this happens. We have a dad who changed the laws here in this state because his infant son was denied something. So you have to hang in there. Let out your frustration, because you certainly have the right to feel that way, but you have to keep up the fight. We all do. And we're there in spirit with you, sista.

 

[snappy]

Honugirl, as Linda said, do you have a doc who could go to bat for you?

This is a big let down, but it does not seem fair that you are being denied based on the facts. You have to contest this. You need an advocate. Is there anyone at pne of your docs' office or at the hospital?

 

[honugirl]

Honugirl, I know it gets frustrating sometimes. The person I mentioned before with the appendix cancer had a whole type of treatment denied, but the docs and his family and friends fought for him and he eventually got it. But it was a PIA to go through. There are appeals processes, retesting, waiting, and fighting. It's amazing how much this happens. We have a dad who changed the laws here in this state because his infant son was denied something. So you have to hang in there. Let out your frustration, because you certainly have the right to feel that way, but you have to keep up the fight. We all do. And we're there in spirit with you, sista.

Thanks Linda! The hard part is that it's a medication that's widely abused by athletes, so it's so freaking hard to get by those of us who really need it. The doc who ordered the test said no dice to the GH. But I sent it to my pituitary endo to see what his feelings are. I'm hoping he's going to see the spike as an anomaly. We'll see. It'll take a billion years to talk to him now. So I'm going to be dying waiting. On top of it all, the goof balls at FedEx managed to somehow screw up a package that I desperately need today. I can't take the stress. I've got a headache now.

Honugirl, as Linda said, do you have a doc who could go to bat for you?

This is a big let down, but it does not seem fair that you are being denied based on the facts. You have to contest this. You need an advocate. Is there anyone at pne of your docs' office or at the hospital?

Thanks Snappy! Hopefully my Pituitary Endo can come up with something. I"m just exhausted. Everything takes so much fight and I have to do it myself. It just gets so tiring. Comes with having a rare disease that no one thinks they'll see in a lifetime.

 

[Candy30]

I know it gets frustrating. I know you are tired too! The average person would not be able to handle it. From what I know of your background, you are not average and you are one to go for something you want (ie International Hockey). That wasn't something that is just handed to you. You had to go after it. Go after this!

We are here for you on your good days and especially your bad days! Hang in there Girlfriend!!!!! Besides we still need to see you doing your "pimp" walk with your new cane!!!!

 

[snappy]

I know it gets frustrating. I know you are tired too! The average person would not be able to handle it. From what I know of your background, you are not average and you are one to go for something you want (ie International Hockey). That wasn't something that is just handed to you. You had to go after it. Go after this!

We are here for you on your good days and especially your bad days! Hang in there Girlfriend!!!!! Besides we still need to see you doing your "pimp" walk with your new cane!!!!

Good post, Candy!!

 

[Sha]

Did you all know that Disney is NOT hosting the RFTC this year and the date was moved???? Im disappointed in Disney!