Dis Breast Cancer Survivors - GAGWTA!

Status
Not open for further replies.
donnabres said:
I am a little nervous, not about the test, but about results. I guess that once dxd with cancer, you get nervous about each test you go for.
Donna
Oh isn't that the truth!! :grouphug:
Good luck with the colonoscopy!

Linda....have a great day. I SO miss "Marathon Mondays"....I grew up in Framingham and my dad would bring us down to the route when we were small to hand orange slices to the runners...thne in later years it was always fun to find friends/aquantances right on or near the running route for parties :) And of course my years at BC I watched at Hearrtbreak Hill. Such a special day.

We had a great day yesterday, hope you all did too. Kind of have a chocolate hangover though ;)

GAGWTA
 
GAGWTA!!!! :yay:

Donna, good to "see" you!!!!! :wave:
Nice that you are seeing the light at the end of the tunnel with tax season waning. Glad your tumor is shrinking. Obviously, your treatment is succeeding. Hurray for your docs and especially for you for hanging in there and fighting.

Good luck with your procedure Wednesday. I need to schedule my first colonoscopy soon as well.

I am seeing the doc who does my followup (oncology surgeon) Wednesday. I am hoping we can s t r e t c h visits to once a year now. Between followups and diagnostics with this guy and the same on my thyroid stuff, it is really overkill when all they are doing is keeping an eye on me. Maybe this is the way it is for people after they reach 50?

We had a good Easter. DD10 (and her friend) went with me and my mom to the Easter Triduum, with DH and DD15 joining us for the vigil Saturday night (DS17 was working at had to go by himself Easter morning :sad2: ).

It was very satisfying to attend all three services. It was the first time for DD10 and her friend. They were really impressed with it all.

We had a wonderful dinner at my sister's house in Grammercy. She made a huge crawfish ettoufee and bread pudding. Not exactly a tradtional Easter feast but man was it good. Can't eat all that rich stuff too often (tons of butter in both the crawfish dish and at least sticks in just the sauce you pour over the pudding). I am eating lowfat yogurt today.

The exterior painting project really progressedthis weekend. DH finished priming everything and finished the real paint on all the soffet and fascia except for the back porch. It is looking good.

It has been ridiculously hot. I really got too much sun during DD10's soccer tournament Saturday. Today it is supposed to be 91, and it is plenty humid.
No rain in forever so our sprinklers are doing overtime.

Ann, I got my white shirt that I order from LL Bean. I really like it. I am washing today so I can wear it. I figure it will be a cool shirt to wear in this heat.

Our sweet niece who is graduating from LSu med school next month is coming over this week and even staying with us while she attends lectures this week in B.R. I can't wait to see her. She is holding up well, bery busy trying to clearing up stuff after her mom's passing a couple weeks ago. She has her mom's hefty M.D. Anderson bills to deal with, but waiting on settlement from her grandfather's estate (he died 4 or 5 years ago so what is up with that?) The house in that estate was flooded, maybe that is still holding things up.

Enjoy the game, Linda. My kids are off this week. I am enjoying sleeping in.
 
GAGWTA! Bumping us up to Page one!

Donna, so glad to hear your tumor is shrinking! yippee!

My mom got back home this afternoon. Thanks for all the prayers. She's doing great! And very glad to be home. I'm blessed that they are both in such good health.

We had a nice EAster. I ended up hosting a dinner for everyone in the family who could come. I think we ended up with 12! It was fun, though. The Easter Bunny was wonderful to DS6 and he's having fun with his baseball stuff! I even got out in the yard today and threw the ball with him some and played some basketball with him. He beat me, 20 to 14 that stinker! He has spring break this week.

Starting tomorrow I've OFF Xeloda for one week! YAY! I've made it throught week one! Whooo Hooooo!!!

I talked to my sub about possibly teaching half days starting May 1st and she was very receptive! Now that would be great!

PLUS, we made ressies for a July trip to WDW!!! Have to stay at Pop, but what the heck! We'll be there for DS6's bday and DH's and my anniversary! I'm so so so excited about all the planning and fun! REally made my day!

Oh, it's time for headline withJay Leno.... later gals!

Much love,
Beth :love:

Oh, I took about half the cards kids at the school have sent me (all grade levels) and taped them up to cover one whole wall in my bedroom. It's so great to look at all that sweet love!!!
 
Beth you sound amazing. Yay for finishing week one! And even planning some Disney therapy. :thumbsup2 Cool idea for your cards. It never hurts to be able to picture the love.

We had a wonderful Easter. Very busy, but saw the family. We divided our day between my Mom and DH's parents. The bunny was too generous with candy. Can't wait til it's out of here.

Today I went to my 6 month Oncology visit. Blood work, blood pressure, etc was all fine. She said we're close to the yearly visit only stage! That's okay with me.

It's really hot here too. I think we're going to get a break from the 90s later this week. It's much more like summer than spring right now. And man do we need some rain!
 

pixiedust:~~~***GAGWTA sistas***~~~pixiedust:

MerryPoppins- It was like Disney therapy, but yes, different! Very relaxing...

Donna- That's great news sista! :woohoo: I know what you mean about the tests... I've had a colonoscopy, the prep really is the worst part of it. I had to do the same prep for my ooph/hyst surgery. Here's a link that I found that might help. I couldn't do the bathing part, because of the sugery, but I think that would really help.
Colonoscopy Prep Made Simple

Laurie- I hope your f/u goes well and they do stretch out your visits! I got so grumpy when I had my 5yr with my onc and I asked her about graduating to yearly visits and she told me we'll meet every 6 months for life. Well, now I see her every 4 months since I'm immune suppressed. :rolleyes1

Beth- You sound fab. sista! :Pinkbounc I'm so happy your mom is doing better and HOME! That would be great if you could work 1/2 days, I'm sure your kids would love to have you back! I love that you took their cards and made your wall of love out of them! :love: That's gotta lift you up every time you look at it! Congrats on booking your trip! :cheer2: Oh, the planning fun! Hubby is teasing me because I keep changing things around, he knows that's half the fun for me!
I'm staying at POP for the 1st time during my August trip. I thought about upgrading, but I'm trying to stay on a budget, especially since this was totally unplanned! Plus POP looks like fun! My kids are excited to stay there too. We've decided to drive down, and stop at Hilton Head for a day on the way. We can get there in about 9hrs, so if we leave very early, we'll hit the beach at noon. We've stayed at the Westin there once, great govt. rate and they have those heavenly beds! :cloud9: We got upgraded to club level too, it was sweet! Maybe we'll get a little pixie dust again... pixiedust:

The kids go back to school today...should make for a fun morning with my youngest! :rolleyes:
I hope you all have a beautious day!
:grouphug:
 
GAGWTA! :flower:

Nice to see everyone here, you all sound so well! :thumbsup2 Minnie, I'm glad you have some Disney Therapy coming your way. :hippie: Laura, your trip sounds nice, too! :sunny:

Donna, the tests always do make you a bit nervous. Sitting in those waiting rooms brings it back, even after it's behind you. My oncologist still likes to see me every three months. At some point I suppose we'll move it up, but I don't mind too much, I go after work so it doesn't require a special trip, and it gives me some peace of mind to know things are being looked at. Did you guys see on the news yesterday how it looks like there is a drug already being used which they think can help prevent BC in post menopausal women? I got all excited until I realized it was like tamoxifin and that it wouldn't apply to me. :badpc:

We had a nice Easter, too. Had a morning brunch with DH's family, a large group. My SIL did a "candy hunt" since the kids are getting older (or it may have been that she just didn't have time to do eggs), but either way, it was nice, and even the older kids got into it. They have a Jack Russell puppy who is a real character. SIL was never a dog person before, LOL, so it was fun watching her following him around doing damage control. :rotfl: DH, DS and DGF went off fishing in the pond behind the house, it was like an Andy Griffith moment, I got some cute shots of the 3 of them.

We then had some of my family over later in the day. Decided to keep it simple and grill steaks and vegetables, bake potatoes and garlic bread. It was part birthday party too, so everyone seemed to enjoy it. SIL on that side is a chef so I get a little nervous when we're cooking for her. I help my cousin with his mother, my closest aunt, who has Alzheimer's, and he brought her over. The disease is progressing quite a bit, but it's good that she could join us. I swear, she still knows when she's with family, and best of all she has not lost her sense of humor. DD made her a crown and she wore it all day, she was laughing about it when she saw herself in the mirror. DD was so good with her, she stayed by her side all day. When they left, DH had to lift her into my cousin's SUV, but that's always good for a chuckle - at work they call him "The Bull" because he is as strong as an ox, so it's always kind of fun to see him in action. The look on my aunt's face was a riot, a piece of her old self was definitely still there.

We had a great time yesterday at the Sox game. It was head to head throughout the game, Seattle scored a leading run in the top of the 9th, it seemed like we would lose. But in the bottom of the 9th with two out, our new player, Mike Loretta, amazingly smacked a "walk off" 2 run homer to win the game - what could be better than that? :woohoo: The crowd went crazy!! The kids and I brought my mother and she said it was the most fun she's had in a long time. The team was jumping up and down at the plate after the win while "Dirty Water" (aka Boston You're My Home) blared over the loudspeakers, the kids were singing away to that and all the other "Boston" baseball songs so it was a proud day for me, baseball is my thing and I was so happy to share these moments with them (praying thanks during the game, actually ;) ).

I am in the process of getting my Relay for Life team going again this year, we will keep our same Red Sox theme as last year. I made a great baseball CD last year which I gave to all my team members, will have to break it out again soon to start getting pumped up for the event.

Ann, I was thinking of you when someone proposed during the game. I like your Marathon stories, the orange slices are priceless!

Well my kids are on vacation this week. Today we invited 11 of their friends over (as well as their Moms) to play in the yard and have a little cookout. I'm getting a bit :worried: because right now the sun is not out and there is a 50% chance of rain. I wasn't really expecting to have 20 people in my house today :crazy: but I'm going to just roll with it and not worry if that happens.
 
Great boston.com article on Mike Loretta's winning home run yesterday/Patriot's Day/Red Sox Nation! :thumbsup2

With one swing, holiday experience becomes a blast for Dad
By Gordon Edes, Globe Staff | April 18, 2006

This was all new to him, the visitor from Southern California said, this quirky regional holiday known as Patriots Day (''Got to have something to do with the Revolution, right?"), a ballgame that started before lunchtime and a walkoff home run by his son, Mark Loretta, who in nearly three decades of playing baseball -- Little League, high school, Northwestern, the big leagues -- never had ended a game like this.

''I just asked him right now," Dave Loretta said, moments after his son etched an unforgettable day in the family scrapbook, and one that should have some legs in Sox lore as well, by hitting a two-out, two-run home run off closer Eddie Guardado in the bottom of the ninth inning that lifted the Sox to a 7-6 win over the Seattle Mariners yesterday afternoon. ''He said it's the first walkoff he'd ever hit at any level."
Mark Loretta thought he had one last season, when he was with the San Diego Padres and playing in Petco Park. ''I made the mistake of starting to raise my arm as I rounded first base," he said, ''and it was caught on the warning track. I learned my lesson on that one."

Dave Loretta wasn't sure this one was going out, either. He had left his seat in the family section after the Mariners hit in the ninth, leading by a run. ''I'd gotten up from my seat to go to the bathroom," he said. ''I didn't think it'd be so crowded that late in the game. I decided it was too big a line, so I stood up there and watched from the top, instead of from my seat.

''I saw Mark hit the ball, I saw the left fielder [Raul Ibanez] go towards the Green Monster then back off, like he was going to play it off the wall. I actually didn't see the ball go over the fence. But then everybody started jumping up and down, yelling and screaming, everybody's hugging, and I got involved in all of it.

''Oh my God, this was one of the greatest events of my life. Oh, man, it almost brings a tear to your eye. Hard to say that, but it's an emotional deal."

There would be no Papi-like helmet flip by his son as he circled the bases, although Mark Loretta said he thought about replicating what David Ortiz, who hit two home runs yesterday, has described as an act of self-preservation, having learned that leaving your helmet on is an invitation to getting your brains scrambled.

''But [this being] the first time, I felt like I wanted the entire experience," Loretta said, ''and [Jason] Varitek certainly gave it to me. He was right there waiting for me. My lips are sore, who knows who got me where."

Dave Loretta, an international banker who retired three years ago because he'd grown tired of missing family occasions, has been here nearly a week, accompanied by his wife, Ellen, and their other two children, Chris, 28, and Kelly, 18. Because Kelly, a high school senior, had to be back for school today, the rest of the family missed yesterday's game preparing for the return trip. ''I'm sure my wife is mortified," he said.

It had been tough on the whole family, he said, when they learned last December that Mark had been traded to the Red Sox. Playing with the Padres, Mark, his wife Hilary, and their kids were just down the freeway, instead of clear across the country.
''For six months that part of our family is away," he said. ''He's got two lovely children, our grandchildren. It's hard for us to be away from all our family, but especially little Frankie and Lucy.

''But then you start to look at it and say to yourself, Mark's probably got another three, four good years in him left. Why not play on the biggest stage of the world? Really nothing against Milwaukee [Loretta's first team] or the Padres, but that's not the same stage as this is.

''I've been here six games now, I gotta tell you this is a totally different feel. This is really the major, major leagues. Red Sox Nation, you can't describe it. It's one thing to say 'Red Sox Nation' as a term, but it's another thing to just feel the vibrancy, the energy this whole thing has."

Yesterday, Dave Loretta took the ''T" in from Newton. Because he was alone, he wandered through some of Fenway's tunnels, sampled the different foods.

No, he admitted, he didn't know that this was the day that Paul Revere's ride and the battles of Concord and Lexington are commemorated, but not because he didn't know the history.

''My daughter said to me the other day, 'Does California have any historical stuff like this?' We took the Duck Tour, so the guy pointed out the Old North Church, the lanterns, 'one if by land, two if by sea.' She said, 'Anything like that in California?'

''I said, 'Kelly, California was colonized by the Spanish. No major battles. A lot of Franciscan monks going up and down, establishing missions. That's the history of California. There were no wars, no revolutions for independence, no Bunker Hill, no Boston Massacre, no Boston Tea Party. All that stuff happened here.'

She said, 'That's funny, Dad. I was wondering whether California had anything at all.'

And I said, 'Frankly, no. There really isn't. It's a nice place to live, but it doesn't have the tradition, history, any of that stuff.' "

And now he knows the baseball is different here, too. Mark Loretta's first at-bat in the big leagues, 11 years ago, came against Guardado. ''He struck me out," Loretta said.

You never forget your first at-bat. But yesterday's walkoff will give the Loretta clan a reason to give Patriots Day a permanent place on its calendar.

''It's not easy to break into a new situation," Dave Loretta said. ''Mark has great character and he's extremely well-liked by everyone, so it's not going to be tough for him, I don't think. But you know, fans are a different story. They expect you to produce, and they want you to produce soon, and they want you to produce consistently.

''This should give him a couple of points for a couple of days, anyway."
 
Laura, thanks for link about colonoscopy prep. I am 2 years past time, so I know it will be discussed at my next visit with my endricinologist/internist in August. There were some amazingly helpful and specific suggestions in that article from someone who is experienced in taking that test. I am very impressed. I would have never found that. Thanks and thanks again. I now have a colonoscopy folder in my favorite things. :crazy:

Beth and Laura, I think both of your families will love Pop, DD10 thought it was so fun. Of course, I was really happy since we had the ultimate in accessible rooms. I felt very safe there, even though it was just DD10 and me on that trip. The CM's are very fun. :banana: They reall cater to kids. The atmosphere is fun. I liked the pools (except it was cold in January). :woohoo: DD10 really liked all the huge icons, we walked around so we could see everything. I enjoyed looking at the shadow boxes in the lobby for each decade. I am so old, I remember having a good number of the things displayed. Scary.

Linda, I teared up reading your Easter Sunday story about your Aunt and the way your daughter was at her side all day. I sobered up and then I read about the Andy Griffith moment fishing with your son, hubbie and grandpa.
Reminded me of my dad who was so into fishing, so here came the tears again.

Glad the Sox won. what a lovely day.

Linda, I thought the med discussed on the news yesterday as a drug that has the same BC prevention success as tamoxifen without the side effects was ramoxifen (Evista), not tamoxifen. I am confused. :confused3 I am also confused whether this is all about prevention in women who DO NOT YET have BC, or survivors who are on hormone therapy to prevent a recurrence. I guess I'll question my doc tomorrow about this. Good timing for this to come out I guess, because Evista is used for osteoporosis, and I am at very high risk for this as well. I am scheduled for my second bone density test in July, and i am pretty sure I will need to be on meds for osterporosis as well.
 
Good morning....been a busy week so far...have just skimmed the recent posts and just want to say GAGWTA!!!

I did catch that story on the news about Raloxifene (Evista) but was not clear on whether is was for after treatment like the tamoxifen or arimidex or other anti-estrogens...I thought they were promoting as a possible "prevention" for women who were at high risk due to family history and such. Seems it is used to keep osteoporosis at bay and the study showed it had an added benefit of reducing the number of breast cancer Dx in the women in the study?
 
GAGWTA! :flower1:

I'm sorry if I caused some confusion about Raloxifene/Evista. What I meant was that because my cancer was hormone receptor negative it's yet another great drug that I don't have the option of taking :guilty: (if they someday offer it not just as a preventative medication but also for women who have actually had the disease; it sounds like it may someday take the place of tamoxifin due to fewer side effects but similar properties). I guess I always hold out hope they'll come out with something for us. ;)

I also think the news stories themselves that have come out over the past week are confusing, too. Look at the first one here - to read it you would think it really was a miracle drug. But once you know about breast cancer you realize it may not be all it's cracked up to be.

Believe it or not, one of the best articles I found was from 2004 on -where else - breastcancer.org, one of our favorite sites! :thumbsup2 What I thought was really interesting is that it seems to only be effective on invasive cancers, not non-invasive. People would really need to understand that before they decided to take it. In my search, I read about one woman who said she'd love to take the drug so she wouldn't have to worry she'd ever get breast cancer. Well, um, seems like you could still get non-invasive and hormone receptor negative cancers, too, so one would have to weigh the benefits vs risks of taking this drug.

It also made me think about what would happen someday if I got osteoporosis and was prescribed something like this. We know that taking a SERM could make hormone receptor negative cancer worse, so that could be a problem, but at least they've identified things like this and hopefully practitioners would know not to order if for someone who's had hormone receptor negative disease (one more reason to fully understand your disease and be your own advocate).

Here are some articles I found:



Monday, April 17, 2006

Drug prevents breast cancer
A drug many menopausal women use to fight osteoporosis may also limit invasive breast cancer in women at high risk for those tumors.

The osteoporosis drug, raloxifene, seems to be as good at preventing invasive tumors as another drug already used for that purpose, tamoxifen. Either drug seems to cut the risk of forming breast cancer in half, among women whose family or medical history put them at high risk for breast cancer. But a new study comparing the drugs found that women taking raloxifene had fewer cases of blood clots or uterine cancers - rare but serious effects of tamoxifen use.

"Women now have a new option for decreasing their risk of breast cancer with fewer side effects," National Cancer Institute researcher Dr. Leslie Ford said.

An estimated 9 million U.S. women have gone through menopause and are at increased risk of developing breast cancer. If all those women took one of these drugs, it could prevent perhaps 2 million cases of breast cancer, doctors said. But doctors think many women now avoid tamoxifen because they worry about serious side effects. That means raloxifene will probably become the new standard drug for preventing breast cancer, researchers said.

Tamoxifen probably still will be used, doctors said. That drug has been tested and approved for use by pre-menopausal women, unlike raloxifene. And raloxifene's maker, Eli Lilly, has not yet won federal approval to market raloxifene for preventing breast cancer, only for osteoporosis -- though doctors can prescribe it for other uses if they want.

The study involved more than 19,000 postmenopausal women in the United States and Canada who were at higher risk for breast cancer. That included more than 250 women who participated through three Portland health systems: Providence, Kaiser Permanente's Center for Health Research and Oregon Health & Science University.

For more information on the story, read Tuesday's Oregonian.

-- Andy Dworkin



http://www.breastcancer.org/research_hormonal_raloxifene.html

http://imaginis.com/breasthealth/star/

http://www.cancer.gov/star
 
Thanks for doing the research, Linda, and sharing those articles. :grouphug:
You are right, the breastcancer.org had the best explanation. It was so much more specific about non-invasive vs invasive cancers and hormone receptors. Whoever rights these articles is spot on. :cheer2:


I especially appreciate it since I am going to the doc today.

Thanks again, and GAGWTA!!!!!
 
I just watched the 11th anniversary of the Oklahoma City bombing on tv. It always chokes me up, because it hits so close to home. I can drive to the memorial in about 10 minutes and my husband felt the shock at his job. The windows all rattled. And our friend was one of so many people who lost their lives that day. It's painful to remember.

I just try to look at the bright side. They didn't break us. We pulled together and were stronger. We reached out to each other and supported each other. Kind of like my sisters on this thread. This made me think of all of you. Thank you for being my support and allowing me to support you. It's wonderful when a horrible situation can bring out the best in all of us. :grouphug:

GAGWTA!
 
It was a very tragic day. My heart goes out to you this day.
I remember crying over all the lives lost, all those babies. :grouphug:

I agree about the wonderful support from this thread. Giving as well as receiving support is so gratifying.

I am off to my appointment, they just moved it up from 3:30pm to 10:30 am.
I'll get to avoid the traffic. :moped:
 
I've got my oncologist appointment this morning, too. I'm also planning on asking about the new drug. We can compare notes as to what they say!

This is my first followup since starting Tamoxifen. I guess I'm not reacting as badly as I thought it would. I've got some of those icky side effects but nothing dramatic. A couple of hot flashes each day, a little weepy about stuff, a couple gained pounds. Mostly I'm bugged by how distracted I am - "chemo brain" is real!

I'll let you know what I find out at my appointment - I leave in a few minutes, too!
 
I'm back after my appointment and a circuit to Target, Sam's and the produce store. I did not to have to wait long :cheer2: and my chest Xray and blood work are fine. :Pinkbounc

I asked my doc about Raloxifene/Evista. He said Tamoxifen and Raloxifene are very similar drugs. Because it does not have the long standing record of Tamoxifen and because I am not having any problems, he wants me to stay on Tamoxifen. I figured he would say that. I think it would be a completely different answer for a different patient experiencing side effects.

I did ask him about Raloxifene working on invasive cancers only. He said it has only been tested for those so far. I guess there will be more trials to further test this drug. It is funny, the articles in the paper here act like it is this wonderful new drug that will beat cancer. Who writes that stuff, anyway? At least the breastcancer.org article was a little more realistic.

I'll have my annual mammo in June, and see him again in December.

Another scorcher here today, up to the 90's again. I did a lot of heavy cleaning inside yesterday and never could really cool off (I also was baking so the oven contributed to the heat.)

Our sweet niece (DH's godchild and DD10's godmother) ate dinner and stayed with us last night. She lost her mother to cancer a few weeks ago. We went to the wake in New Orleans, but did not get to talk to her very much. We had a long conversation last night. Her mother had very good care at MD Anderson. She still is second guessing herself for not forcing her mother to have diagnostic tests earlier though. Apparently, she went for the first tests in August right before Katrina. After they evacuated to Shreveport and eventually to Houston, everything was delayed until she ended up at Anderson.

Anyway, she is graduating from LSU med school on May 20th. Last night I offered to host a party for her between the precommencement ceremony (just for the med school doctor grads) and the ceremony for the entire med school. We had a party for her when she had graduated from undergrad school. She was so sweet in thanking me. REALLY made me feel good. Especially since her mom won't be here to see her. I can't take her place, but we are closer than she is with her step mom, who actually is a very lovely person.
 
Laurie, I'm glad your appointment went well and that you will be there for your niece. :flower: Merry, what a tragic time that was in Oklahoma. :grouphug: Susan, hope your appointment went well also.

They did look at the amount of non-invasive cancers that came up for women already taking the drug (as well as hormone receptor negative cancers). But remember, the STAR trial was a retrospective study - looking back at what happened to women who were already on the drug for osteoporosis. They'll now be looking at it from many other angles in things like clinical trials and blinded studies.

And the researchers found no significant difference in the risk of getting non-invasive breast cancer (also called: DCIS, ductal carcinoma in situ) between women who took raloxifene and women who took a placebo.

It'll be a while before we see it mainstreamed, too, because right now it is not FDA approved for use in preventing BC, only for osteoporosis at present. We'll see more of it if these other studies keep showing it's effectiveness and not other problems they haven't seen yet.
 
GAGWTA this evening. :grouphug:

Interesting reading on the drugs. I too thank you Linda, for your research and help in translating or sorting through a lot of this for us!!

Merry....I'm sorry for your personal pain today, and the loss of your friend...and share the national grief over that day. Hard to believe it's been 11 years. And you're right...such events make us appreciate life, each other, and strong supportive human spirit.

Tomorrow's another painful day....the Columbine anniversary. One of my sisters lived a couple of miles from the school, and would walk her then-9 month old in his stroller around Clement Park, right next to Columbine...between mid-morning and noon. She didn't go that day as the baby had a cold and was cranky. When the story broke I had a hard time reaching her with the local phone lines being jammed, and when I eventually got through I could literally hear the helicopters and sirens through the phone. Very sad and scary day. The next summer we went out there on vacation and visted the memorial site at Clement Park overlooking the school.

snappy...glad your appt went well....looking forward to similar news from Susan :)
 
:flower2: ~~~***GAGWTA sistas***~~~ :flower2:

I'm going today for my next Remicade infusion, then I have to have a lab drawn to send off to determine dosage for this next drug I'm probably going to start soon. Hubby's bloodwork for thyroid came back fine but the lab screwed up his 24hr urine test so he has to do that again. :furious:

MNSusan- I hope your appt. went well. Tam. really didn't bother me too much...all things considered. And yes, chemo brain is very real! :crazy:

Laurie- I'm so glad your tests came back fine! :woohoo: It's so sweet of you to be there in such a tangible way for your niece. I'm sure it means the world to her. :flower3:

MerryPoppins- A good friend of mine is from OK and worked a couple of blocks away from the building at the time. You're right, look how people came together...terrorism really sparks the opposite of it's intended affect. :hug:

Ann- I was at my lowest point during chemo when Columbine happened. My fil was visiting. We rarely turned the t.v. on during his stay, but happened to that day. What a horrible, senseless tragedy... :sad1:

Linda- Yes, always check out www.breastcancer.org to sort through the info. Everything that comes out in the news stories is really only 1/2 the story. :rolleyes1 I can't remember if I told you guys or not, but when I went to the conference in Denver one of the big news stories for young survivors is that Tam. which is reported to protect against bone loss, actually creates bone loss in young (premenopausal) women. Here's the article:

Tamoxifen Treatment After Adjuvant Chemotherapy Has Opposite Effects on Bone Mineral Density in Premenopausal Patients Depending on Menstrual Status
Leena Vehmanen, Inkeri Elomaa, Carl Blomqvist, Tiina Saarto
From the Department of Oncology, Helsinki University Central Hospital, Helsinki, Finland.

Address reprint requests to Leena Vehmanen, MD, Department of Oncology, Helsinki University Central Hospital, PO Box 180, FIN-00290 HUCH, Helsinki, Finland; e-mail: leena.vehmanen@kolumbus.fi

PURPOSE: Adjuvant chemotherapy followed by tamoxifen is a standard treatment option for women with intermediate or high-risk hormone receptor–positive breast cancer. Premenopausal women treated with chemotherapy often develop early menopause and thus, enter a period of accelerated bone loss. We conducted a prospective study of the effect of sequential adjuvant therapy with chemotherapy followed by tamoxifen on bone mineral density (BMD) in premenopausal patients.

PATIENTS AND METHODS: One hundred eleven premenopausal women with early breast cancer were treated with adjuvant chemotherapy. Patients with hormone receptor–positive tumors went on to tamoxifen 6 months after the beginning of the chemotherapy (tamoxifen group), while those with hormone receptor–negative tumors received no further therapy (control group). The effect of tamoxifen and menstrual status on BMD was studied.

RESULTS: Tamoxifen treatment and menopausal status correlated significantly with the changes in lumbar spine BMD (P < .0001). A significant bone loss was noted in those tamoxifen-treated patients who continued to menstruate after chemotherapy. At 3 years of follow-up, menstruating patients on tamoxifen had lost –4.6% of their baseline BMD values, while a modest gain of +0.6% was noted in the control group. In contrast, bone loss was reduced among tamoxifen-treated women as compared with controls in patients who developed chemotherapy-induced early menopause. In amenorrheic patients, the lumbar spine BMD values decreased –6.8% in tamoxifen users and –9.5% in the controls, respectively.

CONCLUSION: We conclude that tamoxifen usage was associated with bone loss in patients who continued to menstruate after adjuvant chemotherapy. On the contrary, tamoxifen decreased bone loss in those women who developed chemotherapy-induced amenorrhea.

So if you fall into this category sistas, ask to have a bone density test!

:grouphug:
 
Thanks for the info, Linda. I don't fall into that froup, no chemo, and I went straight into menopause after 2 months on Tamoxifen. However, I did read something that suggested you should have a bone density time when going on Tamoxifen so I did. I am tuned into this because osteoporosis is so prevalent in my family. My internist/endrinologist is one of the few at our clinic that is trained on reading them. My first one showed some loss, medication not yet indicated, so I just try and fir in my 1500 ml of calcium citrate a day. Anyway, I was also told by my orthopedic to have a repeat two years later, to determine if further bone loss is continuing, so I am schedule for July for this. He had seen me last fall, took xrays, and could tell there were some issues from the those.

My message is just to let you know about the second one, two years later. Also, something I learned from one of the YME Share ring network teleconferences, is to space out the calcium during the day, the doc said your body can only absorb 500 ml at a time. I was previously taking all at night. Anything we can do to slowdown the bone loss helps.

I missed the teleconference YME had last night on reconstruction that I had signed up for, I was out walking Snappy. I am going to try to read the transcript.
 
Hi sistas! My appointment well, too. They drew blood for labs which I'll find out about next week. When I talked to my doc about the new drug, she said it wasn't for me as I was still clinically pre-menopausal. My estriol level 3 months ago (before starting Tamox) was at 22 and *official* menopause is when it reaches 18. Something tells me it may very well be there now! She also said that the drug will be used primarily for prevention in high risk patients, not patients already diagnosed. She did say she wants me on Tamoxifen for a year and then we'll re-evaluate. I'm doing well enough on Tamox so that seems fine to me. I asked her about chemo brain and she said she expects that will clear in the next few months. She said when women have few side effects they usually get better in the first six months. Its the women that have real difficulty with Tamox that she worries about. I hope she's right!

I also have a diagnostic mammo scheduled for June and see the med onc again in October. That will be my first post-op mammo and I'll be glad when that appointment is finally here. There's a little something in the back of my head that will feel better when I hear that mammo is okay.

I turned 50 in November and haven't had any bone density tests yet. Actually, I probably need to find a good internist now and do that and colonoscopy and all that stuff. I've always seen a family practitioner and should probably talk to her about some of these other things. When do you know its time for an internist? High cholesterol is my only other issue and I've been on Lipitor for years.

I hope you're all enjoying a nice spring. We have had seasonally very warm weather - 70s in April in Minnesota are unheard of - but today will be rainy and mid 50s. That's okay cuz my garden needs some water.

GAGWTA!!

Hey, Tag Fairy! Did you forget about me? I'm a survivor, too!!
 
Status
Not open for further replies.




New Posts









Receive up to $1,000 in Onboard Credit and a Gift Basket!
That’s right — when you book your Disney Cruise with Dreams Unlimited Travel, you’ll receive incredible shipboard credits to spend during your vacation!
CLICK HERE






DIS Facebook DIS youtube DIS Instagram DIS Pinterest DIS Tiktok DIS Twitter DIS Bluesky

Back
Top Bottom