Bernadette - That toile is precious! I want an outfit like that!
Glynis - My former employer who had a boy with Down's had a very high AFP result, and they STRONGLY recommended an amnio. She didn't want one. At her ultrasound they didn't see anything wrong, but it wasn't a high level ultrasound. All of his organs are normal - no heart defects so they just assumed he was fine. She went into pre-term labor at 29 weeks, and it was then that they said the baby's leg bones were measuring short and there might be something wrong. When he was born at 33 or 34 weeks the nurses in the delivery room told her he had Down's, but she didn't believe them. They ordered all of the genetic testing, and he really does have Down's.
They told my mom that there was an area of Diva's spine that looked "wide" on the ultrasound but Mom refused an amnio. Diva's spine is completely normal.
Speaking of genetic testing, Mom said the lab doing the genetic testing on her tumor has a program for low-income women to have the costs covered at 100%. But she doesn't trust them.
She wants the application sent so she can review it. Want to guess what that means? It means she will sit on that application and NEVER get the results, so the oncologist won't know what the risk of recurrance is. The lady from the genetics lab told Mom IF her recurrence risk was low enough that she might be able to skip chemo. That sounds kind of odd to me. Her node involvement is significant - chemo is DEFINITELY indicated. In fact, her insurance won't cover the test BECAUSE she is node positive. Node positive cancers require chemo. It's all rather confusing.
WTG Chris!!!
