DDA Chapter 27

[Tammi67]

Tia - I always err on the side of caution and book the FDP. When I've been there even for the 10PM showing, the line would be all the way down Sunset Blvd and then down Hollywood Blvd toward the entrance. But maybe you'll hit a slow time and it won't be bad. However keep trying...something will open up. Did you try for lunch too?

 

[PNO4TE]

Kathrin was not near the tornadoes, but she said their weather was very scary. I am glad she is OK! the photos of Springfield, MA were so amazingly horrific.

 

[my3princes]

Good morning and happy Friday.

It sounds like marathon weekend is shaping up nicely for some of the DDA.

Four exams and 2 weeks of school left here!

My parents are coming down tomorrow and then we are heading to Eastern PA to visit my cousin, and they will stay with me through the next weekend to be here for Alyssa's Spring Show (dance). In two weeks Nicholas has the DARE picnic one day and the 5th GRade Fling (send-off to middle school) the next, both of which I volunteered to help with. lI'm ready for school to be over!

I hope Bernadette and Kathrin weren't anywhere near the tornados up in Mass.

The tornadoes were actually pretty close to Vermont. They were about 1 1/2 hours from us. There was also one about an hour and a half North of us in New Hampshire. The weather was crazy. Oddly enough we didn't get a drop of rain I'm very thankful.

 

[tmfranlk]

Tia - I always err on the side of caution and book the FDP. When I've been there even for the 10PM showing, the line would be all the way down Sunset Blvd and then down Hollywood Blvd toward the entrance. But maybe you'll hit a slow time and it won't be bad. However keep trying...something will open up. Did you try for lunch too?

Thanks, Tammi. I just couldn't book because the calendar for December hasn't posted yet so they don't have FDP in the system yet. I'll definitely keep checking though. We've done lots of 2nd showings in our time without the package, but then we're always just a part of 2 so we can usually find a piece of bench anywhere in most shows easily enough. With shortened show schedule I'm a little more concerned.

 

[PNO4TE]

Good morning, DDA!

 

[PNO4TE]

Bob is having a modified barium swallow evaluation done at the hospital this afternoon. If you think about it at 1:45, please send him some good thoughts for strong swallowing abilities!! Thanks.

 

[my3princes]

It's been another whirlwind day. Colby had his first science fair. They do not judge the fairs here so it is purely for display. They don't even get graded. Colby was pleased with his project and display.

My new supervisor called out yesterday and we were told that she received devastating news, but she didn't want to share the details. I learned today via google search that her son was shot and killed in Dallas on Wednesday night. It looks like a drug deal gone awry. So sad to think of what she is going through. Her other son has a severe psychiatric disorder which has had him in and out of the hospital and in and out of trouble for most of his life. It is so sad.

 

[PNO4TE]

Just a quick update to let you all know that Bob's outcome today was not as we had hoped. Still nothing by mouth. Six more weeks of therapy and a re-test in 6 weeks. As he said, "another bump in the road." thanks for your thoughts!!

 

[bethbuchall]

Just a quick update to let you all know that Bob's outcome today was not as we had hoped. Still nothing by mouth. Six more weeks of therapy and a re-test in 6 weeks. As he said, "another bump in the road." thanks for your thoughts!!

I am so sorry. I was really hoping for good news. I'll keep praying for a better outcome for the next 6 weeks.

My sister-in-law had a good MRI the other day. The tumor is showing signs of shrinking more, so the chemo is still working.

Deb, what horrible news for your supervisor. I am glad that Colby was pleased with his science project. Science Fair was optional this year, and Miles decided not to do it. Guess I'm a bad mother, because I didn't offer any encouragement to do it.

 

[my3princes]

Just a quick update to let you all know that Bob's outcome today was not as we had hoped. Still nothing by mouth. Six more weeks of therapy and a re-test in 6 weeks. As he said, "another bump in the road." thanks for your thoughts!!

I'm sorry to hear that. I know that he is really looking forward to eating again. Is he able to keep his weight up with the supplements?

 

[my3princes]

Just a quick update to let you all know that Bob's outcome today was not as we had hoped. Still nothing by mouth. Six more weeks of therapy and a re-test in 6 weeks. As he said, "another bump in the road." thanks for your thoughts!!

I'm sorry to hear that. I know that he is really looking forward to eating again. Is he able to keep his weight up with the supplements?

 

[PNO4TE]

Good morning, DDA!

My sister-in-law had a good MRI the other day. The tumor is showing signs of shrinking more, so the chemo is still working.

That is terrific news!

I'm sorry to hear that. I know that he is really looking forward to eating again. Is he able to keep his weight up with the supplements?

I have been tinkering with his formula for the past few weeks and really ramped it up last week. He had started to lose weight again now that he is more active and we don't need that top happen. His nutritionist had him on 1852 calories a day which is 6.5 8-oz. cans of his liquid food. I have added whey powder, yogurt, olive oil and fruit juices to that and can now get him up to 2010 calories in less liquid. He can also have a bottle of Ensure in his PEG every day so that would add another 250 calories if he wants it. I am looking into making real food that I can process like I used to for Kristin's baby food. That will require a lot more research on my part, but we are determined to get him back up to 160 if at all possible. I think everything will improve as he gets stronger.

 

[my3princes]

Good morning, DDA!



That is terrific news!



I have been tinkering with his formula for the past few weeks and really ramped it up last week. He had started to lose weight again now that he is more active and we don't need that top happen. His nutritionist had him on 1852 calories a day which is 6.5 8-oz. cans of his liquid food. I have added whey powder, yogurt, olive oil and fruit juices to that and can now get him up to 2010 calories in less liquid. He can also have a bottle of Ensure in his PEG every day so that would add another 250 calories if he wants it. I am looking into making real food that I can process like I used to for Kristin's baby food. That will require a lot more research on my part, but we are determined to get him back up to 160 if at all possible. I think everything will improve as he gets stronger.

Good for you being proactive with this. It seems that doctor's react after a weight drop rather than preventing it in the first place. Good luck with your research.

 

[PNO4TE]

Good morning, DDA!

 

[PNO4TE]

Good for you being proactive with this. It seems that doctor's react after a weight drop rather than preventing it in the first place. Good luck with your research.

Knowing me as you all do.... Would you really expect me to sit back and let other people take complete control??

 

[bethbuchall]

Good morning, DDA!

 

[tinknme]

Good morning

Last day of school here

 

[bethbuchall]

YAY for the last day of school! Our last day is officially June 24th. Miles will have school until then, but Laura has only this week and two days next week. The rest of the days are for Regents and local exams, and she doesn't have any this year.

Miles is away until late Wednesday night. The 6th graders all go to a YMCA camp for an "environmental studies" unit. I am sure that he will have a great time. I went with Laura as one of the parent chaperons. Miles didn't care if dh went or not, and he's not terribly fond of disciplining other people's kids. I am pleased with the two fathers that are in Miles' unit. I do miss him already, though!

 

[Blueeyes101817]

Hi everyone~
Running home to get changed and headed to the phillies game but wantedt o stop by and say hi...8 more teaching days!

 

[Disney Yooper]

Chuck & I celebrated our 29th anniversary yesterday. It was wonderful. We spent two hours on the river near our house kayaking and then an hour at the ATV park playing with the 4-wheelers. We also got some more more stuff organized around the house. I finally also got a sewing project started on my brand new sewing machine. It is just about complete. I'll post pictures when it is done. It is just a teabag holder for my mom. I'll make one for my aunt as well. I have several projects that I want to try.