Sorry that I couldn't check in earlier. Our internet was down and then we had company. Anyway the update.
We saw 2 neurologists today. They took a complete history, did a neuro exam and read his chart. Given the history, our stories and their findings they feel that he has juvenile epilepsy. Puberty can trigger the onset and unfortunately if they are correct it is something that will stay with him for the rest of his life. The good news is that they have very good meds that can control the seizures, leaving him seizure free once they find the right combination. They were unable to schedule an EEG until Monday and the EEG is the key to confirming their diagnosis. The EEG will take about 1 1/2 hours and they would like him to arrive tired (at 10 AM
) we won't be able to see the doctors again until Wednesday. At that time they hope to be able to prescribe a medication to stop the seizures. Until that time he could have one (or more) at any time. We do have a med that we can give him if he starts to have convulsions or multiple seizures.
It appears now that what they have been calling low blood sugar episode was more likely due to the early stages of epilepsy. This makes us angry because we have spoken to numerous doctors on numerous occassions and they have all made the same assumptions/diagnosis. He has probably had multiple petit mal seizures that we were unaware of or did not recognize as such. They also assured us that they do not suspect any sort of brain abnormality as he is a straight A student, althletic, coordinated and he had a completley normal neuro exam and blood workup. That is a huge relief in itself. They also assured us that while watching him have a seizure is very traumatic for us, it does not in any way damage his brain and as long as he doesn't physically injur himself in the process they are completely safe for him.
We are feeling better about things tonight though the next few weeks could be hard depending on his seizure activity.
I have decided that I cannot devote my entire day tomorrow to ski patrol training. I sent an email to the head person explaining my situation and asking to be trained at a later date after things settle down. I have no idea how that will work out, but I know that I need to be here, now. It is truly amazing how entire lives can change in the blink of an eye and how quickly priorities change. My children are all clingy now and I certainly understand why. I can't remember the last time we have spent so much quality time together or when they needed to be within arms reach of me. I know this will fade over time, but I intend to nurture it for now.
Nick's appointment was pretty much a waste of time. He has had this cold/cough/sore throat for 2 weeks, but they won't treat unless he has it for another week
He did get the seasonal flu shot.
Colby's 7 year check was good. He grew 3 inches and about 10 lbs in the last year and the doctor feels that he is on a good growth curve even though he appears a bit heavy to us. She is still unconcerned that he is not completely night trained, but attributes it to being a heavy sleeper since he does not have accidents when he is awake. He also got the flu shot and unfortunatley he now has a temp of 100.2
Hopefully he'll feel better in the morning.
TGIF!
