Lilsia
Registered
- Joined
- Feb 17, 2018
- Messages
- 5,747
I’m glad to see everyone being so understanding and supportive. I looked up this exact topic and as one person stated, in older threads people with mild IBS gave advice like chewing on an Altoid and going to the bathroom before a ride, avoiding triggers. It was disheartening seeing people assume IBS is the same or even similar for everyone. I get a lot of that in my daily life “why can’t you come? I have IBS too just take an Immodium!” and I’m so happy to see people finding a solution to make Disney doable for them.
GI conditions suck for everyone and are debilitating for many. I missed half of my own wedding reception, my husband’s graduation, and funerals of loved ones. For 10 years I barely strayed from one side of town much less went on vacation. I am now on Viberzi, the most intense IBS-D drug, highest dosage, twice a day. It’s incredibly expensive and difficult for insurance to cover. Anyway... in case someone finds this on their IBS search: if you have a legitimate fear of having diarrhea on yourself in public on a frequent basis, you have a disability. People get DAS for anxiety all of the time, but this is anxiety that among other things can cause you to have a horrible accident. If other kind hearted folks experienced it for even 5 minutes, they wouldn’t hesitate to agree you are eligible.
Well said. Thank you for sharing your story. Bathroom issues are horrible and you are right when you say that unless you experience them, a person has no idea how life altering they are. You have to plan your whole life around having access to a toilet. Your job, home, shopping, riding in a car, pretty much anything you do daily that people take for granted as normal is affected by this issue.