child in lap on wheelchair?

Mommee

DIS Veteran
Joined
Feb 8, 2010
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No flames please :blush: This is a genuine question, and I have no idea about policy or even whether it's safe.

I have Ehlers-Danlos syndrome, a connective tissue disorder that causes repeated dislocations of my joints. I've reached the point that I'm going to need a wheelchair on our trip later this month. I also have a 5-yr. old daughter who is affected, and she will not be able to do the amount of walking needed at Disney. She's just recently been able to ride her bike around the entire block once without stopping, so I'm not even going to entertain the idea of trying to have her walk while we're there.

I'm trying to figure out if we should just rent both a wheelchair AND a stroller (dd outgrew her stroller about a year ago), or if it might be possible for dd to just sit on my lap for the longer walk periods. The two of us together weigh about what an average man does (or maybe less), so I'm thinking my husband and DS (16) could switch off the pushing and be fine. OR, if we get her a stroller, each will have to push one the entire time.

Thoughts from someone that's BTDT?

TIA! :goodvibes
 
Only you can speak to your situation. You are right to be concerned about the amount of walking that will be done. I think I'd try to have a separate ride for your daughter rather than plan on her being on your lap when you, yourself have medical issues.

Again, only you are in a position to really answer your question.
 
I strongly advise you to consider an ECV rather than a wheelchair for yourself and a stroller for your daughter. The ECV will give you more independence than relying on someone else in your party to push you (you could, of course, self-propel a chair if you have the stamina and can reach appropriately).

You can rent both large strollers and Ecvs from off-site vendors and have them delivered to your hotel. I am unsure of a good solution for your daughter in the airport- its a bit of a hike from the gates to groin transportation (ME, cabs, etc.).

See the sticky at the top of the forum for more info on renting equipment


-steve
 
There are no regulations against her sitting in your lap in a manual wheelchair. However there are if you rent an ECV.
 

I don't think I could use an ECV-my shoulders and hands are affected the worst. I'm recovering from right hand surgery and can't use that one at all right now.

I expect DH to carry dd in Orlando :lovestruc. We're flying out of a small airport here so no concerns there.

I'm busy reading and learning..thanks! :surfweb:
 
I would imagine that with the heat you both might be more comfortable with a wheelchair and a stroller.
 
I don't know that a little one would be comfortable for long periods on your lap, but from the "pusher" perspective, my niece (now 6) has loved to sit on my DS's lap since she was an infant. She is a "sturdy" child, DS (20) is on the light side and together they really don't impact my ability to push. She loves to hitch a ride, but her mom still brings a stroller for their stuff and for when she is ready to snooze. I think if your DD wants to spend some time walking, but needs the occasional break it could certainly be a solution to carry her. I have never been told we are not allowed to do this. DS is very good at holding her tightly and she knows not to jump off without warning. Please do not put a child on your lap on an ECV, it seems easy, but kids are quick and unpredictable and many things could go wrong. Sounds like an ECV may not work for you anyway. Hope my perspective helps!
 
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Well, it doesn't SOUND particularly comfortable for either of you, but as long as it's a manual wheelchair and not an ECV I don't think there's a rule against it.

The nice part about renting from an outside company is that you can try it one way, and if it doesn't work you can call them and get it changed; Walker did that for me when I tried a manual chair and it didn't work (too many hills and ramps for me to push myself, and didn't have someone to push for me).

Do any of your local stores have a manual wheelchair for customer use? Maybe you could go there and give it a trial run.
 
As others have already posted, there are no rules against holding a child on your lap in a manual wheelchair.

I agree with the posters who felt you would both be more comfortable with a stroller for her. Holding a child on your lap for a short time would probably work out, but longer would probably be uncomfortable for both of you.
Besides just the sitting, it will be hot for both of you to have her sitting of our lap.

Your airport may not be a problem, but the Orlando area is HUGE and the gates are a tram ride away from the terminal. You can request wheelchair assistance from our airline.r

Another possibility would be to rent a wheelchair at home and bring it with you. Wheelchairs and other mobility devices are transported free of charge by the airlines. You can bring it all the way to the gate and have it delivered to the gate at your destination.
 
I'm another EDSer and I tend to agree with you that an ECV would be very hard on your upper body. I used one during college for a year and it definitely was painful on shoulders and hands (wrists not so much, but my thumbs really suffered). These days I either use a power chair or get pushed in a manual chair. I definitely do not suggest trying to self-propel a manual chair that you rent, but it doesn't sound like you were even planning on trying that. I have rented power chairs for WDW (either on hands/shoulders than an ECV), but I own one at home that I've just never been able to bring to WDW with me. I wouldn't suggest trying to use a power chair for the first time at WDW and most places won't rent to you without proof that you've used one before.

I think as far as having your daughter on your lap, you may want to experiment a little right now on how comfortable it is for both of you just to have her sitting in your lap for long periods of time. I'd suggest trying sitting in a normal kitchen/dining room chair (one without too much padding) and seeing how long you can both comfortably sit with her in your lap. With your description of sizes, I don't think the two of you together would be too much for someone to push, but I really am not sure it would be comfortable for either of you.

I definitely agree with those who suggest requesting assistance for the airports. MCO is huge and even the smaller airports places can be bigger than you think or more physically demanding (the only small airport in MI I've used is Grand Rapids and it's got quite a bit of uphill walking that makes getting around harder than flat ground).

I'm sure there are other bits of advice I can give about WDW with EDS, if you'd like them. There are actually several EDSers who are regular posters here so you may end up with more advice than you were expecting ;)
 
On the ECV: You can rent ECVs from off-site locations where the tiller (the part you steer with) tilts so is MUCH closer to you than the tiller on ECVs at WalMart, Home Depot, etc.

That being said, your daughter CANNOT ride in your lap in an ECV, rented either from Disney or from somewhere else.

I concur with the PP regarding a power wheelchair- the controls might be easier to reach, but you really need prior experience to use them safely and securely.

Do be sure to rent either from home or offsite in Orlando (NOT at the theme parks)- there is ALOT of walking even before you get in the gates of each park, not to mention around your resort.

Good Luck!

-steve
 
Having had many little ones ride in my lap (niece, nephews, close friend's children), I have to recommend having a stroller and certainly trying to see what it's like having her in your lap before you go. I like taking the kids around, but it gets old for both parties. In addition to being uncomfortable, it gets really hot. Getting hot can really affect me, so we always have the stroller to use.
 
I'm another EDSer...
:wave2: fellow bendy! my thumbs are one of the worst...they sublux inwards. I just had my wrist fused and so far it seems to have helped with the dislocating of the carpals..
I LOVE WDW for vacations...so much to just take in without stressing the body.

....

I never thought about the heat....(ridiculous, really, because I've been to WDW 3 separate times in the summer LOL)

We're flying out of Flint, which I've heard is a cakewalk compared to Detroit.

I own a mini-wheelchair/walker deal but I don't think it will hold up to Disney...great for trips to the store and around the house, but not all that comfortable. I'll look into the offsite companies.

thank you for all the advice..I have lots of planning to do! :cool1:
 
Before you think I'm a nutty person butting in (well I am, but not just that); also have EDS so know what I'm talking about.

If your arms and/or shoulders are in such a condition you could not use an ECV, using a wheelchair is not even close to realistic when expecting any independant mobility. Renting at WDW would not be a smart thing, but there are more then plenty options out there, including in the rental market, that demand minimal of the arms and/or shoulders compared to a wheelchair. Apart from the ECV caracteristics themselves, adjusting the settings of the ECV would be the other most important thing. To give you an idea; on can safely operate an ECV while fixing the arm and shoulder by keeping the upperarm against the chest and while no need of range of movement or angled usage of wrist or thumb etc. As long as one can move the underarm and fold some fingers, there are ECV options out there that can be used.

Other than that or being completely dependant on your husband to push a wheelchair options could be a rollator (walker with seat) or powerchair. Where the latter would not be an option for you as you are not an experienced user, as I understand it. Those things are a lot more intricate to use than an ECV and thus tend to not get rented out unless one is an experienced user. And honestly personal opinion? VERY wrong option to start using one at WDW for the first time. It does take a lot more practice to get the hang of and a WDW trip will not be the place to do it (unlike an ECV it does not take minutes, but days or weeks). Because of the sensitivity of powerchairs it is very easy to not have perfect control over them when not being an experienced user. Huge risk of accident waiting to happen. Even if we were to disregard all of that; it is very energy consuming to start using one for the first time and can drain one out. Combine that with WDW where you have to have eyes in your back and hundreds of folks running around. A day at the park will drain. Even for us experienced users that have perfect control over the chair it can take a lot to constantly be on the look out to prevent collisions as people have no clue how these things work.

Sitting on lap? Would not advice it at all. Not only does it come with the risk of her moving and that causing pain or (sub)luxation for you, but you will fool the body and run risk because of that. The added pressure of DD on lap gives the body a false sense of more stabilisation. It will respond by relaxing more. This will not directly disappear when DD gets of your lap. The effect will linger on and can result in stuff giving way earlier than you are used to normally because of the body being still more relaxed.

Can't judge your walking abilities, so can't say anything about the rollator being realistic for parks, airports, just resort or not enough for one or all. For a moment assuming that isn't an option, I'ld personally start investing in ECV-searching. Not waiting until the trip, but starting today. Try out rental options in your area and work from there. Find out what might be pain points and what not and go from there. Time has a huge benefit that you can tweak things to fit you personally. And again; changing settings of the seat, stearing column (both distance, angle, height etc.) etc can make or break something as an option. And I'ld keep at it if need be, can sometimes take multiple ECV's before you hit the right one. To give you an idea; my arms and upper body have been my biggest problem area for years. Still I have used an ECV for years without problems and had to change out of it to a powerchair because my walking went from small distances to none, needing to use a poweroperated option inside -which obviously an ECV is a pain in the home- and needing such support from the seat it was not possible on an ECV. Own creativity can also add a huge difference to making an ECV from "mwah" to "yes, I can do this!". When hitting the right option; rent it at home, tweak if need be and change the setting to fit you and bring it along on the trip. You can bring it along free of charge and does not count towards your baggage limit. Simply inform the airline of it.


I know it's not the most loved opinion on the DIS, but a 5 year old should be able to do the walking to such an extend a stroller or lap rides should not be needed. Simply be aware of the fact she is a 5 year old. Regular breaks, a bit of smart planning (varying quick rides with shows where you'll be sitting for a long time and thus feet getting a break anyway), midday break and she should do fine. But then again, I come from a place where it is still the norm that kids "obviously" walk these distances on days out and other moments, including multiple days, when reaching the age of 4 or 5 and it being "obvious" to pace to include them. Not in the last part for us adults either ;-) as keeping their pace tends to make it a lot nicer on adults alike and enjoying things as kids experience them ends up always being that bit more magical than how we adults tend to run along, run, run, run, keep going and end up missing some of the smallest unexpected but most special thing of the day.
 
Before you think I'm a nutty person butting in (well I am, but not just that); also have EDS so know what I'm talking about.

I
I know it's not the most loved opinion on the DIS, but a 5 year old should be able to do the walking to such an extend a stroller or lap rides should not be needed. Simply be aware of the fact she is a 5 year old. Regular breaks, a bit of smart planning (varying quick rides with shows where you'll be sitting for a long time and thus feet getting a break anyway), midday break and she should do fine. But then again, I come from a place where it is still the norm that kids "obviously" walk these distances on days out and other moments, including multiple days, when reaching the age of 4 or 5 and it being "obvious" to pace to include them. Not in the last part for us adults either ;-) as keeping their pace tends to make it a lot nicer on adults alike and enjoying things as kids experience them ends up always being that bit more magical than how we adults tend to run along, run, run, run, keep going and end up missing some of the smallest unexpected but most special thing of the day.

The child isn't physically able to walk around the park due to the same difficulty the mother has.


quoted from the first post: I also have a 5-yr. old daughter who is affected, and she will not be able to do the amount of walking needed at Disney. She's just recently been able to ride her bike around the entire block once without stopping, so I'm not even going to entertain the idea of trying to have her walk while we're there.
 
I definitely agree with those who suggest requesting assistance for the airports. MCO is huge and even the smaller airports places can be bigger than you think or more physically demanding (the only small airport in MI I've used is Grand Rapids and it's got quite a bit of uphill walking that makes getting around harder than flat ground).

I just wanted to add that my eexperience with the skycaps at MCO has been overwhelmingly positive. I can't imagine anyone being more friendly or helpful.
 
The child isn't physically able to walk around the park due to the same difficulty the mother has.


quoted from the first post: I also have a 5-yr. old daughter who is affected, and she will not be able to do the amount of walking needed at Disney. She's just recently been able to ride her bike around the entire block once without stopping, so I'm not even going to entertain the idea of trying to have her walk while we're there.

*insert smilie hitting it's own head*. See, this is what you get when posting on 2 boards at the same time, swapping kids virtually. :rolleyes1


In this case lapriding is even more a don't, IMHO. Not only will it "just" be a medical risk for mom, but it will be for DD also. Even if that al goes wrong, there is the comfort aspect which will turn sour fast for both.

Same buy the way with strollers. Those are not made with a 5 year old with "not average" health in mind. Comfort probably will already be a problem but I'ld be more concearned with the underlying cause of that. Unfortunately you are only 2 weeks out by now so you'll have to make do for now. If there would've been more time (read; or any other situations in the future, which seems a sure thing) I would've adviced to get a specialized OT into this and get DD an aid that has the proper support where needed and fits her properly. I know special needs strollers are much more common in the US for these ages, where as just like with walking we tend to long have made the shift to wheelchair to increase childs independance when needing some aid.

For now quick-quick I'ld go down the same route as for mom; look into peds rental options NOW at home and take a closer look at what is comfertable and proper support for her and what not. Try to not try that out in early morning when anybody is still in better shape. More tired and having done all kinds of things already will make any possible problem stand out even more, so easier to find them in aids. ;) A very welcome thing with a young child that isn't always yet able to voice if something is bothering or why/where. When finding the right option; rent and bring it along.

For now because of the short timing it will probably come down to creativity if mom wants to be able to venture out with DD solo. There are some great aids out there for moms using mobility aids to safely "push" along a youngster in their own mobility aid (including some options that would be safe and small enough for at the parks, not all are) but within 2 weeks most probably will not be able to get put together and have enough experience with them since.

Combining the two, it only solidifies my "go for the ECV" for mom, as dad will have his hands full with DD. Whether it being while see walks to push around her rental or pushing her when using the rental.
 
My dear friend's daughters have ED syndrome and they have been doing several trips a year their entire life. Now I am very aware that severity and symptoms vary a great deal, even at 5, but they are quite typical of children with ED and when they were your DD's age, and even for quite a few years later, they simply needed a place to crash and rest. They really did not need the specialized chairs, and they often just did a WDW double stroller....even up till the youngest was like 10 or so. The oldest is now having more issues and has needed a wheel chair for the last couple of trips so things can and do change. I would plan to have a stroller for most of your time in the park. Rent the park ones, off site or take one with you. She should be fine to hop a ride on mom's lap for short time periods if you rent in the park and she need a ride to the buss or at the resort. When my mom was living and in a wheel chair, I often had to take her and DS places alone. Until he could be trusted to walk beside me, ridding on her lap was the only choice we had. Not perfect but it worked. Of course he was much smaller that 5, but it can work if it needs to! Sometimes we do what we need to do!
 
My kids have EDS. We have a special needs stroller for the 8 year old...she has cerebral palsy as well as EDS. She looks pretty normal but she has fatigue, pain and speed issues. It's nice having a place where she can just go and sit. I don't think she would have ever been happy spending the entire trip on a lap.

My 12 year old has EDS and does fine at the parks. He manages to keep himself together for the most part LOL. His biggest issue is GI...getting a gtube very soon because his growth is terrible.

I'm thinking you would be better off with a stroller for your daughter and an ECV for you.
 














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