Carter's MAW pre-trip report

[HeatherSP]

Hi and welcome! Congrats on getting dates confirmed. I bet you are all so excited. Carter sounds like a very special little guy! i can't wait to hear about your trip.

 

[Mom2mitokids]

Hi Mandi and welcome to the Disboards. My second daughter was born with a ASD. She had open heart surgey at age 2. So glad Carter is getting his wish. Can't wait to hear more about your trip.

 

[Blessed03]

I can't answer your questions; however, I wanted to suggest you post the question on the Wish Tripper's Thread. There is LOTS of knowledge on that board. Praying you have a great day!

Thanks for the advice and I will do my best to get over there.. and ask all the fun questions I need in order to get it planned..

 

[Blessed03]

Sorry its been awhile since I posted anything on here, been a crazy time around here. With the ice storm we had I don't have classes so I figured Id take this opportunity to share my idea for the days we are there

Saturday 3/5
Arrive at GKTW (hopefully early)
Do the orientation
Lunch (ICECREAM!!)
Play around the villa
Maybe go to Downtown Disney for the evening
Dinner at GKTW

Sunday 3/6
Breakfast at GKTW
Seaworld maybe Epcot (not a lot Carter can ride)
Dinner at GKTW
Relax at GKTW

Monday 3/7
Breakfast at GKTW
Animal Kingdom
Disney Hollywood Studios
Dinner at GKTW

Tuesday 3/8
Breakfast (ICECREAM)
Magic Kingdom


Wednesday 3/9
Breakfast at GKTW
Head over to see the ocean
Universal Studios/IOA
Play at GKTW/ Dinner there

Thursday 3/10
Make Up day and do what we missed
Christmas at GKTW
Pack up for our trip back home

Friday 3/11
Last Breakfast at GKTW
See Orlando and enjoy the sites
Head to airport to come home

If there are any suggestions to make this seem smoother, PLEASE feel free to pitch in and help plan. This is all new to me and soooo OVERWHELMING

 

[Blessed03]

We just got notice last week that my daughter was approved for a wish! I am cautiously allowing myself to hang out here, since my daughter seems CONVINCED Disney World is her wish!!!

I saw Maroo post a new trip, and figured this was a good place to start. I was so excited to see another CHD kid. My daughter has TAPVR (rare, even for a CHD.) Your story reminded me of our early days....my daughter was misdaignosed at birth and sent home, said she was fine. We finally got an Echo done at 3 weeks of age, and when we arrived at the Children's Hospital, her sats were so low they didn't register on the monitor! She had emergency surgery the next day. We were told if we had stayed home that night we'd have lost her. We've had many surgeries since then....CHD has been a long road, and now that we have a Pacemaker, we're assured of never being done!! Looking forward to following your trip!

Oh my, what a journey you have been through as well. Another pacemaker child. Carter thinks that the two he has makes him even more special than others with just 1 (whatever gets him through it, right) Hope your daughter gets to see her wish volunteers soon and that her wish will be a Disney trip

 

[blessedmom4]

Looks like you are doing a lot of planning, your trip will be here very quickly. Sorry to read about all of the bad weather. Still here rooting Carter on (the special guy with a VERY special heart).

 

[Blessed03]

Looks like you are doing a lot of planning, your trip will be here very quickly. Sorry to read about all of the bad weather. Still here rooting Carter on (the special guy with a VERY special heart).

Thanks for rooting us on. I am getting so giddy over this and the look on his face the closer it gets is so adorable (he keeps doing this little happy dance each day we talk about it) 29 days and counting

 

[brookerene]

Looks like you have a good plan going.... Hope all goes well....!

 

[blessedmom4]

 

[Glo's wish]

Once again I'm late for the party! But now I'm subbing.

 

[tinytreasures]

your plans look great

 

[blessedmom4]

Thanks for rooting us on. I am getting so giddy over this and the look on his face the closer it gets is so adorable (he keeps doing this little happy dance each day we talk about it) 29 days and counting

I love that, it makes my heart sing!
Sending Goofy to dance with Carter!

 

[blessedmom4]

I would love to hear how the plans are coming along...

 

[Blessed03]

Hello everyone.

Im sorry its been so long since I have posted but things around here have been crazy. Carter has been having a 10 out of 10 pain in his chest and its been in and out of ER's and phone calls with the doctors along with him needing to leave school cause he was so pale and his heart rate was up. Sooo now that we have finally got the pain under control and my classes have settled out I wanted to let everybody know WE HAVE OUR FLIGHT TIMES!! On Friday March 5th we will have our limo arrive at 5 am (Carter has no idea about this surprise) it will take us almost an hour to get to the airport.. our flight leaves at 7:45. I am so happy for him

Our wish coordinators will be bringing our paperwork, tickets and expense check (whatever that means) this weekend. I am trying to figure how to load pics so you all can see what my little guy looks like. And so when we return I can share the amazing memories that he and I along with his dad have made. We are also getting a stroller sent to us so that Carter will have a comfortable seat in case he gets too hot and tired he can rest. So glad they could fit that in at the last minute.

I also found out last week that Carter's school raised money in his name to donate to the Make A Wish Foundation. It was a candy gram sale for Valentine's Day and they sold for $.25 cents a piece... They did an amazing $327.00.. I cried. He will be given the chance to have his pic made with the coordinator who comes to school along with the principal and hand it over I am proud of him and his school for this amazing gift they have raised.

 

[blessedmom4]

Praying for Carter (and You)!

 

[Blessed03]

Praying for Carter (and You)!

Thank you very much, every prayer makes a difference

 

[brookerene]

Hello everyone.

Im sorry its been so long since I have posted but things around here have been crazy. Carter has been having a 10 out of 10 pain in his chest and its been in and out of ER's and phone calls with the doctors along with him needing to leave school cause he was so pale and his heart rate was up. Sooo now that we have finally got the pain under control and my classes have settled out I wanted to let everybody know WE HAVE OUR FLIGHT TIMES!! On Friday March 5th we will have our limo arrive at 5 am (Carter has no idea about this surprise) it will take us almost an hour to get to the airport.. our flight leaves at 7:45. I am so happy for him

Our wish coordinators will be bringing our paperwork, tickets and expense check (whatever that means) this weekend. I am trying to figure how to load pics so you all can see what my little guy looks like. And so when we return I can share the amazing memories that he and I along with his dad have made. We are also getting a stroller sent to us so that Carter will have a comfortable seat in case he gets too hot and tired he can rest. So glad they could fit that in at the last minute.

I also found out last week that Carter's school raised money in his name to donate to the Make A Wish Foundation. It was a candy gram sale for Valentine's Day and they sold for $.25 cents a piece... They did an amazing $327.00.. I cried. He will be given the chance to have his pic made with the coordinator who comes to school along with the principal and hand it over I am proud of him and his school for this amazing gift they have raised.

Yay for the times and the limo...and how awesome about the donation from the candy grams....that is wonderful.....The lives of our children and their illnesses can have positive influence on th people around them...and Carter sure has!

 

[blessedmom4]

One more week! You must be SO excited!!!

 

[blessedmom4]

THREE MORE DAYS!!!!!!!!!!!!!!

Any last minute questions?

 

[rosieari9197]

hi, my name is leah and my son was granted a wish from the make a wish foundation were we live in south florida. we will be going may 9th to disney world - is anyone here gonna be there the same time at give kids the world? anybody have any advice or pointers to help make this trip even more magical?
leah
my hubbie- michael
rosie - almost 12 my daughter
and ari- my son who is 8 diagnosed with trisomy 9 mosaic