honugirl
One of those darn ECV users out to ruin YOUR vacat
- Joined
- Jul 9, 2007
- Messages
- 3,355
A little OT but I wanted to share this.
My grandmother once told me a story about when my Aunt was younger. (she is now deceased) They went to the store and parked in handicapped parking. They did have a placard so they were not parked illegally. Now to look at them you would see a mother and her young adult dd. What you would never know is that my Aunt had a terminal illness and bad heart problems. She was able to walk but not long distances. She was beautiful and had no outward signs of her illness. A person pulled up to them and yelled at my grandmother and Aunt for parking in the handicapped stall because they were healthy. My grandmother was so mad and told the person in a very colorful way that my Aunt had heart problems and to go...well you get the picture.
How my grandmother only wished that her dd was healthy. She would have parked in the farthest space and carried her on her shoulders screaming to the heavens if she was healthy. I always remember that story because it upset not only my grandmother but my Aunt as well who was battling her illness.
So you can't really tell if someone is ill by looking at them but I do hope that those of them that are faking never ever have to see what it is like to really be ill.
Sorry to get OT-
Back to our regularly scheduled thread!![]()
Your story really resonated with me. This is part of the reason that many of us that truly need the ECV's don't get them. Especially in my age range. I'm only 30. Outwardly I look healthy. On the inside is another story. My body is destroying itself. I can barely walk around the mall without stopping to rest a few times. I used to referee high level ice hockey, I'd even been to the Olympic Training Center to train for it before my disease/tumor hit. Most "healthy" people don't realize what I would give to not have to use an ECV. While they see it as convenience, I see it as a ball and chain.

Just FYI: an ECV does not get you to the front of the line for rides. In fact, if she stayed on the ECV we usually had to wait longer for a ride vehicle that accepts an ECV to become available. We may have waited in a different place, but we frequently waited longer, than if we could have gone through the regular lines. She may have been the first on a bus, but she was also the last off.
I see my dad struggle, as well as my mom who takes care of him. If one of his perks to his life is that he might get to go ahead of my family, who can stand just fine, then I say GOOD!! And I say this for all other families who need an EVC. Health problems are a hard, horrible thing to deal with. If on their vacation, they get a *perk* (if you want to call it that), so be it. I know that at home, those perks are definately gone.
I have heard the complaints and seen the eye rolls.
Maybe we should all start wearing signs that list our disabilities......

As I stated in a previous post, I had to rent an ECV for my sister on one of our trips and there wasn't any "priorities" given that I could see..