Ok, guys prepare for a lengthy vent, because I'm out of sorts tonight.
Today's my birthday and I only mention that to put it in context of the kind of birthday I had. Today was the results session of the 3 month long neuro-psych eval on my dd6. I knew they were going to dx Asperger's, I was prepared for that. But I guess I had it in my head that she was only "slightly" AS (if there is such a thing). Today's feedback/result session knocked me over. Really. I don't know why, but seeing it all there in black and white (13 page synopsis plus a 6 page Assessment Data Summary) was just too much.
Seeing my dd compared statistically to NT kids her age, and then to AS kids her age was stunning. I really had no idea what her true issues really were until I saw this report. Some of it was really good-her Differential Abilities Scale results were mostly phenomenal-90th % plus with some lower results in Nonverbal Reasoning, Working Memory and Visual Memory. But get this-on one of the Diagnostic subtests-the spatial abilities-she scored 99.9% against NT kids her age. The rest was horrible-the Beery Visual Motor, the Executive Functioning but worst of all was the Emotional Functioning. Her adaptive behavior Global Adaptive Composite was in the <1% against NT kids her age. This was so devastating to me...
The neuro-psych told me that my dd is not, as I supposed, at the far end of the "autistic spectrum" according to these results. I think she was trying to get me to face it but the way she came right out and said it was very difficult for me to handle.
Then, tonight was "meet the teacher". I walked my dd the 2 blocks to the elementary school and found the classroom. Her teacher is an older gentleman with 20 years experience in teaching. They say he is "strict" and I was looking forward to my dd feeling safe in that classroom with the routine and structure. He met us and greeted my dd warmly, to which she refused to look at him or shake his hand. He then asked her several times for a high five or to look at his stuffed animal, all which made my dd more and more uncomfortable. Most people kind of "get it" to leave her alone and let her come to them but he was very engaging, which probably would've brought a NT shy kid out but just scared her. Then, get this, he started calling her by the wrong name. And I corrected him a few times but he kept calling her by the wrong name, which just confused her and scared her. So he gave me some paperwork to fill out and there were so many other parents around that I didn't have a chance to have a discreet conversation with him so wrote on the top of the paper he gave me: "XXXX has Asperger's Syndrome. She appears shy but is actually overloaded and anxious. If you give her time to acclimate she will engage you better." He looked at this note, smiled at me, and said "well, it's been nice meeting you. I'll see you on Monday".
Now, I realize teachers are overloaded at meet the teacher night. There were so many new faces and parents to deal with. But we left that room and my dd started ramping up. She started repeating and showing some serious anxiety. I took her to the library to meet the librarian and found a very nice woman who befriended my dd and told her she could come see her each morning. This helped a little but walking home my dd refused to walk, cried and started fixating on not wanting to go to school.
I told her she'll have a great time and it will be so much fun. But this first encounter was not a good indicator of what's to come. Maybe I'm over reacting to a minor incident and I need to stay positive so my dd will feel my vibes.
I'm taking the report to the Sp Ed Autism leader tomorrow and I'm going to sit down and tell her what must be done. The report luckily has IEP suggestions listed very precisely which I think will help tremendously.
Oh, and there was no ADD dx. Only AS and Developmental Coordination Disorder due to low tone, fine motor issues and what she called "severe sensory processing problems".
Really, I know it's good I had the thorough eval done and that early modifications will be used. Her math abilities are phenomenal and not everyone is a "people person". I just needed to vent here because I know you guys have been in my shoes to an extent and know what this feels like.
Thanks for letting me vent (yet again) here.