Becca's Wish Trip........Update:September 2011.....Photo's....Sorta :)

[revrob]

I'm so glad to hear that Becca has made such great progress! I saw the pics of the haircut and wondered what was up - I'm glad it's given Becca some relief. Seeing pics of her beautiful smile were so refreshing. Thanks for the updates.

 

[jham]

It is so good to see that smile again!

 

[eyor44]

I had to run right over to the web site to see what was up. Wonderful to see Becca smiling! I am really glad to hear the hospital uses the Emla cream. I personally know how well it works. Unfortunately, our hospital refuses to administer it.
Such wonderful progress. Keep up the great work Becca!
Mandy still praying for you all.

 

[llurgy]

Becca is down in ultrasound again (with her daddy this time) we fear that she may have yet another clot - on the left arm this time. It has started to turn blue when it is dropped into normal down position when she is sat up. We discovered this whilst she was in (Boot Camp) PT. She spent most of PT with her right arm propped on pillows and her left being held up by me, Dad or a therapist.
She has also developed a swelling behind the region of her right knee.
They are supposedly going to be scanning both arms and both legs, last week when they found the right arm clot they scanned both legs and her right arm and that took two and a half hours so I have no idea how long this is going to take.
They went off the unit whilst I was eating lunch but David left me a message saying they were going down at 1.10pm, it is now 3.25pm and they are still down there.
Still having GI issues with lower (we think) bowel pain more or less constantly, awaiting the GI docs to talk about it.
Still also having the low to mid grade headaches, neuro has a CT scheduled for tomorrow, he says if her ventricles are enlarged to a good extent they will probably have to put in a new drain, heres hoping the headaches she has are just mild headaches and nothing else. The abscess is still there, though smaller, so it could be that causing the headaches too.

Because of the unscheduled ultrasound the swallow study has had to be postponed - it was supposed to be at 2pm. Hopefully they will be able to fit her in sometime tomorrow.

Love
Mandy

 

[jenb1023]

Oh Mandy! I am so sorry to hear all of that! I really thought things were looking up for Becca and you guys. I will pray that the ultrasound shows no new clots and that the CT tomorrow is okay. Jen

 

[mom2lilnick]

I hope the ultrasound goes well. Hugs!

 

[eyor44]

Two steps forward and one step back.
I am praying that no new clots are found also. and perhaps the headaches are just from lying down so much.

 

[TwistofLemon]

So sorry to hear that, Mandy


Thanks for all the updates on the website. The latest pics are great. It's good to see that smile!

 

[revrob]

I'm sorry to hear this newest development. I know it must be discouraging to you all. Hang in there - we're all still praying!

 

[twinmum]

Mandy: So sorry about the challenges today - as someone else said - 2 steps forward, 1 step back. That's what I remember so clearly about our time in the NICU with our twins (born at 26 weeks). It was always a roller coaster ride, you felt joy for each positive step, but prepared yourself for the long haul. But if you think about the progress Becca has made in the last week, it's amazing!

We're praying for all of you.
Alison

 

[teresajoy]

Oh Mandy, I hate that you are going through all this! I want to take away all the pain for all of you! But, the best I can do is pray, pray pray!

Brian asks for a Becca update everynight. So, everynight after the kids are in bed, we check your website to see how she is doing. He has his whole store praying for Becca!

 

[llurgy]

The ultrasound came back clear on all the new places, both legs fine and her left arm fine. They think her arm may just be very positional and delicate, we will just have too keep an eye on it. The swelling at the back of her right knee is under observation too. We are just relieved that there are no more clots!
The existing clot has grown no bigger and may have even shrunk just a tiny bit.

Becca is now asleep after another exhausting day, the poor little love, sometimes she just looks so tiny and so very helpless.

Tomorrow the brain scan to see if her ventricles are coping without the brain drain. If the ventricles have enlarged to any great extent she will have to have another drain placed back in her head. Fingers, toes, legs, and eyes crossed that the brain is okay and that she can remain drainless.

Roll on tomorrow, hoping that a fresh day brings more health and happiness back to our BicBicBeccaBaby

 

[eyor44]

Praise God! No new clots! I am so thankful as I know you and David are. Prayers of thanksgiving tonight and that no new drains will be needed tomorrow.

 

[jenb1023]

Thank goodness for no new clots! That is great news!
I will keep hoping and praying for a good CT tomorrow.

 

[miprender]

Just read the updates and I love seeing your daughter smiling again in the pictures.

 

[MAGICFOR2]

Mandy, thanks for keeping us updated. I haven't been able to post at your website - I can't find the right place. I did register. Anyway, I'm glad that her botom issues are better - didn't get anything sent, I was having trouble with finding the main address, then it dawned on me, I could google the hospital, but I see you have it solved for now.

Praise God Becca doesn't have new clots! I'll be praying for good news tomorrow! I'm off to see the haircut pics.

P.S. Never mind...I found it! I'm a little slow LOL!

 

[llurgy]

If anyone who has registered on the website wishes to post a comment here are the instructions on how to do so.

How to post comments? It is possible to post comments right on the web site. It's not a forum, so you can't start a 'thread' and be aware that the gallery is public, so anyone can read your comments. To post a comment there, you need to find the speech bubble with a plus in it ("Add a Comment" will come up when you hover over it). It is at the top left of the page, there are 4 icons and it is the 2nd icon along.

You can also comment on individual photo's by a similar process. Navigate to the photo and open it, it is the first icon of 3 along the top of the image, look for the speech bubble with the plus in it.

Becca's CT scan came back okay this morning, no brain drain required for the moment, Neuro implied that he would schedule other CT over the coming weeks to make sure that her brain stays stable.

We just have the swallow test now this afternoon to see if she can tolerate food and water. She does realize that the barium isn't going to be nice, its going to be flavored with chocolate so that should make it a little more palatable. Plus she knows she has to do well and try to swallow the stuff if she ever wants to drink water or have Ice Pops.

 

[AlohaPolynesian]

I am really enjoying your pre-trip, but I'm sorry to hear everything you're going through lately. Becca is SO CUTE - I can't get over it!!

 

[maroo]

I am so glad about the clots!!

And so thankful that Becca is going to be able to do that swallow test. Hopefully she will pass with flying colors! If she can get that barium down, then she should be good to go with just about any food out there!

I am so thankful that she is doing so much better. Just think how far she has come!!

Still praying!!

 

[eyor44]

Becca's CT scan came back okay this morning, no brain drain required for the moment,
We just have the swallow test now this afternoon to see if she can tolerate food and water. She does realize that the barium isn't going to be nice, its going to be flavored with chocolate so that should make it a little more palatable. Plus she knows she has to do well and try to swallow the stuff if she ever wants to drink water or have Ice Pops.

No brain drain needed! More prayers of thanksgiving.

wonderful Becca!