Becca's Wish Trip........Update:September 2011.....Photo's....Sorta :)

[teresajoy]

Mandy, I'm glad the cards were able to brighten you day a little.

 

[MaryAz]

Still praying for Becca. Hope things continue to be stable. And those o2 sats go up up up.

 

[jenb1023]

Just wanted to add my thoughts and prayers. I have been checking in a few times a day for updates but haven't posted yet. I am glad to hear that Becca is holding her own and not getting worse. I hope the knowledge that a whole community of people, the DISers, are praying and thinking good thoughts for you provides a tiny bit of comfort during this trying time.

to all of you!
Jen

 

[CampbellScot]

just checking in...praying praying always for all of you.

 

[Shanka]

Thank you for the update. I am praying that the O2 stats get better. You are such a strong mama! Hang in there.

 

[maroo]

I am so glad that you are able to stay with her now, some. I think I was thinking that she might still be getting upset at hearing your voice (because she wants you, of course!)...but I am so glad that you are able to spend some time in there now!!!!

I am continuing to pray for those 02 sats!!!

We love you guys!!

 

[tinytreasures]

praying she can hold up those stats

 

[MAGICFOR2]

Adding my prayers for Becca - just found this report. I'm so sorry your sweet baby girl is going through this.

 

[FSUDisneyGirl]

more prayers for becca! i'm glad to hear things are going steady, i hope things get better very soon!!!

 

[dmbfan]

Mandy, praying hard for Becca, many thoughts and prayers your way

 

[teresajoy]

Hi guys, Mandy had David put me on the email update list for Becca and asked me to post the updates for her here, since she has limited internet use. I know she will be checking in when she can though. Here is the email I just got from David:

Becca Update​

Today has been a big debate about whether Bic's aggetation is due to pain or neurological. She had a restless night and similar day. The nurses are attempting to cram all their activities into one time slot to minimize disturbances. Even so, she has been getting agitated and her oxygen sats have plummeted. They have been down in the 40's a couple of times today and taken a long time to recover.

ICU are very disappointed with the neuro specialists in their response to help and advice. If you recall they said there was nothing they could do! The ward have some specific questions that they want answering and for some reason, these have been avoided.

There was a change to Bics pain meds today. They felt the on demand med was not doing anything worthwhile, so they dropped that. They have doubled the oral pain med to once every 2 hours from every 4 hours. That seems to keep her rested for one hour. The second hour is then a constant battle with restlessness and falling oxygens. We are aware that the pain managment experts are at a loss as to what is going on and have had discussions with neuro about the best course of treatment.

Another change today was the reintroduction of a catheter. She has been holding on and it was realized that taking the catheter away coincided with the aggetation problems. That was done at about lunch time, but it hasn't made any difference. Everyone is clutching at straws.

I get the impression that PICU are thinking about moving Bic to a ward, but until this is resolved, she isn't going anywhere.

Physical therapy were round again today, but they abandoned their work because it upset her too much.


Bic had a small bleed from where the drain goes into her scalp. Neuro investigated and didn't think it was anything to be troubled about. They talked about re-doing the dressing in the next day or two.

A finger stick for glucose came back okay for Bic, so at least one thing is good! They also took a complete blood count sample, but we don't have any results back on this nor do we know why they want to do the test.

David​

 

[CampbellScot]

This prayer was said by Father Mike at Mass. He gave me the card after Mass and I wanted to share it with you. I hope that it brings you comfort and strength!

~Father of goodness and love, hear our prayers for dear Becca and her family, who are in need of your comfort and healing. During this time of trial and illness may they find comfort in your healing presence. Show your mercy as you heal Becca and free her family from fear. May this darling girl and her family find lasting health and deliverance, and so join us in thanking you for all your gifts. We ask this through the Lord Jesus who heals and comforts the sick and downcast. Amen.~

much love to you all!

 

[kimmylaj]

thanks so much for more updates everyone. you guys are great

 

[llurgy]

Quick update.
Becca has been taken off the pain meds because they were not working. She has been agitated now for 2 days and not getting much rest. This am they gave her a sedative and she is now sleeping like a baby so we are very happy about that She needs the rest and they were scared that she was going to pull out her brain drain because she was forever going at it with her hand or scratching her head on the bed and making it bleed.
Things are status quo at the moment so we will continue to look for improvement over the days not the hours.
They have approved her having the sedative regularly, not just a one time use so I am releived about that, she may be able to start healing from the inside rather than just fight everything.

Love
Mandy

 

[MAGICFOR2]

Thanks for the update. I am glad Becca is finally more comfortable - I'm sure the sleep will be very healing for her.

 

[The Moonk's Mom]

Mandy- I am so glad to hear Becca is getting some rest. I hope that you guys get some answers soon. Continued prayers for you all.

 

[maroo]

I am so glad she is resting better!!!

Sounds like a sedative is a good start!

Have her O2 sats gotten any better? Bless your heart! I know this is hard.

Are you guys getting any rest? We are praying for all of you!!!!

 

[teresajoy]

I'm so glad that Becca is able to get some much needed rest. Let's pray that this helps her heal. Take care of yourself too Mandy and David

 

[fairygoodmother]

I'll join those who are grateful that Becca is able to rest!
Praying for God's blessing of healing for Becca, and comfort, peace, and rest for you and David!

Darla

 

[feedthebirds]

Continued prayers for you all. I'm glad to hear she will be able to get some rest.