Babnanas 11: "Boo-boo's are OUT, Toast is IN….

So, on a more down note, my mother, who has been in a nursing home for the last 4 years with Alzheimer's, has been in the hospital the last few days. She had some seizures, and from what I understand it has a very negative effect on the brain (and of course hers is already battered from the disease). She is being returned to the nursing home today, where she will be made comfortable and put in a hospice type care. I'll be going down there after work on Friday, but we are probably looking at days rather than weeks or longer.

It's hard, but with this disease you "lose" the person long before their body dies. I just pray for a painless passing without needless suffering.... :(

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So, on a more down note, my mother, who has been in a nursing home for the last 4 years with Alzheimer's, has been in the hospital the last few days. She had some seizures, and from what I understand it has a very negative effect on the brain (and of course hers is already battered from the disease). She is being returned to the nursing home today, where she will be made comfortable and put in a hospice type care. I'll be going down there after work on Friday, but we are probably looking at days rather than weeks or longer.

It's hard, but with this disease you "lose" the person long before their body dies. I just pray for a painless passing without needless suffering.... :(

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I'm so sorry. :hug:
 
It's Wednesday morning here! :teeth:

I hope you had a good day. I'm hoping mine goes well. It's going to be SUPER hot (90+ F) and it's been muggy. A little taste of FL!

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It was a good day. I am officially not heading back to work until the 11th August.
 

So, on a more down note, my mother, who has been in a nursing home for the last 4 years with Alzheimer's, has been in the hospital the last few days. She had some seizures, and from what I understand it has a very negative effect on the brain (and of course hers is already battered from the disease). She is being returned to the nursing home today, where she will be made comfortable and put in a hospice type care. I'll be going down there after work on Friday, but we are probably looking at days rather than weeks or longer.

It's hard, but with this disease you "lose" the person long before their body dies. I just pray for a painless passing without needless suffering.... :(

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I am sorry to hear this. The past 4 years must have been difficult. I will keep you and your mom in my thoughts and prayers.
 
It was a good day. I am officially not heading back to work until the 11th August.
That sounds like a nice break. Any plans, or will you enjoy some vacation time at home?

Today is grout day here! If everything goes well, the work will be completed by tomorrow afternoon.
Have a good Wed everybody, morning or evening. :wave:
 
That sounds like a nice break. Any plans, or will you enjoy some vacation time at home?

Today is grout day here! If everything goes well, the work will be completed by tomorrow afternoon.
Have a good Wed everybody, morning or evening. :wave:

No plans except to reacquaint myself with my couch. ;)
 
I got a call from a different doctor today (they rotate). He was just letting me know that my mom was heading back to the nursing home this afternoon, and what meds she'll be on for the seizures. This guy didn't sound quite as -- how do I put it -- "this is the end"?!....as the doctor yesterday. Regardless, the situation is the same, but whether she hangs on just days or weeks or even longer at this point, remains to be seen and is in Greater Hands than ours.

Thank you all for the kind words of support. :grouphug:

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I got a call from a different doctor today (they rotate). He was just letting me know that my mom was heading back to the nursing home this afternoon, and what meds she'll be on for the seizures. This guy didn't sound quite as -- how do I put it -- "this is the end"?!....as the doctor yesterday. Regardless, the situation is the same, but whether she hangs on just days or weeks or even longer at this point, remains to be seen and is in Greater Hands than ours.

Thank you all for the kind words of support. :grouphug:

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It's very hard to read this kind of thing over the phone. :hug:
I think it's good that your mom is returning to a facility that knows her. It will probably be a little easier to get an idea of what the nurses and dr's think when you are there.
And it's a beautiful thought that those Greater Hands will be with her and you in the time ahead.
 
I got a call from a different doctor today (they rotate). He was just letting me know that my mom was heading back to the nursing home this afternoon, and what meds she'll be on for the seizures. This guy didn't sound quite as -- how do I put it -- "this is the end"?!....as the doctor yesterday. Regardless, the situation is the same, but whether she hangs on just days or weeks or even longer at this point, remains to be seen and is in Greater Hands than ours.

Thank you all for the kind words of support. :grouphug:

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Thanks for the update. I was thinking of you and your mom this morning. Hope you're okay yourself. We're here if you need to share anything. :flower3:
 
@LegoMom3, I'm adding you and your family to my Alzheimer's prayer list. :hug:

We're walking the same road with DMIL. PM me anytime you need a shoulder. Remember to take good care of yourself and don't hold things in. You have peeps you can vent to and share with. :grouphug:
 
It's very hard to read this kind of thing over the phone. :hug:
I think it's good that your mom is returning to a facility that knows her. It will probably be a little easier to get an idea of what the nurses and dr's think when you are there.
And it's a beautiful thought that those Greater Hands will be with her and you in the time ahead.

Thanks for the update. I was thinking of you and your mom this morning. Hope you're okay yourself. We're here if you need to share anything. :flower3:

@LegoMom3, I'm adding you and your family to my Alzheimer's prayer list. :hug:

We're walking the same road with DMIL. PM me anytime you need a shoulder. Remember to take good care of yourself and don't hold things in. You have peeps you can vent to and share with. :grouphug:

Thank you all..... you guys are wonderful. :grouphug:

I'm actually doing ok. I think when I really came to terms with this was actually back over a year ago, when she shut down verbally and started to just become a shell of the person she was. That's when it's really hard, because that's when you really "lose" the person. At this point, when the end comes for her body, it'll almost be a relief, and I don't mean to sound horrible or heartless, but that's just how it is. When they get to this stage, it's like they are trapped inside a body that no longer functions (or functions at its very base level), and are just slowly slipping away. :(

Anyway, I'm going to try to reach someone at the nursing home this afternoon after work, and again, plan to head down there tomorrow (it's about 60 miles from here).

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Thank you all..... you guys are wonderful. :grouphug:

I'm actually doing ok. I think when I really came to terms with this was actually back over a year ago, when she shut down verbally and started to just become a shell of the person she was. That's when it's really hard, because that's when you really "lose" the person. At this point, when the end comes for her body, it'll almost be a relief, and I don't mean to sound horrible or heartless, but that's just how it is. When they get to this stage, it's like they are trapped inside a body that no longer functions (or functions at its very base level), and are just slowly slipping away. :(

Anyway, I'm going to try to reach someone at the nursing home this afternoon after work, and again, plan to head down there tomorrow (it's about 60 miles from here).

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Take care of yourself. :hug:
 
Thank you all..... you guys are wonderful. :grouphug:

I'm actually doing ok. I think when I really came to terms with this was actually back over a year ago, when she shut down verbally and started to just become a shell of the person she was. That's when it's really hard, because that's when you really "lose" the person. At this point, when the end comes for her body, it'll almost be a relief, and I don't mean to sound horrible or heartless, but that's just how it is. When they get to this stage, it's like they are trapped inside a body that no longer functions (or functions at its very base level), and are just slowly slipping away. :(

Anyway, I'm going to try to reach someone at the nursing home this afternoon after work, and again, plan to head down there tomorrow (it's about 60 miles from here).

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One of the books I read on Alzheimer's calls it the long goodbye. And it is. I hope you can speak to someone at the nursing home and are able to go down there tomorrow. :hug:

I don't feel your heartless or that your words are horrible. It's part of letting her go, and it's very hard. :sad1:
 
Mom update: I called the nursing home yesterday afternoon, looking to connect with a head nurse or the like. When I did reach her, basically what it comes down to is that because I am not the legal guardian (for financial reasons; if I was, I'd be 100% responsible for all her bills, and I have NO money for that, so she is in state care instead), they won't tell me ANY. THING. I have to speak with the woman who IS her guardian. Who is an attorney. Who is next to impossible to get a hold of.......:headache: And she RARELY contacts me, I always have to chase her down. So now the phone tag has begun with her. When I do actually get to speak with her, I'm going to see if there is anything she can do to authorize the nursing home to include me in the passing along of important information.

This is beyond frustrating.......

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@LegoMom3, how frustrating for you. The attorney should be able to write the nursing home a letter (or other legal document - I'm not a lawyer) to authorize them to give you updates and information on your Mom. I hate to say this, but document every contact with the attorney. You have the right to know what's going on with your Mom, even if she is in state care. I hope you can contact the attorney soon. :hug:

On a positive note, you'll have your magic bands soon. I'll be down there 9/6 - 9/13. My convention starts on 9/7. If you're there, maybe we can meet up.
 
I did talk to the attorney today and I was grateful for the quick response. She informed me, before I even had to ask, that she has given the home the authorization to discuss things with me (actually she said she had done this a while ago, but apparently they either don't keep very good records, or the person I spoke with missed that memo.... :headache: ). Anyway, from this point out at least I know they can discuss with me, so if I run up against any flack in the future, I will have a leg to stand on.

Also, in my conversation today, she said my mother is not "actively dying," meaning beyond the normal stages of the disease, her end is not imminent. So, at least that got squared away. I opted to not go down there today, since it's not as urgent as we'd thought, and will plan one day next week instead (it's a 60 mile drive and the Friday afternoon, summer traffic where I'd be going is EPIC....).

@YoYoAurora , thank you for the kind PM.....I intend to reply either later tonight or over the weekend!!

Oh, and my trip is only 8/29-9/2, so we'll miss each other this time around. :(

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LegoMom3 - I hope that you get the updates you need. So sorry about the situation and I wish I could give you a physical hug!! :hug:
 
It's the first Monday in August. We had huge storms rumble through here late last night, sunny today though.
Hope everyone has a nice week. :wave:
 




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