Autism goes to Orlando

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Earning My Ears
Joined
Jul 1, 2006
Messages
7
This is the second time all of us are going to Orlando as a family. There are four of us: my husband, my older son Zachary (11-year-old with severe autism), and younger son Jason (8-year-old with moderate autism as well as tourette's syndrome), and myself. I have read and learned so much from this forum and decided to share my Disney experiences (but from a slightly different perspective as a mom touring with two children with disabilities) this time. I chose not to post this thread in the DisAbility board because I really would like to share some of the unique experiences with families of neurotypical children as well.

Zachary loves Disney. We live in the Los Angeles area, so we visit Disneyland/California Adventures often. He did go to Orlando with us when he was only 18 months old, and this was way before he got his diagnosis and we didn't have the slightest idea as to his social deficit and odd behavior. Zachary went back to Orlando last Summer, and he has been mentioning "airport" ever since. So we decided to book another trip. Yes, we as parents often do just anything to put a smile on his face, no matter how briefly the smile might last.

Jason loves just about anything. Since he doesn't have much trouble with traveling long distance, he and I visited Orlando (yes, sadly without his brother and dad) twice in 2004. Jason is determined to swim (oh well, more like playing in the water) in a different swimming pool in Orlando this time.

Our trip planning started a couple of months ago. We couldn't decide if we wanted to take a nonstop flight from LAX to Orlando or to fly out from Ontario Airport(which is a lot closer and more convenient but we would have to change planes). We finally decided to fly out of Ontario, but it took me a long time to do online search to figure out the best dates/fares. After everything was said and done, my husband found this "crowd calendar" online and decided we needed to changes all the dates again. Well, it sort of worked out because the new fares for the new dates were actually less although we had to pay a $50 penalty per person. The lady at Delta whom I spoke to couldn't be any more understanding and accomendating. It was nice not having to explain what autism is and argue as to why special assistance is requested. Now I am just keeping my finger crossed hoping Zachary would not have any panic attack and Jason would not scream on top his lungs during the flight. We chose the red eye flight out thinking the kids would just sleep thru it. However, there is no red eye flight coming back. I am just really hoping everything would work out.

We are flying out to Orlando on 2/1 and coming back on 2/14. We are renting a minivan from Alamo and would stay in four different places: Reunion Resort, Saratoga Springs, Nickelodeon, and Bonnet Creek (3 nites each). Yes, we actually considering hotel hopping fun and a big part of the vacation experience. Both kids like sampling new places to stay, and so do the grown-ups in the family!

Yes, this is only the beginning of my trip report...We are taking our laptop this time, so hopefully I can keep updates as the days go...
 
I hope you have a great flightand a wonderful trip... keep us up to date!!!
 
You are more than welcome to the WDW TR Board. My nephew 8 has Autism with Tourettes. He is really peaking and we all hope he will be coming back down the awful mountain soon. Instead of exchanging Christmas presents this year, we all donated the money to his school and gave it to his teacher and her aids, so she is able to purchase anything she may need for the classroom. My sister just gave our contribution of $500, it may not be a lot, but it means more to us that we were all able to do this, instead of meaningless gag gifts to each other. Sorry to other posters, but I just want you to know that others like myself really understand your situation. My nephew now receives his meds through a patch and he is doing much better. My sister and her family went to WDW last year and I was able to tell her about the documentation to take along, so she could get the special badge for autism and they had the best vacation ever. Even my brother-in-law who called the place Fake World came back and thanked me. I did so little for them, yet it made a world of difference having that special badge for their son.

My nephews fascination is trains, they averaged 2 hours a day on the train, they didn't mind, because they knew.

So, once again, I am glad you are posting and we all need to learn and understand we are all not the same, even though things may look totally normal.
 
I'm glad you posted here. And I hope you have a wonderful trip! My 7 year old has some mild sensory issues and ADHD, and I have a niece and a nephew who are on the spectrum, so even though I fully realize each child is a wonderfully unique individual, I do have some idea...;)

Very best wishes for a magical trip!:wizard:
 

That is a great pre trip report. I do understand the issues with the airlines and we bring a DVD player and benadryl along with us. DS is almost 4 with autism.

We love the world because for that short time, our special children are just like all the NT children. They scream with excitement at the sight of the mouse and laugh like all the NT's. It is what keep us going back. We did three trips in one year!

I hope we end up in the parks together sometime so we can say hi and enjoy the happiness of our children.

:grouphug: April
 
Thanks for posting! We all look forward to your trip report and wish you a MAGICAL vacation:wizard: full of love, fun, and pixie dust!pixiedust:
 
I'm looking forward to reading your report - hopefully you will report back on a magical trip full of dreams granted!:thumbsup2 I'm also interested in hearing your take on the Reunion Resort...my company purchased a condo there earlier this year and I can't wait to stay there...the pictures of the place look STUNNING!!!

Look forward to reading more!!:hippie:
 
Looking forward to your TR! We have a 7 year old son who is on the spectrum. He is our mystery kiddo. No one can give us a dianosis and we've tried tons of things, but not much seems to help.

He's going through a phase right now where he wants to just "stay home and play." We're leaving for WDW in 3 weeks. Hopefully by then , he'll be ok with going. When we first mentioned it to him, he did not like the idea. We just went for 2 weeks in October and had a blast so I'm surprised he didn't want to go again. :confused3 One thing I hear a lot is that he's consistently inconsistent and that is so true.

He usually loves WDW. Altogether he's been there about 6 times and to Disney Land twice. He does really well travelling, but I've got a bad feeling about this next trip....I hope yours goes well and look forward to reading about it!
 
I hope you had a great trip and come back soon to tell us all about it!:surfweb:

Allyson
 
I just wanted to join in and say that I too am really looking forward to hearing about your trip. Hope you all had a wonderful time!
 
Thank you for posting here! We just got back from DW and my 3 year old son has Autism. We also have a 6 year old daughter. My husband works for Southwest and my mom works for Delta. Even though we fly more often than most, my stomach still sinks when I know I will be flying with both of them.

I can't wait to read more!
 
My wife is Linnie the Pooh (above, post #8) and I think we know what you're going through... although, we've only got one.

The funny thing about our little guy is he does so well on vacation. No problem on the plane, no problem waiting in lines, loves hotel rooms and swimming pools (splashing around like yours!). His only "thing" is he doesn't want to go out after dark and do anything. He really likes being "home" or in the hotel room.

This is one of the many reasons we keep going back. Three weeks per year seems crazy to our friends and family but they just don't understand. It's our happy place and we really don't want to go anywhere else.

Have fun. Am definitely subscribing to this trippy. We leave ourselves in 3 weeks.

Go Banana --> :banana:
 
Looking forward to reading your trip report. My son(14) was diagnosed very young with high functioning autism and ADHD. Last week he actually sat in on his first CSE meeting to discuss his needs for high school. I still can't believe how well he did.:love:
We waited a long time until we felt that he was ready for his first Disney trip and thank goodness it went well and he loved it.:woohoo: My worst vacation idea was a camping trip for a week bigggg mistakeeee and
nothing we did could make it better for him. What was I thinking?:confused3
So, we'll stick with Disney(works for me too!) although he did do pretty well on a trip to California last year.
Hope you and your family had a magical trip.:wizard:
 
Can't wait to hear about your trip! Our DS has PDD. Our last trip to WDW 10years ago when he just turned 2 was a disaster. He wasn't diagnosed then and just wouldn't listen, kept running away, having meltdowns, etc and we didn't know why. Hopefully our next trip there this summer will be wonderful since he's much older now. I feel bad that he's not even excited or anything, because not much makes him happy. :( He did say he wants to go though.

I hope you have a great trip!
 
subbing... we also have a child on the spectrum, he will be taking his first disney trip in 9 days!
 


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