Autism Awareness at WDW: One Mom's View

dreamsofdisney

Still has a little Mickey Dust sprinkled on her de
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As we count down the days until our much-anticipated trip to WDW, I thought I would take a few minutes to post this in the hopes that it might increase awareness for my fellow DIS fans.

Maybe you’ll see us this July. You’ll look over at the roped off section for It’s Tough To Be A Bug, or Muppetvision 3D and see a Mom, Dad and teenage boy standing in the wheelchair accessible section. Or we’ll be walking down the EXIT ramp at It’s A Small World. Maybe you’ll roll your eyes and wonder why we’re trying to cut the line when we’re obviously not using a wheelchair. Perhaps you’ll see us going through the Fast Pass lane with a different looking card instead of Fast Pass tickets and think to yourself “What makes them so special?” or say, “Must be nice!” with a sarcastic tone of voice. After all, you can’t see any reason why we should be allowed to have a shorter wait. All children hate waiting in lines!

Let me introduce you to my family. I’m a 30-something-year-old Mom who recently married a wonderful 30-something-year-old man. Together, we are raising my bright and challenging 13-year-old son. My son is growing taller than me by the minute, has a deep love for Disney and Star Wars, a quick wit and great and sense of humor. He also happens to have Autism. You can’t see his Autism, but he lives with it every day. There are daily struggles to understand basic social interactions. He often responds inappropriately in social situations. He might yell out something, speak too loudly, or growl and say something rude if he’s feeling anxious. He’s been known to get very upset if he perceives people to be talking about him (although they’re probably not) or if he thinks they’re standing too close. You might see him talking (at length!) about the ride we’re about to go on. Many children with Autism can talk! But the slightest thing can set him off and we might need to make a break for the nearest exit. The long lines and close proximity to large groups of people is just too much for him. We’d love to be able to go during a less busy time of year, but he can’t afford to miss any therapies during the school year.

My son works very hard all year to get through the little steps that your child takes for granted. There are no play dates after school to ride bikes with the kids down the street. No lacrosse games or soccer tournaments. No ballet recitals or band concerts. No school dances or sleepovers. (Although some children with Autism do have these wonderful experiences, they are not feasible for my son.) Instead, he has Speech and Occupational therapies, countless doctors appointments, and attends a special school with social skill training groups and intensive, individualized education. Every vacation our family has taken this year has ended in tears after the stress of change has proven to be too much for him, and he’s had more meltdowns than I care to count. Our annual Disney trip is the one time that my son gets a break. Where he gets to be treated a little extra special and has his moment of magic.

So when you see us (or someone like us) on your next trip, please remember that you don’t know what it’s like until you’ve walked a mile in someone else’s shoes. And take a moment to appreciate your child and all of his or her special gifts. I know I’ll be doing the same with mine!

Thanks and have a Magical Vacation!

:wizard:
 
Very well written.
One of my most enjoyable second graders was a yourn man with Autism.
I hop you have a wonderful trip- and enjoy all the magic of Disney! My prayer for you is that you have a wonderful trip and only encounter all the wonderful people!
 

I hope you and your family have a wonderful time and hope it goes as smoothly as possible.
 
Whoa - just realized we are nearly neighbors!!!!!! We live in Simsbury! :wave:

I have a neighbor who teaches at a special needs only school in the Hartford area and also a friend who teaches a class of mostly autistic kids at King Phillip school.

If we see you in the mall, at the movies or anywhere else, I will keep your post in mind as well. It is a very well put account of the challenges your family faces, and not just at WDW.
 
My brother has autism. A few years back we went to Universal and used the handicapped entrance. It was the only way my family would have been able to enjoy any of the attractions. As it was we spent 3/4 of the trip looking around outside because he was too scared to enter many of the rides without knowing what was in the building. It's a shame when people just don't understand and give dirty looks. They think because he looks "normal" that he must be "normal" but that isnt always the case. Enjoy your trip with your family and continue to spred the autism awareness.

~Kristy
 
Your post brought tears to my eyes. What a wonderful mom and dad this sweet boy has! He is a lucky boy and I hope he has a great and magical time at Disney!

Lori
 
sara74 said:
Whoa - just realized we are nearly neighbors!!!!!! We live in Simsbury! :wave:

I have a neighbor who teaches at a special needs only school in the Hartford area and also a friend who teaches a class of mostly autistic kids at King Phillip school.

If we see you in the mall, at the movies or anywhere else, I will keep your post in mind as well. It is a very well put account of the challenges your family faces, and not just at WDW.

I actually work in Simsbury in the Ready Set Go program for children with Autism Spectrum Disorders! I guess it really is a "Small World" after all!
:rotfl:
Thanks to everyone else for their kind words and encouragement!
 
Wonderful post! This should be required reading for EVERY person who comes to the DIS. Or even before visiting Disney or Universal or anywhere else.

I'm deaf with a cochlear implant (isn't modern technology amazing??) and have the use of GAC card to get access to the open captioning when available. I get those looks too. I had one lady do a really rude look at me on our last trip to WDW. I just pulled my speech processor off my head (that was hidden under my hair), pretended to adjust the settings on it, and plopped it back on my head without bothering to refix my hair to cover it up. Having a magnet in my head is actually kinda fun sometimes. Unless you're going through airport security.

:teeth:

Needless to say, she looked very embarrassed after that. Especially after heaing my husband say to the CM, "my wife needs the use of the open captioning."

Yeah, I get a sick sense of satisfaction like that sometimes. Heh. But that's what you get when you go out of your way to make sure I see your rude stares & glares.

DreamsofDisney, have you ever had those autism awareness cards printed up? I hear those things can be useful sometimes.

I hope you guys have a very magical time in July! :wizard:
 
BionicEar said:
I just pulled my speech processor off my head (that was hidden under my hair), pretended to adjust the settings on it, and plopped it back on my head without bothering to refix my hair to cover it up. Having a magnet in my head is actually kinda fun sometimes. Unless you're going through airport security.

Ok I know I just posted but I about fell off my chair reading your post, sounds like you have a great sense of humor. :lmao: :lmao: :lmao: :lmao:
 
You said it beautifully and brought tears to my eyes because me and my dd both suffer from invisible disabilities. People have a hard time understanding these type of disabilities because when you look at us we look normal. I suffer with nerve pain and even though you may see me standing, I'm probably in pain and some days the pain is unbearable. My 4 year old dd is in the process of probably being diagnosed with Autism, Asperger's Syndrome. This whole trip in general is going to be difficult for us but we are going for the "magic" and want to experience it like everyone else. I truly wish there was a way for everyone to be understanding. Like I've told my family and friends, I don't expect you to understand what we are going through because honestly we can't expect them to really understand the pain or challenges, but I just want their understanding. (Hope that made sense)
I really hope you and your family have a great time.
 
It is a struggle, my good friend's son is the exact same way.....I see her struggles, and though I cannot fully understand her position, I see it and I commend her and all others !!!
He is a cute, smart, little boy and you Mom's are wonderful, understanding, terrific parents !!!
Be Proud & Have a Magical Time !!
I applaud you !! And to those who give you strange looks.......SO WHAT !!!!
This is you life, and your family's memories, that's what Walt would have wanted !!
Be Happy !! Enjoy Life's Journey !!!
 
I just wanted to add some encouragement and thanks for the eye opener. I hope your family has a wonderful and enjoyable vacation.
 
Thank you so much for posting this. My dd 8 is on the spectrum, and I totally understand the magic of these trips that these kids cling to.
At about 4 a.m last night, she came in and woke my dh to tell him- "Only 161 more days dad" :lovestruc . She doesn't experience the typical joys of childhood that you expressed either.
Your post was right on the mark- I can't thank you enough for your attempt to enlighten others who may not see families like ours. :thumbsup2
 

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