Hey guys,
Everyone okay? We are on page 4!
We are changing the name of our fundraiser to Nicholas' Nickels as it sounds more empowering. Our kick off is March 21. I know that some of you are donating individually and we appreciate it greatly. If you would like information sheets, donations forms, etc. to take to work or have your own fundraiser through work or church let me know and I'll send it to you.
We are doing okay. Nicholas had a rough week last week. Monday I picked him up from school after he called and said he did not feel good and he looked so bad I took him across the street to the fire station and ambulance. The ambulance had just left but his blood pressure and pulse were okay. I always worry about an adrenal crisis. We called the pediatrician who wanted to see him anyway, so we went there. She then sent us to the hospital for blood work so that we would get the results quick instead of waiting a few days. She was worried about his sodium levels (complicated but he does not produce the hormone that tells your kidneys to hold fluid that you drink to feed your body so he has to take a replacement and it is not always exact. Sodium levels to high or too low can be fatal). All that came back normal and the doctor called St. Jude who wanted more blood work done. All of it came back fine. He was feeling better by the end of the day with really no explanation of what was going on. Friday afternoon after school he said he had a headache and was ready for some Tylenol. By 9:00 that night, he was in severe pain with no relief. The thing that scared me was that he was complaining about his neck and his back hurting which he complained about the night of the diagnosis as well and it was because all his spinal fluid was in his head from the tumor blocking it from going into his neck and spine. So back we went to the hosptial for an emergency CAT scan. There all night and finally got some relief with stronger medicine. The CAT scan was fine and they ruled it just a migraine. All seems well now except he just kind of blah. I told him he could do anything he wanted today and we went bowling. Do you know that Jared and Nicholas both beat me in the first game!! Second game though I found my groove and won...by very few points... but I won.
Be sure to check out Nicholas' new website. Please sign his guestbook as he looks every day to see if anyone has signed it. Hasn't had any in a little while.