Hi Melissa..
Thank you so much for your long post
Since Ashley came home from the hospital with me and Jess had to stay..Christopher now 8 bonded with her first and when Jess came home asked what was wrong with Jessica's head because he thought the shape of Ashley's was perfectly normal. He was about a week from age 3 when this happened He is still VERY close with Ashley. He calls kids like her or even with Down syndrome..surgery kids lol The part that REALLY affects him and Ashley is starting to notice too..All the stares and rude comments mean people make. I can't even tell you the number of times we have been followed around the mall or a store with a child..staring..pointing..and laughing. 
By the time we leave Christopher is in tears and so am I. Jess knows she has Apert but doesn't really get the difference yet..except for her surgeries and toes and fingers. They want to be in Kindergarten together next year so I'm sure that's when the issues will start to come up. Sometimes I want to just scream at rude kids and people but from talking with others with differences I have leaned that is the worst way to handle it and it only makes the person with the difference feel worse I remember when the girls were babies before Ash had her forehead built..I hated taking them anywhere because with twins..I became an immediate people magnet and instead of seeing the look on peoples faces I would tell them quickly before they even saw her that she had apert..I am so glad that time has passed
I wish I could help you more with the sibling stuff..I'm still learning myself. I wish they had some sib shops closer to my house. Maybe that's something you can look into for Tess.
About the Wheelchair.. Ashley had her first stage of Toe separation with skin grafts taken from her stomach Jan. 5th. She had many stitches on both of her feet and couldn't walk much for 6 weeks. She went to school without the wheelchair for the first time today Previously I had been using a stroller for long distances as she does tire easily. She also has a lot of bone fusion in her feet and her ankles aren't set right so they hurt after a while. I need to go back and read more about Phoebe again.. all the PTR's everyone starts to blend together. I remember her and Tess's adorable faces though Just not your story
Thank you so much for the tips on sea sickness..
I'd really hate for that to mess with our trip
I don't understand why some chapters allow for extensions and other's don't especially if you pay the difference yourself
Hi Momtowishkid .... Thank you for your post
Thank you so much for your long post
Since Ashley came home from the hospital with me and Jess had to stay..Christopher now 8 bonded with her first and when Jess came home asked what was wrong with Jessica's head because he thought the shape of Ashley's was perfectly normal. He was about a week from age 3 when this happened
He is still VERY close with Ashley. He calls kids like her or even with Down syndrome..surgery kids lol The part that REALLY affects him and Ashley is starting to notice too..All the stares and rude comments mean people make. I can't even tell you the number of times we have been followed around the mall or a store with a child..staring..pointing..and laughing. By the time we leave Christopher is in tears and so am I. Jess knows she has Apert but doesn't really get the difference yet..except for her surgeries and toes and fingers. They want to be in Kindergarten together next year so I'm sure that's when the issues will start to come up. Sometimes I want to just scream at rude kids and people but from talking with others with differences I have leaned that is the worst way to handle it and it only makes the person with the difference feel worse I remember when the girls were babies before Ash had her forehead built..I hated taking them anywhere because with twins..I became an immediate people magnet and instead of seeing the look on peoples faces I would tell them quickly before they even saw her that she had apert..I am so glad that time has passed I wish I could help you more with the sibling stuff..I'm still learning myself. I wish they had some sib shops closer to my house. Maybe that's something you can look into for Tess.
About the Wheelchair.. Ashley had her first stage of Toe separation with skin grafts taken from her stomach Jan. 5th. She had many stitches on both of her feet and couldn't walk much for 6 weeks. She went to school without the wheelchair for the first time today
Previously I had been using a stroller for long distances as she does tire easily. She also has a lot of bone fusion in her feet and her ankles aren't set right so they hurt after a while. I need to go back and read more about Phoebe again.. all the PTR's everyone starts to blend together. I remember her and Tess's adorable faces though Just not your story Thank you so much for the tips on sea sickness..
I'd really hate for that to mess with our trip I don't understand why some chapters allow for extensions and other's don't especially if you pay the difference yourself
Hi Momtowishkid .... Thank you for your post
Congrats on getting the dates narrowed down. It depends on the chapter your in wether our not you get a sponser. Our chapter you can sign for a sponser but you dont have to. There is someone else here on the Dis that had to have a sponser before they can even officially let the kids in it but Im pretty sure they still got their dates ahead of time. For us it took a few weeks to get dates after we put in the 3.
