BringBackTapestries said:
We have an Autistic son who lags way back behind us when walking, so if its bad we will have no choice but to leave. Otherwise he'll get lost. He has Oppositional Defiance Disorder (also has Aspergers Syndrome), so "making" him keep up isnt humanly possible. He gets violent and screams.
Just thought I'd say I can remember all too clearly the situation you described above. My eldest son (almost 11 now) was diagnosed with autism many years ago and we went through a couple of years (seemed like forever) of those 'tantrums'. I use inverted commas for 'tantrums' because really there needs to be a new word invented to differentiate between regular toddler "I want chocolate NOW" tantrums and those soul-destroying seagull-pitch intense tantrums like my son mastered. Even considering his 'special' needs his behavioural therapist said he had reached whole new heights of intensity with his outbursts. Poor child was so scared of touch, sound, lights and anything sensory beyond the minimal, he just became overwhelmed with frustration and lay down screaming and screaming and screaming...............
Anyway, I'm rambling. I actually clicked on the thread by mistake and saw your post. But I wanted to say I have been there and I can relate. I know what it's like and my heart goes out to you. It is so difficult and having a child who looks normal but who cannot process the world around him and expresses frustration through ear-piercing screams can leave you feeling very much alone and at oods with other parents. Not saying you feel this way but if you do, that would be perfectly natural.
Thankfully, for me, those days are gone. We were lucky in that, with intensive behavioural therapy, my son's autism was turned around because, despite the odds (and believe me the odds were stacked against us) we 'found' a wonderful therapist who cured my son of 95% of his autism-related problems. He changed our lives. There are still issues (loud noises, heavy crowds, tight spaces etc.) but those issues are a far cry from those old days and, most importantly of all, my son is happy. That's the toughest part by far, seeing your child so deeply unhappy and distraught. Of course, intensive therapy doesn't always prove so successful for autistic or aspergers children, too many variables, too many levels of severity. However, I still remember those times from 1996 to 1999 when our whole lives seemed to revolve around my son's withdrawal from the world. People and their stares! Yes it hurts when you get those dirty looks and yes, it's annoying but try to learn to truly IGNORE them..... it's not just a matter of looking away or saying "to hell with them", you can actually build up a total immunity to such looks. Believe me, I know! lol
Sorry for rambling on and on.... just wanted to let you know that someone far away on the other side of the world has been where you are and I know, it's a heavy load for all of your family (son included) to carry. Good luck to you
