6/13/2009 Western on Magic

[Brooklyn]

I guessed she was on the ASD with your button. They have tested Rees over and over for ASD, but he doesn't fit any of the profiles- PDD, Autism, Aspy. They have finally agreed he isn't ASD, but has sensory issues coupled with severe anxiety and OCD (Obsessive Compulsive just like my DH). The end result is a different label, but some similar characteristics. So we just ignore the labels and do the treatments, therapies, meds, etc that are needed to help out. He's in a fantastic public school system. He is in a regular classroom (he's bright but has LD). He gets pulled out for 2 segments a day for 1:1 (math and reading). Then he is co-taught in the classroom for the other half of math/reading. He gets a special ed Para pro twice a day as well. He also does PT, OT, and Speech twice each weekly. He is very sociable, lots of friends, does great with groups and following directions. Has problems with transitions, loud noises or sudden changes. He's just Rees!

With your DH being gone all the time, I can't imagine how tough it is on you. I am so blessed to have an amazing DH who can be home.

Sometimes I don't want to throw it out there bc I am worried people will judge her or put her in a box that she does not need to be in.

I really don't think Maddy has ASD...I think she is OCD with Sensory Integration Disorder. They said they don't diagnosis OCD till the age of 7 so for now she gets put in PDD NOS. I can't complain though. It has open doors for certain therapies and I am very thankful for that!

It is amazing to see the world through the eyes of a child with special needs. It truly has changed my life and I could not ask for it to be any other way! She was a baby we were not planning to have, she was concieved on an IUD, She was born 8 weeks early and now she deals with all of this. She makes everyday special and I LOVE it!

It is however very hard to not have my husband here. I was so thankful he was here for their surgeries 2 weeks ago. I have done most of their surgeries alone and it was so nice to have someone in that waiting room with me. I was very thankful!

I think it is awesome that you are not sheltering him. There are some parents of kids with special needs that are too worried to take them out and experience all that life has to offer! I think it is great!

This conversation comes at a funny time. This woman I have known for about 5 years now is a friend of mine on facebook. She just sent me a "flair" basically making fun of the "short bus". Huuuummmm, that "short bus" is what Maddy rides to school. It hurt so bad, especially coming from an adult! There are so many things I wanted to say to her but I took the higher road and ignored it. I worry about Maddy and the world she has to grow up in. Sometimes you have to wonder about people! Oh and the best is she goes to my church! GOTTA LOVE IT!

 

[triplefigs]

Sometimes I don't want to throw it out there bc I am worried people will judge her or put her in a box that she does not need to be in.

I really don't think Maddy has ASD...I think she is OCD with Sensory Integration Disorder. They said they don't diagnosis OCD till the age of 7 so for now she gets put in PDD NOS. I can't complain though. It has open doors for certain therapies and I am very thankful for that!

It is amazing to see the world through the eyes of a child with special needs. It truly has changed my life and I could not ask for it to be any other way! She was a baby we were not planning to have, she was concieved on an IUD, She was born 8 weeks early and now she deals with all of this. She makes everyday special and I LOVE it!

It is however very hard to not have my husband here. I was so thankful he was here for their surgeries 2 weeks ago. I have done most of their surgeries alone and it was so nice to have someone in that waiting room with me. I was very thankful!

I think it is awesome that you are not sheltering him. There are some parents of kids with special needs that are too worried to take them out and experience all that life has to offer! I think it is great!

This conversation comes at a funny time. This woman I have known for about 5 years now is a friend of mine on facebook. She just sent me a "flair" basically making fun of the "short bus". Huuuummmm, that "short bus" is what Maddy rides to school. It hurt so bad, especially coming from an adult! There are so many things I wanted to say to her but I took the higher road and ignored it. I worry about Maddy and the world she has to grow up in. Sometimes you have to wonder about people! Oh and the best is she goes to my church! GOTTA LOVE IT!

Maddie and Rees sound a lot alike! Rees' big clue for OCD instead of ASD was that his "fixations" change frequently. Like he'll be totally obsessed with a certain video for a week and then no interest for months. But the next week he'll be obsessed with making sure all the doors are closed. Then it'll be what day is ??? happening? His Dev Ped said that was a sure sign of OCD. Coupled with the sensory and anxiety it presented as ASD at first. But he has always been friendly, good eye contact, never fixated on spinning/fans/flapping, no Aspy signs, etc. It took a while, but I think we have it now. Most people really are surprised when they meet him that he has issues. He's very good at blending in with his peers which is fabulous!

I'm sorry that friend was so mean. Rees is on the regular bus, but our next door neighbor's child (ASD) is on the short bus. It's been so good for our trio to be exposed to children of ALL abilities thru therapy, hospitals, friends. I'm hoping to raise kids who only notice whether someone is nice and a good friend- not the other crap that we adults focus on.

 

[Brooklyn]

Maddie and Rees sound a lot alike! Rees' big clue for OCD instead of ASD was that his "fixations" change frequently. Like he'll be totally obsessed with a certain video for a week and then no interest for months. But the next week he'll be obsessed with making sure all the doors are closed. Then it'll be what day is ??? happening? His Dev Ped said that was a sure sign of OCD. Coupled with the sensory and anxiety it presented as ASD at first. But he has always been friendly, good eye contact, never fixated on spinning/fans/flapping, no Aspy signs, etc. It took a while, but I think we have it now. Most people really are surprised when they meet him that he has issues. He's very good at blending in with his peers which is fabulous!

I'm sorry that friend was so mean. Rees is on the regular bus, but our next door neighbor's child (ASD) is on the short bus. It's been so good for our trio to be exposed to children of ALL abilities thru therapy, hospitals, friends. I'm hoping to raise kids who only notice whether someone is nice and a good friend- not the other crap that we adults focus on.

Yes they are a lot alike!!! Maddy has never had problem with eye contact (unless she was chosing not to bc of her anxiety), no spinning, etc...

Most people don't notice Maddy either. We notice it bc I know as her mom the interal struggles she is having! Maddy is the same way...obsessed then not obsessed!

 

[triplefigs]

Yes they are a lot alike!!! Maddy has never had problem with eye contact (unless she was chosing not to bc of her anxiety), no spinning, etc...

Most people don't notice Maddy either. We notice it bc I know as her mom the interal struggles she is having! Maddy is the same way...obsessed then not obsessed!

We started treating Rees for the anxiety (he had HUGE panic attacks that would end him up in the ER) and the OCD. I call them his daily glass of wine, and they make a drastic difference with no side effects (no drowsy, loopy, drugged, etc). We started the meds at age 6, and they are non-stimulant. I see we'll have a lot to talk about on the ship!

 

[Brooklyn]

We started treating Rees for the anxiety (he had HUGE panic attacks that would end him up in the ER) and the OCD. I call them his daily glass of wine, and they make a drastic difference with no side effects (no drowsy, loopy, drugged, etc). We started the meds at age 6, and they are non-stimulant. I see we'll have a lot to talk about on the ship!

Yes we will!

 

[Paula13]

We got some not-so-good-but-could-be worse news today. DH will "temporarily" be laid off from April 10th thru June 1st.

They will pay his insurance and he will be eligible for unemployment benefits but that is no where near his normal pay.

Ugh!! Of course we went and applied for our passports yesterday plus today was the 1st day we have to pay a penalty if we cancel.

I think we are going to try and hold on to it as long as we can to see how things go. If it's truely only until June 1st, we should be ok.

This sucks.

Oh my! I feel for you & your family...will say a pray for you all!

 

[nikkistevej]

OK, I'm not going to get out my suitcases yet(in about 2 weeks) LOL ... but I'm making my packing list- I have to do something!!!

 

[Brooklyn]

OK, I'm not going to get out my suitcases yet(in about 2 weeks) LOL ... but I'm making my packing list- I have to do something!!!

 

[SUZCRUISE]

Boy, I can hardly read fast enough to keep up with you people!

It's funny how much in common you find you have with people just by reading.

I too am a single parent my ex died about 5 years ago, so I am truely a single parent.... bringing grandma on this cruise so I hope I can do some of that alcohol tasting!

I'm also a mother of multiples. I see we have at least 2 sets of triplets and 2 sets of twins going. My heart goes out to you moms dealing with children with issues. My twins were "premature" born about 3-4 weeks early, but I almost feel guilty saying that because they were 6 1/2 and 7 pounds! My 3rd was pretty much full term and 9 pounds (makes me glad I didn't go full term with the twins) Now they are almost 14 and it's hard to even remember them little.... I only vaguely remember the sleepless days and nights. I have to laugh when people complain about 1 baby keeping them up at night, I always say now imagine 2! I hope you Mothers of Multiples are members of a support group. I am a member of the IOMOTC (illinois organization mothers of twins (triplets, etc) club and the NOMOTC National organization mothers of twins, as well as a local group. It's great for socializing and we help each other deal with lives with multiples.

Some of you are excessive planners, I'm more of a seat of my pants kind of person. It stresses me out to be too scheduled, also with 3 kids and being too scheduled I sometimes feel like a drill sargent. I think it's fun just getting the navigator the night before and picking what to do the next day.

I'm really getting excited, this is our second DCL cruise.

 

[triplefigs]

Boy, I can hardly read fast enough to keep up with you people!

It's funny how much in common you find you have with people just by reading.

I too am a single parent my ex died about 5 years ago, so I am truely a single parent.... bringing grandma on this cruise so I hope I can do some of that alcohol tasting!

I'm also a mother of multiples. I see we have at least 2 sets of triplets and 2 sets of twins going. My heart goes out to you moms dealing with children with issues. My twins were "premature" born about 3-4 weeks early, but I almost feel guilty saying that because they were 6 1/2 and 7 pounds! My 3rd was pretty much full term and 9 pounds (makes me glad I didn't go full term with the twins) Now they are almost 14 and it's hard to even remember them little.... I only vaguely remember the sleepless days and nights. I have to laugh when people complain about 1 baby keeping them up at night, I always say now imagine 2! I hope you Mothers of Multiples are members of a support group. I am a member of the IOMOTC (illinois organization mothers of twins (triplets, etc) club and the NOMOTC National organization mothers of twins, as well as a local group. It's great for socializing and we help each other deal with lives with multiples.

Some of you are excessive planners, I'm more of a seat of my pants kind of person. It stresses me out to be too scheduled, also with 3 kids and being too scheduled I sometimes feel like a drill sargent. I think it's fun just getting the navigator the night before and picking what to do the next day.

I'm really getting excited, this is our second DCL cruise.

Wow, we really will have a ship full of multiples! That is so cool. I am sorry about your ex. That must have been very hard on all of you. I am active in my local triplet club. When the kiddos were little, I was very active in several multiples clubs. They are great!

 

[Diane71969]

Boy, I can hardly read fast enough to keep up with you people!

It's funny how much in common you find you have with people just by reading.

I too am a single parent my ex died about 5 years ago, so I am truely a single parent.... bringing grandma on this cruise so I hope I can do some of that alcohol tasting!

I'm also a mother of multiples. I see we have at least 2 sets of triplets and 2 sets of twins going. My heart goes out to you moms dealing with children with issues. My twins were "premature" born about 3-4 weeks early, but I almost feel guilty saying that because they were 6 1/2 and 7 pounds! My 3rd was pretty much full term and 9 pounds (makes me glad I didn't go full term with the twins) Now they are almost 14 and it's hard to even remember them little.... I only vaguely remember the sleepless days and nights. I have to laugh when people complain about 1 baby keeping them up at night, I always say now imagine 2! I hope you Mothers of Multiples are members of a support group. I am a member of the IOMOTC (illinois organization mothers of twins (triplets, etc) club and the NOMOTC National organization mothers of twins, as well as a local group. It's great for socializing and we help each other deal with lives with multiples.

Some of you are excessive planners, I'm more of a seat of my pants kind of person. It stresses me out to be too scheduled, also with 3 kids and being too scheduled I sometimes feel like a drill sargent. I think it's fun just getting the navigator the night before and picking what to do the next day.

I'm really getting excited, this is our second DCL cruise.

WELCOME! I am a single parent also of a 14 DS.

I was in a very very abusive marriage but finally had the courage to escape when my son was 6 months old. Therefore my ex has not seen my son since the day I left with him. I also am truely a single parent and I don't get a penny from him. Due to all the abuse, photos, police reports, death threats and attempts the Judge terminated my ex's parental rights therefore causine me to give up any financial support. It is very hard financially. We are basically in hiding - he can't know where will live, work, school...but it is much better than worrying each day or having to wonder if he'll bring him home from a visitation or what he would do to him while he had him...

It is very hard my DS has never seen his father but he knows everything and why the situation is why it is...I have never hidden anything from my DS and we are sooo close, I don't know what I would do without him!

 

[Brooklyn]

Disney Cruise Line just called....I LOVE seeing their name on my caller id. I wish it was to tell me I was being upgraaded to the Walt Suite, LOL!!!

She said that our request has been received. She said they are processed on a 1st come first served basis and they are processed 25-30 days before sailing. I will keep you updated as I hear more information.

She did say that we can't go below 12 people and no more then 14. Right now I have 17 so I told her that would not be a problem!

She also mentioned that I requested Thursday (the 2nd sea day). I told her that we did not want to miss the CC event on Monday and that some people already spa and different scheduled for the 1st day. She made it seem like that should be ok because she would not want us to miss the CC event.

I will keep you updated!

 

[Diane71969]

Disney Cruise Line just called....I LOVE seeing their name on my caller id. I wish it was to tell me I was being upgraaded to the Walt Suite, LOL!!!

She said that our request has been received. She said they are processed on a 1st come first served basis and they are processed 25-30 days before sailing. I will keep you updated as I hear more information.

She did say that we can't go below 12 people and no more then 14. Right now I have 17 so I told her that would not be a problem!

She also mentioned that I requested Thursday (the 2nd sea day). I told her that we did not want to miss the CC event on Monday and that some people already spa and different scheduled for the 1st day. She made it seem like that should be ok because she would not want us to miss the CC event.

I will keep you updated!

Thanks for doing this for all of us.

You know if you get upgraded to Walt's Suite you are going to have more than 5 in your cabin ? You will have many new friends including myself, I will leave my Cat 12 in a heartbeart

 

[Brooklyn]

Thanks for doing this for all of us.

You know if you get upgraded to Walt's Suite you are going to have more than 5 in your cabin ? You will have many new friends including myself, I will leave my Cat 12 in a heartbeart

Sounds like a plan!!!!

 

[triplefigs]

WELCOME! I am a single parent also of a 14 DS.

I was in a very very abusive marriage but finally had the courage to escape when my son was 6 months old. Therefore my ex has not seen my son since the day I left with him. I also am truely a single parent and I don't get a penny from him. Due to all the abuse, photos, police reports, death threats and attempts the Judge terminated my ex's parental rights therefore causine me to give up any financial support. It is very hard financially. We are basically in hiding - he can't know where will live, work, school...but it is much better than worrying each day or having to wonder if he'll bring him home from a visitation or what he would do to him while he had him...

It is very hard my DS has never seen his father but he knows everything and why the situation is why it is...I have never hidden anything from my DS and we are sooo close, I don't know what I would do without him!

You are so brave and such a strong woman and mom. Larry is lucky to have you and vice versa.

Disney Cruise Line just called....I LOVE seeing their name on my caller id. I wish it was to tell me I was being upgraaded to the Walt Suite, LOL!!!

She said that our request has been received. She said they are processed on a 1st come first served basis and they are processed 25-30 days before sailing. I will keep you updated as I hear more information.

She did say that we can't go below 12 people and no more then 14. Right now I have 17 so I told her that would not be a problem!

She also mentioned that I requested Thursday (the 2nd sea day). I told her that we did not want to miss the CC event on Monday and that some people already spa and different scheduled for the 1st day. She made it seem like that should be ok because she would not want us to miss the CC event.

I will keep you updated!

Thank you so much for doing this! Hopefully, we'll find out about the same time as our cabins are assigned. I saw on a thread that May 2-9 Cat 12's had been assigned earlier this week. We should be about 4 weeks out!

 

[nikkistevej]

WELCOME! I am a single parent also of a 14 DS.

I was in a very very abusive marriage but finally had the courage to escape when my son was 6 months old. Therefore my ex has not seen my son since the day I left with him. I also am truely a single parent and I don't get a penny from him. Due to all the abuse, photos, police reports, death threats and attempts the Judge terminated my ex's parental rights therefore causine me to give up any financial support. It is very hard financially. We are basically in hiding - he can't know where will live, work, school...but it is much better than worrying each day or having to wonder if he'll bring him home from a visitation or what he would do to him while he had him...

It is very hard my DS has never seen his father but he knows everything and why the situation is why it is...I have never hidden anything from my DS and we are sooo close, I don't know what I would do without him!

I think you are an awesome person for taking your son and yourself out of that awful situation!! I'm sure it is hard- you seem like you are doing a great job raising your son.

 

[Diane71969]

You are so brave and such a strong woman and mom. Larry is lucky to have you and vice versa.


Thank you so much for doing this! Hopefully, we'll find out about the same time as our cabins are assigned. I saw on a thread that May 2-9 Cat 12's had been assigned earlier this week. We should be about 4 weeks out!

THANK YOU! It was a very hard decision to make. I don't think anyone knows until they are in that kind of situation, other people look at it like dummy why don't you just leave him.

I was afraid for my life and that of my families. He always told me if I left he would kill me and my family so I stayed. That is until I had a baby and he picked him up one day shook him and yelled I don't know what the #%@! your crying for.

That was it for me, I went the next day got an order of proteection and talked to an attorney. He held loaded guns to my head, knives to my throat, hit, kicked, punched me...but HE WAS NOT GOING TO HURT MY KID and I made sure of that!

Bummer we have to wait a whole month yet to find out our cabin #

 

[nikkistevej]

Disney Cruise Line just called....I LOVE seeing their name on my caller id. I wish it was to tell me I was being upgraaded to the Walt Suite, LOL!!!

She said that our request has been received. She said they are processed on a 1st come first served basis and they are processed 25-30 days before sailing. I will keep you updated as I hear more information.

She did say that we can't go below 12 people and no more then 14. Right now I have 17 so I told her that would not be a problem!

She also mentioned that I requested Thursday (the 2nd sea day). I told her that we did not want to miss the CC event on Monday and that some people already spa and different scheduled for the 1st day. She made it seem like that should be ok because she would not want us to miss the CC event.

I will keep you updated!

Hopefully we'll get it on Thursday!! Thanks again for organizing this for us!!

 

[nikkistevej]

You are so brave and such a strong woman and mom. Larry is lucky to have you and vice versa.


Thank you so much for doing this! Hopefully, we'll find out about the same time as our cabins are assigned. I saw on a thread that May 2-9 Cat 12's had been assigned earlier this week. We should be about 4 weeks out!

I saw that thread too- it made me excited to think we could get our assignments soon!

 

[nikkistevej]

THANK YOU! It was a very hard decision to make. I don't think anyone knows until they are in that kind of situation, other people look at it like dummy why don't you just leave him.

I was afraid for my life and that of my families. He always told me if I left he would kill me and my family so I stayed. That is until I had a baby and he picked him up one day shook him and yelled I don't know what the #%@! your crying for.

That was it for me, I went the next day got an order of proteection and talked to an attorney. He held loaded guns to my head, knives to my throat, hit, kicked, punched me...but HE WAS NOT GOING TO HURT MY KID and I made sure of that!

Bummer we have to wait a whole month yet to find out our cabin #

You are one brave woman!!!