24/7 nursing service?

angelofjoy23

Earning My Ears
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Jun 10, 2011
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I'm looking for some advice. I'm trying to help a friend plan a trip to Disney for one of the residents at the nursing home where she works. This resident is in her late 20s, wheelchair-bound and needs nursing care. They want to send her on this trip but are unsure how to even start planning it. They think she should be able to fly down there assuming the airline can accommodate her wheelchair. They will need a nurse and aide for her while she's down there. Money is not an issue. I told her I can help her put together this Disney trip (book the hotel, tickets, give tips, etc), but I'm not sure how to assist with the nursing care part. Are there services or programs that assist with requests like this? Are there other things they should be aware of when planning a trip like this? I told my friend that the resident should be able to ride quite a few of the rides...I am assuming that was correct? I'm not sure if she will qualify for DAS though, but I'm not an expert in that at all. I welcome any and all advice to help make this a trip of a lifetime for this girl. Thanks!
 
they have gotten very tricked on the DAS. You will have to go thought an interview process where they ask you about her accommodation in everyday life how she handles lines

if you do want to try to get the das do not focus on physical disability but more psychological (if any ) part of her disability
 
US commercial airlines are not prepared to accommodate wheelchair passengers flying in their own wheelchairs. Individuals must be able to transfer to a regular airline seat (or two) and be able to use a seatbelt.

Most larger airplanes can accommodate power wheelchairs in their hold. Pretty much any plane with 20 seats or more and used by a major carrier can accommodate a folding/collapsible wheelchair. Wheelchairs fly free on flights within, from, or to the US.

It is not unheard of that chairs may be damaged in flight. The airline is responsible for any necessary repair, but repairs can take time and substitute equipment is not the same as the original equipment.

Ground transportation between the airport and Disney will need a little bit of planning. Mears buses are accessible, with it noted in the reservation. Mears also offers accessible taxis and private shuttles.

Pretty much all Disney operated transportation routes are wheelchair accessible. For some boat routes, you may need to wait for the next boat as not all watercraft on each route is accessible.

Staying offsite will make your world visit much more complicated.

You might look at renting Disney Vacation Club units. Multi-bedroom units are available, and many units have kitchens and in-unit laundry facilities.
 
it would probably be helpful to define “money is not an object.”

If they truly have an unlimited budget it would probably make sense to hire a nurse and aide (or multiple nurses if she needs 24 hour care) from the home where she currently resides. They will be most familiar with her needs, and she will be more comfortable with them vs strangers. They would also travel with her, which would help at the airport.

What kind of needs and limitations does she have? Eg there are plenty of rides that are “wheelchair accessible” but whether they are appropriate for her will depend on whether she can transfer and other physical considerations. Keep in mind that Disney CMs will NOT help her transfer so that will be on the nurse and/or aide, including navigating the lines themselves.

And I would second the idea of renting a DVC accessible suite to give her and her caregivers a bit of space/privacy. Stay at VGF or BLT for the MK part of the trip and switch to BC/BW/RIV for easier transportation to Epcot and HS.

Other ways to throw money at problems to make life easier:
Transportation: Minnie Vans (Disney owned transportation like a Lyft), car service, or renting a car vs trying to navigate buses.

Lines (from most expensive to least expensive):
VIP Tour - roughly $500-1000/hour, minimum 7(?) hours up to 10 people - and they handle transportation (though I would confirm whether they have accessible vans)
Premier Access - $150-500/day/person depending on park
Lightning Lane Multi Pass and Single Attractions - seems downright cheap compared to the other options, maybe runs you $75-100/day/person

(Edited because at 4am aid vs. aide was too hard to think about)
 
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I agree with the previous poster on all things, especially that she should have a nurse and aide who is familiar with her. Perhaps the ones she has can accompany her? Otherwise, you would have to contact nursing agencies to see if they even do this. Good luck and hope you find a way to have her experience WDW.
 
You/they might try connecting with Advent Health to see what offerings or at least suggestions they can provide.

I agree with the suggestions to line up nursing/aides from an agency local to you/her. I found when dealing with my mom's care, it can be hit-or-miss how dependable an agency can be to actually provide staff for all hours. I realize your request is different, but you are still looking for the same pool of providers as those who need hospice or in-home care. And while you say money is not an issue, be sure they actually have budgeted for this because it adds up very quickly.

I do recall a family years ago who mentioned they always had nursing care planned for a member of their party -- I'll try find that.
 
In addition to Advent Health noted above, here are a few other businesses I've found in a search:
  • Maxim Healthcare
  • HealthForce
  • Bright Star
  • Care.com
  • Make-A-Wish - with the suggestion to reach out to your local chapter to see if they can recommend Orlando-based services
  • Kids Night Out -- I believe they can provide "helper" or "companion" services but maybe not "nursing"
It sounds like this individual will be traveling alone? No family? If that's the situation, please be sure any approvals are in place allowing her to travel. There must be a "guardian" of some sort involved in her case, even if it's the state.

I'd counter the suggestion of renting DVC based on the health situation of the individual. If there is any chance the trip could be cancelled or need to be postponed, renting DVC points gets risky. DVC accommodations may be available to book for cash, allowing for more flexibility in cancellation or changes.
 
This sounds tough to me. A nurse and aide may not agree to being a park helper. They normally stay in one location like a home or a resort room and not on the move all day long. There may be liability factors that would make this difficult, too. They act more like babysitters. This may be too physically demanding.

Then, you have to consider the park logistics involved. It could be very frustrating for a nurse or aide to be familiar enough to navigate it all properly.

When we did this with my mom by wheelchair my husband and I, both were able to help her in and out of rides. One of us would be in front of her and the other would be in back of her. Sometimes, we were side by side with her. And we really didn't do any thrill rides. Soarin' was probably the most adventurous of the rides we did. We saw more shows, street entertainment, parades and fireworks. We did some meet and greets, too. I was a seasoned Disney World vacationer with over 25 trips under my belt.

I think I would first try a local activity like a zoo and see how that goes.

Are there any siblings or others who could join up on the trip?
 
I'm looking for some advice. I'm trying to help a friend plan a trip to Disney for one of the residents at the nursing home where she works. This resident is in her late 20s, wheelchair-bound and needs nursing care. They want to send her on this trip but are unsure how to even start planning it. They think she should be able to fly down there assuming the airline can accommodate her wheelchair. They will need a nurse and aide for her while she's down there. Money is not an issue. I told her I can help her put together this Disney trip (book the hotel, tickets, give tips, etc), but I'm not sure how to assist with the nursing care part. Are there services or programs that assist with requests like this? Are there other things they should be aware of when planning a trip like this? I told my friend that the resident should be able to ride quite a few of the rides...I am assuming that was correct? I'm not sure if she will qualify for DAS though, but I'm not an expert in that at all. I welcome any and all advice to help make this a trip of a lifetime for this girl. Thanks!
You say "they want to send her on this trip" - which is nice, but does she want to go? As others have said, if she can't transfer from her WC to a plane seat on her own, flying won't work unless she can afford to fly private. I agree with having someone familiar with her and needs/care to travel with her, Disney is a lot for able bodied people, never mind someone not familiar with the parks and resorts who is reliant on additional care. Cast are not allowed to do anything more than offer a steadying hand or arm for transfer assistance on to or off of attractions, nor are they supposed to push wheelchairs. The trip can be done and enjoyable, but there is a lot of prep work and research involved. @lanejudy has given some great suggestions, but I think it may be a little more difficult to do if she doesn't have travel assistance from the very start of the trip, meaning starting with the flight to Orlando. If you do reserve a room (or even 2 connecting rooms), make sure you are clear that you need at least one room/villa to by fully accessible. Good luck with your planning!
 
I practice healthcare law in NY. Mostly medical malpractice, nursing negligence, and facility compliance. The scenario that OP describes has many red flags.

At minimum, if it was me, I would think that a need for around the clock, skilled nursing care is very serious; much more so than around the clock aides / home assistance. Requiring this level of assistance demonstrates the fragile state of the resident.

- If it was my friend who worked at a (skilled nursing facility?) and was planning this trip, from a liability standpoint, I would be concerned for her. Unless the friend is at the very top of the chain of command for the facility (or even better, if it’s a multi-entity corporation, for the corporation at large), I would hope that the friend ran it up the chain of command and received corporate approval. In this vein, that the friend / resident also sought medical clearance and that a physician approved it, perhaps with enumerated limitations and safeguards to be strictly followed. The medical clearance would be important for all involved. I would also hope that even if the resident consented, if there is family/friends in the resident’s life, particularly if there is guardianship over the resident, that the appropriate individual(s) in the resident’s life also consent.

- I would speculate that special accommodations may need to be made for the flight, to include, but not necessarily be limited to planning for medical emergency. Perhaps approval from the airline.

- Once in the Orlando area, it seems prudent to have a known provider/practice lined up, for whatever ailment(s) the resident has, in case something adverse were to occur. Without planning, this would essentially be a foreign land with unknown medical providers, at unknown locations. If it was me, I would hate to have to rely on and waste precious time with WDW’s equivalent of, at most, an urgent care setting.

- I would continue to think that 24/7 skilled nursing care is very serious. Does the resident require turning and positioning in bed, other pressure relieving, or other nighttime interventions / administration of ____. If so, may need to find a hotel or other place that can accommodate, e.g., a Hillrom bed or whatever other equipment may be prudent.

- In considering physician approval for the trip and its discrete components, this could very loosely be analogized to medical clearance before surgery. Not considering it being potential malpractice, I personally wouldn’t want my primary to be the one who clears me for a complex procedure. I would want an appropriate specialist to do that. While a primary care physician might be able to clear for a flight and being out of the facility for whatever the duration might be, depending on specific ailment(s) of the resident, I would certainly consider obtaining appropriate specialist clearance (e.g., if orthopaedist is in picture) to ride particular rides. It might be one thing to ride the train around MK, but could potentially place the resident in peril (physical force, elevated heart rate, etc…) to say, ride Tron Lightcycle.

- I am assuming that there are other potential considerations above and beyond those that I have listed.

(Obligatory disclaimer: Nothing within this post is legal advice and there is no attorney-client relationship.)
 
FWIW, I know a family with a similar situation. They have a child that requires 24hr skilled nursing care but is not in a facility but in home. They fly private with their privately hired staff along with the needed medical equipment. They stay offsite in a house and hire a medical transport van for the entire stay.

This is obviously costly but if the funds are there, it's an option. I would suggest finding a travel agent who specializes in disability travel to help with your endeavor.

Good luck (:
 
Honestly, I don't think this sounds like a good idea without tons of planning. She needs a medical person to travel with her from home, on the flight, and stay with her during the entire stay in the hotel room. Someone who knows and is liable for any health issues that may arise. And then you could, as an option, hire a VIP tour guide for them.

I live locally in Orlando. Healthcare here is not amazing compared to other parts of the country, and it's often a challenge for people living here to find decent doctors and takes trying a few out before finding one that is a good fit. I would absolutely not trust a random nurse in Orlando n this situation who actually has time on their hands to do this type of side job.
 
Honestly, I don't think this sounds like a good idea without tons of planning. She needs a medical person to travel with her from home, on the flight, and stay with her during the entire stay in the hotel room. Someone who knows and is liable for any health issues that may arise. And then you could, as an option, hire a VIP tour guide for them.

I live locally in Orlando. Healthcare here is not amazing compared to other parts of the country, and it's often a challenge for people living here to find decent doctors and takes trying a few out before finding one that is a good fit. I would absolutely not trust a random nurse in Orlando n this situation who actually has time on their hands to do this type of side job.
While I certainly don't discount your medical experiences, I am a little surprised. We moved down from the Washington D.C. area about 1 1/2 years ago, and we've been very pleasantly surprised at the quality of care we've found. Both my husband (LVAD, basically a left side artificial heart) and I (severe Crohns Disease, COPD, Diabetes) have serious medical issues. AdventHealth has been great, and Tampa General is amazing for his cardiac needs. It helps that none of these are new conditions, so easier to judge treatment plans.
 
A long shot. Make A Wish arranges these kinds of trips for dying kids.

Is there a way to hire one of those people to help with planning?
 












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