Multiple Myeloma, updated 1/26/11

[karen l]

Marsha, just wanted to say hi & hope you're doing well. You remain in my thoughts and prayers. All the best to you & your family.
God Bless.

 

[NHAnn]

Thinking of you Marsha....keeping you and your family in my prayers

 

[Rustysmom]

Just wanted to say I'm thinking about you Marsha and you and your family are in my prayers.

 

[DisneyFairytale]

They say that God cannot give you more than you can handle.....I really wonder about that statement and am having real questions lately..

I try to be upbeat for all of you, you all know I lost my beloved Tom on October 1....truly one of the great husbands and friends and people are grieving that loss and will for some time..

But it seems his wife.. me has to put her grieving on hold and get into the battle herself with this blood cancer called multiple myeloma....not even sure I am typing it right... the pain is bad in my arm as the liquid tumor is on my neck and so yesterday I walked the halls of Mass General where my loved one walked and had my first treatment of Radiation.....the same radiologist who he adored....and now I am in the battle myself...

There is no cure, it is chronic, there will be tests and more tests,chemo, bone marrow biopsy one is done., now that was not fun... but I ask you this.....keep my family who is in a mess in your good thoughts....they lost their Dad, they are worried about their Mom and I am taking it the best I can.. At times my typing with be erratic as the nerves in my right arm are affected by this tumor... '

Remember this.. all of you here.. life is precious, take your time, smell the roses, do good and love each other... you just never know where life will take you.. I will be in and out but will check in... please stay safe and healthy...

Best,
Marsha

I am so sorry to hear this news. What a blow! Remember that the trials you have, you have because you are the only one who can handle them. The trials I had earlier last year, I had because I was the one to handle them. God obviously has one big plan for you.

I am a very strong faith holder and will make a prayer right away for you, your husband(who I have no doubt is watching over you as we speak), and your family.

I am at loss for words. Life really has some odd cards to play sometimes. All my love from Calgary-Canada.

 

[luvmarypoppins]

Marsha, continued thoughts and prayers for you. Wishing you all the best. Keep fighting tough!!

 

[disney kid at heart]

Marsha, my thoughts and prayers are with you always

 

[AnnaS]

Any updates? Has anyone had any contact with Marsha?

 

[disney kid at heart]

Any updates? Has anyone had any contact with Marsha?

Anna, Marsha hasn't updated since 2/17. Does anyone have a way to contact her? My prayers are being said right now. I pray she's just resting.

 

[disney kid at heart]

Has anyone heard anything from Marsha? She's been on my mind real heavy the past couple of weeks. I pray she is doing ok. sad face

 

[CarolAnnC]

Has anyone heard anything from Marsha? She's been on my mind real heavy the past couple of weeks. I pray she is doing ok. sad face

I know she is doing ok, but I have not personally spoken to her recently. I will try to contact her and ask for her to stop by. I know life is beyond hectic when you are dealing with even half as much as she has on her plate.

I wanted to just let you know that she is "ok" and hopefully will be able to stop by soon to update us here.

 

[AnnaS]

I know she is doing ok, but I have not personally spoken to her recently. I will try to contact her and ask for her to stop by. I know life is beyond hectic when you are dealing with even half as much as she has on her plate.

I wanted to just let you know that she is "ok" and hopefully will be able to stop by soon to update us here.

Thank you Carol for the update.

 

[disney kid at heart]

I know she is doing ok, but I have not personally spoken to her recently. I will try to contact her and ask for her to stop by. I know life is beyond hectic when you are dealing with even half as much as she has on her plate.

I wanted to just let you know that she is "ok" and hopefully will be able to stop by soon to update us here.

Thank you CarolAnnC for the update. Please just let her know she is in our thoughts and prayers continuously.

 

[j's m]

Marsha, if you're reading and just not posting, here's another message that we're thinking about you and praying for you.

 

[Mackey Mouse]

Hi all..

Thanks for checking on me.. I wish I had the best news actually it is good, but with a little twist to it..

I have a remission from the Multiple Myeloma, but the treatment has left me with horrible,, painful neuropathy in my feet. There is no respite from this, no peace, I wish there was.. I take lots of pills such as neurontin for the nerve pain, which I do not think works and I am sure there are others who have nerve pain that would agree with me, and also lots of pain medication every 4 hours, just to get through the day.. The nights are the worst, because when your body relaxes, that is when this activates and so add in pain and burning in my feet, well that does not make for a restful night until the pain pills kick in along with the ativan.. I sound like a drug addict but there is no way around this, it is that bad..

Now, I am praying that this is not permanent, and just a side effect from the treatment that will eventually go away.. that is what I am praying for. I am doing reiki, I am doing massage, I am going to call a pain clinic today to see if they can help me. I am in process of switching my treatment to the Cape while I am in this remission. Alll big procedures will be done at Dana Farber but maintenance will be here on Cape Cod..

There will be no WDW in my future for now as I cannot do any walking, or it will be and a scooter for sure, but I will get there at some point. I know Tom would want that for me.. and I will let you all know when I am going so if you see this woman on a scooter, crying her eyes out behind her sunglasses, missing her guy terribly.. that would be me..

I am trying, truly I am........if I could say to you all the neuropathy was gone... well I would be doing a happy dance for sure.. but I am still struggling..

Any suggestions are always appreciated... and I am willing to try holistic as well.. they claim that even accupuncture cannot help this...

so.. thanks for asking, that is where I am, even the computer hurts to sit at... can you believe it, my beloved computer and it causes pain to my feet..

hugs all around,
Marsha

 

[quasar4legs]

Hi Marsha,
Thanks for the update and I am sorry that you are having to delay the happy dance, it sounds like you are in terrible pain.
No suggestions here just sending you a cyber cuddle and hoping that things improve in the near future.

I can't imagine my beloved computer causing me pain.........can you lie down with a laptop?

Thinking of you.

Quasar

 

[antmaril]

Marsha:

Thank you for the update. I'm very happy to hear that you are in remission, but so sorry that you are in such pain. I hope that this will eventually subside and you can reclaim your life (and do the happy dance!)

You are in my continued thoughts and prayers.

Marilyn

 

[luvmarypoppins]

Marsha, I am happy to hear the news about your remission but my heart breaks for you knowing you are having to deal with all this pain.

I pray that you will be able to find some relief.

Continued thoughts and prayers.

 

[karen l]

Marsha, that's great news about the remission & I hope the neuropathy goes away soon. Continued prayers & best wishes.

 

[AnnaS]

Marsha happy to see you posting.

Very happy that you are in remission and so sorry about the pain. We are all thinking of you. Hang in there.

 

[itsheresomewhere]

Hi all..

Thanks for checking on me.. I wish I had the best news actually it is good, but with a little twist to it..

I have a remission from the Multiple Myeloma, but the treatment has left me with horrible,, painful neuropathy in my feet. There is no respite from this, no peace, I wish there was.. I take lots of pills such as neurontin for the nerve pain, which I do not think works and I am sure there are others who have nerve pain that would agree with me, and also lots of pain medication every 4 hours, just to get through the day.. The nights are the worst, because when your body relaxes, that is when this activates and so add in pain and burning in my feet, well that does not make for a restful night until the pain pills kick in along with the ativan.. I sound like a drug addict but there is no way around this, it is that bad..

Now, I am praying that this is not permanent, and just a side effect from the treatment that will eventually go away.. that is what I am praying for. I am doing reiki, I am doing massage, I am going to call a pain clinic today to see if they can help me. I am in process of switching my treatment to the Cape while I am in this remission. Alll big procedures will be done at Dana Farber but maintenance will be here on Cape Cod..

There will be no WDW in my future for now as I cannot do any walking, or it will be and a scooter for sure, but I will get there at some point. I know Tom would want that for me.. and I will let you all know when I am going so if you see this woman on a scooter, crying her eyes out behind her sunglasses, missing her guy terribly.. that would be me..

I am trying, truly I am........if I could say to you all the neuropathy was gone... well I would be doing a happy dance for sure.. but I am still struggling..

Any suggestions are always appreciated... and I am willing to try holistic as well.. they claim that even accupuncture cannot help this...

so.. thanks for asking, that is where I am, even the computer hurts to sit at... can you believe it, my beloved computer and it causes pain to my feet..

hugs all around,
Marsha

I pm'd you