Multiple Myeloma, updated 1/26/11

Discussion in 'Coping and Compassion' started by Mackey Mouse, Nov 10, 2009.

  1. karen l

    karen l DIS Veteran

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    Marsha, just wanted to say hi & hope you're doing well. You remain in my thoughts and prayers. All the best to you & your family.
    God Bless.
     
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  3. NHAnn

    NHAnn <font color=deeppink>Survivor<br><font color=orang

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    Thinking of you Marsha....keeping you and your family in my prayers :hug:
     
  4. Rustysmom

    Rustysmom DIS Veteran

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    Just wanted to say I'm thinking about you Marsha and you and your family are in my prayers.
     
  5. DisneyFairytale

    DisneyFairytale DIS Veteran

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    I am so sorry to hear this news. What a blow! Remember that the trials you have, you have because you are the only one who can handle them. The trials I had earlier last year, I had because I was the one to handle them. God obviously has one big plan for you.

    I am a very strong faith holder and will make a prayer right away for you, your husband(who I have no doubt is watching over you as we speak), and your family.

    I am at loss for words. Life really has some odd cards to play sometimes. All my love from Calgary-Canada.
     
  6. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    Marsha, continued thoughts and prayers for you. Wishing you all the best. Keep fighting tough!! :hug:
     
  7. disney kid at heart

    disney kid at heart DIS Veteran

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    Marsha, my thoughts and prayers are with you always:)
     
  8. AnnaS

    AnnaS DIS Sponsoor/Veteran

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    Any updates? Has anyone had any contact with Marsha?
     
  9. disney kid at heart

    disney kid at heart DIS Veteran

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    Anna, Marsha hasn't updated since 2/17. Does anyone have a way to contact her? My prayers are being said right now. I pray she's just resting.
     
  10. disney kid at heart

    disney kid at heart DIS Veteran

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    Has anyone heard anything from Marsha? She's been on my mind real heavy the past couple of weeks. I pray she is doing ok. sad face
     
  11. CarolAnnC

    CarolAnnC <font color=blue>Caught Smuggling Jello Shot Syrin

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    I know she is doing ok, but I have not personally spoken to her recently. I will try to contact her and ask for her to stop by. I know life is beyond hectic when you are dealing with even half as much as she has on her plate.

    I wanted to just let you know that she is "ok" and hopefully will be able to stop by soon to update us here. :)
     
  12. AnnaS

    AnnaS DIS Sponsoor/Veteran

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    Thank you Carol for the update.
     
  13. disney kid at heart

    disney kid at heart DIS Veteran

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    Thank you CarolAnnC for the update. Please just let her know she is in our thoughts and prayers continuously.
     
  14. j's m

    j's m DIS Veteran

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    Marsha, if you're reading and just not posting, here's another message that we're thinking about you and praying for you.:hug:
     
  15. Mackey Mouse

    Mackey Mouse <font color="blue">Me read the Navigator? I don't

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    Hi all..

    Thanks for checking on me.. I wish I had the best news actually it is good, but with a little twist to it..

    I have a remission from the Multiple Myeloma, but the treatment has left me with horrible,, painful neuropathy in my feet. There is no respite from this, no peace, I wish there was.. I take lots of pills such as neurontin for the nerve pain, which I do not think works and I am sure there are others who have nerve pain that would agree with me, and also lots of pain medication every 4 hours, just to get through the day.. The nights are the worst, because when your body relaxes, that is when this activates and so add in pain and burning in my feet, well that does not make for a restful night until the pain pills kick in along with the ativan.. I sound like a drug addict but there is no way around this, it is that bad..

    Now, I am praying that this is not permanent, and just a side effect from the treatment that will eventually go away.. that is what I am praying for. I am doing reiki, I am doing massage, I am going to call a pain clinic today to see if they can help me. I am in process of switching my treatment to the Cape while I am in this remission. Alll big procedures will be done at Dana Farber but maintenance will be here on Cape Cod..

    There will be no WDW in my future for now as I cannot do any walking, or it will be and a scooter for sure, but I will get there at some point. I know Tom would want that for me.. and I will let you all know when I am going so if you see this woman on a scooter, crying her eyes out behind her sunglasses, missing her guy terribly.. that would be me..

    I am trying, truly I am........if I could say to you all the neuropathy was gone... well I would be doing a happy dance for sure.. but I am still struggling..

    Any suggestions are always appreciated... and I am willing to try holistic as well.. they claim that even accupuncture cannot help this...

    so.. thanks for asking, that is where I am, even the computer hurts to sit at... can you believe it, my beloved computer and it causes pain to my feet..

    hugs all around,
    Marsha
     
  16. quasar4legs

    quasar4legs DIS Veteran

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    Hi Marsha,
    Thanks for the update and I am sorry that you are having to delay the happy dance, it sounds like you are in terrible pain.
    No suggestions here just sending you a cyber cuddle:hug: and hoping that things improve in the near future.

    I can't imagine my beloved computer causing me pain.........can you lie down with a laptop?

    Thinking of you.

    Quasar
     
  17. antmaril

    antmaril DIS Veteran

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    Marsha:

    Thank you for the update. I'm very happy to hear that you are in remission, but so sorry that you are in such pain. I hope that this will eventually subside and you can reclaim your life (and do the happy dance!)

    You are in my continued thoughts and prayers.

    Marilyn
     
  18. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    Marsha, I am happy to hear the news about your remission but my heart breaks for you knowing you are having to deal with all this pain.

    I pray that you will be able to find some relief.

    Continued thoughts and prayers.
     
  19. karen l

    karen l DIS Veteran

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    Marsha, that's great news about the remission & I hope the neuropathy goes away soon. Continued prayers & best wishes.
    :grouphug:
     
  20. AnnaS

    AnnaS DIS Sponsoor/Veteran

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    Marsha happy to see you posting.

    Very happy that you are in remission and so sorry about the pain. We are all thinking of you. Hang in there.
     
  21. itsheresomewhere

    itsheresomewhere Mouseketeer

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    I pm'd you
     

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