Multiple Myeloma, updated 1/26/11

Discussion in 'Coping and Compassion' started by Mackey Mouse, Nov 10, 2009.

  1. TruBlu

    TruBlu <font color=green>I was very excited to see how yu

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    Happy Birthday Marsha! :flower3:
     
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  3. brat

    brat DIS Veteran

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    Hi Marsha,
    Hope today is a better day than you expect it to be. I am my Moms primary caretaker. Mom also has Multiable Myaloma and is doing well(2 and 1/2 years now). Sending healing hugs your way.
     
  4. MinnyGranny

    MinnyGranny Earning My Ears

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  5. Mackey Mouse

    Mackey Mouse <font color="blue">Me read the Navigator? I don't

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    Just a quick update, I did see my oncologist and it was on my birthday... I figured it was just as good as any other day to hear good news. My numbers are creeping up, it may mean more treatment and I will see him again in March. I will try to put him off till after May if I am still doing ok as I am going on a Disney Cruise with very dear friends to Alaska and I need to do this, it will be hard without my Tommy, but I know he would want him to do this as he always wanted to go to Alaska, again I do these things in his honor..

    So, holding my own, neuropathy still there, increased one med and it is now holding the neuropathy to a minimum, I can deal with that. It is tough sleeping with that kind of hot and cold sensation in your feet and that is when I get it, at night, during the day, just a little numbness and I can handle that.

    I am here, I am doing the best I can, sometimes I only read, sometimes I feel like posting, I try to keep busy during the days, the nights are tough without Tom.....but it is what it is, one of his favorite expressions...

    Remember, live the day, the moment, go for it and enjoy what brings you pleasure, put those little annoying things out of your mind when you can. Another good one that I try to live by, again from Tom, sometimes it does no good to worry about things you have no control over...and so I try to live my life as he did.... fighting for remission and loving his family..

    Hugs to all,
    Marsha
     
  6. AnnaS

    AnnaS DIS Sponsoor/Veteran

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    Thank you Marsha for the update and happy to see you post. One day at a time.

    Tom would want you to go on and see you happy and take each moment and savor it as it comes.

    I just lost my dad to cancer. My mom finished treatment for breast cancer and had open heart surgery and my sister is fighting stage 4 lung cancer. All this - in the last year. It is so hard - but are you right - there are things we have no control over. We have our moments and we need to move on.

    I am sure your feelings are like a roller coaster. No right or wrong.
    Thinking of you and praying for you.
     
  7. karen l

    karen l DIS Veteran

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    Marsha,
    I hope you have a wonderful time on the cruise to Alaska.
    You remain in my prayers. Best wishes, Karen
     
  8. brat

    brat DIS Veteran

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    Have you tried a weighted blanket? My Mom sleeps with one to keep the neuropathy from keeping her awake at night. For her it helps.

    :hug:

    Have a great trip.
     
  9. Straitlover

    Straitlover DIS Veteran

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    Marsha, I wanted to check in and see how you are doing.

    My mother was diagnosed w/ MM back in December 2010. She just had to take a break from chemo because her platelets remain so low plus the neuropathy got really bad in her feet (completely numb) and legs (hurt a lot). They say cycle 4 is where it really kicks in bad. We go back to the onc on 6/20, and they will re-run her blood to see if she can start back. She hopefully gets her port in on 6/21 becasue her veins are shot. Wish we had done that at the beginning.

    She just turned 74 yesterday. Her chemo consists of melphelan/prednisone/velcade, plus monthly Zometa infusions. She just started neurontin to see if helps w/ the neuropathy.

    Prayers and good thoughts for you! (((hugs)))
     
  10. Mackey Mouse

    Mackey Mouse <font color="blue">Me read the Navigator? I don't

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    Cruise was fun and met some really nice people... I am glad I did it, I loved Seattle and would definitely love to go back there sometime..

    I do not see my oncologist again until the middle of June, when I do, I will post an update.. The neuropathy goes on.. but other than that I feel relatively ok... missing my guy and living my life..

    Everyone keep the faith and go for the gusto,
    Marsha
     
  11. mommasita

    mommasita DIS VETERAN Moderator

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    :grouphug: always in my thoughts and prayers. You are an inspiration..:flower3:
     
  12. AnnaS

    AnnaS DIS Sponsoor/Veteran

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    Marsha it's always nice to hear from you and glad you enjoyed your cruise. Keeping you in my thoughts and prayers.
     
  13. minniebeth

    minniebeth <font color=green>I count on y'all to keep me up t

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    Thinking of you as you remain in my prayers~ :hug:
     
  14. kdzgon

    kdzgon DIS Veteran

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    "Marsha, where are you..."

    Does anyone have an update on Marsha/still keep in touch? Marsha was always a blessing to so many, despite her own hardships. I am SO hoping that against all odds, things finally improved for her. I would love to know how she is!

    Laurie
     
  15. TruBlu

    TruBlu <font color=green>I was very excited to see how yu

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    Things have improved for her, she is with her beloved Tommy again.
    Marsha passed away. :hug:

    I miss my sweet DIS friend.

    Sent from Tracey's iPhone using DISBoards
     
  16. CarolAnnC

    CarolAnnC <font color=blue>Caught Smuggling Jello Shot Syrin

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    Marsha's Tommy has been gone 3 years ago yesterday October 1 and she has been gone since July 13 this year.

    They were wonderful people and the only consolation I have on their loss is the fact that they are reunited in Heaven....:sad1:
     
  17. kdzgon

    kdzgon DIS Veteran

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    Thank you for the info - I feared as much. I guess I will adopt the attitude shared by you and TruBlu and take solace in the fact that they are reunited once again.
     
  18. mommasita

    mommasita DIS VETERAN Moderator

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    So well written Carol.............:flower3::grouphug:

    I find myself thinking of them so often during the day, and smile when I think of her meeting Tommy again.
     

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