pacrosby
DIS Veteran
- Joined
- Nov 6, 2009
- Messages
- 1,947
YAY found you!! Don't know if you got back to the Wish Trippers' Unite thread but I posted a 'hi' there as well. My son Matty has HLHS too (he turned 7 in January). We were in WDW/GKTW back in December (so hard to believe it's been that long). We will forever be changed by our experience.
I'm so happy to read that Lauren is doing so well. Matty is another one who also 'appears' perfectly healthy on the outside. Sometimes it's hard to wrap my head around the fact that the 'inside' is such a disaster LOL
Enjoy the planning. I found the incessant planning of the trip to be almost as much fun as the trip itself. There's so much we never would've known about/done if it hadn't been for these boards.
Ask lots of questions................that's what we're all here for
I'm so happy to read that Lauren is doing so well. Matty is another one who also 'appears' perfectly healthy on the outside. Sometimes it's hard to wrap my head around the fact that the 'inside' is such a disaster LOL
Enjoy the planning. I found the incessant planning of the trip to be almost as much fun as the trip itself. There's so much we never would've known about/done if it hadn't been for these boards.
Ask lots of questions................that's what we're all here for


(I learned quite a bit from reading Pamela's TR for Matty)
I really need to make more plans!
for a GKTW fundraiser. That would've been sooooooooooooooo cool!!!!!!!! (for me anyway, noone else would've cared lol)


on Wednesday. She had a fantastic start to trying for a scholarship. She had to grow up quickly when we had Lauren-I was gone so much. Of course she had my mom and dad right next door and then dh was home w/her. She was in school and they would come visit us at the hospital 3-4 times a week. We were inseparable before that so it was hard. I want to make this trip special for her as well. I'm excited I found out about the penguin experience at Seaworld.....she's going to flip!!!! Then we'll be going out one night by ourselves to downtown disney and of course spending several hours at Universal-Harry Potter.
). She's most excited to meet Mickey of course. As for Jordan-she used to be
although they've given us dates and reserved the rental......I'm not sure what that means. I'm getting anxious. I haven't even made any breakfast/dinner reservations b/c I'm really waiting on something concrete!