Wish us luck !!!

[wide awake]

My 14yo DS...15 yo next week, is ASD and has been GFCF for the past 11 months. We have also been using MB-12 shots for the past three months and have seen great improvement since we started the shots. We had slow improvement w/ the diet, but nowhere near the rate we've seen w/ the shots. Anyway, we have the August repo cruise plus a week at WDW booked and paid for. I know DCL and the chefs at WDW will work w/ the diet, but I just can't stand the idea of Charles having to watch others eat pizza, ice cream, etc... for 21 days. At school they are great about not tempting him, and I don't have forbidden foods in the house, and we don't go out to eat. I am going to try introducing some milk in his diet this weekend and see what happens...hopefully his gut is healed enough to take it. If he can't eat regularly I'm cancelling our vacation and waiting till he can go w/o restrictions. He is so good about sticking w/ the diet...we were at the commissary a couple weeks ago and he didn't ask for anything forbidden...and I'm the type of mom that always bought whatever he asked for...in fact it was "if you want it, throw it in the cart" . He wants regular food so much too...a couple times he has moved when I've given him the shots, and the MB-12 has gone on his behind instead of in the fat. I explained to him that I have to give him another, that we're trying to get his stomach back to normal...and he accepts it.

 

[Talking Hands]

Have you asked how he feels about the idea of cancelling?

 

[SueM in MN]

Have you asked how he feels about the idea of cancelling?

I'd say a child his age might decide that the positives of WDW might outweigh the negatives of the food.
Also, a lot of times, wee as parents get more upset about things that our kids can't do than the kids themselves. So you might want to ask him how he feels watching other people eating things he can't. If he can personally notice the positive effects of sticking to the diet, he might be willing to watch others eating what he can't.

 

[wide awake]

I asked him...he wants to go, even if GFCF. But he has also been very specific lately...increased language...about his food wants..."I want garlic supreme pizza" etc...I'm worried that he'll have a meltdown when he is tempted for weeks straight. But some shot benefits we've seen are greatly improved self-control and reasoning. It is so hard knowing what to do. We're getting our passports today, I am optimistic that the regular diet will be okay...one of the studies I read said that the MB-12 shots worked on kids w/ varied diets. I guess we could cancel the WDW portion if he is still GFCF...I reserved that after free dining became available...and go to DL in October, which was our original plan. That would break up the temptations. Sue, you are right...it is so hard for me to deny him anything, or see him hurt...he was having a blood test years ago, and they missed the vein so had to try again...I was a basket case, he just looked at me like get a grip lady.

 

[SueM in MN]

Another thing you might want to do is check out the menus ahead of time (they are listed on the dis boards (www.wdwinfo.com) and also at Deb Wills site (www.allearsnet.com).
That way, you might be able to avoid eating at the restaurants that have the most "tempting" foods. It would also give him an opportunity to see what sorts of things he might like to try at those restaurants (hopefully, nothing will change on the menus by the time you get there). Another thing that might work is giving him one meal a day where he can choose something off his diet. Or, maybe he could choose one item for each meal and ask them to give you a half or 1/4 portion. That way, you'd be able to follow the diet most of the time and still allow him some "treats".

Good luck.

 

[wide awake]

Well, we tried normal food on DS's Bday. We went to Spaghetti Factory, he had garlic cheese bread, spaghetti w/ clam (creamy) sauce and meat sauce, and three servings of spumoni ice cream. His language was good through the weekend...birthday was Friday...but sleep and concentration were WAY off...he also seemed to have some withdrawel things going on (temper !). So we are still gfcf...DS has a vacation coming up next week, I'm going to really work on introducing new foods. If he would only eat some of the foods he could have I wouldn't feel so bad ! I did try introducing forbidden foods in small amounts before the Bday dinner...no problems so think small amounts, spaced out, would probably be okay. In other words, am not going to worry about trace contamination. We will do the cruise, and if I change some of my PSs...Alfredos to Marrakesh, etc...should be able to do WDW. I'll contact DCL tomorrow, and figure out what foods I need to take on the cruise, and what to send to POP. If DS was a diabetic I would not have near the issues that I have...which is my own stupid fault...he has had a reaction, just because it isn't quantified by a blood test doesn't make it any less real. To all those w/ kids on the spectrum...check out Dr. Neubrander's site...DS may still be stuck to the diet, but his language has grown, pretend play is there, and gestural communication is back about 50% of the time. We've tried it all...had DS's IEP Friday, our district worker agreed w/ me, we've done everything...the MB-12 is the only thing that I've ever been amazed by. We've had therapists from the Lovaas clinic (my program was judged the best in town, something to emulate), have had consults w/ Dr. Greenspan, done the diet, tried steroids, yada, yada, yada, MB-12 is my new friend !!!