Wheelchair question

[mamabunny]

Thanks!! All good suggestions. My daughter's venous malformation is in a really tough spot physically (i.e. - foot). This creates this unique dynamic where she needs to be in motion to drain the blood from it. It looks like she is restless but in reality she is just doing it to reduce the pain. When she was younger it used to be painful both to walk, and to remain still. The only way to help it back then was to lie down with her foot elevated to drain the blood. Now she is on an experimental drug that has been a miracle for her. Her favorite thing to do now is walk/run as it keeps the pain away.

You know, you can always try the "bubble" method for your daughter in queues; that's where you station a family member (or two or three) behind her in line, and then allow a "bubble" of about 6 feet or so (any more, and people behind you will probably get pretty cranky) for her to walk around in. As the line ahead of the bubble moves forward, your team of family members keeps her moving forward, and keeps the bubble at about the same size, giving her enough room to keep moving all the way through the queue.

It's a strategy that works for a lot of folks who need to keep moving while stuck in a line that is either slow or stopped.

 

[Xrox]

We got back from the trip last week. Big thanks to all the suggestions and advice here as we pretty much used all of them at one point or another. My daughter had to bow out of a few rides due to long LL waits in the heat, or just overcrowding (she is also very socially anxious). But she had a great time and her pain was only a problem on a few occasions. Overall an awesome trip and Disney made great efforts to make sure that my daughter was in the best position to enjoy herself pain free.

Note: This trip date was planned for us as it was a celebration for an extended family member. That being the case, we will definitely NEVER be going again in the summer as the heat was just brutal. I was hoping it would rain but it never did