What your support meant to me/How we got on

[kazzie]

I'd just like to say that I have had more support and love form the boards than from people in my 'real' life and words can't express what it meant to me.

We went to both meetings,Mattie was having a 'bad' day and was totally uncoperative and disruptive in both meetings.He did manage to tell the psychiatrist that he was sad because he didn't have any friends.She will be talking to the person we already had an appointment with at Great Ormond Street as he specialises not just with children/adolescents but as a neuro something or other,eg. Asperger's,ADHD etc.He will have ongoing care but she did prescribe me anti-depressnats for Mattie.I had a list of questions to ask that I found on the internet,for medication prescribed to children.Are there side affects,is it addictive etc.But he behaved so 'badly' and I was so desperate I just took them!

At the school meeting they agreed they would send the report saying I wanted to try for the two residential schools,but again Mattie wouldn't leave the room or allow us to talk so it was shambolic.I need to call the ed. psch on Monday to find out the procedure.It will take months and Mattie has to go to school in the meantime.

I had a great idea yesterday which I will suggest to school when I have to call them Monday morning.They said the school day is quite long for Mattie and had asked previosly could I collect him in the afternoon to shorten the day.But I had started as a classroom assistant in the afternoons in September so said I couldn't.This job is on hold at the moment.Although I had only worked there for two weeks it was the primary school my 3 children went to and I helped there on a voluntary basis for years.They have said they will give me some time to see if I can get back there.My idea is for Mattie to start the school day later,at 10.45 maybe.So he won't get stressed in the morning walking to school alone,the school day is shorter,I can walk him or drop him off at school.I haven't suggested this yet but I'm sure they will think it's a good idea as they are worried how he will be educated at all at the moment.Plus on a selfish note I can continue to do my four afternoons at school myself!

The process for the residential school will take months,I will get some more idea on Monday.I guess a lot of the delay is if your LEA won't want to pay the fees and you have to fight them,but from what the special needs and the ed. psch have said I probably wouldn't have to go through that.

I worked yesterday in my old job and Mattie was at home with DH.Mattie was brilliant the whole day and evening.Not just no tantrum/rage but just Mattie.I cannot remember the last time this happened,this was before the medication!!It had to be ordered by the pharmacy so he has had one pill yesterday and one today.The dosage is one 50mg tablet a day for a week,then one 100mg tablet a day.

The holiday is looking more promising after his great day yesterday.It will be interesting to see if with the medication and shorter day at school if he can cope there until the residental school is sorted out.

Thanks you all for listening I only hope I can give the same support to others as you have given me.

 

[Mazzy]

Hi Kazzie

It's good to hear that you made some progress at the meetings, let's hope it's not too long before they sort things out for Mattie.

Your idea of taking Mattie into school later is a great one, and I'm sure the school will agree with you.

I really hope that you are able to go on your holiday, maybe the fact that Mattie knows he may be going to the boarding school has helped his state of mind and he feels more positive about the future, I do hope so.

Don't forget we are all here if you need us!

 

[WDWfan uk]

I hope your idea works - it sounds good.

At least now things are sounding more positive after the meetings - sounds as if Mattie is relieved they are done with too

Karen........ I really hope that you get your holiday and that Mattie continues to have good days with the help of the medication.

A big cyber {{{{{{{{hug}}}}}}} to you ........... although you doubt it sometimes, you have great courage and tenacity. Hang on in there Karen, you are doing a great job

 

[UKDEB]

Thanks for the update, Karen. I keep logging on to see if you've posted - I guess we've all been wondering. Things certainly sound a little more promising and it seems you're making some progress. Just a day at a time, mate.

 

[Janice]

Hi Karen
I am so releived to read that at least there has been some positive news towards a satisfactory solution for you and Mattie - and so happy for you all that the holiday is looking more likely now

Dont forget, we are all here for support, to lend an ear when required and share your tears and laughter! Keep us posted, keep your chin up - and major {{{{Hugs}}}} for you all.

 

[Astrid]

Hi Karen

I'm so pleased to read that things have picked up a bit and the holiday looks more likely again, I've got my fingers tightly crossed for you.

I think a lot of us in some way, shape or form try to manage without medication when it's offered to us thinking that we don't want stuff like that in our or our families bodies, but, sometimes it really does do the trick. The daughter of a friend of mine is on ritolin for ADDH and, even though she had severe reservations at first, it really seems to be doing the trick and she can't believe the difference in her daughter's behaviour. I hope that you have the same result with Mattie.

I'll speak to you later

Love, Astrid x

 

[KayleeUK]

Hi Karen

Glad things are looking a little more positive for you

Kaylee

 

[CarolynU]

Hi Karen, I am so glad that there may be a light at the end of a tunnel. You sound like you deserve a huge hug and pat on the back to me. I am afraid that I am technically challenged so I cannot send you a cyber one. However a telepathic one is on its way. Carolyn

 

[Penny12]

I'm so glad things are looking up again for you I hope everything works out and fingers crossed that you'll get the holiday you really need at the moment!

 

[dixie2000]

Hi Karen

I am so glad that things are looking a bit better for you today. I just read your post this morning and my heart went out to you and your family. I hope that your holiday goes ahead as planned.

Love Helen ... x

 

[Sue's Mum]

Hi Karen, I've got everything crossed for you and Mattie and so sincerely hope it all works out.

 

[Mrs Dazzle]

Kazzie - fingers crossed for you all for whichever course is the best for Mattie - and the whole family.

You sound much brighter, so hopefully things will come together now

 

[rob@rar.org.uk]

Hope it works out Kazzie, for you and for Mattie. The medication seems to be a step in the right direction, and I hope the LEA can respond to Mattie's needs.

Best wishes

Rob

 

[Madjock]

Karen there is nothing to say that hasn't already been said but just want you to know that I'm very pleased to hear that there is light at the end of the tunnel for you, Mattie and the rest of your family.

Take care
Annmarie

 

[drennan]

Hi Ya Kazzie

I'm sooooo pleased for you and Mattie, lets hope the good days out number the bad ones, and you get that holiday you all deserve

ttfn

 

[Bwalker]

Hi Karen,

Just wanted to send you a bunch a (((((((((hugs))))))))))) across the pond.

Hugs for you and Mattie and your entire family,
Aloha,
Lorraine