ohMom
Kids Get Arthritis Too!
- Joined
- Oct 8, 2001
- Messages
- 7,363
I just want to run our situation past all you folks and get your opinion. We are going to WDW for 3 days in July and I have some concerns for myself and my DD 16
my DD has had JRA for 10 years and her and I are very attuned to her heatlh. Her fatigue worries me in that it can hit suddenly; and say we are in the middle of EPCOT and she literally is too tired to take another step; and we are staying at the dolphin. And, this Feb she had one of her ankles fused (sub-talar joint) and this is new to us. Anyone have experience with what this may bring? She'll be through her PT by then and walking normally, but again, it's new so i don't know how to prepare/what to expect.
for me --- i have recently had a BLA (bilateral adrenalectomy) and now have Addison's disease. Without my adrenal glands, my body has lost it's salt/electrolytle balancer. I replaced with medications, but I have to adjust for things like heat, humidity, exertion. This is all new to me too! So i'm concnerned that I may overdo it in the heat, and not realize it until i'm past the point of no return. Again, standing in the middle of the park and literally can't take another step.
We plan on mornings at park, afternoon break at the hotel/pool in heat of the day, and evenings at park. I have lost alot of my strength in the process of being ill for the past 2 years and i'm worried about standing in line, for both my DD and me. standing for extended time is difficult for both of us
thanks for listening
my DD has had JRA for 10 years and her and I are very attuned to her heatlh. Her fatigue worries me in that it can hit suddenly; and say we are in the middle of EPCOT and she literally is too tired to take another step; and we are staying at the dolphin. And, this Feb she had one of her ankles fused (sub-talar joint) and this is new to us. Anyone have experience with what this may bring? She'll be through her PT by then and walking normally, but again, it's new so i don't know how to prepare/what to expect.
for me --- i have recently had a BLA (bilateral adrenalectomy) and now have Addison's disease. Without my adrenal glands, my body has lost it's salt/electrolytle balancer. I replaced with medications, but I have to adjust for things like heat, humidity, exertion. This is all new to me too! So i'm concnerned that I may overdo it in the heat, and not realize it until i'm past the point of no return. Again, standing in the middle of the park and literally can't take another step.
We plan on mornings at park, afternoon break at the hotel/pool in heat of the day, and evenings at park. I have lost alot of my strength in the process of being ill for the past 2 years and i'm worried about standing in line, for both my DD and me. standing for extended time is difficult for both of us
thanks for listening
